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Volume  I: 
Executive  Summary 


Report  of  the 
Secretary's  Task 
Force  on 


Black  & 

Minority 

Health 


Margaret  M.  Heckler 

Secretary 


U.S.  Department  of  Health  and 
Human  Services 


Volumel:  J^l ^    _  i?  J.1^   ^  (^W\0D9W 

Executive  Summary 


Report  of  the 
Secretary's  Task 
Force  on 


Black  & 

Minority 

Health 


Margaret  M.  Heckler 

Secretary 


U.S.  Department  of  Health  and 
Human  Services 

August  1985 


SECRETARY'S  TASK  FORCE  ON  BLACK  AND  MINORITY  HEALTH 


MEMBERS 


Thomas  E.  Malone,  Ph.D.,  Chairperson 
Katrina  W.  Johnson,  Ph.D.,  Study  Director 


Wendy  Baldwin,  Ph.D 

Betty  Lou  Dotson,  J.D. 

Manning  Feinleib,  M.D.,  Dr.P.H. 

William  T.  Friedewald,  M.D. 

Robert  Graham,  M.D. 

M.  Gene  Handelsraan 

Jane  E.  Henney,  M.D. 

Donald  R.  Hopkins,  M.D. 

Stephanie  Lee-Miller 


Jaime  Manzano 

J.  Michael  McGinnis ,  M.D. 

Mark  Novitch,  M.D. 

Clarice  D.  Reid,  M.D. 

Everett  R.  Rhoades ,  M.D. 

William  A.  Robinson,  M.D. , 

James  L.  Scott 

Robert  L.  Trachtenberg 

T.  Franklin  Williams,  M.D. 


M.P.H. 


ALTERNATES 


Shirley  P.  Bagley,  M.S. 
Claudia  Baquet,  M.D. ,  M, 
Howard  M.  Bennett 
Cheryl  Damberg,  M.P.H. 
Mary  Ann  Danello,  Ph.D. 
Jacob  Feldman,  Ph.D. 
Marilyn  Gaston,  M.D. 
George  Hardy,  M.D. 
John  H.  Kelso 


P.H. 


James  A.  Kissko 
Robert  C.  Kreuzburg,  M.D. 
Barbara  J.  Lake 
Patricia  L.  Mackey,  J.D. 
Delores  Parron,  Ph.D. 
Gerald  H.  Payne,  M.D. 
Caroline  I.  Reuter 
Clay  Simpson,  Jr.,  Ph.D. 
Ronald  J.  Wylie 


For  sale  hy  the  Superintendent  o£  Documents,  U.S.  Government  Printing  Office 
Wasliincton.  D.C.  20402 


TABLE  OF  CONTENTS 

Letter  of  Transmittal      vii 

Secretary's   Foreword   and  Charge  to   the  Task  Force ix 

Tables    and  Figures         xi 

INTRODUCTION   AND  OVERVIEW        1 

RECOMMENDATIONS  OF  THE  TASK   FORCE 

Health   Information   and  Education    9 

Health   Services       15 

Health  Professions   Development    21 

Cooperative  Efforts      25 

Data  Development 31 

Research  Agenda      37 

ACCOUNTING   FOR  THE  HEALTH    STATUS   DISPARITY 

Social  Characteristics  of  Minority  Populations  47 

Mortality  and  Morbidity  Indicators  63 

Subcommittee  Summary  Reports 

Cancer 87 

Cardiovascular  and  Cerebrovascular  Diseases   107 

Chemical  Dependency   129 

Diabetes 149 

Homicide,  Suicide,  and  Unintentional  Injuries   ....  157 

Infant  Mortality  and  Low  Birthweight    171 

Health  Services  and  Resources  for  Minorities  187 


Inventory  of  DHHS  Program  Efforts   197 

Survey  of  Non-Federal  Organizations   205 

APPENDIX 

Task  Force  Members  and  Alternates   215 

Task  Force  Subcommittees  219 

Task  Force  Staff 227 

Commissioned  Papers   229 

Acknowledgments   237 

Key  to  Abbreviations 239 


^«S!«l.„.,^ 


4 


DEPARTMENT  OF  HEALTH  AND  HUMAN  SERVICES  1?®'^/°'^.?,"    -^  ^     uu 

Black  and  Minonty  Health 


The  Honorable  Margaret  M.  Heckler 
Secretary,  Department  of  Health 

and  Human  Services 
Washington,  D.C.  20201 

Dear  Madam  Secretary: 


National  Institutes  of  Health 
Bethesda,  Maryland  20205 
(301)  496^177 


On  behalf  of  the  Task  Force  on  Black  and  Minority  Health,  I  am 
pleased  to  submit  the  report  and  recommendations  of  the  Task  Force  for 
your  review  and  consideration.  The  report  consists  of  an  executive 
summary  volume  presenting  our  major  findings  and  recommendations ,  and 
additional  volumes  containing  extensive  background  information  and 
analyses  supporting  and  extending  the  executive  summary.  These  will  be 
extremely  useful  to  those  who  wish  to  become  familiar  in  greater  depth 
with  selected  aspects  of  the  issues  we  have  analyzed. 

I  believe  this  report  is  a  landmark  effort  in  analyzing  and 
synthesizing  the  present  state  of  knowledge  of  the  major  factors  that 
contribute  to  the  health  status  of  Blacks,  Hispanics,  Asian/Pacific 
Islanders,  and  Native  Americans.   It  represents  the  first  time  the 
Department  of  Health  and  Human  Services  (DHHS)  has  consolidated  minority 
health  issues  into  one  report.  This  report  should  serve  not  only  as  a 
standard  resource  for  departmentwide  strategy,  but  as  the  generating 
force  for  an  accelerated  national  assault  on  the  persistent  health 
disparities  which  led  you  to  establish  the  Task  Force  a  little  more  than 
a  year  ago. 

It  would  be  a  disservice  to  the  Task  Force  members,  staff  and 
consultants  who  worked  so  diligently  on  this  project  during  the  past 
year,  to  understate  the  complexity  of  the  task  we  undertook.  The  issues 
identified  during  our  deliberations  and  presented  in  this  report  are  of 
major  importance,  but  must  not  be  regarded  as  the  final  word  on  the 
subject.  Just  as  individual  well-being  is  not  static,  the  health  needs 
of  minority  populations  are  changing.  They  are  influenced  by  a  diverse 
set  of  factors  of  which  disease  is  but  one  aspect.  The  report,  then, 
must  continue  to  be  updated  and  revised  as  new  data  and  information 
become  available. 

In  accordance  with  your  charge,  we  have  examined  the  impact  of  a 
broad  range  of  behavioral,  societal,  and  health  care  issues  on  the 
current  departmental  program  areas.  Our  recommendations  are  consistent 
with  the  objectives  for  the  Nation  in  disease  prevention  and  health 
promotion  for  the  year  1990.  The  six  topics  we  have  identified  as 
priority  areas  merit  intensive  action  and  study  in  themselves,  as  do 
various  issues  such  as  nutrition  and  development  of  health  professionals 
that  cut  across  all  health  problem  areas.  We  encourage  the  Department 
to  continue  to  take  the  lead  in  implementing  such  activities. 


Page  2  -  The  Honorable  Margaret  M.  Heckler 


The  Task  Force  accomplished  this  monumental  effort  during  the 
course  of  one  year  only  by  mobilization  of  resources  across  the  DHHS 
agencies  and  by  the  dedicated  contribution  of  all  the  Department  staff 
who  served  on  Subcommittees,  responded  to  our  inquiries,  and  provided 
supporting  documentation  necessary  for  us  to  arrive  at  these  conclusions 
and  recommendations.  In  addition,  many  health  professionals  and 
researchers  outside  the  Federal  government  contributed  to  the  Task  Force 
efforts  by  educating  the  Task  Force  members,  providing  information,  and 
enhancing  our  knowledge  in  ways  we  could  not  have  accomplished  on  our 
own  in  the  time  available  to  us. 

The  report  has  already  had  an  extraordinarily  beneficial  effect. 
The  levels  of  awareness  and  sensitivity  to  the  issues  surrounding 
minority  health  have  been  greatly  heightened  among  the  individuals 
serving  on  the  Task  Force  and  through  them,  within  the  agencies, 
divisions,  and  programs  of  the  Department.  Many  of  the  specific 
activities  proposed  by  the  Subcommittees  of  the  Task  Force  are  being 
integrated  into  the  program  plans  of  the  agencies  represented  on  the 
Task  Force.  Moreover,  we  have  had  the  opportunity  to  share  expertise 
and  cultivate  working  relationships  that  will  last  beyond  this 
particular  effort.  As  a  result,  we  are  better  prepared  to  serve  as 
emissaries  for  positive  action  within  the  Department,  our  communities, 
and  professional  organizations. 

The  Task  Force  encourages  you  to  identify  the  appropriate 
mechanisms  whereby  our  recommendations  can  be  incorportated  into  the 
body  of  the  Department's  programs  and  activities.  If  these 
recommendations  can  be  implemented  with  the  same  spirit  as  their 
genesis,  we  will  advance  as  a  Department  and  as  a  Nation  toward 
improving  the  health  status  of  minority  Americans  today,  with  the 
assurance  that  we  will  all  be  healthier  Americans  tomorrow. 


Sincerely  yours. 


Thomas  E.  Malone,  Ph.D. 
Chairman 


THESECHETARV  OF  HEALTH  AND  HUMAN  SERVICES 

WASHINGTON.  D  C      20201 


In  January  1984 — ten  months  after  becoming  Secretary  of  Health  and 
Human  Services — I  sent  Health,  United  States,  1983  to  the  Congress. 
It  was  the  annual  report  card  on  the  health  status  of  the  American 
people. 

That  report — like  its  predecessors — documented  significant  progress: 
Americans  were  living  longer,  infant  mortality  had  continued  to 
decline — the  overall  American  health  picture  showed  almost  uniform 
improvement . 

But,  and  that  "but"  signaled  a  sad  and  significant  fact;  there  was  a 
continuing  disparity  in  the  burden  of  death  and  illness  experienced 
by  Blacks  and  other  minority  Americans  as  compared  with  our  nation's 
population  as  a  whole. 

That  disparity  has  existed  ever  since  accurate  federal  record  keeping 
began — more  than  a  generation  ago.   And  although  our  health  charts  do 
itemize  steady  gains  in  the  health  status  of  minority  Americans,  the 
stubborn  disparity  remained — an  affront  both  to  our  ideals  and  to  the 
ongoing  genius  of  American  medicine. 

1  felt--passionately — that  it  was  time  to  decipher  the, message  inherent 
in  that  disparity.   In  order  to  unravel  the  complex  picture  provided  by 
our  data  and  experience,  I  established  a  Secretarial  Task  Force  whose 
broad  assignment  was  the  comprehensive  investigation  of  the  health 
problems  of  Blacks,  Native  Americans,  Hispanics  and  Asian/Pacific 
Islanders. 

The  Task  Force  under  the  insightful  direction  of  the  distinguished 
Thomas  E.  Malone,  Ph.D. ,  Deputy  Director  of  the  National  Institutes 
of  Health  and  with  the  invaluable  contribution  of  experts  from 
throughout  the  department,  has  met  its  challenge.   Brilliantly. 
First:   by  a  review  of  departmental  programs  to  determine  how  the 
health  problems  of  minorities  have  been  addressed;  followed  by  a 
careful  analysis  of  the  range  of  health  care  resources  and  information 
available;  and  then — by  a  critique  of  the  health  status  of  Blacks, 
Native  Americans,  Hispanics  and  Asian/Pacific  Islanders.   The  Task 
Force  was  further  charged  with  finding  ways  for  our  department  to 
exert  leadership,  influence  and  initiative  to  close  the  existing  gap. 
The  report  is  comprehensive.   Its  analysis  is  thoughtful.   Its  thrust 
is  masterful.   It  sets  the  framework  for  meeting  the  challenge — for 
improving  the  health  of  minorities. 

It  can — it  should — mark  the  beginning  of  the  end  of  the  health  disparity 
that  has,  for  so  long,  cast  a  shadow  on  the  otherwise  splendid  American 
track  record  of  ever  improving  health. 


%^^.ta'9^:4^^^e£^ 


Margaret  M.  Heckler 
Secretary 


TABLES  AND   FIGURES 


TABLES 

Table  1.   Average  Annual  Total  and  Excess  Deaths  in  Blacks, 

Selected  Causes  of  Mortality,  1979-1981  5 

Table  2.   Percent  Distribution  of  Persons  by  Ethnic/Racial 
Background  and  Sex,  Age,  and  Geographical  Area, 
United  States,  1980 48 

Table  3.   Percent  Distribution  of  Persons  of  Nonminority 

and  Minority  Background  by  Number,  Sex,  and  Geographic 
Distribution,  United  States,  1980  49 

Table  4.   Occupational  Distribution  of  Minority  Groups,  Ratio  of 

Nonminority  to  Minority  50 

Table  5.   Age-adjusted  Death  Rates  by  Selected  Cause,  Race, 

and  Sex,  United  States,  1980 67 

Table  6.   Blacks:   Average  Annual  Number  of  Deaths  by  Disease 

Category,  United  States,  1979-1981   71 

Table  7.   Hispanics :   Average  Annual  Number  of  Deaths  by  Disease 

Category,  United  States,  1979-1981   77 

Table  8.   Native  Americans:   Average  Annual  Number  of  Deaths  by 

Disease  Category,  United  States,  1979-1981   80 

Table  9.   Relative  Risk  of  Death  for  American  Indians  by  Cause   ....     81 

Table  10.  Asian/Pacific  Islanders:   Average  Annual  Number  of  Deaths 

by  Disease  Category,  United  States,  1979-1981    82 

Table  11.  Proportion  of  Cancer  Deaths  Attributed  to  Different 

Factors 88 

Table  12.  Cancer  Incidence  Rates 

Primary  Site  and  Racial/Ethnic  Group   91 

Table  13.  Cancer  Mortality  Rates 

Primary  Site  and  Racial/Ethnic  Group   93 

Table  14.  Five  Year  Cancer  Survival  Rates;  1973-1981 95 

Table  15.  Childbearing  Patterns  among  Racial/Ethnic  Groups, 

1982 176 


XI 


FIGURES 

Figure  1.   Average  Annual  Age -Ad jus ted  Death  Rates  for  All 

Causes,  1979-1981  ' 65 

Figure  2.   Life  Expectancy  at  Birth  by  Race  and  Sex,  United 

States,  1950-1983   66 

Figure  3.   Average  Annual  Excess  Deaths  for  Blacks,  1979-1981  69 

Figure  4.   Average  Annual  Excess  Deaths  for  Black  Males, 

1979-1981 72 

Figure  5.   Average  Annual  Excess  Deaths  for  Black  Females, 

1979-1981 73 

Figure  6.   Average  Annual  Age-Adjusted  Death  Rates  for  Cancer, 

1979-1981 90 

Figure  7.   Average  Annual  Age-Adjusted  Death  Rates  for  Heart 

Disease,  1979-1981  108 

Figure  8.   Average  Annual  Age-Adjusted  Death  Rates  for  Heart 

Disease,  for  Persons  under  45  Years  of  Age,  1979-1981   .  .  .     109 

Figure  9.   Average  Annual  Age-Adjusted  Death  Rates  for  Stroke, 

1979-1981 Ill 

Figure  10.  Average  Annual  Age-Adjusted  Death  Rates  for  Chronic 

Liver  Disease  and  Cirrhosis,  1979-1981  130 

Figure  11.  Percent  of  People  in  the  Most  Obese  Group,  1976   151 

Figure  12.  Death  Rates  from  Unintentional  Injury,  Suicide,  and 

Homicide  by  Race,  1977-1979   158 

Figure  13.  Average  Annual  Age-Adjusted  Death  Rates  for  Homicide  for 

Persons  Under  45  Years  of  Age,  1979-1981  159 

Figure  14.  Infant  Mortality  Rates,  1950-1982  (Blacks  and  Whites).  .  .  .     172 

Figure  15.  Neonatal  and  Postneonatal  Mortality  Rates,  1950-1982  ....     173 

Figure  16.  Low  Birth  Rate  Ratios  According  to  Race  and  Ethnicity, 

United  States,  1982 175 


Xll 


INTRODUCTION  AND  OVERVIEW  OF  THE 
TASK  FORCE  ON  BLACK  AND  MINORITY  HEALTH 


Perspective  of  the  Task   Force  Study 

Despite  the  unprecedented  explosion  in  scientific  knowledge  and 
the  phenomenal  capacity  of  medicine  to  diagnose,  treat,  and  cure 
disease,  Blacks,  Hispanlcs ,  Native  Americans,  and  those  of 
Asian/Pacific  Islander  heritage  have  not  benefited  fully  or  equitably 
from  the  fruits  of  science  or  from  those  systems  responsible  for 
translating  and  using  health  sciences  technology.   With  full 
cognizance  of  this  tragic  dilemma  in  the  United  States,  the  Secretary 
of  Health  and  Human  Services,  Margaret  Heckler,  established  the  Task 
Force  on  Black  and  Minority  Health. , 

Since  the  turn  of  the  century,  the  overall  health  status  of  all 
Americans  has  improved  greatly.   In  1900,  the  life  expectancy  for  the 
United  States  population  at  birth  was  47.3  years;  for  Blacks  it  was 
much  lower--33  years.   In  little  more  than  three  generations, 
remarkable  changes  have  occurred  in  health  care  and  biomedical 
research.   As  pointed  out  by  the  Surgeon  General  in  the  19  79  report, 
Healthy  People,  the  leading  causes  of  death  in  1900  were  influenza, 
pneumonia,  diphtheria,  tuberculosis,  and  gastrointestinal  infections. 
In  the  first  half  of  the  century,  improved  sanitation,  better 
nutrition,  and  immunizations  brought  a  drastic  decline  in  infectious 
diseases.   Today,  these  diseases  cause  a  relatively  small  percentage 
of  deaths  compared  to  1900. 

'^  Knowledge  about  life  processes  in  health  and  disease  is  being 
acquired  at  an  incredible  pace.   Because  of  one  spectacular 
achievement  after  another,  it  is  predicted  that  many  of  the  diseases 
not  now  curable,  will.be  controlled  by  the  year  2000.   This 
i"biological  revolution"  has  placed  into  the  hands  of  health 
professionals  effective  medications,  new  and  complex  diagnostic 
instruments,  and  treatment  modalities  not  dreamed  of  in  1900. 

V  Since  1960,  the  United  States  population  has  experienced  a  steady 
decline  in  the  overall  death  rate  from  all  causes.   Remarkable 
progress  in  understanding  the  causes  and  risks  for  developing  diseases 
such  as  heart  disease  and  cancer  have  important  implications  for  the 
health  of  all  Americans.   The  decline  in  cardiovascular  disease 
mortality  from  1968  to  1978  alone  improved  overall  life  expectancy  by 
1.6  years.   Advances  in  the  long-term  management  of  chronic  diseases 
mean  that  conditions  such  as  hypertension  and  diabetes  no  longer 
necessarily  lead  to  premature  death  and  disability. 

Concomitantly,  advances  in  social  and  behavioral  sciences 
research  and  methodology  have  elucidated  relationships  among 
biological,  behavioral,  and  social  factors  that  affect  health  and 
illness.   The  link  among  these  factors  is  critical  to  understanding 


the  behavioral  underpinnings  of  health,  identifying  effective 
strategies  for  disease  prevention,  maintaining  treatment  regimens,  and 
suggesting  ways  to  change  behavior  for  more  healthful  living  habits. 


& 


[^Although  tremendous  strides  have  been  made  in  improving  the 
health  and  longevity  of  the  American  people,  statistical  trends  show  a 
persistent,  distressing  disparity  in  key  health  indicators  among 
certain  subgroups  of  the  populatiorT^  In  1983,  life  expectancy  reached 
a  new  high  of  75.2  years  for  Whites  and  69.6  years  for  Blacks,  a  gap 
of  5.6  years.   Nevertheless,  Blacks  today  have  a  life  expectancy 
already  reached  by  Whites  in  the  early  1950s,  or  a  lag  of  about  30 
years.   Infant  mortality  rates  have  fallen  steadily  for  several 
decades  for" both  Blacks  and  Whites.   In  1960,  Blacks  suffered  44.3 
infant  deaths  for  every  1,000  live  births,  roughly  twice  the  rate  for 
Whites,  22.9.   Moreover,  in  1981,  Blacks  suffered  20  infant  deaths  per 
1,000  live  births,  still  twice  the  White  level  of  10.5,  but  similar  to 
the  White  rate  of  1960. 


I       The  Task  Force  on  Black  and  Minority  Health  was  thus  conceived  in 
/  response  to  a  national  paradox  of  phenomenal  scientific  achievement 
/   and  steady  improvement  in  overall  health  status,  while  at  the  same 
^time,  persistent,  significant  health  inequities  exist  for  minority 
C^Americaris^   As  the  Task  Force  came  into  being  in  April  1984,  it  was 
evident  that  to  bring  the  health  of  minorities  to  the  level  of  all 
Americans,  efforts  of  monumental  proportions  were  needed. 

Task  Force  Activities 

Secretary  Heckler  appointed  Dr.  Thomas  E.  Malone,  Deputy  Director 
of  the  National  Institutes  of  Health,  the  Government's  chief  agency 
for  supporting  biomedical  research,  as  Chairperson  of  the  Task  Force. 
After  careful  review  of  programs  and  staff  of  the  Department,  18 
senior  scientists  and  officials  were  selected  as  primary  members  of 
the  Task  Force.   These  individuals  not  only  had  expertise  and 
experience  in  the  areas  proposed  for  study,  but  had  the  programmatic 
authority  affording  direct  possibilities  for  implementing 
recommendations  of  the  Task  Force.   The  Task  Force  members  and 
alternates  are  listed  in  the  appendix  to  this  volume.   The  Task  Force 
was  assured  the  necessary  resources  to  carry  out  its  mandate  and  was 
supported  by  a  staff  that  included  a  wide  range  of  health 
professionals  and  technical  staff  from  throughout  the  Department  of 
Health  and  Human  Services  (DHHS) . 

The  Task  Force  on  Black  and  Minority  Health  was  a  unique  and 
historic  assemblage  in  its  own  right.   While  DHHS  has  many  programs 
that  have  significant  impact  on  improving  the  health  status  of 
minorities,  this  was  the  first  time  that  representatives  of  these 
programs  were  joined  in  a  common  effort  to  carry  out  a  comprehensive 
and  coordinated  study  to  investigate  the  longstanding  disparity  in  the 
health  status  of  Blacks,  Hispanics ,  Asian/Pacific  Islanders,  and 
Native  Americans  compared  to  the  nonminority  population. 


The  Task  Force  members  developed  a  broad,  multidimensional 
approach  to  characterizing  the  health  problems  of  minority  Americans. 
The  approach  was  based  on  analyses  of  mortality  data  to  define  the 
extent  of  the  health  disparity,  intense  examination  of  the  major 
health  issues  found  in  the  analyses  to  explore  why  the  disparity 
persists,  and  consultations  with  experts  in  minority  health  issues  from 
the  non-Federal  community. 

The  findings  and  recommendations  generated  by  the  Task  Force 
within  the  confines  of  a  little  more  than  a  year's  time  are  summarized 
in  this  volume.   More  detailed  information  supporting  the  findings 
will  appear  in  subsequent  volumes. 

Data   Review  and  Analysis 

In  its  initial  meetings,  the  Task  Force  carefully  reviewed 
existing  health  status  information  for  minority  and  nonminority 
populations  available  in  Health,  United  States,  1983  and  other 
supplementary  data  sources.   After  analyzing  national  mortality  data 
for  more  than  40  disease  categories,  the  approach  adopted  by  the  Task 
Force  that  best  defined  the  disparity  was  the  statistical  technique  of 
"excess  deaths";  that  is,  the  difference  between  the  number  of  deaths 
observed  in  minority  populations  and  the  number  of  deaths  which  would 
have  been  expected  if  the  minority  population  had  the  same  age  and 
sex-specific  death  rate  as  the  nonminority  population.   This  method 
quantified  the  number  of  deaths  that  would  not  have  occurred  had 
mortality  rates  for  minorities  equalled  those  of  nonminorities . 

Because  of  the  paucity  of  data  relating  to  the  health  needs  and 
mortality  of  Asian/Pacific  Islanders  and  Hispanics  in  the  United 
States,  the  Task  Force  assembled  an  Asian/Pacific  Islander  advisory 
group  and  an  Hispanic  advisory  group.   Each  group  provided  the  Task 
Force  with  data  and  other  information  on  health  problems  within  the 
diverse  ethnic  groups  .that  make  up  the  aggregate  population  and 
initiated  special  data  reviews  to  supplement  inadequate  national 
information. 

Native  Americans  include  American  Indians,  Alaska  Natives,  and 
Native  Hawaiians.  -Most  statistics  cited  in  this  report,  however, 
refer  specifically. to  American  Indians  and  Alaska  Natives.   Where  data 
on  Native  Hawaiians  are  available,  they  are  treated  separately. 

Identifying  the  Major  Contributors  to  the  Disparity 

In  analyzing  mortality  data  from  1979  to  1981,  the  Task  Force 
identified  six  causes  of  death  that  together  account  for  more  than  80 
percent  of  the  mortality  observed  among  Blacks  and  other  minority 
groups  in  excess  of  that  in  the  White  population.   Although  the 
ranking  of  health  problems  according  to  excess  deaths  differs  for  each 
minority  population,  the  six  health  problems  became  priority  issue 
areas  for  Task  Force  study.   Listed  in  alphabetical  order,  they  are: 


•  Cancer 

•  Cardiovascular  disease  and  stroke 

•  Chemical  dependency,  measured  by  deaths  due  to  cirrhosis 

•  Diabetes 

•  Homicide  and  accidents  (unintentional  injuries) 

•  Infant  mortality 

Table  1  presents  the  leading  causes  of  excess  mortality  and  the 
percentage  that  each  cause  contributed  to  the  total  excess  deaths  in 
Blacks  for  the  years  1979  to  1981.   For  Black  males  and  females 
combined,  excess  deaths  accounted  for  47  percent  of  the  total  annual 
deaths  in  those  45  years  old  or  less,  and  for  42  percent  of  deaths  in 
those  aged  70  years  or  less.   More  detailed  analyses  of  excess  mortality 
appear  in  the  section  "Mortality  and  Morbidity  Indicators." 

In  addition  to  measures  of  excess  deaths,  special  analyses  of 
morbidity  and  health  status  indicators  for  minorities  were  developed 
by  the  Task  Force.   These  indices  included  prevalence  rates  of 
selected  chronic  and  infectious  diseases,  hospital  admissions, 
physician  visits,  limitation  of  activity,  and  self -assessed  health 
status.   Prevalence  of  arthritis,  digestive  diseases,  dental  problems, 
and  respiratory  disease  among  minorities  is  poorly  documented  and  data 
were  virtually  unavailable.   Additional  mortality  indices  included 
person-years  of  life  lost,  life  expectancy,  and  relative  risk  of  death 
by  cause.   A  summary  of  these  findings  is  included  in  the  section 
entitled  "Mortality  and  Morbidity  Indicators." 

Some  factors  contributing  to  minority  health  status  are  not 
disease-specific  but  have  bearing  on  the  overall  health  needs  of  each 
minority  group.   Among  those  that  the  Task  Force  reviewed  are 
demographic  data  characterizing  the  four  minority  groups,  minority 
needs  in  health  education,  health  professionals,  and  health  care 
services  and  financing.   A  summary  of  issues  that  cut  across  health 
problem  areas  appears  in  the  sections  of  this  report  entitled 
"Social  Characteristics  of  Minority  Populations"  and  "Health 
Services  and  Resources  for  Minorities. 

Subcommittee  Activity 

For  each  of  the  six  causes  of  death  identified  as  a  priority 
area,  a  Subcommittee  was  formed  to  explore  why  and  to  what  extent  the 
disparity  exists  and  what  DHHS  can  do  to  reduce  it.   The  Subcommittees 
were  charged  with  investigating  the  physiological,  cultural,  and 
societal  factors  that,  in  combination,  perpetuate  health  inequities 
for  minorities.   They  sought  to  understand  the  etiology  of  selected 
conditions  for  different  minority  groups,  explore  potential  means  for 
improving  the  effectiveness  of  treatment,  and  identify  possible 
intervention  strategies  to  prevent  excess  death  and  injury  in  minority 
groups.   Because  of  the  differences  among  minority  groups,  the 
Subcommittees  addressed  each  issue  with  special  attention  to  the 
cultural  milieu  of  that  population  group. 


Tkble  1 


Average  Annual  Total  and  Excess  Deaths  in  Blacks 
Selected  Causes  of  Mortality, 
United  States,  1979-1981 


Excess  Deaths 
Males  and  Females 
Cumulative  to  Age  45 

Excess  Deaths 
Males  and  Females 
Cumulative  to  Age  70 

Number 

Percent 

Number 

Percent 

Causes  of  Excess  Death 

Heart  Disease  and  Stroke 

3,312 

14.4 

18,181 

30.8 

Homicide  and  Accidents 

8,041 

35.1 

10,909 

18.5 

Cancer 

874 

3.8 

8,118 

13.8 

Infant  Mortality 

6,178 

26.9 

6,178 

10.5 

Cirrhosis 

1,121 

4.9 

2,154 

3.7 

Diabetes 

223 

1.0 

1,850 

3.1 

Subtotal 

19,749 

86.1 

47,390 

80.4 

All  Other  Causes 

3,187 

13.9 

11,552 

19.6 

Total  Excess  Deaths 

22,936 

100.0 

58,942 

100.0 

Total  Deaths,  All  Causes 

48,323 

138,635 

Ratio  of  Excess  Deaths  to  Total  Deaths 

47.4% 

42.5% 

Percent  Contribution  of 
Six  Causes  to  Excess  Death 

86.1% 

80.4% 

The  Subcommittees  reviewed  existing  data  and  literature  and 
consulted  with  experts  and  organizations  within  and  outside  the 
Federal  government.   When  scientific  information  for  a  particular 
issue  was  not  readily  available,  research  papers  were  commissioned  to 
review  recent  data  in  each  Subcommittee's  area.   Material  from  most  of 
the  commissioned  papers  was  incorporated  into  the  Subcommittee 
reports.   Many  of  the  authors  contributed  new  analyses  that  augmented 
national  information  already  available  to  the  Task  Force. 

Interaction  With  the  Non- Federal  Community 

In  order  to  supplement  its  knowledge  of  minority  health  issues, 
the  Task  Force  had  extensive  interaction  with  individuals  and 
organizations  outside  the  Federal  system. 

Presentations .   The  Task  Force  and  its  Subcommittees  heard 
presentations  by  experts  in  several  issue  areas .   Presentations 
included  public  health  aspects  of  homicide  and  homicide  prevention; 
special  problems  concerning  the  health  status  of  Asian/Pacific 
Islanders,  and  American  Indians  and  Alaska  Natives;  the  political 
history,  demography,  and  health-related  conditions  of  Hispanics ; 
and  the  use  of  traditional  folk  medicine  and  healers  by  various 
minority  groups . 

Outreach.   Task  Force  members  and  staff  attended  national  meetings 
of  non-Federal  professional  organizations  to  inform  their 
membership  of  the  work  of  the  Task  Force  and  to  solicit  their  views 
on  health  priorities  and  model  intervention  programs. 

Non-Federal  community  survey.   The  Task  Force  surveyed  more  than 
350  non-Federal  organizations  and  individuals  concerned  with 
minority  health  issues.   The  survey  requested  opinions  about 
critical  factors  affecting  the  health  status  of  minorities,  and 
requested  examples  of  successful  programs  and  suggestions  for  ways 
that  DHHS  might  better  address  minority  health  needs.   This  survey 
may  help  to  initiate  cooperative  efforts  between  the  Federal  and 
private  sectors  for  improving  minority  health.   A  summary  of  the 
survey  results  appears  in  the  section  of  this  report  entitled 
"Survey  of  Non-Federal  Organizations." 

Program  Inventory 

The  Task  Force  conducted  an  inventory  of  health  care,  research, 
and  prevention  programs  sponsored  by  DHHS  that  specifically  affect 
minority  populations.   The  inventory  of  DHHS  programs  and  projects  is 
the  first  such  compilation  describing  existing  programs  oriented 
toward  minority  health  in  DHHS .   An  index  to  the  inventory  is  found  in 
the  section  "inventory  of  DHHS  Program  Efforts  in  Minority  Health. 


Task  Force  Report 

The  first  volume  of  the  Task  Force  Report  summarizes  the 
information  and  data  compiled  on  specific  minority  health  problems, 
special  reports  developed  on  cross-cutting  minority  health  issues,  and 
recommendations  proposing  activities  for  a  coordinated  effort  by  which 
DHHS  may  redirect  its  resources  to  address  the  demonstrated  disparity 
in  health  status  between  minority  and  nonrainority  populations.   For 
greater  understanding  of  the  urgency  and  complexity  of  the  issues 
around  which  the  recommendations  were  developed,  all  sections  of  the 
report  should  be  examined. 

Subsequent  volumes  of  the  report  contain  the  complete  text 
prepared  by  the  Subcommittees  that  support  their  findings  and  proposed 
intervention  strategies.   They  are  excellent  reviews  of  research  and 
should  be  regarded  as  state-of-the-art  information  on  specific  problem 
areas  in  minority  health.   Subsequent  volumes  also  contain  the 
complete  inventory  of  DHHS  programs  and  projects  that  benefit 
minorities,  and  an  annotated  bibliography  listing  selected  topics 
related  to  Hispanic  health  issues. 

The  report  of  the  Task  Force  looks  to  the  future.   It 
concentrates  on  specialized  activities  that  should  have  a  direct  and 
timely  impact  on  the  problems  of  minority  health.   Apart  from  the 
descriptions  of  DHHS  programs  referenced  in  the  program  inventory,  the 
report  does  not  analyze  or  examine  the  many  departmental  activities 
and  services  that  benefit  all  Americans,  including  minorities,  such  as 
the  extraordinary  advances  in  biotechnology  and  molecular  biology. 

In  compiling  its  data,  the  Task  Force  tapped  a  broad  range  of 
sources.   Much  information  is  based  on  the  data  systems  of  the 
National  Center  for  Health  Statistics.   Some  data  resulted  from 
special  analyses  conducted  for  the  Task  Force  or  studies  from  other 
sources.   Data  comparisons  are  generally  made  between  minority  and 
nonminority  groups  except  in  those  situations  where  study  data 
specified  White  populations  or  aggregate  (all  races)  populations. 
Because  the  report  was  assembled  during  a  year's  time,  more  recent 
data  on  some  topics  may  now  be  available. 

Context  for  the  Task   Force  Recommendations 

The  Task  Force  acknowledged  that  the  factors  responsible  for  the 
health  disparity  are  complex  and  defy  simplistic  solutions.   Health 
status  is  influenced  by  the  interaction  of  physiological,  cultural, 
psychological,  and  societal  factors  that  are  poorly  understood  for  the 
general  population  and  even  less  so  for  minorities. 

Even  though  the  shared  characteristic  of  economic  disadvantage  among 
minorities  suggests  the  possibilities  of  common  approaches  for 
achieving  improved  health,  diversity  within  and  among  minorities 
necessitates  activities,  programs,  and  data  collection  tailored  to 


meet  their  health  needs.   The  Task  Force  further  observed  that  since 
minorities  are  underrepresented  as  beneficiaries  of  the  predominantly 
nonminority  health  care  establishment,  efforts  by  all  sectors  must 
proceed  vigorously  in  areas  in  which  current  knowledge  can  suggest 
action. 

Recommendations  were  developed  to  emphasize  the  following 
principles:   incorporate  minority  health  initiatives  into  existing 
DHHS  program  areas  in  order  to  address  health  conditions  amenable  to 
immediate  improvement,  press  for  greater  public  and  private 
involvement  in  a  common  effort  to  eliminate  the  health  disparity, 
resolve  unanswered  questions  through  a  concerted  program  of  research 
and  data  collection,  and  seek  new  strategies  to  ameliorate  health 
inequities  between  minorities  and  nonminorities . 

In  the  context  of  these  general  observations  and  with  information 
obtained  from  a  broad  range  of  experts  in  the  field  and  its  own 
deliberations,  the  Task  Force  began  the  long  and  arduous 
recommendation  development  process. 

Early  in  the  process,  the  Task  Force  recognized  that  many 
activities  of  major  importance  to  minority  groups  were  already  in 
progress  within  DHHS.   Therefore,  the  Task  Force  decided  to  emphasize 
new  directions  for  departmental  activities  in  its  efforts  to  reduce 
the  minority  health  disparity.   Many  of  these  activities  are  indicated 
within  the  recommendations  that  follow.   The  Subcommittees,  however, 
proposed  many  other  opportunities  that  relate  more  specifically  to  the 
health  priority  areas.   They  appear  in  the  Subcommittee  reports  as 
"Opportunities  for  Progress."  The  reader  is  urged  to  consider  them  as 
extensions  of  the  recommendations. 

The  recommendations  are  organized  into  six  categories.   They 
emphasize  areas  in  which  the  Task  Force  members  believe  further 
improvements  were  urgently  needed.   The  categories  are: 


•  Health  information  and  education 

•  Delivering  and  financing  health  services 

•  Health  professions'  development 

•  Cooperative  efforts  with  the  non-Federal  sector 

•  Data  development 

•  Research  agenda 

The  Task  Force  joins  with  all  concerned  citizens  in  acknowledging 
the  stark  reality  of  the  continuing,  significant  differences  between 
the  health  of  racial/ethnic  minorities  in  the  United  States  and  the 
general  population  and  proposes  recommendations  for  DHHS  and  others  in 
the  public  health  community  to  address  these  problems. 


Recommendations 
of  the  Task  Force 


HEALTH    INFORMATION   AND  EDUCATION 

Introduction 

The  ability  to  make  informed  decisions  plays  a  significant  role 
in  influencing  the  overall  health  status  of  Americans.   Though  not  a 
panacea,  health  education  has  been  effective  in  increasing  public 
awareness  about  actions  individuals  and  communities  can  take  to 
enhance  personal  health.   The  disparity  in  the  death  rate  between 
nonminority  and  minority  populations  in  the  United  States  (Blacks, 
Hispanics,  Asian/Pacific  Islanders,  and  Native  Americans)  is  a 
compelling  reason  to  investigate  how  health  education  can  contribute 
toward  reducing  this  disparity.   Because  many  of  the  identified 
behavioral  and  environmental  risk  factors  associated  with  the  causes 
of  excess  deaths  among  minorities  can  be  controlled,  more  work  is 
needed  to  educate  minority  populations  about  the  risk  factors  for  the 
six  areas  identified  as  having  the  greatest  impact  on  minority  health: 
cancer;  cardiovascular  disease;  chemical  dependency;  diabetes; 
homicide,  suicide,  and  unintentional  injuries;  and  infant 
mortality. 

RECOMMENDATION  1:   AN  OUTREACH  CAMPAIGN 

The  Department   should  launch   an  outreach   campaign   to  disseminate 
health   information  and  education  materials  and  program  strategies 
specifically  designed  for  minority  sectors  of   the  population, 
including  Blacks,    Hispanics ,    Asian/Pacific  Islanders,    and  Native 
Americans.      The  campaign  should  strengthen  and  expand  present 
departmental   health  promotion   efforts  emphasizing  preventive  aspects 
of  those  public  health   areas  identified  by  the  Task  Force  which   have 
the  greatest   impact  on  death   and  disability  among  minority 
populations :      cancer;   cardiovascular  disease;   chemical   dependency; 
diabetes;   homicide,    suicide,    and  unintentional   injuries;   and  infant 
mortality. 

Access  to  Health    Information 

The  Task  Force  has  reviewed  data  suggesting  that  minority 
populations  may  be  less  knowledgeable  or  aware  about  some  specific 
health  problem  areas  than  nonminorities .   This  situation  is 
particularly  critical  in  those  areas  where  minorities  suffer  a  greater 
burden  of  illness  than  nonminorities.   For  example.  Blacks  and 
Hispanics  have  less  information  about  cancer  and  heart  disease  than  do 
nonminority  groups : 

•  Blacks  tend  to  underestimate  the  prevalence  of  cancer,  give 
less  credence  to  the  warning  signs,  get  fewer  screening  tests, 
and  are  diagnosed  at  later  stages  of  cancer  than  nonminorities. 


•  Hispanic  women  have  less  information  about  breast  cancer  than 
do  nonminority  women.   Hispanic  women  were  less  aware  that 
family  history  is  a  risk  factor  for  breast  cancer,  and  only 
25  percent  of  Hispanic  women  have  heard  of  breast 
self-examination. 

•  Many  professionals  and  lay  persons,  both  minority  and 
nonminority,  do  not  know  that  heart  disease  may  be  as  common  in 
Black  men  as  in  nonminority  men  or  that  Black  women  die  from 
coronary  disease  at  a  higher  rate  than  nonminority  women. 
Hypertensive  Japanese  women  and  younger  men  (18  to  49)  are 
less  aware  of  their  hypertension  than  are  the  nonminority 
subgroups,  according  to  a  1979  survey.   Among  Mexican  Americans, 
cultural  attitudes  regarding  obesity  and  diet  are  often 
barriers  to  achieving  weight  control. 

Programs  to  increase  public  awareness  about  health  problems  have 
been  well  received  in  several  areas.   For  example,  the  Healthy 
Mothers/Healthy  Babies  Coalition,  which  provides  an  education  program 
in  both  English  and  Spanish,  has  contributed  to  increased  awareness  of 
measures  to  improve  health  status  of  mothers  and  infants.   Also, 
increased  knowledge  among  Blacks  of  hypertension  as  a  serious  health 
threat  is  one  of  the  accomplishments  of  the  National  High  Blood 
Pressure  Education  Program.   The  success  of  these  efforts  indicates 
that  carefully  planned  programs  have  a  beneficial  health  effect;  but 
the  job  is  not  complete  and  efforts  must  continue. 

Planning  Health  Information 

Sensitivity  to  cultural  factors  is  often  lacking  in  health  care 
of  minorities.   Although  DHHS  has  considered  cultural  orientation  in 
many  of  its  health  information  programs,  improvement  is  needed. 
Experience  has  shown  that\  key  concepts  to  consider  in  designing  a      i|  J  ,\-j 
health  information  campaigrnhclude:   meeting  the  language  and      ir\W* 
cultural  needs  of  each  identified  minority  group,  using  \j) 

minority-specific  community  resources  for  tailoring  educational 
approaches,  and  developing  materials  and  methods  of  presentation 
commensurate  with  the  educational  level  of  the  target  populatioir?> 
Furthermore,  because  of  the  powerful  influences  of  cultural  factors 
over  a  lifetime  in  shaping  people's  attitudes  toward  health  behaviors, 
health  information  programs  must  be  sustained  over  a  long  period  of 
time.   Examples  of  how  these  concepts  might  be  interwoven  into  health 
promotion  efforts  follow. 

•  Channel  efforts  for  Black,  Hispanic,  Asian/Pacific  Islander, 
and  Native  American  communities  through  local  leaders,  who 
could  represent  a  powerful  force  for  promoting  acceptance  and 
reinforcment  of  the  central  themes  of  health  promotion  messages, 


10 


•  Data  suggest  that  health  messages  are  more  readily  accepted  if 
they  do  not  conflict  with  existing  cultural  beliefs.   Where 
appropriate,  messages  should  acknowledge  existing  cultural 
beliefs . 

•  Involve  family,  churches,  employers,  and  community  organizations 
as  a  support  system  to  facilitate  and  sustain  behavior  change 

to  a  more  healthful  lifestyle.   For  example,  although 
hypertension  control  in  Blacks  depends  on  appropriate  medical 
therapy,  blood  pressure  control  can  be  improved  and  maintained 
by  family  and  community  support  of  activities  such  as  proper 
diet  and  exercise. 

•  Language  barriers,  cultural  differences,  and  lack  of  adequate 
information  on  access  to  care  complicate  prenatal  care  for 
Hispanic  and  Asian  women  who  have  recently  arrived  in  this 
country.   A  model  program  in  Hartford,  Connecticut,  uses  volunteer 
minority  lay  health  workers  to  organize  community  support  networks 
to  promote  perinatal  care  by  disseminating  culturally  appropriate 
health  information  to  Hispanic  women. 

•  Homicide  is  the  leading  cause  of  death  for  young  Black  men  and 
one  of  the  leading  causes  of  death  for  Hispanic  men  and  Black 
women.   It  is  a  major  contributor  to  the  disparity  in  mortality 
rates  between  these  groups  and  nonminorities .   Homicide 
prevention  activities  should  include  strategies  such  as 
behavioral  modification  interventions  for  handling  anger  and 
community-based  programs  that  call  attention  to  the  extent  and 
consequences  of  violence  in  Black  and  Hispanic  communities. 

•  Task  Force  data  suggest  that  the  health  of  some  young  Hispanic 
and  Native  Americans  may  be  seriously  threatened  by  the  emerging 
use  of  inhalants.   Communities  where  young  people  are  at  risk 
because  of  increasing  use  of  such  substances  would  benefit 

from  an  appropriate  and  culturally  sensitive  health  education 
campaign  to  address  this  problem  at  the  community  level. 

DEPARTMENTAL  ACTIVITIES 

In  carrying  out  an  outreach  campaign  to  meet  the  health  information 
needs  of  minority  populations,  DHHS  should  initiate  the  following 
activities : 

•  Assess  existing  departmental  materials  to  ascertain  whether 
health  information  materials  available  to  minority  populations 
are  sensitive  to  their  culture  and  appropriate  to  their  language 
and  reading  level.   Reorient  existing  health  information 
materials  as  necessary. 


11 


7 


'/ 


•  Review  the  accessibility  of  health  information  and  educational 
materials  available  to  identified  minority  populations. 

•  Develop  new  health  information  and  educational  materials,  suitable 
for  specific  minority  groups,  where  none  already  exist.   New 
materials  should  be  formulated  to  be  acceptable  to  the  cultural 
and  language  needs  of  each  targeted  population. 

•  Develop  media-based  messages  in  different  languages  at 
appropriate  reading  levels,  including  culturally  relevant  verbal 
and  print  messages,  to  increase  awareness  and  provide  knowledge 
of  health  issues,  and  promote  behavior  change  to  a  more  healthful 
lifestyle. 

•  Test  improved  or  new  materials  before  general  distribution  to 
determine  if  the  materials  are  both  culturally  acceptable  and 
useful  to  the  target  audience. 

•  Enlist  the  participation  and  counsel  of  professional  and  lay 
members  of  each  minority  group  to  assess  the  suitability  of 
existing  departmental  health  information  materials,  reorient 
materials  to  specific  minority  groups,  develop  new  materials, 
and  distribute  the  materials  through  the  appropriate 
minority-specific  networks. 

•  Encourage  private  organizations  such  as  religious  and  community 
organizations,  clubs,  and  schools,  to  participate  in  developing 
minority  support  networks  and  other  incentive  techniques  to 
facilitate  the  acceptance  of  health  information  and  education. 

•  Emphasize  information  and  educational  materials  in  those  areas 
where  the  health  problems  are  identified  as  most  severe,  the 
target  population  is  at  highest  risk,  and  interventions  are 
likely  to  result  in  improved  health  status. 

•  Distribute  health  information  through  the  established 
communication  networks,  public  and  private,  within  minority 
communities . 

•  Evaluate  the  impact  of  these  efforts  on  health-related  behavior 
and,  where  appropriate,  on  morbidity  and  mortality. 

Patient  Education 

The  benefits  of  health  education  for  overall  health  promotion 
require  a  relatively  long  period  of  time  to  be  realized.   Patient 
education  is  a  component  of  health  education  that  requires  a  much 
shorter  time  for  its  benefits  to  be  observed.   Patient  education 
includes  increasing  a  person's  knowledge  about  identified  health 
problems  and  strengthening  the  ability  to  care  for  that  condition. 


12 


Knowledge  of  appropriate  self -care,  treatment  regimens,  or  beneficial 
behavioral  changes  can  influence  an  individual's  health  status 
significantly  and  alter  the  probability  of  adverse  health  outcomes. 

RECOMMENDATION  2:   PATIENT  EDUCATION 

The  Department   should  ensure   that   its  materials ,    programs ,    and 
technical   assistance  for  patient   education  are  responsive   to  minority 
population  needs,    especially   those  provided  in  specific  health   care 
service  settings  such   as  medical,    community-based ,    school   and 
worksite  locations .      Emphasis  should  be  given   to   those  public   health 
topics   that  have   the  greatest   impact   on  death   and  disability  in 
minority  populations .      Concomitantly ,    attention   should  be  given  by   the 
Nation' s  schools  and  universities   to   training  health   care  providers 
and  educators   to  be  sensitive   to  minority  cultural   and  language 
needs . 

Patient  Education   Is   Interpersonal 

Patient  education  is  often  linked  to  the  delivery  of  medical  care 
or  a  specific  health  problem  and  frequently  takes  place  in  special 
settings,  such  as  hospitals,  schools,  communities,  homes,  or  the 
worksite.   Although  printed  materials  and  information  contribute  to 
the  educational  process,  patient  education  is  inherently 
interpersonal.   The  success  of  the  educational  effort  is  often 
determined  by  the  credibility  of  the  source  of  patient  education  and 
is  highly  dependent  on  the  skill  and  sensitivity  of  the  health  care 
provider. 

Task  Force  data  suggest  that  physicians,  often  seen  in  clinics  or 
emergency  rooms,  are  the  primary  source  of  health  information  for 
Black  and  Mexican  American  patients.   In  addition,  Mexican  Americans 
regularly  seek  advice  from  family  members  on  health  matters.   American 
Indians  and  Alaska  Natives  living  on  reservations  rely  on  Public 
Health  Service  health  practitioners  or  community  health 
representatives  for  information.   Some  Asian/Pacific  Islanders  may 
use  traditional  healers  in  combination  with  physicians.   These 
differences  among  the  minority  groups  need  to  be  given  due  recognition 
in  the  design  and  delivery  of  patient  education  services. 

Patient  education  programs  are  particularly  critical  and  needed 
for  several  health  problems  where  the  impact  on  minority  health  is 
greatest,  such  as  hypertension,  obesity,  and  diabetes. 

Patient  Education    Is  Cost  Effective 

Task  Force  data  suggest  that  patient  education  is  effective  in 
reducing  the  cost  of  health  care.   For  diabetics,  it  has  been  estimated 
that  improving  self-management  skills  through  education  could  reduce 
the  complications  of  diabetes--ketoacidosis ,  blindness,  and  amputations- 
by  up  to  70  percent,  preventing  about  50,000  hospitalizations  a  year. 


13 


Costs  for  prenatal  education  of  pregnant  women  fall  far  short  of  the 
estimated  $15,000  required  for  medical  services  for  each  low  birth 
weight  infant. 

Hospitals  in  Memphis  and  Atlanta  have  had  projects  lasting  more 
than  a  decade  that  offered  prevention-oriented  education  programs 
geared  to  early  detection,  therapy,  and  continuing  follow-up  care  for 
diabetics,  on  the  assumption  that  prevention  is  effective  both  in 
therapeutic  effects  and  in  cost.   The  results  have  supported  this 
assumption.   The  Atlanta  program  has  saved  an  estimated  $11  million  in 
costs,  and  the  Memphis  program,  similarly  cost  effective,  has  seen 
reductions  in  hospitalizations  and  diabetic  complications.   Given  the 
high  prevalence  of  diabetes  among  Blacks,  Hispanics ,  American  Indians, 
and  some  Asians,  the  potential  for  further  savings  in  dollars  and 
suffering  is  considerable. 

DEPARTMENTAL  ACTIVITIES 

Departmental  activities  to  ensure  that  patient  education  materials 
and  programs  are  available  and  suitable  to  specific  minority  groups 
should  include  the  following  recommendations: 

•  Review  and  assess  existing  patient  education  materials,  messages, 
and  media  in  the  Department  to  determine  their  applicability 

and  suitability  to  specific  minority  groups.   Minority  group 
representatives  should  participate  in  planning  and  evaluating 
the  appropriateness  of  materials,  messages,  and  media 
addressing  the  major  health  problems  confronting  the 
minorities . 

•  Develop  new  patient  education  materials,  messages,  and  media  as 
needed,  tailored  to  the  specific  needs  of  minority  populations 
and  designed  for  use  in  specific  health  care  settings. 

•  Encourage  health  professions'  training  institutions  to  develop 
training  programs  so  that  health  care  providers  such  as 
physicians,  dentists,  nurses,  social  workers,  health  educators, 
lay  counselors,  allied  health  professionals,  and  volunteers  may 
gain  increased  awareness  of  and  sensitivity  to  the  health  problems 
and  health  attitudes,  beliefs,  and  concerns  of  minority 
populations . 

•  Ensure  that  minority-specific  patient  education  programs 
incorporate  culturally  relevant  reasons  why  patients  should 
comply  with  the  necessary  medical  regimen.   Mechanisms  for 
involving  minority  organizations  and  disease-specific  voluntary 
organizations  should  be  explored. 


14 


DELIVERING  AND  FINANCING   HEALTH   SERVICES 

Introduction 

The  Task  Force  has  reviewed  data  that  indicate  low  income  and 
lack  of  health  insurance  coverage  are  among  the  most  serious  barriers 
to  seeking  health  care.   Minorities  are  disproportionately  represented 
among  impoverished  Americans.   The  Department  can  serve  as  a  catalyst 
to  promote  action  by  private  and  public  entities  to  address  these 
problem  areas  more  effectively. 

RECOMMENDATION  3:      DELIVERY  AND   FINANCING  OF  HEALTH   SERVICES 

The  Department   should  continue   to  investigate ,   develop,    and 
implement   innovative  models  for  delivery  and  financing  of  health 
services ,   based  on  current  departmental   authorizations .      The  major 
objectives  of  the  models  should  be   to  increase  flexibility  of  health 
care  delivery ,    facilitate  access  to  services  by  minority  populations , 
improve   efficiency  of  service  and  payment   systems,    and  modify  services 
to  be  more  culturally  acceptable . 

Traditional  Measures  of  Health  Care  Services 

The  most  commonly  used  indicators  of  the  adequacy  of  health 
services  for  a  population  include  distribution  of  physicians, 
percentage  of  a  specified  population  who  did  not   see  a  physician 
during  the  past  year,  and  average  number  of  visits  to  a  physician. 
For  these  gross  indicators,  data  are  lacking  for  some  minority  groups. 

These  data  do  suggest  that,  in  general,  availability  of  health 
care  professionals  and  utilization  of  health  services  for  all 
Americans  have  increased: 

•  The  rate  of  increase  in  the  number  of  physicians  in  the  United 
States  has  more  than  kept  pace  with  the  growth  of  the  American 
population.   During  the  period  from  1970  to  1982,  the  American 
population  grew  by  11  percent,  while  the  number  of  physicians 
grew  by  51  percent.   With  the  exception  of  Native  Americans, 
most  minority  populations  live  in  geographic  areas  where 
physicians  are  present.   Little  is  known,  however,  about  the 
practice  patterns  of  medical  specialists  and  the  extent  to 
which  they  treat  minorities. 

•  In  1970,  the  percentage  of  people  who  had  not  seen  a 
physician  in  the  past  12  months  was  30  percent  for  Whites  and 
42  percent  for  non-Whites  (■'•) .   During  the  period  from  1978  to 


The  Census  definitions  of  White  and  non-White  were  used  in  1970. 
People  of  Mexican  or  Spanish  descent  were  coded  "White,"   and  Native 
Americans,  Asian/Pacific  Islanders,  and  Blacks  were  coded  "non-White." 


15 


1980,  these  percentages  were  23  percent  for  Whites,  24  percent 
for  Blacks,  33  percent  for  Mexican  Americans,  and  20  to  24 
percent  for  other  Hispanic  groups . 

•  In  1970,  the  average  annual  number  of  visits  to  a  physician  per 
year  was  4.1  for  Whites  and  3.6  for  non-Whites.   During  the 
period  from  1978  to  1980,  the  average  number  of  physician  visits 
rose  to  4.8  for  Whites,  4.8  for  Blacks,  4.3  for  Mexican 
Americans,  and  from  5.1  to  6.1  for  other  Hispanic  groups. 

No  absolute  standards  are  available  for  measuring  adequacy  of 
health  services.   Data  for  nonminorities,  however,  provide  a  base 
against  which  to  compare  the  use  of  health  services  by  minorities .   In 
sum,  gross  indicators  of  access  to  and  utilization  of  health  services 
show  improvement  for  the  Nation  as  a  whole  and  for  those  minorities 
for  whom  data  are  available. 

Traditional  Measures  Are  Incomplete 

The  narrowing  of  the  disparity  in  reported  use  of  health  services 
between  minorities  and  nonminorities  is  an  encouraging  trend.   The 
data,  however,  are  lacking  for  many  of  the  minorities.   Moreover,  the 
indicators  themselves  do  not  reflect  delays  between  the  onset  of 
problems  and  the  seeking  of  medical  attention,  severity  of  the  problem 
when  care  is  sought,  quality  of  the  care  received,  and  whether 
appropriate  referrals  are  made  to  specialists. 

Information  provided  to  the  Task  Force  from  a  variety  of 
non-Federal  sources,  including  health  professional  and  minority 
organizations,  and  the  Tasks  Force's  professional  judgment  indicate 
problems  relating  to  health  services  persist  for  minorities.   The 
following  exemplify  such  problems: 

•  The  disparities  in  death  rates  between  minorities  and 
nonminorities  remain  despite  overall  increases  in  access  and 
utilization  that  have  been  noted. 

•  Language  problems  hamper  refugees  and  immigrants  when 

they  seek  medical  care  and  try  to  explain  their  symptoms  to 
providers . 

•  Blacks  with  cancer  tend  to  postpone  seeking  diagnosis 
of  their  symptoms  longer  than  do  nonminorities,  and 
delay  initiation  of  treatment  once  diagnosed. 


• 


A  smaller  proportion  of  Black  women  than  White  women  begin 
prenatal  care  in  the  first  trimester  of  pregnancy  (63  percent 
versus  76  percent  in  1980)  ,  a  factor  related  to  the  high  Black 
infant  mortality  rate.   The  1990  health  objective  for  prenatal 
care  states  that  a  minimum  of  90  percent  of  mothers  in  any  racial 
or  ethnic  group  should  begin  care  in  the  first  trimester  of 
pregnancy. 


16 


•  The  postneonatal  death  rate,  which  constitutes  the  bulk 

of  infant  mortality  for  American  Indians  and  Alaska  Natives, 
remains  high.   Postneonatal  mortality  implies  an  adverse  milieu 
for  the  infant  and  is  thought  to  result  from  such  problems  as 
infectious  diseases,  unintentional  injuries,  and  a  lower  use  of 
health  care  for  these  acute  problems. 

Continuity  of  Care 

Continuity  of  care  is  associated  with  improved  health  outcomes 
and  is  presumably  greater  when  a  patient  is  able  to  establish  an 
ongoing  relationship  with  a  particular  provider.   The  issue  is  central 
because  many  of  the  major  killers  of  minorities,  such  as  cancer, 
cardiovascular  disease,  and  diabetes,  are  chronic  rather  than  acute 
problems  and  require  repeated  visits  and  extended  treatment 
regimens . 

•  A  higher  percentage  of  Blacks  and  Hispanics  than  Whites 
report  that  they  they  have  no  usual  source  of  medical  care  (20 
and  19  percent  versus  13  percent) . 

•  Proportionately  fewer  Blacks  and  Hispanics  than  Whites  report 
that  they  use  a  physician's  office  as  their  usual  source  of  care 
(46  and  54  percent  versus  70  percent) . 

•  Proportionately  twice  as  many  Blacks  and  Hispanics  than 
Whites  report  they  use  hospitals  and  health  clinics  as  their 
usual  source  of  medical  care.   In  1980,  more  than  25  percent  of 
all  visits  to  physicians  made  by  Blacks  occurred  in  hospital 
clinics  or  emergency  rooms  compared  to  11  percent  by  Whites. 

•  Refugees  are  eligible  for  special  refugee  medical  assistance 
during  their  first  18  months  in  this  country.   After  this, 
however,  refugees  who  cannot  afford  private  health  insurance  and 
who  are  ineligible  for  Medicaid  or  state  medical  assistance  may 
become  medically  indigent. 

•  Many  American  Indians  and  Alaska  Natives  live  in  areas  where 
the  availability  of  physicians  is  half  the  national  average, 
and  the  Indian  Health  Service  may  not  be  able  to  provide 
coverage. 

Financing  Problems 

Many  of  the  minorities  tend  to  rely  on  Medicaid  and  charity  care 
for  their  medical  treatment  because  they  have  no  other  sources  of  care 
or  ways  to  finance  that  care.   Elderly  minority  people  are  less  likely 
than  Whites  to  supplement  Medicare  with  additional  private 
insurance. 


17 


•  Proportionately  three  times  as  many  Native  Americans,  Blacks, 
Hispanics,  and  certain  Asian/Pacific  Islander  groups  as 
nonminorities  are  impoverished  (29  percent  to  35  percent  versus 
11  percent) . 

•  Proportionately  twice  as  many  Blacks  and  three  times  as  many 
Hispanics  as  nonminorities  have  no  medical  insurance  whatsoever 
(18  percent  and  26  percent  versus  9  percent). 

•  Of  those  who  had  no  insurance,  35  percent  did  not  see  a  physician 
during  the  past  12  months  compared  to  22  percent  for  those  who  did 
have  insurance. 

The  problem  of  how  to  apportion  fairly  the  costs  associated  with 
uncompensated  hospital  care  is  a  major  concern.   The  traditional 
practice  of  paying  for  this  care  through  increased  charges  to  other 
individuals  and  third  party  payers  has  become  increasingly 
unacceptable  as  price  competition  among  hospitals  has  heightened. 

Public  and  private,  not-for-profit,  inner  city  hospitals  bear  the 
greatest  share  of  the  uncompensated  care  burden  and  are  not  likely  to 
offset  these  expenses  by  attracting  more  paying  patients.   Unless 
solutions  to  the  uncompensated  care  problem  are  found,  the  financial 
viability  of  these  institutions  may  be  in  doubt.   Access  to  health 
care  is  predicated  upon  the  ability  of  both  individual  providers  and 
institutions  to  meet  the  needs  of  the  populations  they  serve. 

Many  States  are  now  exploring  the  issue  of  uncompensated  care 
through  task  forces  or  commissioned  studies. 

The  composition  of  each  State  s  medically  indigent  population 
varies  according  to  its  employment  patterns,  degree  of  unionization, 
structure  of  its  Medicaid  program,  and  other  factors  which  differ 
among  States.   It  is  important,  therefore,  to  encourage  the  States  to 
undertake  their  own  data  collection  efforts  to  define  their  medically 
indigent  populations  and  devise  policy  initiatives  that  meet  their 
particular  needs.   The  DHHS  can  provide  a  clearinghouse  function  in 
these  endeavors  by  providing  baseline  information,  making  available 
the  results  of  other  States'  inquiries  and  initiatives,  and  providing 
technical  assistance  on  questions  of  methodology. 

Implications  of  Diversity 

America  is  rich  in  the  diversity  of  its  minorities.   There  are 
more  than  500  federally  recognized  American  Indian  tribes,  23 
different  countries  of  origin  for  Asian/Pacific  Islanders,  and  three 
major  places  of  origin  for  Hispanics.   This  diversity  among 
populations  is  reflected  in  language  difficulties,  in  cultural 
practices  and  beliefs  with  respect  to  illness  and  health,  in 


18 


differences  in  their  birth  rates,  in  differences  in  the  afflictions 
which  kill  them,  and  in  differences  in  their  needs  for  types  of 
services  and  the  duration  of  health  care. 

DEPARTMENTAL  ACTIVITIES 

The  following  activities  should  be  pursued  by  the  Department  in 
the  area  of  delivering  and  financing  health  services. 

•  Serve  as  a  resource  to  States  as  they  study  the  problem  of 
health  care  for  the  medically  indigent.   Encourage  States  to 
include  consideration  of  minority  subgroups  in  their  research. 
Place  a  particular  focus  on  the  employed  uninsured. 

•  Evaluate  the  changes  taking  place  in  the  health  care 
environment  to  assess  their  effect  on  uncompensated  care  and, 
in  particular,  on  public  hospitals.   Resulting  actions  could 
lead,  for  example,  to  the  formation  of  risk  or  revenue  pools  by 
the  States . 

•  Emphasize  prevention  and  primary  care  and  promote,  through 
existing  program  authorities,  the  concept  of  community-oriented 
primary  care  in  those  areas  where  problems  of  access  appear  to 
predominate. 

•  Target  Federal  categorical  initiatives  to  trouble  spots 
identified  through  the  mid-course  review  of  progress  toward  the 
1990  Health  Promotion/Disease  Prevention  objectives. 

•  Continue  and  expand  the  Department's  participation  in  the 
Healthy  Mothers/Healthy  Babies  Coalition,  which  has  proven 
successful  in  addressing  the  issue  of  prenatal  and  perinatal 
care  for  low  income  women. 

•  Expand  prenatal  care  Medicaid  benefits,  within  existing 
program  authorities,  for  high-risk  pregnant  women  to  include: 
nutrition  supplements,  psychosocial  and  health  education  classes, 
birth  education  classes,  prenatal  vitamins,  and  other  health  care 
upon  authorization  by  the  woman's  physician. 

•  Use  the  established  communication  networks  of  organizations 
within  minority  communities  as  conduits  for  the  dissemination 
of  information  about  health  promotion,  disease  prevention,  and 
the  use  of  health  services. 


19 


HEALTH    PROFESSIONS  DEVELOPMENT 

Introduction 

Health  care  professionals  are  essential  to  any  program  that  aims 
to  improve  the  health  status  of  minorities,  since  they  are  the 
providers  who  assist  in  preventing  illness  and  restoring  health.   The 
Task  Force  recognizes  this  centrality  and  believes  the  Department  must 
forge  a  partnership  with  the  health  professions'  community  and  others 
to  address  jointly  the  health  issues  confronting  minorities.   The  Task 
Force  presents  recommendations  for  developing  health  professionals 
both  outside  and  within  the  Federal  Government. 

RECOMMENDATION  4:   DEVELOPING  STRATEGIES  OUTSIDE  THE 

FEDERAL  SECTOR 

The  Department   should  initiate  discussions  with  minority  and 
nonminority  health  professional   organizations ,    academic   institutions. 
State  governments  and  health  departments ,    and  other  entities  from  the 
public   and  private   sectors ,    to  develop  strategies   to   improve   the 
availability  and  accessibility  of  health   professionals   to  minority 
communities . 

Considerations  for  Discussion 

Analyses  of  data  on  the  availability  of  health  professionals  have 
provided  some  insight  into  the  issue  of  the  persistent  disparity  in 
the  health  status  of  minorities.   Several  factors,  however,  require 
further  investigation  concerning  minority  and  nonminority  health 
professionals  and  their  roles  in  minority  communities. 

•  Minorities  (and  nonminorities)  live  in  communities  that  do 
not  generally  conform  to  the  specific  geographic  boundaries 

of  political  jurisdictions  (states,  counties,  wards,  districts, 
etc.).   Minority  communities  are  not  evenly  distributed  and 
frequently  cross  over  these  geographic  boundaries.   In  contrast, 
record-keeping  and  other  processes  for  monitoring  (and 
potentially  influencing)  the  availability  of  health  professionals 
and  resources  are  generally  determined  by  and  restricted  to  these 
political  boundaries. 

•  The  size  of  a  minority  group,  number  of  cultural  subgroups, 
and  demographic  features  such  as  pattern  and  distribution  of 
minority  communities  are  factors  that  influence  the  number  of 
health  professions'  students  that  each  group  might  be  expected 
to  generate  and  the  degree  to  which  a  minority  group  can 
support  a  cadre  of  health  professionals  in  their  communities. 
With  few  exceptions,  minorities  are  underrepresented  as 
students  and  practitioners  of  the  health  professions.   For 


21 


example,  the  percentage  of  Blacks  (11.5  percent  of  the  population) 
in  medical  schools  has  decreased  from  a  high  of  6.3  percent 
(1974-75)  to  5.5  percent  (1983-84). 

•  Differences  in  the  availability  of  health  personnel  resources 
to  minority  communities  are  apparent  regardless  of  the  minority 
group  being  considered.   Communities  located  in  urban/metropolitan 
counties  appear  to  have  significantly  more  professional  resources 
available.   Some  of  these  professionals,  however,  are  committed  as 
faculty,  administrators,  and  researchers,  thus  making  their 
patient  care  contributions  difficult  to  evaluate.   The 
aggregate  number  of  health  professionals  in  cities  overstate 

the  actual  availability  of  practitioners  for  patient  care. 

•  The  availability  and  accessibility  of  health  personnel  are 
separate  but  related  issues.   The  first  is  a  critical  initial 
measure  of  resource  potential,  but  is  not  an  effective  measure 
of  health  care  capability  unless  the  latter  is  also  considered. 
Both  of  these  critical  issues  must  be  addressed  in  planning  for 
the  future. 

In  addition  to  these  considerations,  increasing  health  personnel 
resources  must  involve  interaction  among  the  several  groups  that 
influence  the  health  professions.   Most  of  the  health  disciplines 
which  collect  data  on  their  professional  members  do  so  on  a  national 
basis.   Licensure  of  practitioners  is  accomplished  at  the  State  level, 
while  accreditation  of  training  institutions  and  certification  of  many 
allied  health  professionals  is  done  by  national  and  State  bodies. 
Interests  should  be  discussed  and  coordinated  between  those  who 
influence  the  numbers  and  types  of  health  personnel  and  those  who 
wish  to  increase  the  numbers  of  health  professionals  in  specific 
geographic  areas . 

Data  on  the  participation  of  each  minority  group  and  subgroup  in 
the  various  health  professions  is  a  prerequisite  to  determining  how 
these  personnel  contribute  to  improving  the  health  status  of  minority 
communities.   Data  on  students  are  more  readily  available  than 
data  on  practitioners,  but  even  these  are  not  available  for  many 
health  disciplines  and/or  for  many  minority  subgroups. 

DEPARTMENTAL  ACTIVITIES 

The  following  activities  recommended  for  DHHS  would  provide  a 
mechanism  for  sharing  the  Task  Force's  findings  with  the  health 
professions   community,  and  concurrently  provide  a  forum  for  dialogue 
between  interested  and  involved  parties  at  all  levels.   Discussions 
with  the  non-Federal  sector  should: 

•  Provide  for  a  better  integrated  system  for  the  collection 
and  analysis  of  data  on:   the  numbers  of  health 
professionals  providing  health  care  within  minority 
communities;  the  practice  patterns  and  demographic  features  of 


providers  who  serve  these  communities;  and  the  numbers  of 
minority  health  professional  students  in  training  by- 
discipline. 

•  Identify  implementation  strategies  to  address  critical  health 
professions'  educational  issues,  such  as:  increasing  minority 
participation  in  the  various  training  areas;  strengthening 
training  program  curricula  by  making  them  more  culturally 
sensitive  to  minority  patients  and  minority  health  problems  as 
identified  in  this  report;  and  providing  continuing  education 
programs  for  training  on  minority  health  issues. 

Activities  Witiiin  the  Federal  Government 

Development  of  a  partnership  for  action  with  health  professionals 
outside  the  Federal  Government  should  be  supplemented  with  coordinated 
action  within  the  Federal  Government.   The  Federal  Government 
maintains  a  substantial  health  professions'  resource  within  the 
Department  and  other  elements  of  the  Executive  Branch.   This  resource 
can  and  should  be  provided  with  the  findings  of  this  report  so  that  a 
cohesive  approach  may  be  developed  with  respect  to  the  availability 
and  accessibility  of  health  professionals  to  minority  communities. 

RECOMMENDATION  5:   DEVELOPING  STRATEGIES  WITHIN  THE 

FEDERAL  SECTOR 

The  Department   should  conduct  both   intra-   and  interdepartmental 
reviews   to  identify  and  provide  for  collaboration  between   the   various 
activities  currently  being  supported  within   the  Department   and  other 
elements  of   the  Executive  Branch,    respectively .      The  reviews  should 
focus  on  programs   that  have   impact  on   the  actual   or  potential 
availability  of  health   professionals   to  minority  communities. 

Coordinated  Effort 

The  Federal  Government  maintains  a  substantial  health  professions 
resource.   For  example,  it  employs  more  than  18,000  physicians  engaged 
in  a  variety  of  activities  which  affect  the  health  care  of  the  Nation. 
Within  DHHS ,  the  Public  Health  Service  supports  a  number  of  programs 
designed  to  address  shortages  of  minority  health  professionals  (as 
practitioners  and  researchers)  and  place  health  professionals  in 
medically  underserved  areas.   These  resources  should  not  duplicate 
actions  taken  by  other  entities  within  DHHS  or  by  other  Federal 
agencies . 


23 


DEPARTMENTAL  ACTIVITIES 

As  part  of  the  proposed  reviews,  discussions  and  dialogue  between 
responsible  program  officials  should  be  stimulated  to  enhance  DHHS 
ability  to  address  the  persistent  problems  of  providing  health 
professionals  for  underserved  minority  communities.   Examples  of 
activities  which  DHHS  could  undertake  follow: 

•  Sponsor  a  series  of  conferences,  directed  toward  practitioners, 
to  promote  the  findings  of  this  report  and  to  develop  health 
education  and  health  promotion  techniques  for  minority 
populations.   The  seminars  should  be  made  available  to  those 
practitioners  within  the  National  Health  Service  Corps,  the 
Indian  Health  Service,  and  practitioners  working  under 
DHHS  grants,  to  identify  areas  where  the  impact  of  their 
respective  resources  on  minority  communities  might  be 
enhanced. 


•  Encourage  other  Departments  and  agencies  of  the  Executive  Branch, 
especially  the  Veterans'  Administration,  to  conduct  training  seminars 
on  health  education  and  health  promotion  techniques  for  minority 
populations.   The  seminars  should  foster  interdepartmental  support 

to  improve  the  health  of  minorities. 

•  Collaborate  with  other  agencies  in  the  Executive  Branch,  such 
as  the  Department  of  Education,  the  National  Science 
Foundation,  and  others,  to  encourage  more  minority  researchers 
to  apply  for  Federal  research  grants,  and  to  encourage  more 
minority  science  faculty  appointments  to  health  and 
health-related  training  institutions.   A  model  program  that 
addresses  the  problem  is  the  National  Cancer  Institute's 
Minority  Investigator  Supplement  to  Investigator  Initiated 
Awards,  which  provides  a  means  for  entering  into  research  grant 
programs  and  the  opportunity  to  utilize  the  research  skills  of 
the  minority  investigator. 

•  Examine  ways  to  increase  minority  representation  in 
preventive  medicine,  public  health,  health  education, 
communications,  and  other  health  professions. 


24 


COOPERATIVE  EFFORTS  WITH   THE   NON-FEDERAL  SECTOR 


Introduction 

Activities  to  improve  minority  health  cannot  be  confined  solely 
to  the  Federal  Government.   The  participation  of  organizations  at  all 
levels --National,  State,  municipal,  and  community-is  vital  to  achieve 
improved  health  for  minority  individuals.   State  and  municipal 
agencies  are  increasingly  aware  of  the  unique  needs  of  their  minority 
residents.   Many  localities,  in  fact,  have  developed  plans  to  meet  the 
national  1990  objectives  for  their  health  care  needs. 

The  private  sector  can  often  be  a  very  effective  channel  for 
programs  targeted  to  minorities.   National  organizations  concerned 
with  minorities  such  as  the  National  Urban  League  and  the  Coalition  of 
Hispanic  Mental  Health  and  Human  Services  Organizations  (COSSMHO) 
include  health-related  issues  in  their  national  agendas  and  are 
actively  seeking  effective  ways  to  improve  the  health  of  minorities. 
Organizations  such  as  these  have  a  powerful  potential  for  effecting 
change  among  their  constituencies  because  they  have  strong 
community- level ,  "grass  roots"  support. 

Changes  in  health  behavior  frequently  depend  on  personal 
initiative  and  are  most  likely  to  be  triggered  by  health  promotion 
efforts  originating  from  locally-based  sources.   Indeed,  community 
involvement  in  developing  health  promotion  activities  can  contribute 
to  their  success  by  giving  credibility  and  visibility  to  the 
activities,  and  by  facilitating  their  acceptance.   By  addressing 
health  problems  that  occur  within  their  own  communities,  minority 
residents  can  empower  themselves  to  press  more  actively  for  adequate 
and  comprehensive  efforts  aimed  at  improving  the  health  of  individuals 
and  the  community. 

Not  all  minority  communities,  however,  have  the  ability  to 
identify  their  own  health  problems  and  initiate  activities  to  address 
them.   It  is  here  that  the  Federal  Government's  knowledge  and 
expertise  in  health  can  join  with  community  and  other  non-Federal 
groups  to  strengthen  minority-related  health  activities. 

RECOMMENDATION   G:      BUILD  THE  CAPACITY  OF  THE  NON-FEDERAL 

SECTOR  TO  ADDRESS  MINORITY  HEALTH 
PROBLEMS 

DHHS  should   increase    its   involvement   with   State,    local,    and 
community  agencies  and  organizations   to  encourage   efforts 
specifically  oriented   toward  meeting  minority  health   needs. 
Recognizing   that   communities  have   unique    insights   into   their  own 
health   problems ,    DHHS  should  undertake  activities   to   increase 
awareness  by  minority  communities  of  the  Federal   ability   to  provide   an 
overview  of  health   problems  and  to  provide   technical   assistance . 


25 


Through  departmental   efforts  in  assisting  communities  to  define  local 
health  goals,   objectives ,   and  priorities,   develop  strategies  for 
resolving  health   problems,    and  set   action  plans   into  operation, 
localities  can  build  an   internal   capacity  for  meeting  the  health   needs 
of  local   minority  populations. 

Overview  Position  of  DHHS 

The  Federal  Government,  through  DHHS,  is  in  a  unique  position  to 
serve  as  a  knowledgeable  resource  to  State  and  local  agencies  and  to 
private  health-related  organizations.   Through  its  efforts  in  data 
collection,  surveillance  of  health  indicators,  research  programs  on 
specialized  health  topics,  and  delivery  of  model  health  services,  DHHS 
retains  a  national  overview  of  the  health  problems  and  demographic 
descriptors  of  minority  populations  in  the  United  States.   Examples  of 
these  resources  include: 

•  National  surveys  of  health  status  and  health  services  utilization 
conducted  by  the  National  Center  for  Health  Statistics  (NCHS) . 

•  Specialized  survey  research,  such  as  the  National  Drug  Abuse 
Survey  conducted  by  the  National  Institute  on  Drug  Abuse  (NIDA) , 
and  the  National  Survey  on  Physical  Violence  in  American 
Families  funded  by  the  National  Institute  of  Mental  Health  (NIMH) 
and  the  National  Institute  on  Alcohol  Abuse  and  Alcoholism  (NIAAA) . 
Both  surveys  are  oversampling  Blacks  and  Hispanics  in  their  1985 
cycles . 

•  The  research  and  surveillance  role  played  by  the  Centers  for 
Disease  Control  (CDC)  in  areas  of  infant  mortality,  homicide 
and  suicide,  and  diabetes. 

•  Model  information  and  educational  programs  in  each  of  the  six 
priority  areas  carried  out  by  almost  every  agency. 

•  Demonstration  programs,  such  as  those  sponsored  by  the 

National  Institutes  of  Health  (NIH)  that  introduce  proven  preventive 
and  therapeutic  regimens  and  health  care  delivery  advances  to 
the  public. 

Special  community  needs  often  can  be  identified  very  effectively 
at  national  and  local  levels  by  organizations  concerned  with  specific 
minority  subgroups.   Plans  for  intervention  will  be  stronger  and  more 
effective  if  they  are  initiated  by  groups  that  are  familiar  with  a 
community's  culture,  traditions,  and  languages  and  that  can  mobilize 
local  resources  and  networks  for  resolving  particular  health  problems. 

Some  minority  communities,  however,  do  not  have  sufficient 
information  to  define  their  greatest  health  needs  and  to  develop 
community  strategies  and  constructive  approaches  for  resolving  these 
problems.   Where  it  is  fitting  and  appropriate,  DHHS  can  provide 


26 


states,  municipalities,  or  communities  with  a  national  overview  of 
their  place  within  a  larger  context,  and  share  the  benefit  of 
experience  gained  from  programs  that  have  proven  successful  in  other 
localities.   The  Model  Standards  for  Community  Preventive  Health 
Services  project,  a  collaborative  effort  of  CDC,  the  American  Public 
Health  Association,  and  associations  of  State,  territorial,  county, 
and  city  health  officials,  is  a  prime  example  of  this  kind  of  program 
activity. 

Providing  Technical  Assistance 

The  Department  can  provide  technical  assistance  to  State  and  local 
health  agencies,  community- level  organizations,  business  and  industry, 
professional  and  voluntary  health  associations,  and  other  private  sector 
groups.   Serving  in  a  consultative  or  advisory  role,  DHHS  experts  can 
assist  the  states  in  addressing  problems  that  lie  within  the  state's 
jurisdiction  (e.g.,  infant  mortality,  homicide,  school  health)  by: 

•  Providing  specific  information  to  allow  the  health  community 
to  take  prudent  action. 

•  Identifying  special  health  problems  and  needs. 

•  Organizing  and  planning  minority-relevant  intervention  approaches. 

•  Suggesting  mechanisms  for  implementing  plans. 

Cooperative  Efforts 

The  following  examples  demonstrate  ways  the  Department  has  worked 
with  States,  communities,  and  other  organizations  to  build  local  capacity 
to  meet  health  problems . 

Teclinicai  Assistance  to  States.   Upon  request  of  State  health  author- 
ities, the  Low  Birth  Weight  Prevention  Work  Group  will  send  Infant 
Mortality  Review  Teams  (IMR  teams)  to  conduct  geographically  focused 
infant  mortality  reviews  and  investigate  conditions  associated  with 
high  or  changing  infant  mortality.   The  IMR  teams,  composed  of  experts 
from  the  public  and  private  sectors,  serve  as  consultants  and  assist 
State  health  departments  in  gaining  a  better  understanding  of  local 
difficulties  in  reducing  infant  mortality,  in  gathering  precise 
information  regarding  local  maternity  and  infant  health  care  systems, 
and  in  developing  strategies  that  will  provide  opportunities  for 
ameliorating  local  problems. 

Specialized  Community  Health  Services.   The  On  Lok  Senior  Health 
Services  is  a  community-based,  long-term  care  organization  serving  the 
frail  elderly,  many  of  whom  are  Asian.   On  Lok  began  as  a 
federally  funded  research  and  demonstration  project  in  1972,  and  was 
able  to  assume  its  own  financial  responsibility  by  1984.   Services 
include  hospitalization  for  acute  conditions,  a  nursing  home,  a 
pharmacy,  professional  services  (dentistry,  optometry,  podiatry,  and 


27 


other  subspecialty  medical  services),  home  health  services,  nutrition 
programs,  housing  for  the  elderly,  and  transportation  to  medical  care. 
Similar  specialty  services  have  been  developed  in  other  communities 
based  on  the  On  Lok  model,  such  as  women's  health,  substance  abuse 
programs,  and  youth  programs.   The  On  Lok  experience  indicates  that  it 
may  be  more  feasible  to  develop  specialty  services  in  a  particular 
community  rather  than  a  more  comprehensive  health  program. 

Community  Efforts.  Results  from  research  sponsored  by  DHHS  are  freq- 
uently disseminated  to  the  general  public  or  to  target  populations  with 
the  cooperation  of  national  and  local  media,  and  community  networks. 

The  National  Cancer  Institute  launched  a  special  cancer 
prevention  awareness  program  for  Black  Americans.,  It  began  with  a 
mass  media  effort  aimed  at  increasing  awareness  among  Black  citizens 
that  everyone  can  do  something  to  reduce  the  personal  risk  of  cancer. 
The  mass  media  effort  will  be  followed  by  national  and  community -based 
educational  activities  that  rely  on  strong  involvement  of 
traditionally  Black  organizations. 

The  National  High  Blood  Pressure  Education  Program  has  worked 
successfully  with  communities.  State  and  local  health  departments, 
industry,  and  professional  and  voluntary  health  organizations  to 
increase  health  professionals'  and  the  public's  awareness  about  the 
risks  associated  with  untreated  hypertension  and  the  opportunities  for 
effective  treatment. 

The  National  Institute  on  Drug  Abuse  (NIDA)  has  encouraged  Black 
organizations  to  incorporate  drug  and  alcohol  abuse  prevention 
activities  into  their  national  agendas.   NIDA  has  also  provided 
guidance  and  support  in  the  development  and  promotion  of  national 
multicultural  networks  among  Black,  Hispanic,  Asian,  and  Native 
American  families.   One  outcome  is  the  development  of  a  network  among 
Black  parents  and  community  organizations  to  stimulate  community-based 
prevention  programs  in  drug  and  alcohol  abuse.   This  model  for  a 
"grass  roots"  prevention  program  is  being  replicated  in  a  select 
number  of  cities  across  the  country. 

Business  and  industry.   A  number  of  agencies  within  DHHS  provide 
technical  assistance  to  individuals  and  organizations  in  business  and 
industry.   The  Office  of  Disease  Prevention  and  Health  Promotion  (ODPHP) 
is  working  with  the  Workplace  Health  Fund,  a  component  of  AFL-CIO,  to 
develop  worksite  health  promotion  programs  through  unions.   ODPHP  also 
assists  businesses  in  planning  health  promotion  programs  for  the  future 
by  identifying  trends  that  influence  work  and  health. 

The  National  Heart,  Lung,  and  Blood  Institute  (NHLBI) 
cosponsored  a  conference  with  several  major  corporations  to  examine 
positive  outcomes  derived  from  worksite  health  promotion  programs. 
NHLBI  also  developed  the  Cardiovascular  Primer  for   the  Workplace   to 


28 


assist  private  industry  in  developing  cardiovascular  risk  reduction 
activities.   At  present,  NHLBI  is  examining  ways  of  working  with  small 
businesses  to  develop  health  promotion  programs. 

Health  Care  Settings.   A  leader  in  the  field  of  preventive 
interventions  for  victims  of  domestic  violence  has  been  the  Harborview 
Medical  Center  in  Seattle.   The  Center  developed  a  comprehensive 
intervention  model  that  addresses  the  needs  of  victims  of  spouse 
abuse,  child  sexual  abuse,  rape,  elder  abuse,  and  assaults  by 
strangers.   A  model  emergency  room  protocol  for  identifying  adult 
victims  of  domestic  violence  has  been  developed  for  hospitals  in  New 
York  State  and  can  be  adapted  for  use  elsewhere.   Efforts  based  on 
these  models  need  to  be  introduced  and  tested  further  in  similar 
health  care  settings. 

DEPARTMENTAL  ACTIVITIES 

Activities  in  which  DHHS  can  take  a  leadership  role  in  initiating 
cooperative  efforts  with  the  non-Federal  sector  to  improve  the  long-term 
health  status  of  minority  groups  include: 

•  Support  development,  testing,  and  dissemination  of  model  programs 
suitable  for  minority  community-based  efforts  for  disease 
prevention  and  health  promotion,  especially  in  the  six  priority 
health  areas. 

•  Provide  technical  assistance  in  the  implementation  of  State  and 
local  prevention  programs  that  focus  on  the  special  needs  of 
minority  populations. 

•  Increase  collaborative  efforts  with  State  and  local  governments, 
professional  associations,  and  health-related  voluntary  and  private 
organizations,  to  develop  their  capacity  to  identify  health 
objectives,  set  priorities,  and  implement  strategies  to  improve 
the  long-term  health  status  of  minority  populations .   This 
collaborative  effort  should  include: 

--encouraging  States  to  conduct  reviews  of  their  efforts  to 
address  the  health  needs  of  minority  populations. 

--strengthening  State,  municipal,  and  local  community  capacities 
to  develop  prevention  initiatives  aimed  at  the  high  incidence 
of  adverse  health  events  such  as  drunk  driving,  family 
violence,  and  drug  abuse. 

--advising  States  of  Federal  data  on  minorities  relevant  to 
their  localities  and  encouraging  the  States  to  develop  data 
on  avoidable  mortality  by  locality. 

--conducting  forums  through  the  PHS  regional  health  offices 
where  communities  can  present  model  health  programs  targeted 
to  a  particular  minority  health  effort.   A  manual  of  these 


29 


initiatives  could  serve  as  a  resource  to  other  communities 
seeking  information  on  effective  prevention  programs  and 
how  to  apply  them  in  different  communities, 
--strengthening  private  and  public  efforts  in  addressing 

minority  health  issues  by  convening  meetings  of  groups,  such 
as  leading  private  sector  minority  organizations,  State 
health  agency  officers,  major  voluntary  organizations,  and 
professional  organizations,  to  define  specific  minority 
health  issues  and  to  discuss  mechanisms  for  dealing  with 
them. 

--encouraging  organizations  concerned  with  minority  issues  to 
develop  and  promote  health  education  materials  that  are 
appropriate  to  the  culture  and  the  language  of  the  minority 
groups  they  serve. 

•  Encourage  the  development  of  outreach  programs  that  evaluate 
high-risk  subsets  of  minority  groups. 

•  Initiate  meetings  with  other  departments  in  the  Executive  Branch 
to  address  health  problems  of  mutual  interest  oriented  to 
building  the  capacities  of  local  communities.   Appropriate 
topics  and  agencies  include: 

--developing  a  combined  strategy  for  prevention  of  homicide 
with  the  Department  of  Justice. 

--improving  housing  and  reducing  environmental  hazards  for 
populations  at  high  risk  for  injuries  with  the  Department  of 
Housing  and  Urban  Development. 

--coordinating  smoking  cessation  programs  and  other  health 
promotion  programs  under  other  Departments'  sponsorship, 
such  as  the  Departments  of  Defense  and  Education. 


30 


DATA  DEVELOPMENT 


Introduction 

The  Task  Force  believes  that  data  issues  are  a  major  area  for 
recommendations  and  suggests  that  more  extensive  minority  health  and 
illness  data  are  needed  to  improve  the  information  available  to  DHHS 
and  the  private  sector  for  making  program  and  policy  decisions. 
Examples  of  why  this  is  so  include: 

•  National  data  on  mortality  rates  for  Hispanics  are  lacking. 

•  The  accuracy  with  which  ethnic  group  membership  is  described 
on  death  certificates,  especially  for  Hispanics,  is  variable. 

•  Studies  based  on  diabetes  mortality  rates  in  minorities  fail 

to  consider  differences  in  incidence,  age  of  onset,  availability 
of  medical  care,  education,  socioeconomic  status,  and 
interaction  with  hypertension. 

•  Population-based  cancer  registries  often  lack  comparability 
with  information  from  the  National  Cancer  Institute's 
Surveillance,  Epidemiology,  and  End  Results  (SEER)  program. 

•  The  incidence  of  sudden  cardiac  death  in  Blacks  in  relationship 
to  coronary  heart  disease  has  been  examined,  but  no  firm 
conclusion  is  possible  because  of  lack  of  data. 

Reliable  data  are  central  to  measuring  progress  in  public  health, 
and  are  the  key  to  assessing  the  current  health  status  of  the  Nation 
and  measuring  health  status  trends;  recognizing  both  sources  of  and 
solutions  to  problems;  identifying  health  disparities  between  segments 
of  the  population;  and  targeting  efforts  directly  to  specific  needs. 

The  data  available  in  the  Task  Force  review  and  other  reports  have 
pointed  to  disparities  in  death  rates,  health  status,  and  health  care 
utilization  between  minorities  and  nonminorities ,  but  more  detailed 
data  are  needed  to  enhance  our  understanding  of  the  processes  underlying 
the  disparity  and  to  provide  a  better  basis  for  rational  program 
planning,  implementing,  and  monitoring.   The  effort  to  obtain  reliable 
data  is  especially  challenging  because  minority  populations  are  growing 
rapidly,  changing  rapidly,  highly  mobile,  and,  therefore,  difficult 
to  track  yet  have  greater  health  problems  than  nonminorities. 

RECOMMENDATION   7:      IMPROVING   AND   FULLY   USING   AVAILABLE 

SOURCES  OF   DATA 

DHHS  should  undertake   activities ,    which   would  improve   existing 
sources  of  health   data,    such   as:    enhancing  cooperative   efforts  with   the 
States   in  recording  vital   statistics ,    incorporating  specific 


31 


racial/ethnic  identifiers  in  data  bases,  and  oversampling  selected 
minorities   in   national   surveys.      Furthermore,    DHHS  should  support 
innovative   uses  of  currently  available  data   consistent  with   the 
Privacy  Act   and  confidentiality  constraints .      Analyses  such   as 
cross-comparisons  from  different  data  sets  and  specialized  studies 
should  be   encouraged  because   they  can  contribute   to  understanding  the 
health   status  and  needs  of  minority  populations . 

Steps  to  Better  Understanding 

Gaining  better  understanding  and  knowledge  of  the  health  of 
minority  populations  requires  improving  the  collection  of  quantitative 
data  on  the  incidence  and  prevalence  of  health  problems  in  these 
populations.   Analysis  of  health  status  data  with  specific  minority 
identifiers  will  allow  elucidation  of  relationships  between  factors 
that  may  be  responsible  for  the  disparity  in  death  rates.   For 
example,  the  Task  Force  has  concluded  that  data  on  the  incidence  of 
chronic  heart  disease  in  Black  populations  are  inadequate  because 
relatively  few  studies  include  significant  numbers  of  Blacks. 
Recognition  of  these  needs  has  led  to  some  efforts  to  obtain  more 
data,  such  as  the  surveillance  of  chronic  heart  disease  events  in  a 
predominantly  Black  community  being  performed  under  the  sponsorship  of 
NHLBl.   Similarly,  the  Hispanic  Health  and  Nutrition  Examination 
Survey  (HHANES)  will  advance  knowledge  of  health  and  nutritional 
status  among  Americans  of  Mexican,  Puerto  Rican,  and  Cuban  origin 
through  special  data  collection  efforts.   Until  this  survey,  data  on 
the  health  status  of  Hispanics  were  limited  to  self-reports  such  as 
those  compiled  in  the  National  Health  Interview  Survey  (NHIS) . 

Sources  of  Health  Data 

DHHS  receives  health  data  on  a  variety  of  topics  from  a  wide 
range  of  sources.   Vital  statistics  data  on  births,  deaths,  marriages, 
and  divorces  are  provided  by  the  States  to  the  National  Center  for 
Health  Statistics  (NCHS) ,  the  Nation's  chief  health  data  collection 
agency.   NCHS  also  conducts  national  surveys  based  on  samples  that  are 
representative  of  the  total  U.S.  population.   These  surveys  include 
NHIS,  the  National  Health  and  Nutrition  Examination  Survey  (NHANES) , 
the  National  Ambulatory  Medical  Care  Survey  (NAMCS) ,  the  National 
Hospital  Discharge  Survey  (NHDS) ,  and  other  data  collection  activities 
that  document  the  health  characteristics  of  the  United  States 
population.   Other  data  on  health  status  and  health  care  utilization 
are  furnished  by  States  and  local  sources  to  the  Centers  for  Disease 
Control  (CDC) ,  to  the  Health  Care  Financing  Administration  (HCFA) 
through  its  Medicaid  and  Medicare  programs,  to  the  Social  Security 
Administration  (SSA) ,  and  to  various  programs  within  the  Department 
that  may  be  studying  health  problems  within  specific  populations. 


32 


Problems  with  Existing  Sources  of  Data 

The  data  now  collected  by  the  Department  comprise  a  useful  base 
for  health-related  study  and  analysis.   The  Task  Force,  however,  has 
identified  a  number  of  problems  with  existing  data  relating  to  the 
health  of  minorities. 

One  problem  is  the  lack  of  common  practices  among  the  States  in 
recording  ethnicity  identifiers  in  their  reported  data.   Few  States 
require  a  Hispanic  identifier  on  death  certificates,  and  the  quality 
of  the  identifications  that  are  made  is  variable.   Furthermore, 
individuals  who  fill  out  death  certificates  may  do  so  inadequately 
because  of  insufficient  training  and  understanding  of  the  importance 
and  uses  of  the  information. 

When  race  and  ethnicity  are  recorded  in  Federal  data  collection 
efforts  or  for  administrative  record  keeping,  the  Office  of  Management 
and  Budget  (0MB)  provides  minimum  requirements  for  the  categories  to 
be  recorded.   The  Office  of  Federal  Statistical  Policy  and  Standards 
Directive  Number  15  classifies  race  as:   1)  American  Indian  or  Alaska 
Native,  2)  Asian  or  Pacific  Islander,  3)  Black,  and  4)  White. 
Ethnicity  is  defined  as:   1)  Hispanic  origin,  or  2)  Not  Hispanic 
origin. 

Although  these  categories,  as  mandated,  are  too  broad  to  permit 
delineation  within  subgroups,  the  greater  difficulty  is  that  many  DHHS 
statistical  files  and  data  bases  fall  short  of  meeting  even  the  OMB 
requirement,  particularly  administrative  records,  self-reported 
hospital  forms,  and  some  social  security  claims.   Furthermore,  some 
DHHS  data  bases  that  originally  contained  data  specifying  minority 
group  status  have  aggregated  that  data  into  a  category  labeled 
other",  thus  losing  the  racial/ethnic  integrity  of  the  data. 

Another  problem  relates  to  data  collected  from  national  surveys. 
Current  surveys  provide  a  good  indication  of  the  health  picture  of  the 
Nation  as  a  whole,  as  they  are  designed  to  do,  but  only  limited 
information  is  available  from  them  for  many  minority  populations. 
Surveys  usually  sample  minorities  in  proportion  to  their  presence  in 
the  U.S.  population.   More  data  exist  on  Blacks,  as  the 
largest  minority  group  and,  indeed,  NCHS  has  data  on  Blacks  going  back 
to  the  1960's,  the  earliest  period  for  which  tapes  are  available. 
Smaller  groups,  such  as  Native  Americans  or  Asian/Pacific  Islanders, 
are  represented  by  far  fewer  households.   National  surveys  may  include 
too  few  minority  individuals  to  permit  reliable  analyses  of  health 
data  for  a  particular  group. 

The  Task  Force  has  concluded  that  inconsistencies  in  data 
collection  practices  among  the  States,  such  as  inadequate  recording  of 
some  ethnic  identifiers,  overaggregation  of  minority  data,  and 
insufficient  representation  of  minorities  in  national  surveys  are 
areas  needing  improvement . 


33 


strategies  for  Improving  Data 

Two  strategies  for  improving  data  on  minorities  are  oversarapling 
and  targeted  studies .   Both  approaches  have  advantages  and 
disadvantages  that  need  to  be  weighed  when  planning  data  collection 
efforts . 

Oversampling  of  minorities  offers  the  advantages  of  improving  the 
precision  of  the  data  and  allowing  comparison  with  other  groups  for 
which  data  were  collected  contemporaneously.   Oversampling  in  national 
surveys,  however,  presents  the  problem  of  developing  valid  and 
reliable  procedures  to  select  a  randomized,  representative  sample  of 
minorities.   Moreover,  additional  costs  are  involved  in  oversampling 
in  a  national  survey.   Thus,  there  is  a  trade-off  between  costs  and 
precision  of  information. 

Another  strategy  for  obtaining  improved  data  is  to  mount  targeted 
studies  of  specific  minority  populations  or  geographical  areas.   This 
technique  would  enhance  knowledge  of  an  identified  group  without  the 
cost  and  difficulty  of  a  national  sample.   By  virtue  of  their  targeted 
focus,  however,  such  studies  yield  data  that  may  not  necessarily  be 
comparable  to  other  populations.   Thus,  careful  planning  is  necessary 
to  ensure  that  meaningful  comparisons  can  be  made. 

The  choice  of  sampling  strategy  is  influenced  by  the  issue  being 
addressed,  the  needed  degree  of  oversampling  and  its  attendant  costs 
and  complexity,  the  geographic  concentration  of  minority  groups,  and 
other  considerations.   Although  oversampling  or  targeted  studies  may 
correct  deficiencies  in  national  surveys,  the  technique  selected  must 
be  tailored  to  the  particular  data-gathering  effort. 

Using  Existing  Data 

Many  agencies  in  DHHS  and  other  Federal  Departments  routinely 
collect  information  for  administrative  and  other  programmatic  purposes 
that  may  contain  health  or  ethnic  identifying  data.   Presently, 
legislative  restrictions  that  protect  the  privacy  of  individuals 
prohibit  the  exchange  of  administrative  data  for  statistical  research 
purposes.   A  solution  to  this  dilemma  is  to  establish  conditions  for 
the  greater  linkage  of  records  among  agencies  to  be  used  only  for 
statistical  research  purposes.   The  rights  of  individuals  to  privacy, 
however,  must  be  protected.   Record  linkage  is  one  effective  way  to 
obtain  needed  information  on  small  populations  without  great  cost. 

Record  linkage  has  been  supported  consistently  by  DHHS  in  the 
past.   Because  of  the  tremendous  wealth  of  information  on  minority 
health  that  could  be  gleaned  from  administrative  records  in  this  and 
other  Departments,  an  appropriate  resolution  should  be  explored. 


34 


DEPARTMENTAL  ACTIVITIES 

To  enhance  the  opportunities  for  more  effective  data  collection 
relating  to  minorities  in  the  United  States,  DHHS  should  pursue  the 
following  activities: 

•  Assign  high  priority  to  cooperative  efforts  between  DHHS  and  the 
States  directed  at  developing  standardized  Hispanic  identifiers 
in  vital  statistics  records  (death,  birth,  marriage,  and  divorce 
certificates) . 

•  Strengthen  and  expand  efforts  between  the  Department  and  the 
States  to  develop  a  national  data  base  of  linked  birth  and 
death  records  for  analyzing  infant  mortality. 

•  Strengthen  and  expand  cooperative  efforts  to  train  personnel  to 
complete  vital  statistics  records  accurately  (particularly  with 
regard  to  correct  coding  of  causes  of  death  and  racial/ethnic 
identifying  items). 

•  Establish  a  mechanism  to  evaluate  the  quality  of  information  on 
death  certificates  to  determine  if  guidelines  for  completing  the 
items  on  the  certificate  are  followed. 

•  Require  all  DHHS  agencies  that  collect  health  data  from  in- 
dividuals to  include  race  and  ethnic  identifiers,  as  defined  by  0MB. 
Where  possible  and  desirable,  further  breakdown  within  racial  and 
ethnic  categories  should  be  recorded,  e.g.,  national  origin  of 
Hispanics  and  Asian/Pacific  Islanders. 

•  Maintain  specific  racial/ethnic  identifiers  when  processing 
original  data.   For  those  data  collected  cooperatively  from 
the  States  by  agencies  such  as  CDC  and  NCHS,  efforts  should  be 
increased  to  overcome  barriers  to  obtaining  data  with  standardized 
race/ethnicity  identifiers. 

•  Oversample  selected  minorities  in  national  surveys  of  health 
indicators  or  conduct  targeted  studies  on  minority  health 
problems,  as  appropriate. 

•  Work  with  the  Census  Bureau  to  improve  health-related,  minority- 
specific  data  collection  for  the  1990  census. 

•  Analyze  and  highlight  minority  health  issues,  especially  in  the 
six  health  priority  areas,  that  result  from  improved  minority 
identifiers  in  data  collection. 


35 


Develop  mechanisms  for  matching  individual  records  from  among 
government  data  sets,  within  and  between  Departments,  for 
health  and  statistical  research  purposes.   DHHS  should 
encourage  and  support  legislative  changes  to  allow  such 
matching  to  occur  with  the  appropriate  safeguards. 

Investigate,  in  the  absence  of  legislation  permitting  data 
linkage  across  DHHS  agencies,  mechanisms  whereby  the  minority- 
specific,  health-related  data  collected  by  each  agency  can  be 
analyzed  and  published. 


36 


RESEARCH   AGENDA 

Introduction 

The  Task  Force  has  reviewed  a  considerable  body  of  scientific 
knowledge  related  to  the  disparities  in  health  status  between  minority 
and  nonminority  populations  in  the  United  States.   It  is  evident  that 
most  of  the  disparity  can  be  attributed  to  six  areas  identified  as 
major  contributors  to  excess  mortality  among  minorities.   Although  the 
Task  Force  Subcommittees  have  explored  physiological,  cultural,  and 
societal  factors  that  may  be  responsible  for  the  health  disparity, 
many  unanswered  questions  remain.   Resolving  these  questions  will 
require  continued  research  and  analysis  to  increase  the  base  of 
scientific  knowledge  and  to  elucidate  factors  that  put  minorities  at 
greater  risk  for  illness  and  death. 

The  research  activities  recommended  by  the  Task  Force  refer 
primarily  to  needed  minority-specific  health  issues.   The  huge  volume 
of  ongoing  research,  particularly  basic  research  already  conducted 
through  DHHS,  applies  to  all  populations,  including  minorities. 
Research  into  the  etiology  of  diseases,  treatment  of  diseases,  and 
improved  health  service  delivery  will  continue  to  benefit  all 
Americans.   The  research  proposed  by  the  Task  Force,  however,  is  of 
major  importance  to  minority  health  because  it  specifically  aims  at 
understanding  the  reasons  underlying  the  longstanding  disparity  of 
health  status  in  the  United  States.   It  offers  the  means  to  prevent  or 
reduce  much  of  the  illness  and  death  experienced  by  minorities  in 
disproportion  to  their  representation  in  the  American  population.   The 
spectrum  of  suggested  activities  includes  research  into  the  etiology 
of  diseases,  research  in  behavioral  and  social  sciences,  clinical 
studies  of  treatment  and  treatment  outcomes ,  research  on  the  dynamics 
of  health  care  and  its  impact  on  disease,  and  appropropriate 
interventions  for  disease  prevention  and  health  promotion. 

The  research  agenda  presents  examples  of  priority  areas  for 
immediate  investigation.   The  Subcommittee  reports  provide  a  rationale 
and  fuller  elaboration  of  the  recommended  research  activities.   By  no 
means  do  they  exhaust  the  range  of  activities  needed  for  further 
research  into  minority  health. 

In  addition  to  research  into  the  reasons  for  the  disparity, 
separate  studies  need  to  evaluate  the  impact  of  DHHS  and  other  Federal 
programs  on  the  health  of  minorities.   Such  studies  are  needed  to 
coordinate  departmental  policies  and  programs,  to  identify  areas  where 
program  efficiency  can  be  improved  and  costs  reduced,  and  to  provide  a 
measure  of  the  extent  to  which  policies  and  programs  are  achieving 
their  objectives.   Recognizing  this,  the  Task  Force  includes 
evaluation  studies  as  an  integral  part  of  the  research  agenda. 


37 


The  Task  Force  suggests  that  each  agency  of  DHHS  review  its 
portfolio  of  federally  supported  research  and  its  applications  for 
research  funding  to  ensure  that  minority  health  issues  are  included. 

RECOMMENDATION  8:   RESEARCH  AGENDA 

The  Department   should  adopt   and  foster  a  research   agenda   to 
investigate  factors  affecting  minority  health   and  should  incorporate 
appropriate   research   activities  on  minority  health   into  ongoing 
research  programs  consistent  with   the   referral   guidelines  of  each   DHHS 
agency.      The  Task  Force  considers   the  following  areas   to  be  of  major 
Importance  for  research  : 

•  Risk  factor  ident if icat ion 

•  Risk  factor  prevalence 

•  Health   education   interventions 

•  Preventive   services   interventions 

•  Treatment   services 

•  Sociocultural   factors  and  health   outcomes 


DEPARTMENTAL  ACTIVITIES 

I.   Research  into  Risk  Factor  Identification 

Risk  factors  are  the  characteristics  of  individuals  that  are 
associated  with  the  occurrence  of  health  problems .   Their  identification 
is  important  to  elucidate  possible  etiologic  factors  for  a  disease, 
to  identify  individuals  or  populations  likely  to  experience  health 
problems,  to  institute  early  preventive  measures,  and  to  identify  groups 
on  whom  preventive  or  educational  interventions  can  be  concentrated. 

More  information  is  needed  to  clarify  whether  risk  variables  that 
contribute  to  the  occurrence  of  disease  in  White  populations  contribute 
to  disease  differently  in  minority  populations.   For  example.  Black 
males  have  a  higher  prevalence  of  hypertension  than  Whites  but  experience 
a  similar  rate  of  mortality  from  coronary  heart  disease  (CHD)  as  White 
males.   Similarly,  some  Hispanic  subgroups,  specifically  Mexican  Americans, 
have  a  higher  prevalence  of  diabetes,  another  risk  factor  for  CHD,  but 
exhibit  lower  mortality  rates  from  CHD  than  Whites. 

For  the  most  part,  identifying  risk  factors,  defining  risk  status 
(whether  a  person  is  at  high  or  low  risk  for  a  health  problem) , 
establishing  risk  profiles  (distribution  of  risk  status  in  a 
population),  and  following  trends  in  risk  patterns  can  be  accomplished 
by  well-designed  epidemiologic  studies.   The  impact  of  behavioral, 
physiological,  and  environmental  factors  also  can  be  assessed  in  such 
studies . 

Certain  minority  groups,  such  as  second-generation  Chinese,  have  a 
more  favorable  health  status  for  certain  conditions  or  have  reduced 
all-cause  mortality.   Studies  of  populations  at  low  risk  for  certain 


38 


diseases  also  will  add  to  understanding  the  relationship  of  risk 
factors  to  disease.   DHHS  activities  to  identify  risk  factors  for  the 
major  health  priority  areas  include: 

•  Identify  and  quantify,  where  possible,  behavioral,  physiological, 
and  environmental  risk  factors  for  CHD,  cancer,  and  diabetes  in 
each  minority  group.   Determine  if  the  risk  factors  for  CHD 
identified  for  White  populations  act  similarly  in  the  minority 
groups  or  if  other  risk  factors,  not  yet  identified,  contribute 
to  CHD  in  minority  groups. 

•  Identify  behavioral,  physiological,  and  environmental 
characteristics  of  minority  groups  that  place  them  at  higher 
risk  for  any  of  the  six  health  priority  areas. 

•  Assess  the  impact  of  hypertension  as  a  risk  factor  for  morbidity 
and  mortality  in  all  minority  groups. 

•  Identify  the  determinants  of  smoking  behavior,  cessation,  and 
cessation  maintenance  in  minority  populations,  particularly 
among  pregnant  minority  women.  Blacks,  Hispanics,  and  Native 
Americans  who  may  suffer  the  delayed  effects  of  increasing 
rates  of  smoking. 

•  Determine  the  relationship  of  high  rates  of  obesity  found  in 
Black  females  to  their  consequent  excess  mortality  from  CHD. 

•  Investigate  the  role  of  high-density  lipoprotein  (HDL)  levels 
in  influencing  CHD  outcome  in  Black  and  other  minority  males. 

•  Investigate  links  between  dietary  potassium  and  sodium  intake 
(and  other  electrolytes)  and  hypertension  in  Blacks  and  other 
minorities . 

•  Study  variables  such  as  income,  employment,  school  truancy,  drug 
and  alcohol  problems,  educational  attainment,  and  accessibility 
of  handguns  as  possible  risk  factors  for  homicide,  particularly 
among  Black  and  Hispanic  males. 

•  Support  improved  studies  of  situational  correlates  of  homicide  and 
nonfatal  assaults  aimed  at  identifing  high-risk  situations  for 
which  preventive  interventions  are  needed. 

•  Support  studies  on  risk  factors  for  deaths  from  unintentional 
injuries,  suicide,  and  homicide  among  Native  Americans  and 
other  minorities. 

•  Support  studies  on  risk  factors  for  suicide  among  Asian  women, 
particularly  those  of  age  45  and  older. 


39 


•  Investigate  generational  factors  related  to  birthweight  since 
the  birthweight  of  the  offspring  appears  to  be  correlated  with 
the  weight  of  the  mother  at  her  birth.   Investigate  racial/ethnic 
differences  and  socioeconomic  resources  related  to  differences 

in  birthweight. 

•  Elucidate  the  role  of  physiological,  social,  psychological, 
and  environmental  stress  on  pregnancy  outcome  in  different 
racial/ethnic  groups,  for  example,  the  effects  of  unplanned 
pregnancy,  unmarried  status,  low  economic  status,  and  employment 
in  physically  stressful  jobs. 

•  Study  the  influence  in  Black  women  of  nutrition  as  a  risk 
factor  for  cancer,  cardiovascular  disease,  and  low-birthweight 
offspring. 

•  Conduct  studies  to  understand  dietary  and  exercise  patterns  more 
thoroughly  in  the  four  minority  groups . 

•  Focus  research  efforts  on  the  preventable  causes  of  postneonatal 
mortality,  including  causes  of  accidental  death.   Research  should 
encompass  the  interrelationship  of  individual  and  family 
behaviors,  and  health  care  delivery  factors  that  influence  the 
use  of  well  and  sick  baby  care,  and  immunization  of  babies. 

•  Initiate  descriptive  studies  to  identify  occupational  risks 
associated  with  the  leading  causes  of  death  and  disability  in 
minority  populations. 

•  Investigate  minority  status  as  a  risk  factor  for  safety  in  the 
workplace,  including  monitoring  excessive  exposure  to  contaminants 
from  occupational  sources  and  environmental  pollution. 

•  Assess  factors  contributing  to  excess  deaths  due  to  cardiovascular 
disease  in  Native  American  men  aged  35-39  years  old. 

II.   Research  into  Risk  Factor  Prevalence 

Disease  patterns  may  be  shared  by  an  entire  minority  population,  a 
subset  of  that  population,  a  certain  age  group  or  gender,  or  geographic 
grouping  of  the  minority  population.   Risk  factor  prevalence  in  such 
groups  which  share  a  health  status  trait  warrant  careful  investigation, 
not  only  in  cases  where  a  clear  disease  burden  is  evident  but  also  for 
diseases  in  which  a  subgroup  displays  better  health.   Activities  to 
study  risk  factor  prevalence  for  the  major  health  priority  areas  should 
include : 

•  Continue  to  support  large-scale,  population-based  prospective 
studies  of  coronary  heart  disease,  similar  to  the  Framingham 
studies  and/or  community-based  studies  for  minority 
populations.   Among  the  many  Hispanic  subgroups,  Puerto  Ricans 


40 


and  Cubans  living  in  the  United  States  have  not  been  studied 
extensively  and  particularly  warrant  such  research.   Sudden 
death  rates  from  CHD  among  Blacks  need  to  be  investigated  by 
age  and  gender.   Surveillance  of  the  offspring  of  individuals 
studied  is  needed  to  understand  coronary  disease  trends  and  to 
elucidate  familial  contributions  to  the  incidence  and  disease 
process  in  these  population  groups. 

•  Study  serum  lipid  levels,  dietary  risk  reduction  information, 
interventions,  and  behaviors  for  Puerto  Rican,  Cuban,  and 
other  Hispanic  populations. 

•  Assess  the  relationship  between  dietary  patterns  in  minority 
groups  and  the  development  of  diabetes,  cancer,  and  cardio- 
vascular disease  (CVD) .   Strengthen  nutritional  status  surveillance 
of  low  income  minority  populations. 

•  Design  epidemiologic  studies  to  evaluate  differences  in  the 
distribution  of  diabetes  in  minority  groups  and  the 

impact  of  physiologic  variables  on  these  differences.   Study 
etiology  of  diabetes  using  diabetes  blood  group  analysis, 
particularly  for  American  Indians. 

•  Support  cohort  studies  to  gain  more  insight  into  the  etiology 
of  drug  abuse  among  minorities. 

•  Examine  smoking  prevalence  and  industrial  exposures  as  contributing 
to  CVD  and  the  rapid  rate  of  increase  in  lung  cancer  in  Blacks. 

•  Examine  factors  associated  with  unplanned  pregnancies,  including 
both  nonuse  and  inadequate  use  of  contraceptives,  in  high-risk 
minority  women  and  teenagers.   Unplanned  pregnancies  are 
associated  with  worse  patterns  of  prenatal  care  and  higher 
rates  of  low  birthweight. 

•  Investigate  the  prevalence  of  multiple  risks  (e.g.,  smoking 
and  drug  abuse)  among  different  minority  populations  to 
understand  possible  synergistic  effects  on  pregnancy  outcome. 

•  Initiate  prospective  studies  on  perinatal  outcome  (low  birth- 
weight  and  infant  mortality) . 

III.   Research  into  Health  Education  Interventions 

Health  education  interventions  are  directed  at  improving  the 
awareness  of  individuals  and  communities  about  controllable  risk 
factors  associated  with  the  causes  of  excess  death  and  disability. 
Components  of  the  major  health  problems  facing  minorities  that  are 
amenable  to  health  education  efforts  include  the  misuse  of  alcohol 
and  drugs,  use  of  tobacco,  dietary  habits,  exercise,  stress 
management,  compliance  with  medical  regimens,  and  appropriate  use  of 
preventive  services.   It  is  not  always  clear,  however,  which  type  of 


41 


intervention  is  best  suited  to  the  target  audience  and  what  kinds  of 
outcomes  should  be  expected  from  efforts  to  promote  intervention 
strategies  for  minorities.   Activities  for  investigating  health 
education  interventions  include: 

•  Develop  health  education  techniques  appropriate  to  particular 
minority  groups  that  will  facilitate  the  adoption  of  specific 
interventions  for  risk  factors,  especially  among  groups  at 
high  risk  for  cardiovascular  disease,  cancer,  diabetes,  and 
homicide.   Such  research  should  recognize  different  cultural 
sensitivities  and  attitudes  toward  health  behaviors  related  to 
these  problems. 

•  Support  research  to  develop  and  validate  effective  stress 
reduction  and  behavior  modification  strategies  for  treatment  of 
coronary  heart  disease  and  its  risk  factors  in  minority 
populations . 

•  Develop  model  programs  for  use  in  community-based  efforts  to 
prevent  homicide  and  improve  delivery  of  services  to  victims 
of  violence,  such  as  the  House  of  Umoja. 

•  Support  studies  among  minority  groups  to  identify  existing 
health  beliefs  and  practices  more  accurately. 

•  Analyze  factors  associated  with  positive  perinatal  health 
outcomes  among  Asian  Americans  to  help  identify  ways  to  avoid 
adverse  outcomes  for  other  minority  populations. 

•  Identify  effective  health  education  interventions  for  minority 
groups  in  the  areas  of  dietary  risk  factor  reduction, 
nutritional  counseling,  exercise,  and  smoking  cessation. 

•  Support  impact  .and  outcome  evaluations  of  minority  health 
education  interventions  to  help  plan  or  modify  interventions 
and  to  justify  the  allocation  of  resources  to  such  projects. 

•  Elucidate  specific  characteristics  of  minority  populations  that 
may  influence  the  dissemination  of  health  information. 

•  Examine  different  methods  of  approaching  minority  populations, 
through  schools  or  worksites,  to  effect  behavior  change  for 
developing  positive  coping  strategies.   Explore  differences 

in  coping  strategies  between  males  and  females. 

IV.      Research   into  Preventive  Services   Interventions 

Maintenance  of  health  and  prevention  of  disease  are  major 
challenges  to  both  the  individual  and  the  health  community.   To  meet 
the  challenge,  rigorous  prevention-oriented  research  should  be 
initiated  commensurate  with  the  levels  of  need  and  representation  of 
minority  populations.   Components  of  effective  disease  prevention  and 


42 


health  promotion  interventions  that  address  minority  health  concerns 
and  methods  that  build  on  the  strengths  of  both  urban  and  rural 
families  and  communities  are  among  the  activities  stressed  in  this 
section.   Research  activities  include: 

•  Assess  the  factors  influencing  compliance/noncompliance  to 
antihypertensive  medication  regimens,  especially  in  Filipino 
women.   This  group  contrasts  with  other  ethnic  minority  groups 
in  the  United  States  in  which  women  generally  have  better  blood 
pressure  control  than  men. 

•  Design  and  support  studies  to  develop  prevention  methodologies 
especially  in  the  areas  of  alcohol  and  drug  abuse  as  well  as  in 
each  of  the  health  priority  areas.   Assess  the  success  of 
prevention  and  treatment  strategies  for  alcohol  and  drug  abuse 
in  minority  populations. 

•  Conduct  evaluation  studies  to  assess  the  impact  of  innovative 
approaches  to  prevent  adverse  pregnancy  outcomes,  especially 
for  minority  women.   Sociological,  behavioral,  and  biological 
variables  should  be  controlled. 

•  Investigate  the  usefulness  of  expanded  screening  programs  among 
minority  groups,  e.g.,  blood  glucose  screening  in  those  over 
age  50  for  diabetes,  hepatitis  B  screening  for  pregnant  Asian 
women,  screening  newborns  for  sickle  cell  disease,  and  sonography 
for  Black  women  at  increased  risk  for  multiple  gestations. 

•  Determine  the  mechanisms  by  which  pregnancy  planning  influences 
prenatal  care,  birth  outcomes,  and  infant  well-being. 

•  Track  victims  of  serious  nonfatal  violence  (e.g.,  child  abuse, 
spouse  abuse,  assault)  because  these  may  be  events  preceding 
homicide. 

•  Explore  mechanisms  for  reimbursing  counseling  and  patient 
education  services  provided  under  Medicare  and  Medicaid  programs. 
Continue  to  develop  demonstration  programs,  particularly  those 
that  serve  minority  populations,  to  identify  the  best  means 

for  reimbursing  health  education  programs  provided  in  clinical 
settings . 

•  Assess  usefulness  of  clinical  settings  to  offer  counseling  to 
minorities  for  key  health  behaviors. 

•  Support  studies  to  identify  beliefs,  awareness,  and  prehospital 
behavior  that  might  potentially  delay  diagnosis  and  treatment  of 
cardiovascular  disease,  cancer,  diabetes,  and  other  conditions 
in  minority  patients. 


43 


V.  Research  into  Treatment  Services 

Favorable  health  outcomes  are  related  to  accurate  diagnosis, 
appropriate  and  timely  therapy,  and  follow-up.   Understanding  the 
factors  in  primary  health  care  settings  that  influence  diagnosis  and 
treatment  of  minorities  is  important  in  developing  intervention 
approaches.   Research  is  needed  into  the  factors  that  operate  in 
medical  care  settings  including:   the  dynamics  of  the  patient-provider 
relationship;  the  behavior,  beliefs  and  attitudes  of  minority  patients 
and  health  care  providers;  and  patterns  of  treatment/medical  care 
provided  to  minorities.   Specific  research  activities  follow: 

•  Assess  determinants  of  physician  behavior  that  influence 
patient  interaction,  follow-up,  and  the  adoption  of  innovative 
techniques  for  prevention,  early  detection,  and  treatment. 

•  Determine  how  specific  patterns  of  increased  risk  factors  or 
preexisting  conditions  determined  to  be  more  common  among 
minorities  influence  treatment  approaches. 

•  Develop  methods  to  monitor  coronary  heart  disease  events  that 
occur  in  the  community,  such  as:  sudden  death,  hospital  admissions 
and  discharges  of  patients  diagnosed  as  having  heart  disease, 

and  emergency  room  visits  for  patients  with  chest  pains  and 
related  complaints. 

•  Evaluate  the  long-term  efficacy  and  safety  of  antihypertensive 
medications,  particularly  in  Blacks. 

•  Identify  delivery  systems  to  facilitate  the  recruitment  of 
hard-to-reach  pregnant  women  into  early  care  programs. 

•  Continue  to  evaluate  the  effect  on  perinatal  outcomes  of  major 
programs  such  as  Maternal  Infant  Care,  Improve  Pregnancy  Outcome, 
and  Supplemental  Food  Programs  for  Women,  Infants,  and  Children. 

•  Elucidate  how  health  service  patterns  and  individual  behavior 
during  illness  affect  cancer  incidence,  survival,  and  mortality 
of  minorities. 

•  Develop  model  programs  to  foster  participation  of  State  and 
Federal  efforts  in  diabetes  control. 

•  Study  the  specific  components  of  prenatal  care  that  have  the 
greatest  potential  for  preventing  untoward  perinatal  complications. 


44 


VI.   Research  into  Sociocultural  Factors  and  Health  Outcomes 

Sociocultural  factors  play  an  important  role  in  the  maintenance 
of  health,  perception  of  illness,  and/or  the  pattern  of  treatment 
sought  by  the  individual.   Many  factors  such  as  cultural  heritage, 
socioeconomic  status  (SES),  social  support,  knowledge  attitudes, 
and  health  practices  interact  to  affect  health  status.   Furthermore, 
sociocultural  factors  may  vary  over  time  with  other  factors  such  as 
acculturation,  economic  and  employment  changes,  age,  or  immigration 
patterns  that  affect  either  an  individual  or  an  entire  group.   These 
complex  interrelationships  can  only  be  addressed  through 
multidisciplinary  research  that  investigates  factors  beyond  those 
in  a  traditional  biomedical  model.  Specific  research  activities 
include: 

•  Develop  valid  and  reliable  measures  of  acculturation  and  socio- 
cultural indices  that  are  sensitive  to  shifts  in  beliefs,  values, 
and  behavior  patterns  that  might  increase  CHD  risk  in  Native 
Americans.   Similar  measures  should  be  developed  for  other 
diseases  for  which  other  minority  populations  have  an  increased 
risk  of  mortality. 

•  Study  tribal  variations  in  diabetes  among  middle-aged  and 
older  American  Indians. 

•  Investigate  SES  as  a  risk  factor  for  CHD,  hypertension,  stroke, 
hypertension-related  end-stage  renal  disease,  and  cancer  in 
all  minority  groups.   Investigate  minority  subgroups  who  appear 
to  have  higher  risk  profiles  and  who  actually  display  lower 
CHD  mortality  rates. 

•  Continue  research  on  the  association  of  social  mobility  and  social 
status  with  CHD  and  other  disease  categories  in  minority  populations, 

•  Focus  studies  on  the  link  between  economic  conditions  and  infant 
mortality,  including  sociocultural  factors  that  may  help  to 
explain  the  relatively  good  outcomes  in  infant  mortality  seen 

in  the  Asian,  American  Indian,  and  Alaska  Native  populations. 

•  Support  research  to  characterize  the  experiences,  attitudes,  and 
beliefs  among  minority  women  who  tend  not  to  seek  or  continue 
prenatal  medical  care. 

•  Conduct  research  into  the  role  of  traditional  folk  medical 
practices  among  minority  populations  and  its  effect  on  health 
outcomes . 

•  Conduct  descriptive  studies  to  examine  the  relationship  between 
level  of  acculturation,  the  influence  of  cultural  beliefs, 
values,  and  behavior  patterns  in  the  maintenance  of  health, 
development  of  illness,  and  pattern  of  treatment  in  minorities. 


45 


Accounting  For  the 
Health  Status  Disparity 


SOCIAL  CHARACTERISTICS  OF  MINORITY   POPULATIONS 


Introduction 

Among  the  many  factors  presumed  to  influence  minority  health 
status  in  the  United  States  today,  four  social  characteristics  are 
believed  to  be  especially  significant:   (1)  demographic  profiles,  (2) 
nutritional  status  and  dietary  practices,  (3)  environmental  and 
occupational  exposures,  and  (4)  stress  and  coping  patterns. 

The  demographic  profiles  of  Blacks,  Hispanics ,  Asian/Pacific 
Islanders  and  Native  Americans  differ  considerably  from  those  of  the 
nonminority  populations  (see  Tables  2,  3,  and  4).   Marked  differences 
also  exist  among  the  four  groups  and  within  each  group.   For  example, 
native-born  versus  foreign-born  status,  age  at  time  of  immigration, 
and  degree  of  acculturation  are  important  variables  within  the 
Hispanic  and  Asian  American  populations.   Dietary  patterns  and 
practices  are  similarly  group-specific  and  fluctuate  with  the  extent 
to  which  immigrants  have  adopted  nonminority  eating  habits  and  food 
preferences . 

Because  high  percentages  of  minorities  are  city  dwellers,  with 
high  concentrations  living  in  the  inner  cities,  they  are  exposed  to  a 
relatively  greater  number  of  environmental  hazards,  including 
pollution,  traffic  hazards,  substandard  and  overcrowded  housing,  and 
crime.   Occupational  risks  faced  by  minorities  are  higher  than  those 
confronting  nonminority  group  members  because  a  higher  proportion  of 
minority  individuals  are  employed  in  positions  that  potentially 
present  greater  levels  of  exposure  to  environmental  risks,  such  as 
physical  and  mental  stressors,  and  toxic  substances. 

Finally,  the  unique  patterns  of  exposure  to  stressors  and  ways  of 
dealing  with  stress  and  adversity  in  minority  groups  may  play  a 
crucial  role  in  health  outcome.   An  increasing  body  of  research 
suggests  that  the  ways  an  individual  copes  with  stress  and  the 
resources  available  to  resolve  stressful  situations,  rather  than  the 
stressor  itself,  play  the  more  important  role  in  health  outcome.   In 
some  minorities,  traditional  folk  beliefs  and  culturally  specific 
family  patterns  may  affect  their  ability  to  withstand  social, 
economic,  and  psychological  stressors. 

The  following  sections  outline  some  of  the  demographic  data, 
nutritional  and  dietary  patterns,  environmental  and  occupational 
risks,  and  behavior  patterns  that  may  influence  the  health  status  of 
minorities  in  the  United  States.   Although  the  data  on  social 
characteristics  of  minorities  are  compared  with  those  of 
nonminorities ,  each  minority  is  discussed  separately  with  few 
comparisons  to  the  other  minority  populations. 


47 


Table  2 


Percent  Distribution  of  Persons  by  Ethnic/Racial 
Background  and  Sex,  Age,  and  Geographical  Area 
United  States,  1980 


Characteristic 

Ethnic/Racial 

Background 

White 

Black 

Hispanic 
Origin 

Other 

Total 

Total 

79.6 

11.5 

6.4 

2.5 

226,545,805 

Sex 

Male 

79.7 

11.2 

6.6 

2.5 

110,053,161 

Female 

79.5 

11.8 

6.3 

2.4 

116,492,644 

Age 

Median  Age* 

31.6 

24.9 

23.2 

26.5 

30.0 

Under  15** 

73.0 

15.0 

9.0 

3.0 

51,290,339 

15-44** 

79.0 

12.0 

7.0 

3.0 

105,203,337 

45-64** 

84.0 

9.0 

4.0 

2.0 

44,502,662 

65 -h** 

88.0 

8.0 

3.0 

1.0 

25,549,427 

Geographic  Area 

Region 

North  East 

83.4 

9.6 

5.3 

1.7 

49,135,283 

North  Central 

87.5 

9.0 

2.2 

1.3 

58,865,670 

South 

74.3 

18.4 

5.9 

1.3 

75,372,362 

West 

73.5 

5.1 

14.5 

6.9 

43,172,490 

Urban 

76.1 

13.3 

7.9 

2.8 

167,050,992 

Rural 

89.4 

6.5 

2.5 

1.6 

59,494,813 

SOURCE:  General  Population  Characteristics,  United  States  Summary,  1980  Census  of  Population.  U.S.  Department  of 
Commerce,  Bureau  of  the  Census.  Issued  May  1983. 
♦Note  that  the  median  age  is  given  in  years  for  each  racial/ethnic  group  (and  total)  and  is  not  a  percent  distribution. 
**Percent  distribution  is  rounded  to  nearest  whole  number. 


48 


Table  3 


Percent  Distribution  of  Persons  of  Nonminority  and 

Minority  Background  by  Number,  Sex,  and  Geographic  Distribution, 

United  States,  1980 


Characteristic 

Total 
Male 
Female 


Ethnic/Racial  Background 


Nonminority 


79.6 
79.7 
79.5 


Minority 


20.4 
20.3 
20.5 


Total 


226.5 
110.0 
116.5 


Geographic  Area 
Region 
Northeast 
North  Central 
South 
West 


83.4 
87.5 
74.3 
73.5 


16.6 
12.5 
25.6 
26.5 


49.1 
58.9 

75.4 
43.2 


Urban 
Rural 


76.1 
89.4 


24.0 
10.6 


167.1 
59.5 


NOTE:  Percent  distribution  is  rounded  to  nearest  tenth. 

SOURCE:  General  Population  Characteristics,  United  States  Summary,  1980  Census  of  Population.  U.S.  Department  of 
Commerce,  Bureau  of  the  Census.  Issued  May  1983. 


49 


Table  4 


Occupational  Distribution  of  Minority  Groups 
Ratio  of  Nonminority  to  Minority* 


Occupation 


Sex: 


Black 


M 


Asian 


M 


Native 
American 


M 


Hispanic 


M 


White  Collar 


1.39  1.59  1.03  .96  1.50  2.04         4.70 


Blue  Collar 


.77  .85 


.88  1.42 


.68 


.77  1.54 


Farm 


1.56  1.08  1.20  1.03 


.78 


.66 


Service 


.56 


.49  1.03 


.35 


.57 


.57 


.13         - 


Employed 


1.08  1.07  1.90  1.39  2.95 


1.82 


SOURCE:  Department  of  Commerce:  A  Statistical  Analysis.  Women  in  the  United  States.  Series  P-23,  No.  100. 
Washington,  D.C. 

*Represents  the  ratio  of  nonminority  to  minority.  For  example,  39  percent  more  nonminority  males  are  in  white  collar 
occupations  than  are  Black  males. 


50 


Social  Characteristics  of  Blacks 

The  1980  report  of  the  Bureau  of  the  Census  indicates  that  one 
out  of  every  five  persons  in  the  United  States  is  a  member  of  a 
minority  group.   Blacks  are  the  single  largest  minority  group, 
constituting  11.5  percent  of  the  total  population  of  the  country.   The 
number  of  Blacks  in  1980  was  26.5  million,  an  increase  of 
approximately  17  percent  over  1970  Census  figures.   The  distribution 
of  Blacks  compared  with  Whites  is  different  within  age  categories.   At 
age  15  or  under.  Blacks  constitute  approximately  15  percent  of  the 
total  population,  while  by  age  64,  their  relative  proportion  has 
declined  to  8  percent. 

Nearly  59  percent  of  all  Blacks  lived  in  the  central  cities  in 
1980,  although  increasing  numbers  were  living  in  nonrural  areas 
outside  these  cities.   Cities  with  the  largest  number  of  Blacks  are 
New  York,  Chicago,  Detroit,  Philadelphia,  and  Los  Angeles.   Migration 
of  Blacks  from  the  South  not  only  slowed  but  slightly  reversed  during 
the  1970's;  nonetheless,  53  percent  of  all  Blacks  still  reside  in  the 
southern  region  of  the  country. 

The  median  age  of  Blacks  is  24.9  years.   The  life  expectancy  in 
1983  was  65  years  for  men  and  74  years  for  women,  contrasted  to  72 
years  and  79  years  for  White  men  and  women,  respectively.   The 
age-adjusted  mortality  rate  per  1,000  population  for  Blacks  is  7.7; 
for  Whites ,  5.3. 

Black  families  are  on  the  average  slightly  larger  than 
nonminority  families,  with  the  average  Black  family  comprised  of  3.7 
members.   Although  total  birth  rates  among  all  groups  have  dropped 
since  1970,  the  overall  rate  of  childbearing  is  still  higher  among 
Black  women  than  among  women  of  nonminority  groups,  currently 
averaging  2.3  births  per  woman  for  Blacks  and  1.7  for  nonminority 
women.   The  percent  of  Black  households  headed  by  women  (37.7  percent) 
is  more  than  three  times  higher  than  that  of  nonminority  households 
headed  by  women  (10.9  percent). 

Seventy-nine  percent  of  Blacks  have  completed  a  high-school 
education,  and  13  percent  are  college  graduates.   The  median  income  of 
Black  families  in  1981  was  $13,270;  nonminority  median  family  income 
was  approximately  $10,000  higher.   One  of  every  three  Blacks  (34 
percent)  lived  below  the  poverty  level  in  1981.   This  rate  was 
consistent  with  that  of  Hispanic  and  Native  Americans  but 
substantially  higher  than  that  of  nonminorities,  among  whom  the  rate 
was  11  percent.   Unemployment  among  Blacks  in  1982  was  18.9  percent. 
This  was  more  than  double  the  nonminority  unemployment  rate  of  8.6 
percent . 

There  is  no  single  dominant  dietary  pattern  among  Black 
Americans.   Generally,  dietary  patterns  may  be  subdivided  into 
southern  versus  nonsouthern,  urban  versus  rural,  native-born  versus 


51 


foreign-born,  and  Christian  versus  Muslim.   Many  of  the  unique  dietary 
patterns  among  Blacks  are  influenced  by  historical  and  regional  food 
availability  and  food  preparation  practices.   For  example,  among 
Blacks  living  in  the  southern  region  of  the  United  States,  diets  may 
include  a  preference  for  vegetables,  grain  and  grain  products  high  in 
carbohydrates,  and  organ  meats  high  in  cholesterol. 

Although  there  is  a  relatively  high  rate  of  meal  skipping  and  a 
lower  use  of  vitamin  and  mineral  supplements  among  the  Black 
population,  there  are  no  data  that  suggest  major  differences  between 
Blacks  and  nonminorities  today  with  regard  to  the  proportion  of 
calories  consumed  from  carbohydrates,  proteins,  and  saturated  and 
unsaturated  fats.   Generally,  Black  diets  are  rich  in  sources  of 
vitamin  A,  predominantly  from  green  leafy  vegetables,  and  in  protein 
derived  from  poultry,  fish,  and  dried  beans.   Blacks  tend  to  consume 
fewer  dairy  products  than  do  nonminority  group  members,  possibly 
related  to  a  higher  rate  of  lactose  intolerance  among  Blacks  than 
Whites.   Salt  consumption  is  high;  however,  excessive  salt  intake  is 
also  a  dietary  risk  factor  in  the  diet  of  nonminority  groups. 

Breast  feeding  is  less  common  among  Black  women  than  among 
nonminority  women,  with  the  exception  of  women  from  the  Caribbean 
countries  among  whom  breast  feeding  is  more  common.   Some  research  has 
shown  that  pica  (a  craving  for  nonfood  substances  such  as  clay)  is 
fairly  common  in  Black  women  of  the  rural  South.   A  significant 
nutritional  risk  among  Blacks  is  the  marked  prevalence  of  obesity 
among  Black  women  compared  with  nonminority  groups.   There  is  no 
evidence  of  extensive  prevalence  of  growth  stunting  among  Black 
children. 

In  general,  Blacks  have  higher  rates  of  morbidity  and  mortality 
from  unintentional  (accidental)  injuries  such  as  poison  ingestion, 
asphyxiation  resulting  from  faulty  heaters,  and  drowning  than  do 
nonminority  members.   Blacks  also  have  a  much  higher  death  rate  from 
housefires  than  do  nonminority  group  individuals.   Differences  in 
nondisease  mortality  and  morbidity  rates,  however,  are  diminished  with 
adjustment  for  income. 

Black  women  have  approximately  the  same  rate  of  participation  in 
the  work  force  as  nonminority  women,  while  the  rate  for  Black  men  is 
slightly  lower  than  that  of  nonminority  men.   Black  women  have  a  39 
percent  greater  chance  of  sustaining  job-related  disease  and  serious 
work-related  injuries  than  nonminorities.   Blacks  have  a  25  percent 
greater  chance  of  dying  from  such  causes  than  nonminorites .   Blacks  in 
the  work  force  are  highly  concentrated  in  three  of  the  six  major 
occupational  groups:   operators,  fabricators,  and  laoorers  (27 
percent);  technical,  sales,  and  administrative  support  (24  percent); 
and  service  occupations  (23  percent) .   Blacks  are  consistently 
underrepresented  in  managerial  and  professional  specialty  occupations, 
where  they  constitute  6  percent  of  the  work  force. 


52 


A  review  of  the  family  and  behavior  patterns  of  Blacks  reveals 
that  among  the  Black  populations,  kinship  and  family  ties  are 
extremely  important.   These  ties  often  form  the  basis  of  a  network  of 
mutual  support  that  can  provide  material,  emotional,  and  social 
resources  to  family  members  in  distress.   Also,  the  church  is  a 
powerful  source  of  emotional  strength  for  many  Blacks  and  their 
families.   Folk  beliefs  about  health  and  illness  may  have  have  varying 
effects  on  how  an  individual  reacts  to  signs  and  symptoms  of  poor 
health.   However,  little  is  known  about  folk  beliefs  among  Blacks  or 
the  extent  to  which  Blacks  rely  on  folk  remedies.   Research  on  the 
relationship  between  health  beliefs  and  illness  behavior  suggests  that 
such  differences  may  assist  in  explanation  of  patterns  of  health  care 
for  some  minorities. 

Social  Characteristics  of  Hispanic  Americans 

Hispanic  Americans  numbered  9.1  million  in  1970  and  14.6  million 
in  1980,  a  61  percent  increase  within  the  decade.   By  1983,  the 
Hispanic  population  in  the  U.S.  had  reached  15.9  million.   Mexican 
Americans  constituted  nine  million,  or  nearly  two-thirds  of  this 
total,  followed  by  Puerto  Ricans  (two  million),  and  Cubans  (one 
million).   All  told,  Hispanic  Americans  constitute  6.4  percent  of  the 
population  of  the  United  States.   The  more  than  three  million  Puerto 
Ricans  residing  in  Puerto  Rico  are  not  included  in  these  figures, 
since  they  are  treated  separately  by  the  Census  Bureau. 

Sixty  percent  of  all  Hispanics  live  in  Arizona,  California, 
Colorado,  New  Mexico,  and  Texas.   Half  of  the  total  live  in  two  states, 
California  and  Texas.   The  Hispanic  population  showed  signs  of  greater 
geographic  dispersion  during  the  1970s,  most  notably  to  New  York, 
Illinois,  and  Florida.   Half  of  all  Cuban  Americans  live  in  Florida. 
One  out  of  two  Hispanic  Americans  lives  in  the  inner  city  of 
metropolitan  areas,  and  they  are  heavily  concentrated  in  the  larger 
cities,  i.e.,  those  with  a  population  of  one  million  or  more. 

Hispanics  are  generally  a  youthful  population.   In  1980,  20 
percent  were  less  than  ten  years  of  age,  contrasted  to  14  percent  for 
the  country  as  a  whole.   Conversely,  only  3  percent  of  Hispanics  were 
more  than  70  years  of  age,  as  opposed  to  7.7  percent  of  nonminorities . 
The  median  age  of  Hispanic  Americans  is  23  years. 

Hispanic  Americans  have  a  relatively  high  fertility  rate;  the 
number  of  children  per  family  is  2.3.   Twenty-three  percent  of 
Hispanic  households  are  headed  by  women;  among  Puerto  Rican  families, 
the  rate  is  40  percent.   Forty-nine  percent  of  Hispanic  women  are  in 
the  work  force.   Fifty-eight  percent  of  Hispanic  Americans  have 
completed  a  high-school  education;  this  number  is  more  than  20 
percentage  points  lower  than  that  of  the  Black  population.   One  out  of 
every  ten  Hispanic  Americans  holds  a  college  degree. 


53 


The  median  family  income  for  Hispanic  Americans  in  1981  was 
$16,228.   Thirty  percent  of  all  Hispanics  were  living  below  the 
official  poverty  level  in  1982,  and  13.8  percent  were  unemployed. 

The  variation  in  dietary  practices  among  Hispanic  Americans 
reflects  the  diversity  of  backgrounds  among  this  subset  of  the 
population.   Certain  similarities,  however,  may  be  seen;  these  include 
a  relatively  higher  reliance  on  vegetable  protein  sources  rather  than 
on  meat  sources.   Grains  and  grain  products  are  dietary  staples. 
Green  leafy  vegetables  are  not  a  typical  part  of  the  diet. 
Consumption  of  dairy  products  is  relatively  low. 

Food  consumption  and  preparation  practices  common  among  Hispanics 
of  Mexican,  Puerto  Rican,  and  other  backgrounds  are  generally  adequate 
to  provide  all  needed  nutrients.   Fiber  consumption  is  high.   Animal 
fat  content  is  substantial,  but  it  is  roughly  equivalent  to  that  of 
the  typical  nonminority  diet. 

Several  authors  have  reported  concern  over  the  high  sodium  and 
high  carbohydrate  content  of  many  Hispanic  diets .   Studies  also  have 
shown  an  excessive  prevalence  of  growth  stunting  in  Hispanic  children, 
especially  among  those  two  to  five  years  old.   This  problem  is  more 
severe  among  children  not  born  in  the  United  States  than  it  is  among 
native-born  Hispanic  children.   Growth  stunting  is  also  more  prevalent 
among  children  of  lower  income  families.   It  has  been  suggested  that 
the  incidence  of  chronic  disease  such  as  diabetes  mellitus  is  related 
to  overnutrition  and  obesity  in  Hispanics. 

A  large  proportion  of  Hispanics  work  in  blue  collar,  service,  or 
agricultural  occupations.   The  shift  from  rural,  unskilled  labor  to 
blue  collar  work  has  not  been  accompanied  by  a  rise  in  socioeconomic 
position.   Hispanic  Americans  are  overrepresented  in  positions  in  the 
manufacturing  and  construction  industries,  which  report  the  first  and 
second  greatest  number  of  work-related  injuries,  respectively.   They 
also  are  overrepresented  in  farming  and  in  metal  mining,  two 
additional  high-risk  employment  areas.   Data  from  the  Social  Security 
Administration  reveal  that  severe  disability  resulting  from 
work-related  injury  was  almost  twice  as  high  among  Hispanics  as  among 
nonminority  workers  in  1980.   It  may  be  presumed  that  the  impact  of 
occupational  injury  on  Hispanics  may  be  much  higher  because  of  the 
number  of  migrants  and  undocumented  workers  who  are  not  reported  when 
injured  and  who  do  not  receive  workmen  s  compensation  benefits. 

In  1982,  Hispanics  were  classified  in  the  employment  category  of 
operators"  almost  twice  as  often  as  nonminorities  (23  percent  versus 
12  percent) .   Hispanics  have  lower  rates  of  employment  than 
nonminorities  as  professional  workers  (9  percent  versus  17  percent) 
and  in  management  positions  (7  percent  versus  17  percent).   They  have 
higher  employment  rates  as  general  laborers  (7  percent  versus  4 
percent)  and  as  farm  laborers  (4  percent  versus  1  percent) . 


54 


Hispanic  Americans  have  a  very  strong  family  and  community 
orientation.   The  church  and  parish  community  are  an  important  focus 
of  family  and  social  life  for  many  Hispanics .   In  more  rural  settings, 
some  Hispanics  view  the  community  as  an  extension  of  the  family  and 
feel  that  it  has  a  protective  and  healing  force  that  may  be  used  to 
reinforce  an  individual's  own  coping  skills.   However,  regional 
studies  on  naturalistic  support  systems  indicate  that  the  quality  of 
support,  rather  than  the  number  of  sources,  has  a  greater  impact  on 
the  effectiveness  of  support  systems  in  ameliorating  stress.   Little 
research  has  been  done  to  explore  how  family,  church,  and  community 
interact  to  provide  support  to  a  community  member.   Many  Hispanics 
accord  their  elders  respect  and  authority  and  value  their  support  in 
times  of  distress. 

Social  Characteristics  of  Asian/Pacific   Islanders 

The  number  of  Asian/Pacific  Islanders  in  the  United  States  grew 
by  120  percent  between  1970  and  1980.   As  of  1980,  this  group  numbered 
3.7  million  and  constituted  1.6  percent  of  the  population. 
Asian/Pacific  Islanders  have  a  far  larger  percentage  of  foreign-born 
persons  (58  percent)  than  any  of  the  other  United  States  minority 
groups . 

Asian/Pacific  Islanders  come  from  more  than  20  different 
countries.   The  three  most  common  countries  of  origin  are  China 
(812,000  persons),  the  Philippines  (781,000),  and  Japan  (716,000). 
A  distinct  trend  in  Asian/Pacific  Islander  demographics  of  the  past 
decade  has  been  the  immigration  of  large  numbers  of  Southeast  Asians 
under  the  Refugee  Resettlement  Program.   However,  data  on  social 
charactistics  of  Asian/Pacific  Islanders  principally  reflect 
information  from  the  three  largest  subgroups. 

Asian/Pacific  Islanders  live  predominantly  in  the  western  part  of 
the  United  States,  although  their  concentration  in  this  region  has 
begun  to  decrease  noticeably.   Fifty-six  percent  now  live  in  the  West, 
compared  with  70  percent  at  the  time  of  the  1970  census.   Four  out  of 
every  five  of  the  country's  recent  Indochinese  immigrants  live  in  16 
states;  one-third  of  the  total  live,  in  California,  and  one-tenth  are 
in  Texas . 

The  median  age  of  the  Asian/Pacific  Islander  population  is  28.7 
years .   This  is  higher  than  that  of  the  other  three  largest  minority 
groups  but  still  lower  than  the  median  age  (31.3  years)  of  the 
nonminority  group.   The  age-adjusted  mortality  rate  is  3.2  deaths  per 
1,000  population.   Only  11  percent  of  Asian/Pacific  Islander 
households  are  headed  by  women;  this  is  less  than  the  nonminority 
rate.   Fifty-eight  percent  of  Asian/Pacific  Islander  women  are  in  the 
workforce. 


55 


The  median  educational  level  of  Asian/Pacific  Islanders  is  quite 
similar  to  that  of  the  general  population.   Three  out  of  four  have 
completed  high  school,  and  approximately  one  out  of  three  holds  a 
college  degree. 

The  median  income  level  for  Asian/Pacific  Islander  families,  as 
shown  in  the  1980  census,  was  $22,713.   Median  income  among 
Asian/Pacific  Islander  families  is  consistently  higher  than  that  of 
any  other  group,  including  the  nonminority  group.   Asian  adults, 
however,  often  share  a  household  for  reasons  of  exigency,  thereby 
inflating  the  reported  "family"  income.   As  a  result,  the  true  extent 
of  poverty  among  Asian/Pacific  Islanders  is  often  masked. 

Moreover,  income  differs  substantially  among  the  Asian  subgroups: 
it  is  highest  among  those  from  Japan  and  lowest  by  far  ($12,840)  among 
the  Vietnamese.   The  unemployment  rate  shows  similar  variations.   In 
1979,  the  overall  poverty  rate  for  Asian/Pacific  Islanders  was  13.1 
percent;  the  range  was  from  7  percent  for  the  Japanese  and  Filipino 
subgroups  to  more  than  35  percent  for  the  Vietnamese.   The 
unemployment  rate  for  the  overall  Asian/Pacific  Islander  population 
stands  at  4.7  percent,  which  is  nearly  two  percentage  points  lower 
than  the  nonminority  rate. 

The  primary  source  of  calories  for  many  Asian/Pacific  Islanders 
is  rice.   The  varieties  of  rice  used  and  the  techniques  of 
preparation,  however,  are  diverse.   Prewashed  or  unenriched  rice  poses 
risks  of  low  vitamin  B  and  mineral  intake,  although  such  deficiencies 
may  be  overcome  by  adequate  intake  of  pork  or  fish.   Consumption  of 
vegetables,  fruits,  fish,  and  shellfish  is  relatively  higher;  but 
intake  of  animal  protein  is  relatively  lower  than  that  of  the 
nonminority  population.   Dairy  products  are  used  much  less  frequently; 
however,  the  traditional  sources  of  calcium  in  the  Asian  diet  are  from 
soy  bean  curd,  sardines,  or  green  leafy  vegetables.   With 
acculturation,  adaptation  of  the  traditional  Asian  diet  to  the  foods 
most  readily  available  in  the  United  States  generally  involves 
increasing  the  proportion  of  caloric  intake  coming  from  animal 
protein,  fats,  and  refined  sugar.   Intakes  of  complex  carbohydrates 
and  cholesterol  increase,  while  fiber  intake  decreases.   Such  changes 
are  reflected  in  the  higher  weight  and  increased  rate  of  coronary 
disease  among  Asians  in  the  United  States  compared  with  cohorts  in 
their  countries  of  origin.   Many  foods  in  the  Asian  diet,  such  as 
salted  and  pickled  vegetables,  soy  sauce,  meat  and  fish  pastes,  and 
fermented  soy  bean  curd,  are  high  in  sodium. 

When  all  aspects  of  the  Asian/Pacific  Islander  diet  are  taken 
into  consideration,  an  area  of  concern  is  possible  growth  stunting, 
which  may  affect  as  many  as  one-third  of  the  children  between  two  and 
five  years  of  age.   However,  the  data  are  insufficient  to  determine  if 
this  is  true  and  if  it  has  health  consequences  for  Asians/Pacific 
Islanders.   Low  weight  for  height  is  not  a  problem.   Obesity,  a 
notable  health  risk  among  other  minority  groups,  is  not  common  among 
Asian/Pacific  Islanders. 


56 


Information  on  occupational  patterns  and  employment  rates  of 
Asian/Pacific  Islanders  are  most  complete  for  the  larger  subgroups, 
Chinese,  Japanese  and  Filipinos.   Although  there  are  relatively  larger 
numbers  of  Asian/Pacific  Islanders  employed  in  white  collar  positions, 
a  disproportionate  number  of  Asian/Pacific  Islanders  are  engaged  in 
jobs  that  are  substantially  below  their  educational  levels.   Taking 
into  account  both  men  and  women,  19  percent  of  Chinese,  15  percent  of 
Japanese,  and  14  percent  of  Filipinos  have  professional  occupations, 
compared  with  13  percent  for  nonminorities .   At  the  same  time,  19 
percent  of  Chinese,  17  percent  of  Filipinos,  and  13  percent  of 
Japanese  workers  have  service  occupations,  compared  with  only  11 
percent  of  nonminorities. 

Recently  arrived  Indochinese  refugees  constitute  a  specific 
subset  within  the  larger  Asian  population  that  may  vary  considerably 
from  the  demographic  patterns  cuurently  reported  for  more  established 
Asian  groups.   Their  unemployment  rate  and  poverty  rate  are  much 
higher  than  other  Asian  groups,  and  nonminorities.   Furthermore, 
because  many  of  these  newcomers  speak  little  or  no  English,  they  often 
are  forced  to  seek  employment  in  positions  with  a  disproportionate 
number  of  occupational  hazards  or  in  low-level  service  areas. 

Many  Asian/Pacific  Islanders  pride  themselves  on  their 
independence  and  self-sufficiency.   Consequently,  some  are 
particularly  reluctant  to  seek  health  services,  especially  for  mental 
illness  or  for  counseling.   In  some  Asian  countries,  the  ability  to 
control  the  expression  of  feelings  is  often  felt  to  be  a  sign  of 
refinement.   The  family  is  very  important  to  many  Asians,  and  some 
Asians  believe  that  seeking  help  outside  the  family  is  a  sign  of 
weakness.   Although  cultural  patterns  of  family  reliance  often 
strengthen  an  individual's  social  support  resources,  they  also  may 
pose  a  barrier  to  care  when  it  is  truly  needed.   Some  Asian/ 
Pacific  Islanders  consult  traditional  healers  such  as  acupuncturists 
and  herbalists  or  use  traditional  remedies  as  supplements  to  other 
western  medical  care  sources.   The  extent  of  use  and  efficacy  of 
traditional  medicine  among  Asian/Pacific  Islanders  is  unknown. 

Social  Characteristics  of  Native  Americans 

Native  Americans  include  American  Indians,  Aleuts,  Alaska 
Eskimos,  and  Native  Hawaiians.   Data  reported  here,  however,  refer 
primarily  to  American  Indians  for  whom  information  is  most  available. 

American  Indians  are  the  smallest  minority  group  in  the  United 
States.   In  1980,  they  numbered  approximately  1.5  million,  less  than 
one  percent  of  the  total  population.   The  average  American  Indian 
family  has  4.6  members;  this  is  larger  than  any  other  minority  or 
nonminority  group.   The  birth  rate  among  American  Indians  is  nearly 
twice  that  of  other  groups,  and  the  average  life  expectancy  is  six 


57 


years  less.   The  median  age  of  American  Indians --22 .4  years--is  lower 
than  that  of  any  other  group.   It  is  nearly  nine  years  lower  than  that 
of  the  nonminority  population. 

Nearly  one  out  of  every  four  American  Indian  households  is  headed 
by  a  woman,  and  approximately  half  (48  percent)  of  American  Indian 
women  are  employed  outside  the  home. 

The  overall  educational  attainment  of  American  Indians  is  the 
lowest  of  all  minority  groups.   The  1980  census  revealed  that  fewer 
than  one  out  of  three  (31  percent)  have  graduated  from  high  school  and 
that  only  7  percent  hold  college  degrees. 

Likewise,  median  family  income  is  well  below  the  national  level. 
In  1979,  it  was  $15,900  per  year,  which  is  $7,200  below  the  level  for 
the  nonminority  group.   Twenty-nine  percent  of  American  Indian 
families  lived  in  poverty  in  1979;  this  is  similar  to  the  overall 
poverty  rate  among  Black  and  Hispanic  minorities  but  substantially 
higher  than  the  poverty  level  of  Asian/Pacific  Islanders  and  of  the 
nonminority  group.   The  unemployment  rate  among  American  Indians  in 
the  civilian  labor  force  in  1979  was  more  than  13  percent. 

One-half  of  all  American  Indians  live  in  the  western  or 
southwestern  United  States.   Twenty-four  percent  live  on 
reservations,  and  another  8  percent  live  on  historic  trust  areas  in 
Oklahoma.   Most  of  these  reservations  have  fewer  than  1,000  residents; 
only  one  reservation  has  a  population  greater  than  100,000. 

Tribal  variations  are  considerable  in  current  diets  of  American 
Indians.   Factors  contributing  to  dietary  differences  are  food 
availability,  preference  for  nonminority  food,  and  place  of  residence 
(i.e.,  urban  or  reservation).   In  general,  the  diets  of  many 
traditional  American  Indians  today  are  high  in  refined  carbohydrates, 
fat,  and  sodium.   They  are  low  in  meat,  eggs,  cheese,  and  milk;  this 
may  indicate  a  potential  problem  with  protein  deficiency. 

A  relatively  high  percentage  of  American  Indian  women  report  that 
they  breast  feed  their  infants,  and  the  growth  patterns  indicating 
adequate  childhood  nutition  are  not  markedly  different  from  that  of 
nonminority  children.   There  is,  however,  a  disproportionate  incidence 
of  high  weight  for  height  among  American  Indian  children  that  begins 
in  early  childhood.   Likewise,  obesity  is  a  problem  for  a  large 
proportion  of  American  Indian  adults  and  may  be  associated  with  the 
high  risk  of  diabetes  mellitus  in  this  population.   Alcohol-related 
disease  is  also  a  source  of  concern  among  the  American  Indian 
population,  and  excessive  alcohol  consumption  may  interfere  with 
adequate  nutritional  intake. 

Native  Americans,  along  with  Blacks,  have  the  highest  rates  of 
injury  and  death  from  nondisease  causes.   Motor  vehicles  are  included 
in  nearly  half  of  all  accidental  injuries,  and  the  rate  of  such  accidents 
among  Native  Americans  is  higher  than  that  of  any  group. 


58 


The  unemployment  status  of  a  large  number  of  American  Indians 
seems  due  to  a  combination  of  socioeconomic  and  cultural  factors. 
However,  industrial  firms  attracted  by  tax  incentives,  low  labor 
costs,  and  an  accessible  labor  force  have  begun  moving  onto  some  of 
the  Indian  reservations.   Although  they  provide  a  much  needed  source 
of  employment,  many  of  these  industries  are  of  the  type  that  produce  a 
number  of  occupational  risks.   This  may  increase  the  health  risks  to 
American  Indian  workers.   Because  of  traditional  cultural  beliefs,  some 
Native  Americans  are  reluctant  to  use  prescribed  safety  measures  or 
precautions.   The  National  American  Indian  Safety  Council  (NAISC), 
representing  a  cross-section  of  the  Indian  tribes,  is  working  to 
establish  guidelines  that  may  assist  in  reducing  occupational  hazards 
for  these  workers . 

The  mores  and  cultural  patterns  of  the  nonminority  population 
imposed  upon  Native  Americans  have  disrupted  their  traditional  way  of 
life.   A  sense  of  powerlessness  and  hopelessness  has  often  been 
observed  as  a  result  and  may  be  related  to  the  high  incidence  of 
alcohol  abuse,  suicide,  depression,  and  obesity  among  this  population. 

The  medical  and  socioeconomic  consequences  of  alcoholism,  which 
is  sometimes  viewed  as  a  way  of  coping  with  cultural  disruption,  are 
extensive  and  tragic;  they  include  death  and  injury  from  motor  vehicle 
accidents,  assaults,  family  violence  and  disintegration,  and 
alcohol-related  disease.   Alcoholism  also  contributes  to  instability 
of  the  work  force. 

American  Indians,  however,  are  also  observed  to  draw  upon 
traditional  sources  of  strength  to  cope  with  stressors.   Traditional 
strengths  include  the  family,  the  tribe,  and  the  land  itself.   Yet, 
many  American  Indian  children  leave  their  homes  today,  most  often  to 
go  to  boarding  schools.   Many  of  those  who  have  studied  the  problems 
of  the  American  Indian  family  believe  that  this  practice  has  weakened, 
rather  than  strengthened,  family  stability. 

It  is  recognized  that  traditional  medicine  men  play  powerful 
roles  in  the  health  practices  of  this  population.   Health  care  and 
social  programs  should  be  coordinated  with  these  individuals,  with  the 
awareness  that  treatment  outcome  is  strongly  influenced  by  the  belief 
system  of  the  patient. 


59 


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1.  Bureau  of  the  Census.   (1983).   America's  black  population, 

1970  to  1982:  A  statistical  view.   Washington,  DC: 
U.S.  Department  of  Commerce. 

2.  Bureau  of  the  Census.   (1980).   American  Indian  areas  and 

Alaska  Native  villages:  1980  census  of  the  population. 
(Supplementary  report).   Washington,  DC:   U.S.  Department 
of  Commerce. 

3.  Bureau  of  the  Census.   (1984,  January  8).   American  Indian, 

Eskimo,  and,  Aleut  populations.   Washington,  DC:   U.S. 
Department  of  Commerce. 

4.  Bureau  of  the  Census.   (1984,  July).   Asian  and  Pacific 

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5.  Bureau  of  the  Census.   (1984,  January  8).   Asian  and  Pacific 

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6.  Bureau  of  the  Census.   (1980).   Asian  and  Pacific  Islander 

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Washington,  DC:   U.S.  Department  of  Commerce. 

7 .  Report  of  the  Working  Group  on  Health  Education  among  Minorities. 

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8.  Bureau  of  the  Census.   (1983,  May).   General  population 

characteristics:  1980  census  of  the  population  (Chap.  B, 
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9.  Haan,  M.  N. ,  &  Kaplan,  G.  A.   (1985).   Socioeconomic  position 

and  minority  health.   Unpublished  manuscript.  Task  Force  on 
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10.  [Demographic  profile  of  the  U.S.  Asian/Pacific  Islander  population] 

(1985).   Unpublished  raw  data.  Task  Force  on  Black  and  Minority 
Health,  DHHS. 


60 


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12.  Kumanyika,  S.  K. ,  &  Helitzer,  D.  L.   (1985,  February). 

Nutritional  status  and  dietary  patterns  of  racial 
minorities  in  the  United  States .   Unpublished  manuscript, 
Task  Force  on  Black  and  Minority  Health,  DHHS . 


13.  National  Institute  for  Occupational  Safety  and  Health. 

(1981,  July).   Issues  affecting  minority  workers. 
Proceedings  of  the  National  Conference  on  Occupational 
Health  and  Safety.   U.S.  Department  of  Health,  Public 
Health  Service,  Centers  for  Disease  Control.   Cincinnati,  OH. 

14.  Parron,  Delores.   (1985).   Stress  and  Coping.   Unpublished 

manuscript.  Task  Force  on  Black  and  Minority  Health,  DHHS. 

15.  Subcommittee  on  Cancer  in  Minorities.   (1985).   [Demography  and 

health  services'  patterns].   Unpublished  raw  data,  Task  Force 
on  Black  and  Minority  Health,  DHHS. 

16.  Yu,  E.,  Chang,  C.  F.,  Liu,  W.  T. ,  &  Kan,  S.  H.   (1984).   Asian-White 

mortality  differences:  Are  there  excess  deaths? 
Unpublished  manuscript.  Task  Force  on  Black  and  Minority 
Health,  DHHS. 


61 


MORTALITY  AND  MORBIDITY   INDICATORS 


Introduction 

Differences  in  life  expectancy  between  minorities  and 
nonminorities  strongly  suggest  the  existence  of  health  problems  among 
certain  segments  of  the  population.   Although  life  expectancy 
dramatically  summarizes  the  overall  differences  in  specific  causes  of 
death  and  illness  among  various  groups  in  the  United  States,  Secretary 
Heckler  asked  the  Task  Force  to  go  beyond  life  expectancy  data  and 
investigate  more  fully  the  magnitude  of  the  disparity  in  health  status 
of  minority  groups  compared  with  nonminorities,  and  its  causes. 
Consequently,  the  Task  Force  examined  and  identified  appropriate 
indices  to  measure  the  various  disparities,  identified  the  leading 
causes  of  death  and  their  ramifications  within  each  minority,  examined 
other  indicators  of  health  status  and  morbidity  for  minority  groups, 
and  reviewed  the  socioeconomic  correlates  of  these  factors.   Based  on 
this  investigation,  the  Task  Force  was  to  suggest  approaches  for 
reducing  the  identified  disparities. 

Measures  of  Mortality 

In  addition  to  life  expectancy,  two  other  indices  were  used  by 
the  Task  Force  to  summarize  mortality  differentials:   1)  excess 
deaths,  and  2)  relative  risk  of  death. 

"excess  deaths"  expresses  the  difference  between  the  number  of 
deaths  actually  observed  in  a  minority  group  and  the  number  of  deaths 
that  would  have  occurred  in  that  group  if  it  experienced  the  same 
death  rates  for  each  age  and  sex  as  the  White  population  (1).   "Excess 
deaths"  are  sometimes  referred  to  as  "observed  minus  expected  deaths 
(when  expected  deaths  are  based  on  the  death  rate  of  the  White 
population) .   Excess  deaths  can  be  calculated  for  each  age  and  sex 
group  as  well  as  for  specific  causes  of  death.   When  minority  death 
rates  are  higher  than  those  of  Whites,  excess  deaths  will  be  a 
positive  number  greater  than  zero;  it  will  be  zero  when  the  rates  are 
the  same  as  for  Whites;  and  it  will  be  a  negative  number  when  the 
death  rates  for  minorities  are  lower  than  for  Whites . 

The  measure  of  excess  deaths  depends  on  differences  in  death 
rates  between  the  minority  and  nonminority  populations  and  specifies 
the  actual  deaths  in  a  minority  group  attributable  to  these  mortality 
rate  differences .   The  number  of  observed  excess  deaths  also  depends 
on  the  size  of  the  minority  population  and  the  number  of  total  deaths. 
Further  analysis  with  this  measure  can  identify  excess  deaths  due  to  a 
specific  cause  such  as  heart  disease,  affecting  the  greatest  number  of 
people  in  a  particular  group. 


63 


To  account  for  the  differences  in  size  of  the  population,  the 
"relative  risk"  of  death  is  used.   "RELATIVE  RISK"  is  the  ratio  of  the 
minority  death  rate  to  the  White  death  rate.   Relative  risk  also  can 
be  calculated  for  specific  causes  of  death  and  for  each  age  and 
sex  group.   When  the  relative  risk  of  death  is  greater  than  1.0,  it 
indicates  that  the  death  rate  is  proportionally  higher  in  the  minority 
group  than  in  Whites;  a  value  of  1.0  or  less  than  1.0  indicates  that 
the  minority  group  has  the  same  or  lower  death  rate  as  Whites .   A  high 
relative  risk  for  a  specific  cause  of  death  may  be  misleading  if  a 
disease  is  rare  and  affects  a  small  number  of  people.   The  relative 
risk  for  a  rare  condition  may  appear  to  indicate  a  disproportionally 
high  risk  for  a  problem  that  may  not  be  serious  in  terms  of  excess 
deaths  because  so  few  individuals  are  affected. 

The  Task  Force  used  excess  death  as  the  primary  indicator  of  the 
disparity  and  used  measures  of  relative  risk  to  confirm  and  extend 
findings  of  the  excess  deaths'  index.   Both  excess  deaths  and 
relative  risk  as  applied  by  the  Task  Force  are  statistics  which 
present  death  rates  for  minority  groups  only  as  compared  to  the  White 
population. 

The  age-adjusted  death  rate  for  the  United  States,  which  takes 
into  account  the  age  structure  of  different  population  groups,  was 
553.8  deaths  per  100,000  population,  and  is  estimated  to  be  549.6  for 
1983  (2) .   Figure  1  shows  the  average  annual  age-adjusted  death  rate 
for  several  racial  groups.   Life  expectancy  at  birth  has  been  rising, 
increasing  from  74.6  years  in  1982,  to  74.7  years  in  1983. 

Despite  these  encouraging  overall  trends,  differences  in  health 
status  indicators  remain  between  minority  groups  and  Whites,  as  seen 
in  Figure  2.   Life  expectancy  at  birth  for  White  males  in  1982  was  71.5 
years;  for  Black  males,  it  was  64.9  years.   Since  life  expectancy  is 
not  routinely  available  for  other  minority  groups,  special 
calculations  were  commissioned  by  the  Task  Force.   These  data  indicate 
that  life  expectancy  for  Native  American  males  was  70.4  years  in 
1979-81,  and  life  expectancy  for  Asian  males  was  about  seven  years 
greater  than  that  of  Whites.   Data  on  Hispanics  are  not  available  to 
estimate  comparable  life  expectancy.   Minority  and  nonminority  women 
have  a  longer  life  expectancy  than  men;  minority  women,  however, 
experience  similar  disparities  in  health  status  compared  to 
nonminority  women.   Asian  females  have  the  highest  life  expectancy  of 
any  group  (3) . 

The  Task  Force  explored  the  disparity  in  death  rates  between 
minorities  and  Whites  by  disease  category,  by  analyses  of  relative  risk 
of  death  for  the  different  disease  categories  (shown  for  Blacks  in 
Table  5)  and  by  analyses  of  excess  deaths.   Based  on  these  analyses, 
the  Task  Force  observed  that  four  of  every  five  excess  deaths  among 
minorities  result  from  six  causes:   cancer,  heart  disease  and  stroke, 
infant  mortality,  diabetes,  homicide  and  unintentional  injuries,  and 
chemical  dependency  (primarily  alcohol  abuse  as  revealed  by 


64 


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Table  5 


Age-Adjusted  Death  Rates  by  Selected  Cause,  Race,  and  Sex 
United  States,  1980 
(Rate  per  100,000  Fbpulation) 


Black  White  Relative  Black  White  Relative 

Male  Male  Risk  Female  Female  Risk 


Total  Deaths 
(All  Causes) 


1,112.8 


745.3  1.5 


631.1  411.1 


1.5 


Heart  Disease 


327.3 


277.5 


1.2 


201.1 


134.6 


1.5 


Stroke 


77.5 


41.9  1.9 


61.7 


35.2 


1.8 


Cancer 


229.9 


160.5  1.4 


129.7  107.7 


1.2 


Infant  Mortality 


2,586.7  1,230.3  2.1 


2,123.7  962.5 


2.2 


Homicide 


71.9 


10.9  6.6 


13.7 


3.2 


4.3 


Accidents 


82.0 


62.3 


1.3 


25.1 


21.4 


1.2 


Cirrhosis 


30.6 


15.7 


2.0 


14.4 


7.0 


2.1 


Diabetes 


17.7 


9.5  1.9 


22.1 


8.7 


2.5 


SOURCE:  NCHS,  Health:  United  States,  1983,  Tables  9  and  15. 


67 


cirrhosis).   Figure  3  illustrates  the  major  contributors  to  excess 
death  for  Blacks,  in  1980,  for  those  who  died  before  age  45  or  before 
age  70.   The  data  clearly  depict  that  the  bulk  of  excess  deaths  in 
each  age  bracket  are  attributable  to  the  six  causes  cited.   Homicide 
and  accidents,  infant  mortality,  and  heart  disease  and  stroke 
contribute  the  greatest  number  of  excess  deaths  before  age  45  in 
Blacks.   Heart  disease  and  stroke,  and  cancer  increasingly  contribute 
to  excess  deaths  in  Blacks  when  deaths  up  to  age  70  are  examined.   The 
same  six  causes  of  excess  death  also  apply  to  Hispanics ,  Asian/Pacific 
Islanders,  and  Native  Americans,  although  the  ranking  may  vary. 

Subcommittees  were  formed  to  investigate  the  reasons  for 
disparities  due  to  these  six  causes  of  death.   Suicide  among 
minorities  was  added  to  the  charge  to  the  Subcommittee  on  Homicide  and 
Unintentional  Injuries  based  on  the  contribution  of  suicide  to  the 
excess  deaths  of  Native  Americans.   Detailed  results  are  found  in  the 
Subcommittee  summary  reports  and  in  later  volumes  of  this  Task  Force 
report. 

Other  Health  Status  Measures 

Morbidity  and  health  status  measures  were  also  examined  as 
indicators  of  the  disparities  in  health  between  nonminorities  and 
minorities  in  the  United  States.   These  measures  were  taken  largely 
from  the  NCHS  National  Health  Interview  Survey  (NHIS),  an  annual 
survey  sampling  40,000  households  nationally.   Morbidity  estimates  are 
based  on  prevalence  rates  from  self-reports  of  the  sample  population 
for  a  selected  list  of  diseases.   Health  status  measures  include 
self -assessed  health,  number  of  physician  and  dentist  visits,  and 
number  of  hospital  admissions.   An  analysis  also  was  commissioned  to 
determine  differences  in  ambulatory  care  use  among  minorities  (4) . 

The  1976  Survey  of  Income  and  Education  (SIE)  provided  measures  of 
social  characteristics  related  to  self-assessed  health  status  for 
minorities.   Additional  information  from  the  Health  Care  Financing 
Administration  End-Stage  Renal  Disease  Program  and  from  the  DHHS 
Office  for  Civil  Rights  reports  of  hospital  admissions  and  emergency 
room  visits  was  examined.   These  sources  proved  to  be  severely  limited 
for  the  needs  of  the  Task  Force  because  of  difficulty  in  identifying 
minorities  by  age-sex  group  and  health  problem  for  comparison  to 
Whites . 

Limitations  of  Data 

A  variety  of  measures  of  health  status  are  needed  to  draw 
conclusions  about  diferences  in  health  status  among  minority 
populations;  single  measures  such  as  national  mortality  summaries  may 
not  provide  a  complete  enough  picture.   Although  mortality  data  are 
available  by  age,  sex,  and  race  for  Blacks,  Asian/Pacific  Islanders, 
Native  Americans,  and  Whites,  the  Task  Force  noted  that  one  of  the 
most  serious  data  deficiencies  is  the  lack  of  national  mortality  data 


68 


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for  Hispanics .   These  data  are  usually  obtained  from  death 
certificates  but,  for  Hispanics,  ethnicity  is  not  uniformly  recorded 
in  every  State. 

In  addition,  mortality  data  are  usually  not  recorded  for 
subgroups  within  Asian/Pacific  Islander  and  Native  American 
populations.   Although  mortality  rates  are  believed  to  vary  among 
subpopulations ,  no  information  is  available  on  a  national  basis  from 
which  to  analyze  data  for  subgroups. 

The  Task  Force  also  noted  that  the  sample  sizes  of  minorities, 
other  than  Blacks,  in  surveys  tend  to  be  insufficient  to  obtain  an 
accurate  picture  of  disparities  in  health  compared  to  Whites .   Data  on 
the  health  status  of  Native  Americans  and  Asian/Pacific  Islanders 
compiled  from  surveys  must  be  aggregated  over  time  to  obtain  adequate 
numbers  to  draw  statistically  valid  conclusions.   Despite  these 
limitations,  the  National  Health  Interview  Survey  (NHIS)  does  provide 
sample  coverage  of  Native  Americans  and  Asian/Pacific  Islanders. 
Health  information  about  American  Indians  and  Alaska  Natives  on  or 
near  reservations  is  available  from  the  Indian  Health  Service. 

As  in  the  mortality  data,  the  NCHS  health  survey  statistics  on 
illness  and  disability  do  not  generally  distinguish  subgroups  within 
the  racial/ethnic  groups  as  a  whole.   For  example,  recent  immigrants 
from  Southeast  Asia  have  more  health  problems  than  the  more 
established  Asian/Pacific  Islander  groups,  such  as  Chinese,  Japanese, 
and  Filipinos,  yet  all  data  are  aggregated  into  the  Asian/Pacific 
Islander  minority  group  which,  overall,  has  a  greater  life  expectancy 
than  the  White  population  (5). 

The  following  sections  present  highlights  of  the  mortality  and 
morbidity  findings  for  Blacks,  Hispanics,  Asian/Pacific  Islanders,  and 
Native  Americans. 

MINORITY  HEALTH    INDICATORS 

Blacks 

Of  two  million  American  deaths  per  year,  roughly  twelve  percent 
are  Black.   Between  1979  and  1981,  an  average  of  227,000  Blacks  died 
each  year.   Of  these,  139,000  Blacks  were  under  the  age  of  70  years. 
About  59,000  of  these  deaths  among  Blacks  under  age  70  would  not  have 
occurred  had  Blacks  experienced  the  same  age-sex  death  rates  as 
Whites.   These  "excess  deaths"  represent  42.3  percent  of  all  Blacks 
who  died  before  the  age  of  70.   Table  6,  based  on  death  certificate 
information,  indicates  the  major  causes  of  the  excess  deaths  in  Blacks 
under  ages  45  and  70;  Figures  4  and  5  illustrate  the  contributors  to 
the  average  annual  excess  deaths  for  Black  men  and  women. 

The  disparity  between  the  death  rates  of  Blacks  and  Whites 
(excess  deaths)  affects  certain  age  groups  more  than  others.   Compared 
to  Whites,  Blacks  have  twice  the  rate  of  infant  mortality.   The 


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disparity  is  smaller  through  age  24,  followed  by  a  sharp  rise  in 
excess  deaths  thereafter  through  age  64.   Thus,  for  infants  and  adults 
through  middle  age,  the  excess  deaths  are  most  pronounced. 

In  later  life,  minorities  have  lower  death  rates  for  many 
diseases  than  do  nonminorities .   This  "survivor  effect",  or  mortality 
crossover,  has  been  attributed  to  hardiness  among  survivors  in  a 
population  that  has  a  higher  early-age  death  rate. 

The  excess  death  rates  for  Black  males  and  females  are  similar  across 
age  categories  except  that  a  greater  percentage  of  males  than  females 
died  between  the  ages  25  to  44,  but  a  greater  percentage  of  females 
than  males  died  between  the  ages  of  45  to  69. 

Homicide  was  the  major  cause  of  these  excess  deaths  occurring  in 
Blacks,  aged  25  to  44  years.   Homicide  accounted  for  38  percent  of  the 
male  excess  deaths  and  14  percent  of  the  female  excess  deaths  below 
age  45.   Excess  Black  deaths  between  the  ages  of  45  to  69  were  due 
mainly  to  cancer,  heart  disease,  stroke,  diabetes,  and  cirrhosis. 

As  seen  in  Figure  4,  homicide  and  unintentional  injuries  are  the 
major  contributors  to  excess  deaths  for  Black  males.   Heart  disease 
and  stroke  and  cancer  assume  greater  importance  with  advanced  age. 
For  Black  females,  as  shown  in  Figure  5,  death  from  heart  disease  and 
stroke  assume  the  same  importance  as  homicide  and  unintentional 
injuries  do  for  younger  Black  males.   Diabetes  is  increasingly 
important  in  the  excess  deaths  of  older  Black  females.   Though 
diabetes  itself  accounts  for  less  than  2  percent  of  male  excess  deaths 
and  5  percent  of  female  excess  deaths  (to  age  70),  it  is  a  major  risk 
factor  for  heart  disease  and  leads  to  other  serious  consequences, 
including  amputation  and  blindness,  if  uncontrolled. 

Hypertension  similarly  has  serious  health  consequences  if  left 
untreated.   It  is  the  leading  cause  of  kidney  failure  and 
hypertension-related  end-stage  renal  disease  in  Blacks  and  is  a  major 
concomitant  of  heart  disease  and  stroke.   Hypertension  itself  accounts 
for  more  than  5  percent  of  the  excess  deaths  in  Blacks.   Cirrhosis 
accounts  for  more  than  3  percent  of  excess  deaths  in  both  Black  males 
and  females  (to  age  70),  and  unintentional  injuries  account  for  6 
percent  of  the  excess  in  males  and  2  percent  of  the  excess  in  Black 
females  (to  age  70).   to  age  70.   Many  of  the  causes  of  excess  deaths 
in  Blacks  are  amenable  to  reduction  through  preventive  and  public 
health  activities.   Hypertension  and  diabetes,  which  relate  to  other 
conditions,  are  controllable  through  proper  treatment. 

Relative  risks  for  specific  causes  of  death  under  age  45  are 
disturbingly  high  among  Blacks  compared  to  the  White  population,  and 
further  support  the  findings  of  excess  death.   Blacks  under  45  years 
of  age  have  a  relative  risk  of  death  from  all  causes  nearly  twice  that 
of  Whites  (1.96  for  males  and  1.93  for  females).   Relative  risk  does 
not  indicate  the  largest  numbers  of  deaths;  rather,  it  reflects  the 


74 


comparative  likelihood  of  dying  from  a  particular  cause.   The 
conditions  for  which  relative  risks  of  death  are  highest  for  Black 
(compared  to  White)  males  and  females  under  age  45  are: 

Males   Females 


Tuberculosis 

17 

4 

15 

6 

Hypertension 

10 

2 

13 

4 

Homicide 

6 

6 

4 

3 

Anemias 

6 

0 

5 

2 

Deaths  from  tuberculosis  (TB)  and  anemias,  although  not  major  causes  of 
death,  occur  at  a  higher  frequency  among  Blacks  and  may  be  related  to 
socioeconomic  conditions  commonly  associated  with  these  diseases. 

Morbidity  data  from  NHIS  substantiate  the  problems  Blacks, 
especially  women,  face  with  hypertension,  diabetes,  and  anemia.   Black 
women  ages  45-64  had  a  prevalence  rate  of  hypertension  85  percent 
higher  than  White  women,  with  hypertension  afflicting  43  percent  of 
the  Black  women  sampled  in  the  1979-81  NHIS.   More  striking  data  also 
appear.   Black  women  ages  25-44  had  a  prevalence  rate  for  hypertension 
2.6  times  greater  than  White  women  of  the  same  age;  diabetes  rates  in 
Black  women  45-64  were  2.7  times  higher  than  those  in  Whites,  and 
anemia  rates  reported  were  higher  at  all  ages,  ranging  from  6.7  times 
in  children  ages  1-14  to  2.6  times  higher  in  Black  women  15-44.   These 
morbidity  figures  clearly  show  the  health  disparities  in  Blacks 
surfacing  early  in  life,  and  several  health  conditions  responsible  for 
the  disparities  are  known  risk  factors  for  cardiovascular  disease. 

Disability  data  from  the  1976  SIE  provides  additional  information 
on  health  differences  in  Blacks.   Blacks  reported  lower  rates  of 
disabling  heart  disease  than  Whites  at  each  income  level.   However, 
because  the  rates  decrease  as  income  rises  and  there  are  proportion- 
ally more  Blacks  among  the  lower  income  strata,  the  overall  Black 
rates  of  disabling  heart  disease  are  higher.   Similar  correlations  can 
be  found  between  education  and  other  diseases  reported  in  SIE.   The 
main  conclusion  from  this  analysis  is  that  income  and  education  are 
major  factors  influencing  health  status.   Lack  of  income  and  education 
must  be  recognized  as  risk  factors  for  disease  and  death  in  Blacks. 

Hispanics 

Hispanics  are  the  second  largest  minority  group  in  the  United  States. 
For  many  data  collection  purposes  (e.g.,  birth  and  death  certification), 
Hispanics  are  classified  as  an  ethnic  rather  than  a  racial  minority  and  are 
often  noted  in  vital  statistics'  information  as  White. 

The  primary  sources  of  mortality  data  for  all  racial  groups  are 
death  certificates  recorded  by  the  states  and  used  by  Federal  agencies 
such  as  NCHS  in  computing  national  mortality  statistics.   Because 
uniform  procedures  for  reporting  Hispanic  ethnicity  have  not  been 
adopted  nationwide,  such  information  is  not  captured  on  many  documents 
including  death  certificates. 


75 


One  effect  of  the  lack  of  uniformity  in  noting  Hispanic  ethnicity 
is  that  national  mortality  statistics  for  Hispanics  cannot  be  compiled 
from  existing  data  and  are  therefore  not  available.   Many  states  with 
large  Hispanic  populations,  such  as  Florida  and  New  Jersey,  have  no 
mortality  data  on  Hispanics  because  ethnicity  information  is  not 
required  on  death  certificates. 

To  compensate  for  the  lack  of  national  data,  the  Task  Force 
undertook  a  series  of  activities  to  obtain  Hispanic  mortality  and 
morbidity  information.   The  Task  Force  established  a  panel  of  Hispanic 
advisors,  brought  in  Hispanic  experts  to  speak  to  and  consult  with  the 
Task  Force,  participated  in  COSSMHO  and  other  national  meetings  of 
Hispanic  health  professionals,  and  commissioned  special  studies  where 
data  were  available.   For  example,  Spanish-surname  data  from  Texas  and 
national  data  on  death  certificates  listing  either  Mexico  or  Cuba  as 
the  country  of  birth  were  used  to  generate  information  on  the  health 
problems  of  Hispanics  compared  to  non-Hispanic  Whites .   This 
information  provided  the  best  indication  of  Hispanic  health  problems 
available  to  the  Task  Force  until  national  data  on  Hispanic  mortality 
can  be  collected  and  analyzed. 

Excess  deaths  were  calculated  for  three  Hispanic  populations: 
the  Texas  Spanish-surname,  the  Cuban-born,  and  the  Mexican-born 
populations.   Excess  deaths  were  fewer  than  those  found  for  Blacks  in 
the  1979  to  1981  period.   In  the  Spanish-surname  population  of  Texas, 
14  percent  of  all  deaths  were  excess  deaths  when  compared  to  the  White 
non-Spanish-surname  population  of  the  State  (6).   Among  persons  of 
Cuban  birth  who  died  in  the  U.S.  between  1979  and  1981,  excess  deaths 
amounted  to  2.2  percent  of  all  deaths;  for  the  Mexican-born 
population,  excess  deaths  amounted  to  7.2  percent  of  all  deaths. 

The  causes  of  excess  deaths  among  the  three  Hispanic  groups 
analyzed  are  similar.   As  seen  in  Table  7,  homicide  was  the  leading 
contributor  to  the  disparity  among  both  Cuban-born  and  Mexican-born 
Hispanics.   No  other  major  cause  examined  contributed  to  the  excess 
deaths  in  the  Cuban-born.   Unintentional  injuries,  heart  disease  and 
stroke,  cirrhosis,  and  diabetes  appeared  to  be  major  causes  of  the 
disparity  in  the  Mexican-born.   Among  the  Spanish-surname  population 
of  Texas,  external  causes,  especially  motor  vehicle  accidents  and 
homicide,  were  the  primary  contributors  to  excess  death.   Some 
differences  among  the  three  Hispanic  groups  may  reflect  the 
limitations  in  the  data  bases  used  in  the  separate  analyses.   For 
example,  infant  mortality  is  virtually  eliminated  when  the  analyses 
are  limited  only  to  the  foreign-born. 

These  data  for  selected  Hispanic  populations  suggest  that  the 
relative  risks  for  deaths  from  the  causes  evaluated  are  generally 
lower  than  those  of  Blacks.   Yet,  certain  causes  of  mortality  before 
age  45  merit  special  attention.   The  most  important  of  these  is 
homicide  among  both  Cuban-born  and  Mexican-born  Americans,  an  excess 
also  noted  in  the  Spanish-surname  data.   The  relative  risk  of  death 
from  homicide  is  6.4  in  Cuban-born  and  5.9  in  Mexican-born  males  under 


76 


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age  45  compared  to  the  overall  White  male  population  under  45.   For 
females,  the  comparable  figures  using  the  overall  White  female 
populations  as  a  base  are  2.4  and  1.5,  respectively,  suggesting  that 
homicide  is  not  solely  a  problem  for  young  Hispanic  males. 

Deaths  from  unintentional  injuries  pose  a  risk  to  males  who  are 
Mexican-born  under  age  45,  but  not  for  the  Cuban-born.   The  relative 
risk  of  death  due  to  unintentional  injuries  for  Mexican-born  males 
under  age  45  is  1.7;  for  females  it  is  1.0  (the  same  as  White 
females).   This  result  is  explained  to  some  extent  by  examining  the 
relative  risk  of  death  due  to  cirrhosis.   Mexican-born  males  have  a  40 
percent  higher  risk  of  death  from  cirrhosis  than  the  White  population 
(i.e.,  a  relative  risk  of  1.4).   Cirrhosis  is  associated  with 
alcohol  abuse  and  suggests  that  alcohol  abuse  in  Mexican-born  males 
may  be  a  problem.   Alcohol  abuse  is  also  suggested  to  play  a  role  in 
higher  risk  of  death  due  to  accidents.   Again,  analysis  of 
Spanish-surname  data  confirm  that  there  are  excess  deaths  from 
unintentional  motor  vehicle  injuries. 

Tuberculosis  carries  the  largest  relative  risk  of  death 
under  age  45  to  the  Mexican-born,  7.8  for  males  and  11.0  for  females, 
as  well  as  being  high  in  Cuban-born  males,  8.0.   For  the  major  killers 
(heart  disease,  stroke,  and  cancer),  the  risks  of  death  for  the 
Hispanic  groups  are  less  than  that  of  non-Hispanic  Whites.   Overall, 
the  risk  of  death  under  age  45  is  1.4  times  greater  in  Mexican-born 
males  and  1.2  times  greater  in  Cuban-born  males  than  Whites;  however, 
risk  of  death  for  foreign-born  Hispanic  females  is  less  than  that  for 
females  under  age  45  in  the  general,  nonminority  population. 

Morbidity  rates  and  health  status  measures  for  Hispanics  were 
analyzed  to  investigate  possible  reasons  for  the  health  differences 
revealed  by  the  mortality  data,  as  was  done  with  Blacks.   Trevino  and 
Moss  (7)  examined  a  number  of  health  status  indicators  from  the  NHIS, 
including  physician  and  dental  visits,  hospital  stays,  disability 
days,  acute  conditions,  and  activity  limitations  due  to  chronic 
conditions,  for  Hispanics,  Blacks,  and  non-Hispanic  Whites  in  the 
period  1978  to  1980.   The  size  of  the  Hispanic  sample  in  NHIS, 
however,  is  too  small  to  generalize  to  the  Hispanic  population  when 
age,  sex,  Hispanic  origin  (Cuban,  Mexican,  and  Puerto  Rican)  and 
health  condition  are  taken  into  account,  as  must  be  done  to  get 
results  meaningful  to  the  charge  of  the  Task  Force. 

The  only  statistically  significant  results  reported  in  the 
analysis  of  the  NHIS  data  are  prevalence  rates  of  digestive  conditions 
among  Puerto  Rican  females  ages  25-44,  which  are  2.2  times  greater 
than  those  in  non-Hispanic  Whites.   Skin  and  musculoskeletal 
conditions  among  Cuban  females  are  twice  as  high  as  those  among  White 
non-Hispanics .   Other  results  suggest  that  Hispanics  in  the  NHIS 
sample  suffer  from  a  number  of  conditions  with  potentially  serious 
outcomes  if  left  untreated,  but  the  small  sample  sizes  preclude 


78 


generalization  to  the  entire  Hispanic  population  group.   A  better 
picture  of  the  health  of  Hispanic  Americans  should  be  available  when 
analyses  of  the  Hispanic  Health  and  Nutrition  Examination 
Survey  (HHANES)  are  published. 

Native  Americans 

Table  8  shows  a  striking  pattern  of  excess  deaths,  by  age  groups, 
among  American  Indians.   The  excess  death  rate  of  Indians  under  age  45 
is  high,  at  43  percent.   Of  all  American  Indians  who  die  before  age 
70,  54  percent  die  before  age  45.   Excess  deaths  before  age  70  amount 
to  one  of  every  four  deaths  in  American  Indians.   Eighty-seven  percent 
of  the  excess  deaths  in  American  Indians  occur  before  the  age  of  45. 
(The  comparable  figure  for  Blacks  is  39  percent.) 

Eighty  percent  of  excess  deaths  occurring  before  age  45  and  99 
percent  of  the  excess  deaths  up  to  age  70  are  due  to  six  causes. 
These  six  causes,  in  order  of  greatest  contribution,  are: 
unintentional  injuries,  cirrhosis,  homicide,  suicide,  pneumonia,  and 
diabetes.   Conspicuously  absent  are  heart  disease  and  cancer  which 
have  higher  overall  rates  in  the  White  population  and  which  are 
considered  diseases  of  middle  and  later  life. 

Deaths  from  unintentional  injuries  account  for  48  percent  of 
excess  deaths  for  males  and  40  percent  of  the  excess  deaths  for 
females  (up  to  age  45).   Cirrhosis  accounts  for  11  percent  of  the  male 
excess  and  20  percent  of  the  female  excess  deaths  prior  to  age  45. 
Homicide  accounts  for  9  percent  and  8  percent  of  the  excess  among 
American  Indian  males  and  females  under  age  45,  respectively.   From 
these  causes,  it  would  appear  that  alcohol  abuse  is  one  of  the  most 
serious  contributors  to  premature  deaths  among  young  adult  American 
Indians . 

The  risk  of  death  for  American  Indians  under  age  45  is  1.8  times 
that  of  Whites  for  both  sexes.   Over  age  45,  relative  risk  of  death 
for  Native  Americans  is  equal  to  or  slightly  lower  than  for  Whites. 
The  lower  relative  risk  observed  over  age  45  might  be  due  to  a 
"survivor  effect"  similar  to  that  among  older  Blacks.   Causes  with 
higher  relative  risks  are  seen  in  Table  9. 

The  extremely  high  relative  risks  of  death  for  females  due  to 
cirrhosis  and  tuberculosis  in  part  reflect  the  low  rates  for 
White  females  who  are  the  basis  of  the  comparison.   Nonetheless,  these 
relative  risks  do  convey  the  dimensions  of  the  problem  in  this 
population.   These  statistics  further  confirm  the  magnitude  of  alcohol 
abuse  among  young  American  Indians  of  both  sexes.   The  high  risks  of 
TB ,  combined  with  relative  risks  of  death  above  1.0  for  anemia  and 
hepatitis,  probably  reflect  socioeconomic  correlates  of  these  diseases. 


79 


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Table  9 

Relative  Risk  of  Death  for  American  Indians  by  Cause* 

Cause  Relative  Risk 


Male  Female 


Cirrhosis                                                       6.1  11.1 

Tuberculosis                                                 8.5  9.8 

Chronic  Renal  Disease                                 2.7  4.7 

Unintentional  Injuries                                   2.1  2.4 

Drowning                                                        2.8  2.4 

Homicide                                                      2.2  2.6 

Diabetes                                                        2.2  1.1 

SOURCE:  Duke  University  analysis  commissioned  for  the  Task  Force,  1984. 
*NCHS  microdata  mortality  tapes  and  1980  U.S.  Census  population  at  risk. 


Too  few  Native  Americans  are  sampled  in  the  NHIS  to  derive 
population-level  prevalence  estimates  for  selected  diseases  and 
disability.   The  responses  reported  by  the  sample  respondents  tend  to 
reflect  the  mortality  results,  but  it  would  be  misleading  to  attempt 
to  extrapolate  these  to  represent  morbidity  in  Native  Americans.   The 
Indian  Health  Service  (IHS)  provides  statistics  about  the  population 
it  serves,  but  these  data  are  obtained  from  only  60  percent  of  the 
total  American  Indian  and  Alaska  Native  population.   The  data  that 
are  available,  however,  along  with  selected  examples  such  as  the  high 
rate  of  diabetes  among  Pima  Indians,  indicate  the  existence  of  serious 
health  problems.   More  reliable  information  on  the  Native  American 
population  is  needed.   Clearly,  more  needs  to  be  known  about 
environmental  and  psychosocial  contributors  to  the  widespread  abuse  of 
alcohol  by  young  Native  Americans  if  the  premature  loss  of  life  in 
this  minority  population  is  to  be  prevented. 

Asian/Pacific  Islanders 

The  Asian/Pacific  Island  minority,  in  aggregate,  is  healthier 
than  all  racial/ethnic  groups  in  the  United  States,  including  Whites. 
There  are  virtually  no  excess  deaths,  as  seen  in  Table  10,  when  all 
Asian  ethnic  groups  are  combined,  and  Asians  have  a  greater  life 
expectancy  than  Whites.   Yet,  specific  health  problems  do  exist  among 
various  subgroups  of  this  population.   The  Task  Force  explored  several 
avenues  to  determine  those  health  disparities  that  might  be  masked  as 
a  consequence  of  combining  the  subpopulations .   The  Task  Force 
established  an  Asian  advisory  panel,  commissioned  papers  from  experts 
in  the  field,  and  visited  the  Chinese  Hospital  in  San  Francisco  and 
consulted  with  the  School  of  Public  Health  at  the  University  of  Hawaii. 


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82 


The  University  of  Hawaii  is  conducting  a  major  study  of  the 
health  status  of  Americans  in  the  Pacific.   Preliminary  results 
indicate  that,  compared  to  Caucasians  in  Hawaii,  Native  Hawaiians 
experience  excess  deaths  for  heart  disease,  cancer,  diabetes,  infant 
mortality,  and  accidents.   Cancers  of  the  stomach  and  lung  are 
particularly  high  relative  to  Whites.   Excess  deaths  due  to  accidents 
are  believed  to  result  from  the  riskier  occupations  of  Native 
Hawaiians,  relative  to  Whites. 

The  primary  morbidity  problems  found  in  Native  Hawaiians  include 
heart  conditions,  hypertension,  diabetes,  asthma,  gout,  and  back 
problems  -  results  in  keeping  with  the  mortality  findings.   The 
University  of  Hawaii  study  also  applied  "excess  deaths"  methodology  to 
the  Pacific  Island  territories,  but  the  vital  statistics  in  those 
territories  were  inadequate  to  report  findings  (8) . 

The  Task  Force  analysis  of  national  mortality  data  for  Asian/ 
Pacific  Islanders  under  age  45  indicates  that  the  relative  risk  of 
death  for  almost  every  cause  is  low.   Although  the  risk  of  death  for 
all  causes  is  a  third  lower  than  that  of  Whites,  Asian/Pacific 
Islanders  have  higher  rates  for  TB,  hepatitis,  anemia,  and 
hypertension.   The  importance  of  the  increased  risk  indicated  by 
relative  risk  for  hypertension,  though  not  large  (1.2  for  males  and 
1.3  for  females),  cannot  be  ignored  because  of  the  impact  of 
hypertension  on  other  diseases. 

An  analysis  by  Yu,  Chang,  Liu,  and  Kan  (3)  commissioned  by  the 
Task  Force  provides  results  of  excess  death  analyses  for  the  three 
major  Asian  subgroups:   Chinese,  Japanese,  and  Filipinos.   The  authors 
emphasize  the  lack  of  data  for  other  Asian/Pacific  Islander  subgroups, 
such  as  Southeast  Asians  and  Native  Hawiians ,  whose  health  status  is 
believed  to  be  poorer  than  that  of  those  Asians  for  whom  data  are 
available.   The  study  found  no  "substantial  amount  of- excess  deaths 
for  a  majority  of  the  causes  of  death. . . [with  the  only  consistent 
pattern  being]... the  high  suicide  rate  of  Chinese  women  vis-a-vis 
White  women."  Differences  in  socioeconomic  status,  culture,  and 
lifestyle  are  hypothesized  to  explain  the  lower  relative  mortality  of 
Asian/Pacific  Islanders  in  the  United  States.   The  extremely  low 
relative  risks  of  death  for  causes  generally  associated  with  cigarette 
smoking  and  alcohol  consumption  bolster  this  claim.   The  lower 
mortality  rates  were  analyzed  separately  for  the  Chinese,  Japanese, 
and  Filipinos,  with  the  same  generally  favorable  outcome  relative  to 
Whites  for  each. 

Relative  risks  of  selected  causes  of  morbidity  based  on 
prevalence  rates  from  the  NHIS  are  unavailable.   Fewer  than  5,000 
Asian/Pacific  Islanders  were  sampled  in  the  period  1979  to  1981.   When 
age,  sex,  and  cause  of  illness  are  examined,  the  number  of  responses 
on  which  to  base  population  estimates  is  insufficient. 


83 


Papers  by  True  (9),  Yu,  Chang,  Liu,  and  Kan  (3),  and  by  Yu,  Liu, 
and  Kurzeja  (10),  commissioned  for  the  Task  Force,  examine  the  health 
problems  of  immigrant  and  ethnic  groups  within  the  Asian  population 
more  closely.   Cultural  differences  and  language  difficulties  are 
major  barriers  for  immigrants  and  refugees  for  using  existing  health 
services  in  the  areas  where  they  reside.   Additionally,  for  almost 
every  age  group,  the  death  rates  for  foreign-born  Chinese,  Japanese, 
and  Filipinos  are  higher  than  for  native-born  Americans  of  these  same 
subgroups . 

As  a  group,  the  Asian/Pacific  Island  population  in  the  United 
States  is  at  lower  risk  of  early  death  than  the  White  population. 
There  are,  however,  specific  diseases  for  which  this  population  is  at 
higher  risk.   There  are  also  significant  subgroups  in  this  population, 
e.g..  Southeast  Asians,  other  recent  immigrants  and  refugees,  and 
Native  Hawaiians  and  Pacific  Islanders,  who  have  specific  health 
problems  that  are  not  reflected  in  national  data.   These  issues  are 
discussed  in  more  detail  in  Subcommittee  reports  found  in  a  later 
volume  of  this  report. 

Summary 

The  data  reviewed  by  the  Task  Force  clearly  show  that  Blacks  have 
the  greatest  disparity  in  mortality  and  morbidity  among  the  minorities 
as  compared  to  Whites.   This  disparity  is  evident  in  life  expectancy 
at  birth,  and  is  reflected  in  excess  deaths  as  well  as  other  measures 
of  mortality  and  morbidity.   Data  for  Hispanics  cover  only  a  limited 
segment  of  this  minority;  they  do,  however,  indicate  disparities  in 
mortality.   National  mortality  data,  including  the  calculation  of 
excess  deaths  and  relative  risks,  indicate  major  areas  of  disparities 
between  Native  Americans  and  the  White  majority,  perhaps  most 
prominently  due  to  several  causes  related  to  alcohol  abuse.   When  data 
from  many  of  the  Asian/Pacific  Islander  subgroups  are  aggregated,  a 
negligible  disparity  only  is  evident.   However,  data  from  the 
individual  ethnic  subgroups,  when  considered  separately,  suggest  a 
different  picture--one  of  a  range  of  health  problems  and  disparities 
in  certain  subgroups . 

The  data  used  in  compiling  other  health  indicators  for  minority 
groups  are  uneven  and  far  from  complete.   Nevertheless,  the  results 
provide  a  basis  from  which  further  data  collection  efforts  and 
analyses  may  be  made.   Data  on  morbidity  and  other  health  status 
indicators  in  the  four  minority  groups  are:   the  most  complete  and 
accurate  for  Blacks;  very  limited  for  Asian/Pacific  Islanders; 
available  for  American  Indians  and  Alaska  Natives  living  on  or  near 
reservations  (through  the  Indian  Health  Service);  and  available  on 
Hispanics  through  the  surveys  of  NCHS,  primarily  the  NHIS  and  the 
HHANES.   The  data  currently  available  for  Asian/Pacific  Islanders  and 
Hispanics  may  be  weighted  toward  the  larger,  more  established, 
healthier,  ethnic  groups  within  these  minorities,  rather  than  the  less 
settled,  immigrant  and  refugee  subgroups. 


84 


Homicide,  unintentional  injuries,  and  alcohol  abuse,  a  precursor 
to  cirrhosis,  stand  out  as  primary  causes  of  the  disparity  in 
mortality  that  are  amenable  to  health  promotion  and  education 
programs.   Similarly,  infant  mortality  rates  in  minorities  may  be 
improved  with  increased  availability  of  prenatal  counseling  and 
services.   Positive  results  of  such  services  among  the  American 
Indians  are  already  reflected  in  IHS  statistics  on  neonatal  deaths, 
although  postneonatal  deaths  remain  a  problem. 

Hypertension,  a  subject  of  major  public  health  initiatives  at 
present,  clearly  is  an  area  deserving  continued  emphasis  in  the 
minority  population.   Diabetes  is  another  significant  health  problem 
for  Blacks,  American  Indians,  and  Hispanics .   The  magnitude  of  the 
diabetes  problem  is  often  underestimated  because  mortality  statistics 
understate  the  relationship  of  the  disease  to  other  health  problems, 
especially  as  a  risk  factor  for  cardiovascular  disease.   Yet,  the 
complications  of  diabetes  can  be  controlled  by  intervention  efforts. 

Only  limited  information  exists  to  determine  the  possible 
association  between  health  status  and  socioeconomic  factors,  such  as 
income  and  education.   Greater  awareness  of  this  relationship  would 
make  it  possible  to  target  existing  resources  more  effectively  toward 
the  areas  of  greatest  need  in  the  various  minority  populations  at  risk. 


85 


REFERENCES 

1.  Haynes ,  M.  A.   (1984,  June  7).   Presentation  to  the  Task  Force  on 

Black  and  Minority  Health,  DHHS . 

2.  National  Center  for  Health  Statistics.   (1984).   Final  mortality 

statistics,  1982.   Hyattsville,  MD:   Author. 

3.  Yu,  E.,  Chang,  C-F.,  Liu,  W.  T. ,  &  Kan,  S.  H.   (1984,  December  5). 

Asian-White  mortality  differentials:  Are  there  excess 
deaths?   Unpublished  manuscript.  Task  Force  on  Black  and 
Minority  Health,  DHHS. 

4.  Haynes,  M.  A.   (1985)   Association  of  health  problems  with 

ethnic  groups  as  reflected  in  ambulatory  care 

visits.   Unpublished  manuscript,  Task  Force  on  Black  and 

Minority  Health,  DHHS. 

5.  Rumbaut,  R.   (1984)   The  politics  of  migrant  health  care: 

A  comparative  study  of  Mexican  immigrants  and 
Indochinese  refugees  in  San  Diego  County.   Unpublished 
manuscript,  University  of  California,  San  Diego. 

6.  Bradshaw,  B.  S.,  Frisbie,  W.  P.,  &  Eifler,  C.  W.   (1984).   Excess 

and  deficit  mortality  due  to  selected  causes  of 
death  and  their  contributions  to  differences  in  life 
expectancy  of  Spanish-surnamed  and  other  White  males: 
1970  and  1980.   Unpublished  manuscript.  Task  Force  on 
Black  and  Minority  Health,  DHHS. 

7.  Trevino,  F.  M. ,  &  Moss,  A.  J.   (1984,  September).   Health 

indicators  for  Hispanic,  Black,  and  White  Americans. 

(DHHS  Publication  No.   (PHS)   84-1576).   Washington,  DC:   National 

Center  for  Health  Statistics. 

8.  Chung,  C.  S.,  &  Michael,  J.  M.   (1984).   Analysis  of  mortality 

and  morbidity  of  native  Hawaiians  and  the  Pacific 
Islanders .    Honolulu:   University  of  Hawaii  School  of 
Public  Health. 

9.  True,  R.  H.  (1985,  January  11).   Health  care  service 

delivery  in  Asian  American  communities.   Unpublished 
manuscript.  Task  Force  on  Black  and  Minority  Health,  DHHS. 

10.  Yu,  E.,  Liu  W.  T.,  &  Kurzeja  P.   (1985,  January  11).   Physical 

and  mental  health  status  indicators  for  Asian/Pacific 
Americans.    Unpublished  manuscript,  Task  Force  on 
Black  and  Minority  Health,  DHHS. 


86 


Accounting  For  the 
Health  Status  Disparity 


Subcommittee 
Summary  Reports 


SUBCOMMITTEE  ON  CANCER 
EXECUTIVE  SUMMARY 


Introduction 

This  report  examines  cancer  mortality  in  minorities,  with 
particular  emphasis  on  factors  that  contribute  to  excess  mortality; 
i.e.,  cancer  incidence  and  survival,  risk -factors/exposures ,  health 
resources,  and  other  factors.   The  report  illustrates  the  complex 
relationship  among  cancer  incidence,  survival,  and  mortality  for 
minorities  and  nonminorities . 

Patterns  of  cancer  distribution  among  U.S.  population  groups 
vary  according  to  racial  and  ethnic  background.   In  examining  these 
differences,  this  report  looks  at  information  regarding  incidence, 
mortality,  and  survival;  information  relating  to  prominent  factors 
that  are  risks  for  cancer  development;  and  information  on  knowledge, 
attitudes,  and  practices  regarding  cancer  that  influence  care-seeking 
behavior.   In  short,  differences  in  cancer  experience  among  minorities 
and  factors  that  may  contribute  to  the  differences  between  minorities 
and  nonminorities  are  discussed. 

Risk  factors  are  discussed  because  they  are  critical  to  the 
understanding  of  endogenous  and  exogenous  conditions  that  may  pre- 
dispose a  person  to  cancer  development.   Major  risk  factors--tobacco, 
the  combined  effects  of  tobacco  and  alcohol,  nutritional  and  dietary 
factors,  and  occupation- -account  for  approximately  72  percent  of 
cancer  mortality  and  69  percent  of  incidence  (1). 

Socioeconomic  status  is  also  an  important  factor  in 
cancer  incidence  and  survival  and,  therefore,  mortality. 
Socioeconomic  status  is  related  to  a  variety  of  factors  which 
influence  cancer  experience,  including:   nutritional  status;  smoking 
patterns;  distribution,  quality,  and  use  of  health  resources;  and 
knowledge,  attitudes,  and  practices.   Lower  socioeconomic  status  has 
been  correlated  with  poorer  survival  from  cancer  (2,3).   It  is  also 
related  to  increased  cancer  incidence  for  cancers  of  the  lung,  breast, 
and  cervix  (4) . 

Most  statistics  relating  to  cancer  incidence  and  survival  rates 
are  derived  from  the  Surveillance,  Epidemiology,  and  End  Results 
(SEER)  Program  of  the  National  Cancer  Institute  (5).   The  SEER  Program 
obtains  cancer  patient  incidence  and  survival  information  from  11 
population-based  cancer  registries  that  cover  more  than  13  percent  of 
the  U.S.  population.   Within  the  racial  and  ethnic  groups  in  the 
United  States,  SEER  data  cover  12  percent  of  nonminorities,  12  percent 
of  Blacks,  27  percent  of  Native  Americans,  32  percent  of  Chinese,  47 
percent  of  Japanese,  38  percent  of  Filipinos,  12  percent  of  Hispanics, 
and  31  percent  of  "other".   The  areas  covered  by  SEER  include  five 


87 


states  (Connecticut,  New  Jersey,  New  Mexico,  Utah,  and  Hawaii),  four 
metropolitan  areas  (Atlanta,  Detroit,  San  Francisco,  and  Seattle),  and 
the  Commonwealth  of  Puerto  Rico.   SEER  data  on  Hispanics  in  this 
report,  however,  refer  only  to  those  Hispanics  living  in  the  United 
States.   Mortality  data  are  derived  from  the  National  Center  for 
Health  Statistics  (NCHS)  through  the  national  vital  statistics' 
system.   This  system  classifies  Hispanics  as  Whites,  and  therefore  no 
death  statistics  on  Hispanics  are  presented.   Most  of  the  indepth 
analysis  underlying  this  report  is  limited  to  Blacks  and  Whites.   The 
reason  for  this  is  that  the  number  of  cancer  cases  is  too  few  in  the 
other  minority  groups  to  permit  meaningful  statistical  analysis. 

Risk  Factors  and  Exposures 

Risk  factors  and  exposures  are  important  in  explaining  and 
accounting  for  the  initiation  and/or  rise  of  cancers  in  minority  and 
nonminority  populations. 


The  major  risk  factors/exposures  that  account  for  72  percent  of 
all  cancer  deaths  are  tobacco,  dietary/nutritional  factors, 
occupation,  and  ethanol,  as  seen  in  Table  11  (1).   Of  these,  tobacco 
the  greatest  risk  factor  for  cancer  for  Blacks. 


IS 


Table  11 


Proportion  of  Cancer  Deaths  Attributed  to  Different  Factors 


Factors 


Estimated 

Percent  of  All  Cancer  Deaths 


Tobacco 
Alcohol 
Diet 
Occupation 


30% 

3% 

35% 

4% 


SOURCE:  Doll  and  Peto,  The  Causes  of  Cancer  (1). 


Tobacco-related  cancers  account  for  approximately  45  percent  of 
new  cancer  cases  (incidence)  in  Black  males,  25  percent  in  Black  females, 
and  approximately  37  percent  of  cancer  deaths  in  Black  males  and  20 
percent  in  Black  females. 


88 


i 


Examination  of  tobacco  use  patterns  indicates  a  higher  prevalence 
of  smoking  in  Blacks  compared  to  Whites.   However,  Blacks  tend  to  be 
lighter  smokers  (fewer  pack  years)  than  Whites.   In  view  of  these 
patterns,  the  contribution  of  other  risk  factors  (e.g.,  diet  and 
occupation  and  their  combined  effects  with  tobacco)  gain  added 
importance,  particularly  in  explaining  excess  lung  cancer  mortality  in 
Black  males. 

The  contribution  of  occupational  exposures  to  cancer  etiology  in 
minorities  may  be  even  greater  than  the  4  percent  listed  in  Doll  and 
Peto  (1).   Numerous  occupational  epidemiology  studies  document  the 
higher  rate  of  assignment  of  Blacks  to  hazardous  worksites  compared 
with  rates  for  Whites.   This  fact,  coupled  with  the  excessive  cancer 
experiences  of  Blacks,  suggests  occupation  may  likely  account  for  a 
greater  percentage  of  cancers  in  minorities  than  previously 
appreciated  (6)  . 

Knowledge,  attitudes,  and  practices  are  important  to 
understanding  factors  that  relate  to  people  seeking  care  for  cancer 
(cancer  screening,  detection,  treatment,  and  rehabilitation). 
National  surveys  indicate  that  Blacks  overestimate  the  deadliness  of 
cancer  and  underestimate  cancer  prevalence  in  their  population. 
Additionally,  Blacks  are  less  knowledgeable  about  cancer-related 
warning  signs  and  screening  methods  than  Whites.   Even  with  early 
detection.  Blacks  are  more  pessimistic  about  the  curability  of  cancer 
than  Whites  (7).   Such  disparities  in  knowledge,  attitudes,  and 
practices  between  Blacks  and  nonminorities  may  help  to  explain  the 
longer  delay  in  seeking  diagnosis  and  treatment  among  Blacks  and  thus 
the  greater  prevalence  of  more  advanced  stages  of  cancer  in  Blacks 
than  in  Whites  (5).   More  advanced  stages  of  cancer  have  unfavorable 
prognosis  for  cancer  survival. 

Cancer  in  Minority  Groups 

Blacks  are  the  largest  minority  population  in  the  United 
States  and  the  one  for  which  the  most  cancer  data  are  available. 
However,  where  relevant  reliable  information  is  available  for  other 
minority  groups  - -Hispanics ,  Asian/Pacific  Islanders,  and  Native 
Americans--it  will  be  presented.   Blacks  have  the  highest  overall 
age-adjusted  cancer  rates  for  both  incidence  and  mortality  of  any  U.S. 
population  group.   Figure  6  illustrates  the  average  annual  mortality 
rate  for  cancer,  by  sex  and  race. 

Table  12  shows  the  average  annual  incidence  rates  (detecting  new 
sites  of  cancer)  according  to  selected  primary  sites  and  racial/ethnic 
groups.   The  most  recent  SEER  cancer  incidence  data,  1978-81,  show  an 
11  percent  excess  incidence  of  cancer  among  Black  Americans  compared 
with  nonminority  Americans.   The  age-adjusted  incidence  rate  is  25 
percent  higher  among  Black  males  compared  with  nonminority  males,  and 
4  percent  higher  among  Black  females  compared  with  nonminority 
females.   Black  men  showed  the  largest  increase  (8  percent)  in  cancer 
mortality  between  1973-77  and  1978-81. 


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Blacks  experience  greater  age -adjusted  incidence  rates  than 
nonminorities  for  cancers  of  the  cervix,  esophagus,  larynx,  pancreas, 
prostate,  and  stomach.   Excess  mortality  exists  for  cancers  of  the 
following  sites:   bladder,  cervix,  corpus  uterus,  esophagus,  lung, 
prostate,  and  stomach.   Excess  incidence  and  mortality  are  particularly 
pronounced  among  Black  males. 

SEER  data  are  available  for  25  primary  cancer  sites.   Blacks 
have  lower  survival  rates  than  nonminorities  for  22  of  those  cancers  (5) 
Five-year  relative  survival  for  all  cancer  sites  combined  is  12 
percent  less  in  Blacks  than  in  Whites  (38  percent  versus  50  percent, 
respectively).   Blacks  survive  less  for  cancers  of  the  bladder, 
breast,  corpus  uterus,  prostate,  and  rectum. 

Blacks 

Table  13  shows  average  annual  cancer  mortality  rates  by  selected 
primary  sites  and  race.   The  death  rate  for  lung  cancer  is  45  percent 
higher  among  Black  males  compared  to  nonminority  males.   The  death 
rate  for  both  Black  and  nonminority  females  is  about  equal.   For 
cancer  of  the  esophagus  among  Black  males,  mortality  is  three  times 
higher  than  for  nonminority  males.   Mortality  rates  among  Black  women 
are  2.5  times  higher  than  for  nonminority  women.   Age-adjusted 
incidence  rates  of  esophageal  cancer  are  correspondingly  high:   3.5 
times  higher  for  Black  men  compared  with  nonminority  men,  and  almost  3 
times  higher  in  Black  women  than  nonminority  women.   Mortality  from 
stomach  cancer  is  more  than  1.5  times  greater  among  Blacks  than  among 
nonminorities.   Stomach  cancer  incidence  is  almost  twice  as  high  among 
Blacks  compared  with  nonminorities. 

Age-adjusted  mortality  from  prostate  cancer  is  two  times  higher 
among  Black  males  than  among  nonminority  males.   The  death  rates 
increased  by  11.8  percent  among  Blacks  and  only  4.2  percent  among 
nonminorities  between  the  periods  1973-77  and  1978-81.   Incidence  data 
show  that  Black  men  have  a  60  percent  excess  incidence  of  prostate 
cancer  compared  with  nonminority  men  in  the  United  States . 

Both  mortality  and  incidence  rates  for  cervical  cancer  are 
approximately  2.5  times  higher  among  Black  females  than  among 
nonminority  females.   Nonminority  females  showed  a  20  percent  decrease 
in  cervical  cancer  deaths  between  1973-77  and  1979-81,  while  Black 
females  experienced  a  27  percent  increase  during  this  same  period. 
Black  females  experienced  a  33  percent  excess  death  rate  from  cancers 
of  the  corpus  uteri  compared  with  nonminority  females. 

The  incidence  of  multiple  myeloma  is  more  than  twice  as  high  for 
Blacks  than  for  nonminorities.   The  incidence  for  Black  men  is  9.6  per 
100,000  and  for  Black  women  it  is  6.7.   The  rate  for  nonminority  men 
is  4.3,  and  for  nonminority  women  it  is  3.0. 


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93 


There  are  striking  differences  in  Black/nonminority  survival  for 
cancers  of  certain  sites.   Table  14  shows  relative  5-year  survival 
rates  for  selected  sites  of  cancer.   The  5-year  relative  all-site 
survival  rate  for  1976-81  was  50  percent  for  nonminorities  and  38 
percent  for  Blacks.   Of  the  25  primary  cancer  sites  for  which  survival 
data  were  available,  Blacks  had  better  5-year  relative  survival  than 
non-minorities  for  only  three  sites--ovary ,  brain,  and  multiple 
myeloma--all  relatively  low-incidence  cancers.   Black  patients  had 
better  survival  rates  than  nonminorities  for  ovarian  cancer  for  all 
stages  combined  and  also  within  each  stage  category. 

The  breast  cancer  survival  difference  (Blacks,  63  percent; 
nonminorities,  75  percent)  was  statistically  significant.   This  was 
partly  related  to  the  large  number  of  Blacks  who  had  lymph  node 
involvement  or  direct  extension  of  tumors  to  adjacent  tissue  at  the 
time  of  diagnosis  (stage  III  B).   The  difference  in  5-year  relative 
survival  rates  for  Blacks  and  nonminorities  for  all  stages  combined 
for  colon  cancer  and  bladder  cancer  was  significant,  with  Blacks 
experiencing  lower  survival  rates. 

The  scientific  literature  supports  a  hypothesis  that  the 
differences  in  cancer  experience  between  nonminorities  and  Blacks  may 
be  largely  attributable  to  social  or  environmental  factors  rather  than 
inherent  genetic  or  biologic  differences  (4,8,9).   This  has  major 
policy  ramifications  for  the  accessibility,  availability,  utilization, 
quality,  and  continuity  of  health  resources,  for  example,  state-of-the-art 
cancer  screening,  detection,  treatment,  and  rehabilitation.   Other 
possible  contributors  include:   nutritional  status  and  dietary 
patterns;  immune  status  and  function;  educational  level  and  attitude, 
and  awareness  of  cancer  preventive  concepts  and  behaviors;  and 
acceptance  of  cancer  as  a  real  and  potential  threat. 

When  adjustments  are  made  for  stage  at  diagnosis  in  cancer 
patient  survival  studies,  survival  differences  decrease  between  Blacks 
and  nonminorities  (10),  and  when  adjustments  for  socioeconomic  status 
are  made,  the  disparities  between  the  two  groups  are  further  reduced 
(2,3,8,11).   Factors  that  may  contribute  to  poor  cancer  survival  in 
Blacks  include  lower  socioeconomic  status  (11),  later  stage  at  diagnosis, 
delay  in  detection  and  treatment  (10),  treatment  differences  (12) 
and  biologic  factors  such  as  immune  competence  and  response, 
histologic  patterns  of  tumors,  and  nutritional  status  (13). 

Hispanics 

Overall  age-adjusted  cancer  incidence  rates  for  Hispanics  are 
lower  than  for  Blacks  or  nonminorities.   Specific  sites  of  excess 
incidence  among  Hispanics  are  stomach,  prostate,  esophagus,  pancreas, 
and  cervix  cancers .   Stomach  cancer  incidence  in  Hispanics  is  twice 
that  of  nonminorities.   Stomach  cancer  incidence  has  been  correlated 
with  diets  high  in  smoked,  pickled,  and  spiced  foods--especially  those 
high  in  N-nitroso  compounds.   Tobacco  also  has  been  suggested  as  a 
risk  factor  in  stomach  cancer  development.   New  Mexico  Hispanics  have 


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pancreatic  cancer  rates  that  are  higher  than  those  of  nonminorities . 
An  upward  trend  also  is  appearing  for  Puerto  Rican  females.   Excess 
risk  for  pancreatic  cancer  has  been  found  among  cigarette  smokers. 
Also,  cervical  cancer  is  twice  as  high  among  Hispanics  as  among 
nonminorities.   The  incidence  among  Hispanics  is,  however,  lower  than 
that  for  Blacks,  Native  Americans,  and  Chinese  Americans. 

The  overall  5 -year  relative  survival  rate  of  Hispanic  males  is 
almost  identical  to  that  of  nonminorities.   Hispanic  females  have 
somewhat  lower  survival  rates  than  that  of  nonminority  females. 
Survival  data  are  similar  for  Hispanics  and  nonminorities  for  all 
sites  except  bladder  cancer  and  Hodgkin's  disease,  where  survival  is 
poorer  for  Hispanics,  and  ovarian  cancer,  where  it  is  poorer  for  White 
non-Hispanics  (14). 

Asian/Pacific  Islanders 

Cancer  incidence  varies  widely  among  Americans  of  Chinese, 
Japanese,  Filipino,  and  Hawaiian  descent.   Rates  of  cancer  incidence 
among  Hawaiians  follow  Blacks  with  the  second  highest  in  the  U.  S. 
population.   The  rates  for  Chinese,  Japanese,  and  Filipinos  are  less 
than  for  nonminorities.   There  is,  however,  an  upward  trend  in 
incidence  rates  for  both  sexes  of  the  Chinese  population  and  for 
Japanese  males.   Hawaiians  have  excess  mortality  for  cancers  of  the 
breast  and  lung.   Japanese  Americans  have  excess  mortality  for  stomach 
cancer.   Chinese  Americans  have  excess  rates  for  cancer  of  the  cervix 
and  for  nasopharyngeal  cancer.   Among  Chinese  and  Japanese,  rates  for 
males  are  higher  than  those  for  females  (15). 

Stomach  cancer  incidence  is  2.5  times  higher  for  Japanese  males 
and  3.8  times  higher  for  females  than  for  nonminority  males  and 
females.   Esophageal  cancer  is  also  2.5  times  higher  in  Japanese  males 
compared  with  nonminorities.   Migratory  studies  of  Japanese  point  to 
dietary  practices  as  a  cause  in  three  major  cancer  sites:   stomach, 
breast,  and  colon.   Japanese  females  are  the  only  U.S.  minority  group 
that  does  not  have  cervical  cancer  incidence  rates  above  that  of 
nonminorities.   However,  Japanese  females  show  a  trend  toward  higher 
rates . 

Chinese  Americans  have  an  increased  incidence  of  about  17 
percent  over  nonminorities  of  multiple  myeloma.   Incidence  of 
esophageal  cancer  is  higher  for  Chinese  males  and  females  than  for 
nonminorities.   Most  studies  on  the  causes  of  esophageal  cancer 
suggest  that  the  major  risk  factors  are  smoking  and  alcohol 
consumption,  with  the  combined  use  having  a  synergistic  effect. 
Consumption  of  hot  beverages  also  has  been  implicated  in  esophageal 
cancer.   Pancreatic  cancer  incidence  is  about  20  percent  higher  among 
Chinese  females  than  among  nonminorities,  and  an  upward  trend  in 
incidence  exists  for  Chinese  of  both  sexes.   Excess  risk  for 
pancreatic  cancer  has  been  found  among  cigarette  smokers. 


96 


Filipinos  have  the  lowest  survival  of  all  ethnic  groups  for 
colon  cancer  (35  percent)  and  the  highest  for  ovarian  cancer  (35 
percent) .   Hawaiians  experienced  comparatively  high  survival  rates  for 
lung,  breast,  prostate,  and  cervix  cancer  and  comparatively  lower 
survival  rates  for  ovarian  (38  percent)  and  corpus  cancers  (76 
percent) . 

SEER  registry  data  (1973-79)  indicate  that  for  Chinese  Americans 
the  5-year  relative  survival  for  all  sites  was  35  percent  in  males  and 
50  percent  in  females  compared  with  40  percent  and  55  percent  in 
nonminorities .   In  Filipino  Americans,  site-specific  relative  survival 
rates  vary  widely,  with  some  rates  being  the  lowest  of  eight  ethnic 
groups  and  others  being  much  higher.   Survival  rates  for  Hawaiians 
also  vary  widely,  as  noted  above. 

Native  Americans 

Native  Americans  have  the  lowest  rates  of  overall  cancer 
incidence  and  mortality  of  all  U.S.  populations  (including 
nonminorities)  covered  in  the  SEER  program.   Cause  of  death  data 
indicate  that  cancer,  the  second  leading  cause  of  death  for  the  U.S. 
population  as  a  whole,  is  the  third  most  common  cause  of  death 
(preceded  by  accidents  and  heart  disease)  among  Native  Americans.   In 
1975,  the  age-adjusted  mortality  for  cancers  was  39  percent  lower  for 
this  group  than  for  the  general  U.S.  population  (16). 

However,  Native  Americans  generally  had  low  survival  rates 
according  to  1973-79  SEER  data.   Overall  5-year  relative  survival  for 
males  was  26  percent  compared  with  40  percent  for  nonminority  males, 
and  39  percent  for  females  compared  with  55  percent  for  nonminority 
females.   Native  Americans  have  rates  below  nonminorities  for  the  most 
common  cancers --lung,  colon,  breast,  and  prostate  cancer--and  much 
higher  rates  for  cancers  of  the  cervix,  gall  bladder,  and  kidney. 
Differences  in  overall  cancer  mortality  for  Native  Americans  and 
nonminorities  are  believed  to  be  due  more  to  cultural  factors  and 
environment  than  to  genetic  factors. 

The  lung  cancer  mortality  among  Oklahoma  tribes  is  nine  times 
greater  than  that  of  Southwest  tribes .   Environmental  and  cultural 
factors,  in  this  case,  heavy  smoking  among  Oklahoma  Indians  but  not 
among  Southwest  tribes,  undoubtedly  play  a  role  in  this  discrepancy. 
Indians  of  the  Southwest,  who  seldom  smoke  extensively,  have  low  rates 
of  squamous  cell  bronchogenic  carcinoma--a  common  type  of  lung  cancer 
and  the  one  associated  with  heavy  smoking  (16). 

Native  Americans  show  excess  mortality  for  cancer  of  the  gall 
bladder.   Indians  of  the  Southwest  have  the  greatest  incidence  as 
compared  with  Oklahoma  Indians.   The  excess  incidence  of  cancer  of  the 
gall  bladder  is  frequently  attributed  to  a  genetic  basis.   Native 
Americans  also  have  excess  mortality  from  cancer  of  the  cervix.   Alaska 
Natives  are  reported  to  have  increased  incidence  of  cancer  of  the  gall 
bladder  and  excess  mortality  from  primary  liver  cell  cancers  (17). 


97 


OPPORTUNITIES   FOR   PROGRESS 

Many  of  these  activities,  proposed  by  the  Subcommittee  on 
Cancer,  are  also  applicable  to  the  United  States  population  in 
general,  not  just  to  minorities. 

Information  and  Education 

Increase  the  public's  knowledge  of  the  health  hazards  of  tobacco 
through  activities  originating  in  the  Office  on  Smoking  and  Health. 

Design  smoking  cessation  programs  targeted  specifically  to  the 
underserved  working  population  (migrant  workers,  recent  immigrants, 
part-time  workers,  shift  workers). 

Continue  to  publicize  the  risks  of  smoking  and  tobacco  use  through  the 
Office  of  Cancer  Communications  (and  its  Cancer  Prevention  Awareness 
Program  and  other  National  Cancer  Institute  (NCI)  programs). 

Continue  to  inform  the  public,  through  the  Cancer  Information  Service 
(CIS) ,  about  resources  available  to  prevent  and  stop  smoking  and 
tobacco  use. 

Assist  and  promote  an  increased  role  for  the  NCI-sponsored 
Comprehensive  Cancer  Centers  in  prevention  and  cessation  of  smoking 
and  tobacco  use. 

Develop  joint  efforts  between  the  Federal  Government  and  industry  to 
develop  diet  and  cancer  programs  that  use  mass  media  and  other 
high- techno logy  communication  approaches. 

Target  primary  care  physicians  and  other  primary  care  health 
professionals  (for  example,  pharmacists,  occupational  nurses)  for 
educational  campaigns  about  the  importance  of  screening  and  early 
detection.   Specific  educational  messages  for  these  groups  should 
include: 

•  The  importance  of  comprehensive  physical  examinations  to  detect 
cancers  of  the  rectum  and  prostate  (digital  rectal  examination) , 
breast  (palpation  and  mammography),  skin  (physical  examination), 
cervix  and  uterus  (pelvic  examination  and  Pap  smear) ,  and 
endometrial  sampling  in  high-risk  females  to  detect  uterine 
cancer. 

•  The  importance  of  identifying  and  closely  monitoring:   high-risk 
individuals  with  aggressive  follow-up  where  changes  are  apparent; 
any  history  of  nonmenstrual  bleeding  in  women,  with  aggressive 
follow-up;  and  family  history  to  determine  risk  for  breast 
cancer  and  melanoma; 


98 


•  The  importance  of  early  referral  for  diagnosis  and  treatment 
planning. 

•  The  fact  that  many  forms  of  cancer  are  treatable  and  curable. 

Emphasize  through  teachers'  associations  and  appropriate  clubs, 
lay  organizations,  and  churches  the  value  of  screening  for  cancer  in 
their  efforts  to  inform  and  educate  the  public  and  their  members. 

Use  radio  and  television  and  other  media  programs  more 
effectively  to  present  information  on  the  value  of  screening  for 
cancer.   These  program  efforts  should  make  special  attempts  to  target 
messages  to  high-risk  groups,  such  as  those  exposed  to  known 
carcinogens  and  those  with  a  strong  family  history  of  cancer  (breast 
cancer,  ovarian  cancer,  and  melanoma).   The  messages  should  be 
sensitive  to  the  special  cultural  and  social  settings  of  the  people 
who  need  to  be  reached.   All  public  education  programs  should 
emphasize: 

•  The  importance  of  early  warning  symptoms  of  cancer. 

•  The  importance  of  comprehensive  physical  examinations. 

•  The  appropriateness  and  importance  both  of  seeking  information 
about  treatment  choices  and  seeking  referrals  when  appropriate. 

In  educational  efforts  regarding  cervical  cancer,  include  informa- 
tion on  risk  factors  for  the  disease  and  on  the  importance  of  follow-up  for 
abnormal  bleeding,  as  well  as  on  the  availability  and  usefulness  of  the  Pap 
test.   The  importance  of  pelvic  examinations  and  follow-up  for  abnormal 
bleeding  should  be  emphasized  in  public  education  campaigns  about  uterine 
cancers;  such  efforts  should  be  targeted  to  postmenopausal  women,  especially 
those  with  lower  socioeconomic  status. 

Public  information  programs  about  colon,  rectal,  and  prostate  cancer 
should  emphasize: 

•  The  high  risk  of  these  cancers  for  adults  aged  50  and  above. 

•  The  importance  of  early  recognition  of  symptoms. 

Try  innovative  channels  of  communication,  for  example, 
mailing  information  on  colon,  rectal,  and  prostate  cancer  with  social 
security  checks  to  reach  retired  elderly  persons,  and  distributing  literature 
at  retail  stores  and  pharmacies. 

Strategies  for  disseminating  information  to  professionals  should 
include  all  the  traditional  methods,  such  as  professional  meetings, 
journals,  special  continuing  medical  education  symposia  and  consensus 
conferences,  revised  medical  school  curricula,  and  residency  training. 


99 


Use  the  Physician  Data  Query  (PDQ)  system  should  be  used  as  a 
vehicle  for  disseminating  up-to-date  cancer  treatment  information  to 
physicians . 

Capacity  Building  in  the  Non-Federal  Sector 

DHHS  should  work  with  the  non-Federal  sector  in  developing  the 
capacity  to  perform  periodic  surveys  on  the  prevalence  of  smoking  to 
assess  problems  and  progress. 

Encourage  state  health  agencies  to  develop  and  implement 
statewide,  health-risk  appraisals/risk  reduction  programs  that  include 
smoking  as  a  risk  factor. 

Encourage  state  education  departments  to  review  and  evaluate 
elementary  and  secondary  school  health  and  home  economics  curricula 
and  training  guides.   Draw  upon  appropriate  local  and  national  experts 
to  upgrade  curricula  to  reflect  newer  knowledge  of  diet  and  cancer 
risks  and  strategies  for  risk  reduction. 

Encourage  state  and  local  governments  to  assist  voluntary  and 
private  sector  groups  in  modifying  existing  health  promotion  programs 
to  include  diet  and  cancer  risk  reduction  components. 

Encourage  state  and  local  agencies  for  agriculture,  environmental 
protection,  health,  and  aging  to  coordinate  program  planning 
activities  to  ensure  that  attention  is  given  to  reducing  dietary  risk 
factors  for  cancer.   One  such  activity  would  be  to  include  education 
and  information  on  eating  for  better  health  and  for  avoiding  cancer 
risk,  and  to  make  use  of  innovative  approaches  to  reach  high-risk 
groups . 

Voluntary  health  organizations  should  continue  to  expand  their 
efforts  to  increase  the  utilization  of  screening  for  cancer  and  should 
develop  programs  to  overcome  identified  impediments  to  utilization. 
These  groups  should  be  the  focus  of  other  prevention  activities. 

As  appropriate,  hospitals  should  consider  adopting  mechanisms 
that  would  promote  screening  tests  such  as  breast  examination,  the  Pap 
smear,  the  stool  occult  blood  test,  and  rectal  examination  at  some 
time  during  admission  or  prior  to  completion  of  treatment  in  the 
emergency  room  for  most  patients. 

Financing  Issues 

Encourage  employers  to  include  screening  for  cancer  according  to 
specified  protocols  as  a  component  of  their  health  care  packages. 

Health  insurers  should  remind  their  clients  about  cancer 
screening  recommendations. 


100 


Life  insurers  should  offer  rate  incentives  to  clients  who 
participate  in  recommended  cancer-screening  activities,  and  purchasers 
of  large  amounts  of  insurance  should  be  encouraged  to  request  thsse 
incentives . 

Explore  incentives  that  might  offer  health  care  providers 
reimbursement  for  comprehensive  diagnostic  workups,  adequate  clinical 
staging  prior  to  treatment,  appropriate  multidisciplinary  referrals, 
and  application  of  state-of-the-art  detection,  treatment,  and 
rehabilitation. 

Health   Professions  Development 

The  curricula  of  medical  students  and  ongoing  education  programs 
for  physicians  and  health  care  providers  should  include  information 
regarding  the  health  consequences  of  smoking  and  tobacco  use  and 
prevention  and  cessation  methods.   The  collaboration  of  medical  and 
health  professional  associations  (particularly  associations  of 
minority  physicians  and  other  health  professionals)  in  this  process 
would  further  facilitate  this  effort. 

Physicians  and  other  health  care  providers  should  be  encouraged 
to  serve  as  role  models  by  refraining  from  tobacco  use. 

Physicians  and  other  health  care  providers  should  offer 
interventions  to  heavy  smokers;  patients  with  lung  disease,  heart 
disease,  cancer,  or  alcohol  dependence;  and  patients  in  occupations 
with  high  risk  for  cancer. 

Active  cancer-screening  programs  for  demonstration  and  teaching 
purposes  should  be  incorporated  into  the  educational  programs  of 
medical  and  other  health  professional  schools. 

Educational  programs  for  health  professionals  and  physicians  in 
residency  training  should  promote  cancer  screening. 

Educational  messages  to  specialty  physicians  should  emphasize  the 
importance  of: 

•  Aggressive  workups  (radiology  and  endoscopy)  for  occult  blood. 

•  Disease  staging  prior  to  treatment  for  all  cancers,  especially 
rectal,  colon,  breast,  prostate,  small-cell  lung,  cervical, 
uterine,  ovarian,  and  skin  (melanoma)  cancer. 

Professional  oncology  education  should  be  enhanced  by 
institutions  through  the  Physician  Data  Query  (PDQ)  system,  oncology 
nursing  support,  treatment  guidelines,  protocol  participation,  and 
quality  assurance  requirements  by  the  Joint  Commission  on 
Accreditation  of  Hospitals. 


101 


Federal  Leadership  in  Work  with  Other  Sectors 

Promote  comprehensive  health  education,  emphasizing  avoidance  of 
smoking  and  other  high-risk  behavior,  from  kindergarten  through 
grade  12. 

Make  model  smoking  cessation  programs  available,  through  the 
Office  of  Smoking  and  Health,  to  students,  faculty,  and  staff  of 
interested  educational  institutions. 

The  establishment  of  a  "peer  corps  '  of  high-school  seniors 
interested  in  practicing  health  promotion  should  be  encouraged;  these 
students  could  be  given  incentives  such  as  scholarships  and  could  play 
a  significant  role  in  smoking  prevention  and  cessation  at  the  local 
level. 

Explore  collaborative  efforts  between  DHHS  and  such  associations 
as  health  maintenance  organizations,  the  American  Hospital 
Association,  and  local  hospitals  to  develop  hospital-based  cessation 
and  prevention  programs.   These  organizations  could  participate  in 
efforts  to  discourage  the  sale  of  cigarettes  in  hospitals,  nursing 
homes,  other  health  care  facilities,  and  pharmacies. 

Corporate  and  union  leaders  should  collaborate  to  develop  and 
promote  model  nonsmoking  standards  as  an  integral  part  of  worksite 
health  promotion  and  fitness  programs. 

Insurance  companies  should  be  encouraged  to  establish  and  expand 
nonsraoker  differential  rates  for  health,  life,  and  home  insurance. 

Schools  and  programs  of  occupational  medicine  should  be 
encouraged  to  include  smoking  cessation  in  their  educational  programs. 

Federal  meat  and  milk  grading  programs  should  work  with  producers 
to  expand  production  and  marketing  of  leaner,  low-fat  products.   For 
example,  the  red  meat  industry  has  proposed  new  grading  standards  that 
permit  the  choice  and  prime  grades  to  be  leaner,  which  would  result  in 
less  fat  in  American  diets . 

Senior  citizen  organizations  should  seek  health  care 
organizations  that  provide  low-cost  but  technically  skilled  screening 
programs  and  should  actively  encourage  their  members  to  use  these 
screening  programs. 

Research  Issues 

Promote  close  collaboration  in  research  by  developing  a  network 
among  smoking  intervention  researchers  funded  by  the  NCI  Smoking, 
Tobacco,  and  Cancer  Program. 


102 


Involve  NCI -sponsored  researchers  of  smoking  interventions  in  NCI 
year  2000  activities,  especially  the  application  of  findings  that  come 
from  their  research. 

Intensify  research  on  selective  livestock  breeding  to  produce 
leaner  food  products . 

Conduct  research  to  enhance  the  quality  and  desirability  of 
fiber-rich  foods,  including  cereals  and  breads. 

The  NCI  should  support  research  on  cancer  screening  technology 
and  on  utilization  of  screening  techniques. 

Data 

To  track  progress  in  controlling  cancer  in  all  populations  and 
especially  in  the  minorities,  baseline  information  and  monitoring  on  a 
regular  basis  of  the  following  indicators  should  be  undertaken: 
incidence,  mortality,  stage  at  diagnosis,  and  relative  survival  by 
cancer  site;  percent  of  adults  and  children  who  smoke  and  for  former 
smokers,  the  time  since  quitting;  the  percent  of  fat  and  fiber  in  the 
diet  and  the  percent  who  are  obese;  the  percent  of  eligible  persons 
who  are  screened  for  cancer;  percent  of  cancer  patients  treated  by 
state-of-the-art  methods;  percent  of  workers  exposed  to  carcinogens  in 
the  workplace  as  well  as  the  percent  of  those  who  are  screened  in  the 
workplace;  and  the  percent  of  the  population  and  ethnic  groups  with 
particular  knowledge,  attitudes,  and  beliefs  about  cancer. 

Improve  surveillance  and  registration  of  occupational  exposure. 
Link  registration  to  current  cancer  surveillance  systems. 

Improve  the  timeliness  of  mortality  data  reported  by  the  NCHS  so 
that  data  for  a  given  year  will  be  available  by  the  end  of  the 
following  year. 

Obtain  data  on  smoking  habits  on  an  annual  basis  and  on  knowledge 
and  beliefs  about  cancer  on  a  biennial  basis  through  the  National 
Health  Interview  Survey  (NHIS). 

NCI  should  take  the  lead  in  helping  population-based  cancer 
registries  achieve  compatibility  with  SEER  and  help  them  to  improve 
data  quality. 

Augment  existing  national  surveys  rather  than  conduct  new  ones. 

The  Centers  for  Disease  Control  should  explore  the  possibility  of 
using  the  Morbidity  and  Mortality  Weekly  Report  or  the  121  City 
Mortality  System  for  monitoring  cancers  that  are  amenable  to 
rapid  intervention. 


103 


Continue  the  longitudinal  study  of  the  Current  Population  Survey 
sample  matched  to  the  National  Death  Index. 

Explore  the  possibility  of  NCI  including  additional  items  in  SEER 
such  as  detailed  treatment  information  and  socioeconomic  status 
information. 

Install  a  data  collection  mechanism  in  SEER  areas  to  obtain 
additional  information  from  medical  records  or  through  slide  review  as 
specific  questions  arise. 

Supplement  ongoing  population  surveys  (preferably  the  NHIS)  with 
questions  on  cancer  screening. 

Consider  including  one  or  more  questions  on  smoking  in  the  1990 
census . 

Conduct  special  surveys,  under  the  direction  of  NCI,  to  obtain 
data  on  the  general  population  in  specific  geographic  areas. 

Conduct  population  surveys  to  obtain  detailed  data  for  various 
surveillance  indicators  in  SEER  areas  or  in  other  areas  with 
population-based  cancer  registries  so  that  indicators  can  be 
correlated  with  measures  of  outcome. 


104 


REFERENCES 

1.  Doll,  R.,  &  Peto,  R.   C1981).   The  causes  of  cancer.   New 

York,  NY:   Oxford  University  Press. 

2.  Linden,  G.   (1969).   The  influence  of  social  class  in  the  survival 

of  cancer  patients.   American  Journal  of  Public  Health, 
59,  267-274. 

3.  Lipworth  L.   (1970).   Socioeconomic  factors  in  the  prognosis  of 

cancer  patients.   Journal  of  Chronic  Diseases,  23,  105-116. 

4.  DeVesa,  S.  S.,  &  Diamond,  E.  L.   (1980).   Association  of  breast 

cancer  and  cervical  cancer  incidences  with  income  and 
education  among  Whites  and  Blacks.   Journal  of  the  National 
Cancer  Institute,  65(3),  515-528. 

5.  National  Cancer  Institute.   (1985).   Cancer  incidence  and 

mortality  in  the  United  States,  1973-1981  (NIH 
Publication  No.  85-1837).   Bethesda,  MD:   U.S.  Department 
of  Health  and  Human  Services. 

6.  Miller,  W. ,  &  Cooper,  R.   (1982).   Rising  lung  cancer  death 

rates  among  Black  men:   The  importance  of  occupation  and 
social  class.   Journal  of  the  National  Medical 
Association,  74(3),  253-258. 

7.  EVAXX,  Inc.   (1980).   A  study  of  Black  Americans'  attitudes 

toward  cancer  and  cancer  tests .   New  York,  NY:   American 
Cancer  Society. 

8.  Dayal,  H.  H. ,  Power,  R.  N.,  &  Chiu,  C.   (1982).   Race  and 

socioeconomic  status  in  survival  from  breast  cancer. 
Journal  of  Chronic  Diseases,  35,  675-683. 

9.  Graham,  S.,  &.   Schotz,  W.   (1979).   Epidemiology  of  cancer  of  the 

cervix  in  Buffalo,  New  York.   Journal  of  the  National 
Cancer  Institute,  63(1),  23-27. 

10.  Wilkinson,  G.  S.   (1979).   Delay,  stage  of  disease,  and  survival 

from  breast  cancer.   Journal  of  Chronic  Diseases ,  32, 
365-373. 

11.  Berg,  J.  W.   (1977).   Economic  status  and  survival  of  cancer 

patients.   Cancer,  39,  467-477. 

12.  Page,  W.  F.,  &  Kuntz,  A.  J.   (1980).   Racial  and  socioeconomic  factors 

in  cancer  survival:   A  comparison  of  Veterans'  Administration 
results  with  selected  studies.   Cancer,  45,  1029-1040. 


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13.  Savage,  D.,  Lindenbaum,  J.,  Osserman,  E.,  Van  Ryzin,  J., 

&  Garrett,  T.   (1981).   Survival  of  Black  and  White  patients 
with  multiple  myeloma  at  two  hospitals  [Abstract]. 
Proceedings  of  the  American  Association  of  Cancer 
Research,  22,  537. 

14.  Young,  J.  L. ,  Jr.,  Ries ,  L.  G. ,  &  Pollack,  E.  S.   (1984).   Cancer 

patient  survival  among  ethnic  groups  in  the  United  States. 
Journal  of  the  National  Cancer  Institute,  73(2) , 
341-352. 

15.  Thomas,  D.  B.   (1979).   Epidemiologic  studies  of  cancer  in 

minority  groups  in  the  Western  United  States.   National 
Cancer  Institute  Monographs,  53,  103-113. 

16.  Sievers,  M.  L. ,  Fisher,  J.  R.   (1981).   Diseases  of  North 

American  Indians.   In  H.  Rothschild,  &  C.  Chapman  (Eds.), 
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Academic  Press . 

17.  Boss,  L.  P.,  Lanier,  A.  P.,  Dohan,  P.  H. ,  &  Bender  T.  R.   (1982). 

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106 


SUBCOMMITTEE  ON   CARDIOVASCULAR  AND 
CEREBROVASCULAR   DISEASES 

EXECUTIVE   SUMMARY 

Introduction 

This  report  reviews  cardiovascular  and  cerebrovascular  diseases 
in  Black  Americans  and,  to  a  lesser  extent  because  of  the  paucity  of 
information,  in  Hispanics ,  Native  Americans,  and  Asian/Pacific 
Islanders.   Heart  diseases  and  stroke  cause  more  deaths,  disability, 
and  economic  loss  in  the  United  States  than  any  other  acute  or  chronic 
diseases  and  are  the  leading  causes  of  days  lost  from  work.   This 
observation  is  true,  not  only  for  the  general  population,  but  for  each 
of  the  four  minority  populations  in  this  report  (1,2,3).   The  data  to 
extend  this  statement  to  the  many  subgroups  of  each  minority  do  not 
exist,  but  cardiovascular  disease  (CVD)  remains  an  unquestionably 
important  health  issue  for  each. 

Even  though  currently  available  data  are  insufficient  for  excess 
deaths  to  be  calculated  for  each  minority  population,  average  annual 
death  rates  for  heart  disease  are  higher  in  Black  men  and  women  under 
age  70  than  in  comparable  Whites.   Under  45  years  of  age,  the  rates 
for  Native  Americans,  as  well  as  for  Blacks,  are  higher  than  they  are 
for  Whites,  in  both  genders  (Figures  7  and  8). 

Dramatic  differences  exist  between  the  levels  of  the  various  CVD 
risk  factors  both  when  minority  populations  are  compared  with  each 
other  and  also  when  each  is  compared  with  the  White  population.   The 
leading  treatable  risk  factors  for  cardiovascular  disease  in  the  White 
population  include  hypertension,  elevated  blood  cholesterol,  cigarette 
smoking,  diabetes  mellitus,  and  obesity.   Although  the  data  are 
limited  or  frequently  .nonexistent  regarding  these  risk  factors  and 
their  importance  in  minority  health,  current  wisdom  suggests  that  a 
major  approach  to  improvement  of  cardiovascular  and  general  health  in 
minorities  should  focus  on  these  modifiable  risk  factors.   Major 
socioeconomic  differentials  also  exist  between  minorities  and  Whites 
that  affect  their  respective  life  experiences,  biological  risk  factor 
distributions,  and  access  to  medical  care.   A  comprehensive  model  that 
takes  into  account  the  social  context  of  disease  is  required  to 
clarify  the  causes  of  the  observed  CVD  disparities,  to  develop 
effective  therapeutic  approaches,  and  to  enhance  understanding  of  CVD 
etiology. 

Blacks 

Coronary  Heart  Disease 

The  burden  of  coronary  heart  disease  (CHD)  can  be  evaluated  by 
several  indices  including:   CHD  mortality,  prevalence  (the  proportion 
of  people  alive  at  a  point  in  time  who  have  a  history  of  CHD) ,  and 


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incidence  (the  combination  of  fatal  and  nonfatal  CHD  events  occurring 
over  a  specified  period  of  time  in  a  population).   Curiously,  these 
indices  give  different  estimates  of  the  magnitude  of  the  problem  in 
Blacks.   CHD  mortality  rates  are  similar  in  Black  and  White  men,  but 
are  greater  among  Black  than  White  women  (4).   Incidence  of  CHD  also 
shows  an  excess  among  Black  women,  but  in  several  studies  in  the 
southern  region  of  the  United  States,  excess  incidence  was  not  found 
in  Black  men  (5,6).   Interestingly,  the  prevalence  rates  of  CHD  in 
Blacks  and  Whites  appear  similar  (7).   Finally,  hospital  admission 
records  of  acute  myocardial  infarction  (MI)  indicate  higher  rates  for 
White  than  Black  men  which  may  result  from  higher  rates  of  sudden 
death  in  Blacks  prior  to  hospital  admission  (8). 

Hypertension 

Hypertension  is  a  major  risk  factor  for  heart  disease  and  stroke. 
Mean  blood  pressure  levels  are  greater  in  Blacks  than  Whites  with  a 
marked  excess  of  hypertension  in  Blacks  (9).   However,  progress  has 
been  made.   Between  1960-80,  mean  systolic  pressures  declined  more  in 
Blacks  than  in  Whites  (5).   By  1980,  Black  adults  were  more  likely  to 
be  aware  of  their  elevated  blood  pressure  than  Whites  (9). 
Hypertensive  Blacks  were  at  least  as  likely  as  Whites  of  the  same  sex 
to  be  treated  with  antihypertensive  medication  and  nearly  as  likely  to 
have  their  blood  pressure  controlled.   The  improved  control  of 
hypertension  has  almost  certainly  contributed  to  significant 
improvement  in  CVD  status,  and  thus  to  the  general  health,  of  Black 
Americans.   Despite  this  encouraging  progress  in  awareness,  treatment, 
and  control  of  high  blood  pressure,  there  remains  significant  excess 
of  hypertension  in  Black  men  and  women. 

Stroke  mortality  of  Blacks  declined  51  percent,  and  CHD  mortality 
in  Blacks  declined  42  percent  from  1968  to  1982.  Hypertension  control 
has  certainly  been  one  of  the  factors  responsible  for  this  improvement 
in  health. 

Stroke  and  Hypertensive  End-Stage  Renal  Disease 

Stroke  deaths  are  much  higher  among  Blacks  than  Whites  (see 
Figure  9);  a  greater  proportion  of  Blacks  than  Whites  suffers  nonfatal 
strokes  as  well  (10).   End-stage  renal  disease  (ESRD) ,  resulting  from 
hypertension,  occurs  more  commonly  in  Blacks  than  Whites  (11);  Blacks 
with  hypertension  are  at  much  greater  risk  of  developing  ESRD  than 
Whites.   Interestingly,  Blacks  with  hypertensive  ESRD  who  receive 
treatment  with  dialysis  have  a  more  favorable  cardiovascular  mortality 
outlook  than  Whites  who  receive  treatment. 

Other  Cardiovascular  Risk  Factors 

Mean  total  serum  cholesterol  levels  in  Black  and  White  adults  are 
similar  (12).   High-density  lipoprotein  (HDL)  cholesterol  levels  are 
consistently  higher  in  Black  men  than  White  men,  but  the  same  is  not 
true  for  women. 


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Smoking  appears  to  increase  the  risk  of  CVD  mortality  similarly 
in  Blacks  and  Whites  (13).   Cigarette  smoking  prevalence  is  greater 
among  Black  than  White  men,  but  the  prevalence  of  heavy  smoking  is 
greater  among  White  than  Black  adults  (14,15). 

The  impact  of  cigarette  smoking  and  elevated  serum  cholesterol 
levels  on  heart  disease  mortality  is  similar  in  Blacks  and  Whites, 
although  the  effect  of  hypertension  appears  to  be  less  in  Blacks  than 
Whites  (13).   Smoking  cessation  and  prevention,  and  cholesterol 
reduction  in  Blacks  should  reduce  the  incidence  of  heart  disease. 

The  prevalence  of  diabetes  mellitus,  both  diagnosed  and 
undiagnosed,  is  greater  among  Blacks  than  Whites  (16).   However,  the 
effects  of  diabetes  mellitus  on  CVD  in  Black  Americans  have  not  been 
assessed  adequately. 

Obesity  is  also  common  in  Black  women  and  may  provide  a  partial 
explanation  for  their  excess  coronary  disease  risk  (17). 

Electrocardiographic  abnormalities  have  been  found  to  be 
predictive  of  CKD  in  White  patients  (18).   Such  abnormalities  are  more 
common  in  Blacks  than  Whites  (13,19).   The  impact  of  these 
abnormalities,  especially  electrocardiographic  evidence  of  left 
ventricular  hypertrophy  (ECG-LVH) ,  has  not  been  assessed 
satisfactorily  in  Blacks. 

Substantial  efforts  in  hypertension  control  should  continue  to 
improve  cardiovascular  disease  incidence  and  mortality  in  Blacks.   The 
heterogeneity  of  blood  pressure  levels  and  hypertension  prevalence  in 
Black  populations  in  Africa  (20,21,22)  the  Caribbean  (23-27),  and  the 
Americas  (28)  casts  doubt  on  the  proposition  that  genetic  factors  are 
primarily  responsible  for  blood  pressure  excess  in  U.S.  Blacks. 

Social,  Cultural,  and  Economic  Aspects 

There  are  persistent  differences  between  Black  and  White 
Americans  in  education,  occupational  level,  and  income  (29-33).   On 
average,  Blacks  have  fewer  years  of  formal  education  than  Whites. 
Those  with  equivalent  education  have  access  to  fewer  job  opportunities 
than  Whites  (34,35).   Those  with  equivalent  employment  are  likely  to 
be  paid  less  than  Whites.   There  is  some  evidence  of  a  low  incidence 
of  coronary  disease  in  Blacks  of  high  socioeconomic  status  (SES)  (36). 
Improved  risk  factor  distributions  have  been  associated  with  higher 
SES,  which  may  account  for  this  observation.   Complicating  the 
picture,  however,  is  the  impression  that  higher  SES  may  be  associated 
with  lower  levels  of  HDL-cholesterol . 

There  is  an  inverse  association  of  education  with  hypertension 
prevalence  (37).   Studies  of  Blacks  indicate  that  there  is  an  inverse 
association  of  blood  pressure  and/or  incidence  of  elevated  blood 
pressure  with  both  income  and  social  class  (38,39).   The  mechanism  by 
which  socioeconomic  status  is  associated  with  high  blood  pressure  in 


112 


Blacks  is  unclear.   High  blood  pressure  has  been  related  to  residence 
in  areas  of  high  social  stress  and  instability  as  well  as  to  coping 
styles,  education,  and  occupational  insecurity.   Hypertension- 
associated  mortality  rates  also  show  linkages  with  social 
instability.   The  relationship  between  social  factors  and  high  blood 
pressure  (and  associated  mortality  rates)  suggests  that  hypertension 
control  in  Black  communities  can  be  improved  by  interventions  that  are 
not  strictly  biomedical,  but  which  increase  levels  of  social  support. 

Behavioral  risk  factors,  such  as  diet,  smoking  patterns,  and 
physical  activity  are  often  part  of  the  particular  cultural  patterns 
that  are  grounded  in  socioeconomic  circumstances  associated  with 
increased  risk.   In  addition,  certain  cultural  patterns  may  impede 
efforts  to  reduce  risk.   In  particular,  cultural  factors  may  determine 
the  effectiveness  of  efforts  to  prevent  hypertension,  to  lower  CHD 
risk  by  reducing  risk  factors,  and  to  treat  hypertension  more 
effectively. 

Knowledge  and  Awareness  of  Cardiovascular  Diseases 

Data  on  knowledge  of  CVD  in  Blacks  are  inadequate  but  suggest 
significant  deficits  in  Blacks'  knowledge  concerning  the  association 
of  CVD  with  diet  (40).   Data  on  Blacks'  health  practices  important  for 
CVD  outcomes  are  scanty.   A  few  demonstration  and  education  research 
efforts  are  seeking  to  apply  insights  obtained  from  studies  of  CVD  to 
Black  population  groups. 

The  impact  of  education,  especially  of  reading  achievement,  has 
been  emphasized  in  some  studies  of  cardiovascular  health  education. 
For  example,  one  school-based,  cardiovascular  health  education  study 
in  Chicago  (41)  detected  racial  differences  in  the  increases  in 
knowledge  concerning  nutrition,  exercise,  and  smoking  and  their 
relationship  to  CVD  after  an  intervention.   Black  children  had  a 
smaller  increase  in  knowledge  than  others  and,  at  follow-up  nine 
months  later,  had  persistently  lower  knowledge  scores  even  after 
adjustment  for  reading  achievement.   Reading  achievement  also  was 
significantly  related  to  nutrition  knowledge  and  attitudes,  but  not 
to  behavior. 

Awareness  of  high  blood  pressure  has  increased  in  Blacks  in  the 
last  decade  (9),  but  many  Blacks  have  significant  misconceptions 
concerning  factors  that  predispose  to  hypertension  (42). 

Nonadherence  to  antihypertensive  therapy  is  a  major  problem  in 
achieving  blood  pressure  control,  but  is  not  specific  to  Blacks. 
Determinants  of  nonadherence  by  hypertensive  Black  patients  have  been 
identified  in  several  studies  (43,44,45),  and  the  effectiveness  of  a 
number  of  health-education  strategies  in  enhancing  adherence  has  been 
illustrated  in  studies  of  Black  patients. 


113 


Access  to  Care 

Access  to  care  is  especially  relevant  for  chronic  cardiovascular 
diseases.   Black  Americans  make  fewer  office  visits  to  physicians  than 
do  Whites,  and  are  less  likely  to  be  seen  by  CVD  specialists  (46)  This 
may  contribute  to  the  less  frequent  diagnosis  of  coronary  disease  in 
Blacks.   Blacks  undergo  coronary  arteriography  less  frequently  than 
Whites  (47).   Even  when  Blacks  and  Whites  have  coronary  disease  of 
comparable  severity,  Blacks  are  less  likely  to  undergo  coronary  bypass 
surgery  (48).   Black  patients  are  less  likely  than  White  patients  to 
be  seen  in  physicians'  offices  and  are  more  likely  to  be  seen  in 
hospital  clinics  or  emergency  rooms  (49).   For  hypertensive  Black 
patients,  this  probably  has  adverse  effects  on  the  continuity  of  care 
received. 

Blacks  have  more  difficulty  in  entering  the  medical  care  system 
than  Whites  and  express  greater  dissatisfaction  with  services;  Blacks 
perceive  the  medical  care  system  to  be  less  accessible  to  them  (50). 
These  perceptions  can  be  changed  and  medical  care  use  increased  in  a 
number  of  settings  by  targeted  interventions.   Such  interventions  must 
be  persistent  if  good  results  are  to  be  obtained  and  preserved. 

Hispanics 

Coronary  Heart  Disease  and  Stroke 

CVD  is  a  major  cause  of  death  in  Hispanics,  although  the  rate  is 
lower  than  in  non-Hispanic  Whites  (2).   This  lower  relative  rate  is 
unexpected  given  their  socioeconomic  profile,  pronounced 
rural-to-urban  migration  and  high  percentage  of  immigrants,  and  the 
prevalence  of  obesity  and  diabetes,  particularly  in  women. 

National  epidemiological  data  on  cardiovascular  disease  mortality 
in  Hispanics  are  limited,  to  date.   Regional  CHD  mortality  rates  for 
Mexican  Americans  in  Los  Angeles  County  (2)  and  Texas  (51)  are  lower 
than  in  Whites  for  both  sexes.   The  rate  of  decline  in  CHD  mortality 
in  Hispanics  appears  to  have  been  comparable  to  that  in  Whites  during 
the  last  decade.   Compared  with  Whites,  some  preliminary  regional  data 
suggest  lower  stroke  mortality  rates  in  Mexican  Americans  (2) ,  but 
slightly  higher  rates  among  younger  Puerto  Ricans  in  New  York  (52). 

Hypertension 

There  appears  to  be  a  strong  inverse  relationship  between  SES 
level  and  hypertension  in  Hispanics,  similar  to  that  found  for  Blacks 
and  non-Hispanic  Whites.   Among  Hispanic  women  this  effect  remains  even 
when  adjustments  are  made  to  account  for  the  higher  rate  of  obesity 
among  those  with  lower  SES  (56)  . 


114 


Other  Cardiovascular  Risk  Factors 

Diabetes  mellitus  is  a  major  problem  in  Hispanics ,  especially  in 
Mexican  Americans  and  Puerto  Ricans  living  in  the  United  States 
(57,58).   However,  the  relationship  between  this  risk  factor  and 
coronary  heart  disease  has  not  been  adequately  studied  in  each  of  the 
major  Hispanic  groups. 

The  generally  higher  prevalence  of  obesity,  noninsulin-dependent 
diabetes,  hypertension,  high  LDL-cholesterol  and  low  HDL-cholesterol 
levels  in  Hispanics  might  be  expected  to  increase  their  CVD  risk. 
Evidence  reviewed  on  the  possible  biological  or  physiological 
differences  between  Hispanics  and  Whites,  however,  suggests  that  no 
specific  factor  or  set  of  factors  explains  why  Hispanics  as  a  group 
appear  to  be  at  lower  risk  for  coronary  heart  disease,  and  at  equal  or 
slightly  higher  risk  for  cerebrovascular  disease  than  Whites.   The 
existing  data  indicate  that,  though  more  Hispanics  smoke  cigarettes, 
fewer  are  heavy  smokers  (53,54).   There  are  some  indications,  however, 
that  there  is  heavier  smoking  among  Hispanic  youth  compared  to  White 
and  Black  youth. 

The  evidence  on  prevalence  of  smoking,  knowledge  about  the  risks 
of  smoking,  and  the  frequency  of  practice  of  leisure-time  exercise 
suggests  potentially  different  risks  for  Mexican  Americans  compared 
to  non-Hispanic  Whites.   Those  Mexican  Americans  with  lowest  SES  and 
level  of  acculturation  have  significantly  worse  CVD  risk  factor 
profiles  than  those  in  higher  SES  groups  (53,54).   Mexican  American 
women  appear  to  improve  their  risk  factor  profile  more  as  a  result  of 
increased  acculturation  and  social  mobility  than  do  men.   The  limited 
amount  of  comparable  data  on  other  Hispanic  groups  precludes  any 
generalization  to  these  other  groups.   The  relative  paucity  of  data 
on  Puerto  Ricans,  Cubans,  and  other  Hispanics  precludes  any 
conclusions  about  whether  health  behaviors  could  account  for  any 
differences  in  cardiovascular  disease  risk  between  these  groups  and 
non-Hispanic  Whites. 

Asian/Pacific  Islanders 

Cardiovascular  Disease 

Heart  disease  is  the  leading  cause  of  death  for  all  Asian/Pacific 
Islander  American  groups  (59).   However,  Asians  appear  to  be  at  lower 
risk  of  mortality  from  most  cardiovascular  diseases  than  other 
minorities  and  Whites,  with  the  possible  exception  of  stroke.   Asian 
women  appear  to  be  at  lower  risk  than  men  across  all  groups.   Koreans, 
Filipinos,  and  Chinese  appear  to  be  at  lower  CVD  risk  than  Japanese. 
The  overall  higher  SES  of  Asians  as  a  group  may  partially  account  for 
their  more  favorable  cardiovascular  status. 


115 


Stroke 

National  data  suggest  stroke  mortality  rates  in  Asians  are 
generally  similar  to  those  in  Whites  as  shown  in  Figure  9  (60),  with 
stroke  as  the  third  leading  cause  of  death.   Recent  age-adjusted  data 
for  Asian  subgroups  indicate  that  Japanese  men  stand  out  from  most 
other  ethnic/gender  groups,  including  Whites,  in  having  very  high 
stroke  mortality  rates  (59). 

Hypertension  and  Smoking 

Though  hypertension  may  not  be  as  significant  a  public  health 
problem  among  Japanese  and  Chinese  as  among  Whites,  Blacks,  and 
Hispanics ,  it  is  a  significant  problem  among  Filipinos  (61).   Although 
the  proportion  of  Filipinos  receiving  treatment  for  their  hypertension 
is  comparable  to  or  greater  than  that  of  their  White  cohorts,  fewer 
have  achieved  blood  pressure  control.   Fewer  Filipino  women  than  men 
had  their  blood  pressure  under  control  -  the  reverse  of  the  gender 
trends  for  all  of  the  other  ethnic  groups  studied.   Filipinos,  like 
their  fellow  Asians  (at  least  those  in  California),  do  not  show 
evidence  of  an  excess  prevalence  of  smoking  compared  to  Whites  (62) . 

Other  Cardiovascular  Risk  Factors 

Existing  morbidity  data  suggest  that  the  standard  risk  factors 
for  CHD  are  significantly  less  prevalent  among  Japanese  on  the 
mainland,  in  Japan,  and  in  Hawaii  than  in  White  men  in  the  U.S. 
Patterns  of  associations  similar  to  those  in  Whites  are  found  between 
the  major  risk  factors  and  fatal  and  nonfatal  CHD,  nonfatal  MI,  and 
acute  coronary  insufficiency  (63,64).   For  the  Japanese,  as  for 
Whites,  high  blood  pressure,  cigarette  smoking,  and  cholesterol  are 
important  risk  factors  for  CVD.   Overall,  Japanese  men  typically  have 
lower  total  cholesterol  levels  than  White  men.   The  limited  data 
available  on  cardiovascular  disease  risk  factors  among  Chinese 
Americans  indicate  that  they  tend  to  have  lower  levels  of  the  major 
CHD  risk  factors  (65).   However,  Chinese  men  over  50  years  of  age  may 
have  a  greater  prevalence  of  smokers  (who  smoke  fewer  cigarettes  per 
day)  and  of  elevated  blood  pressure  than  White  men. 

The  available  data  suggest  that  cardiovascular  diseases  are  less 
prevalent  among  Asian  groups  and  that  perhaps  part  of  this  favorable 
mortality  differential  can  be  attributed  to  a  more  generally  salutary 
risk  factor  profile.   However,  there  is  enough  of  a  difference  in  CHD 
mortality  and/or  risk  status  among  the  various  Asian  groups  and  the 
data  are  so  limited  that  this  generally  favorable  picture  cannot  be 
assumed  to  hold  true  for  all  groups. 


116 


Native  Americans 

Coronary  Heart  Disease 

Heart  disease  is  a  significant  contributor  to  all-cause  mortality 
in  Native  Americans  but  is  proportionately  less  of  a  contributor  than 
in  the  general  population.   If  death  rates  from  noncardiovascular 
causes  such  as  automobile  accidents  and  alcoholism  can  be  reduced  in 
the  future,  it  is  possible  that  heart  disease  may  increase  in  Native 
Americans.   Currently,  under  age  35  years,  heart  disease  mortality  for 
Native  Americans  is  approximately  twice  as  high  as  for  all  other 
Americans . 

Cardiovascular  Risk  Factors 

Hypertension  appears  to  be  an  important  health  problem  for  Native 
Americans,  although  apparently  less  so  than  for  the  White  population 
(3) .   Serum  cholesterol  levels  in  some  American  Indian  tribes  are 
lower  than  those  in  the  general  population,  but  the  relationship  of 
these  lower  levels  to  the  incidence  of  CVD  is  not  clear.   It  appears 
that  both  obesity  and  diabetes  are  major  public  health  concerns  in 
Native  Americans.   The  Pima  Indians  have  the  highest  prevalence  of 
type  II  diabetes  in  the  United  States  (66)  .   Although  sufficient  data 
are  not  available  to  draw  firm  conclusions  about  trends  in  cigarette 
and  alcohol  use,  or  their  contribution  to  CHD,  cigarette  smoking 
appears  to  be  less  consistently  prevalent  in  Native  Americans  in 
different  geographic  locations,  though  alcohol  abuse  is  more 
consistently  prevalent  (67).   Both  cigarette  and  alcohol  use 
constitute  a  significant  health  hazard  for  Native  Americans,  more  so 
for  men  than  for  women. 

Social,  Cultural)  and  Economic  Aspects 

Little  reseach  has  been  conducted  on  the  contribution  of 
socioeconomic  factors  such  as  low  income,  high  unemployment,  and  low 
education  to  cardiovascular  disease  mortality,  morbidity,  and  risk 
status  in  Native  Americans. 

Although  some  socioeconomic  factors  may  contribute  to  an 
unfavorable  risk  profile,  other  sociocultural  factors  may  operate  to 
confer  some  protection  against  coronary  heart  disease.   Many  Native 
American  tribes  maintain  low  cholesterol  diets,  engage  in  strenuous 
physical  activity  as  part  of  their  daily  lives,  and  have  less 
time-pressure  and  have  lifestyles  that  display  limited  interpersonal 
competition  (52) .   Recent  increases  in  urbanization,  in  smoking,  in 
the  fat  content  of  diets,  and  in  other  behavioral  risk  factors 
associated  with  increased  westernization  in  Native  American  youth  in 
several  tribes  suggest  the  possible  beginning  of  increased  coronary 
heart  disease  risk  in  the  population. 


117 


OPPORTUNITIES   FOR   PROGRESS 

Interventions  proposed  by  the  Subcommittee  follow: 

Risk  Reduction  Interventions  to  Promote  Cardiovascular  Health 

There  is  evidence  to  justify  health  promotion  interventions 
directed  toward  minority  groups  that  would  promote  dietary  patterns 
that  would  lower  or  maintain  low  blood  cholesterol,  would  reduce  or 
eliminate  cigarette  use,  would  encourage  an  active  lifestyle,  and 
would  moderate  and  maintain  normal  body  weight  and  blood  pressure. 
Effective  behavior  modification  strategies  for  the  treatment  of  CVD 
and  these  CVD  risk  factors  need  to  be  developed  and  validated  in 
minority  populations.   Successful  techniques  should  be  taught  to  both 
the  deliverers  and  the  receivers  of  health  care.   For  example,  studies 
are  needed  of 

•  The  determinants  of  cigarette  smoking  and  alcohol  use, 
cessation,  and  cessation  maintenance  in  all  minorities. 

•  The  relationship  of  obesity,  especially  in  Black  females  during 
and  after  adolescence,  to  lipoproteins  and  other  factors. 

•  Socioeconomic  status  as  a  risk  factor  for  CHD,  hypertension, 
stroke,  and  hypertension-related  end-stage  renal  disease  in  all 
minority  groups. 

•  The  factors  responsible  for  confering  some  degree  of  protection 
with  regard  to  CHD  mortality  in  Asian/Pacific  Islanders, 
despite  a  relatively  high-risk  profile. 

•  The  impact  of  diabetes  and  obesity  in  Native  Americans  and 
Hispanics . 


Effective  Cardiovascular  Health  Education 

Effective  strategies  for  cardiovascular  health  education  among 
specific  minority  groups  should  be  developed.   Procedures  should  be 
indentified  to  facilitate  the  adoption  of  specific  interventions  for 
cardiovascular  risk  factors  such  as  high  blood  cholesterol  levels  and 
cigarette  smoking  in  the  general  minority  populations  as  well  as  in 
high-risk  subgroups.   The  model  of  the  National  High  Blood  Pressure 
Education  Program  could  be  adopted  and  modified  for  other  risk  factors 
for  a  variety  of  communities.   Care  must  be  taken  to  consider  the 
different  cultural  values  and  attitudes  towards  CHD  and  certain  risk 
factors  for  CHD,  such  as  obesity,  chest  pain,  and  particular 
health-seeking  behaviors.   The  publication  and  updating  of  a  list  of 
DHHS  health  promotion  and  disease  prevention  materials,  including 


118 


patient  education  materials,  especially  directed  toward  specific 
minority  groups,  would  be  of  value  to  practicing  physicians  and  other 
health  care  providers . 

Hypertension   Prevention  and  Control 

Continued  efforts  at  education,  prevention,  treatment  and  control 
of  the  hypertension-related  diseases,  for  example,  stroke  and 
end-stage  renal  disease,  especially  in  Blacks,  are  needed.   In 
addition: 

•  The  long-term  efficacy  and  safety  of  antihypertensive 
medications  prescribed  to  minorities  (particularly  to  Blacks) 
need  to  be  examined.   Do  the  metabolic,  hemodynamic,  and  side 
effects  of  treatments  and  their  impact  on  CHD  differ  among 
minorities  and  Whites? 

•  Compliance/noncompliance  to  antihypertensive  medication 
regimens  needs  to  be  studied.   Why  do  Filipino  women  have 
poorer  blood  pressure  control  than  Filipino  men?   This  is  in 
contrast  to  other  ethnic  minority  groups  in  the  United  States 
in  which  women  generally  have  better  blood  pressure  control 
than  men. 

•  Investigation  of  the  links  between  dietary  potassium,  sodium, 
calcium  and,  possibly,  other  dietary  elements  and  hypertension 
in  Blacks  and  other  minorities  is  needed. 

Delivery  of  Medical  Care 

In  addition  to  genetic,  environmental,  and  behavioral  factors, 
appropriate  medical  care  is  a  major  determinant  of  morbidity  and 
mortality  due  to  cardiovascular  disease.   Under  optimal  medical  care 
conditions,  for  example,  a  patient  with  essential  hypertension  can 
achieve  blood  pressure  control  and  reduce  the  risk  of  cardiovascular 
sequelae.   However,  with  variations  in  physician  behavior  and  patient 
care-seeking  behavior,  optimal  medical  care  circumstances  are 
difficult  to  achieve  for  large  population  groups,  and  are  equally  if 
not  more  difficult  to  achieve  for  most  minority  populations. 
Simultaneous  attention  to  all  the  elements  of  interaction  in  the 
medical  care  setting,  including  both  patient  and  physician  behavior, 
is  necessary.   Such  research  is  needed  to  understand  the  dynamics  of 
medical  care  available  to  Blacks,  Hispanics,  Asian/Pacific  Islanders, 
and  Native  Americans  because  appropriate  diagnosis,  treatment,  and 
follow-up  predispose  for  a  favorable  outcome.   For  example,  studies 
are  needed  of  beliefs,  awareness  status,  and  prehospital  behavior 
which  might  delay  appropriate  diagnosis  and  treatment  for  individuals 
with  symptoms  of  coronary  heart  disease  in  minority  communities. 
Investigation  is  needed  on  how  specific  patterns  of  risk  factors  in 
minorities  influence  treatment  decisions.   Techniques  are  needed  that 
will  encourage  earlier  diagnosis,  full  use  of  all  diagnostic 


119 


procedures,  and  earlier  treatment  interventions  so  that  minorities 
enter  the  delivery  system  well  before  an  advanced  disease  state  has 
developed. 

Minority  Population  Studies  of  Cardiovascular  Diseases 

Population-based,  prospective,  observational  studies  of  coronary 
heart  disease  (similar  to  the  Framingham  study)  are  needed  for  the 
minority  populations.   A  key  component  of  this  research  would  be  the 
validation  in  minorities  of  the  major  established  and/or  suspected 
biological  and  psychosocial  risk  factors  for  CVD  that  have  been 
identified  for  the  White  American  population.   For  example,  among  the 
many  Hispanic  subgroups,  Puerto  Ricans  residing  in  the  United  States 
and  Cubans  particularly  warrant  such  research.   Another  key  element  of 
such  research  would  be  the  surveillance  of  the  offspring  of  indexed 
cases  so  as  to  provide  crucial  information  on  trends  for  risk  and  for 
disease  as  well  as  elucidating  familial  contribution  to  CVD  incidence 
and  process.   Further  studies  on  potential  differences  in  sudden  death 
rates  between  Blacks  and  Whites,  by  age  and  gender,  are  needed.   There 
is  a  need  to  monitor  CVD  events  that  occur  in  the  community,  such  as 
sudden  death;  hospital  admissions  and  discharges  of  patients  diagnosed 
to  have  CVD;  and  emergency  room  visits  for  chest  pains  and  related 
complaints . 


Direct  Federal  Government  Activities 

DHHS  should  serve  as  a  catalyst  to  bring  together,  on  a 
continuing  basis,  concerned  groups  to  focus  on  specific  issues,  such 
as:   cholesterol,  cigarette  smoking,  and  worksite  health.   These 
groups  should  give  specific  attention  to  minority  issues.   The 
National  High  Blood  Pressure  Education  Program  could  serve  as  a  model 
for  this  activity. 

Meetings  should  be  initiated  between  DHHS  program  units  and 
program  representatives  from  other  Federal  departments  to  address 
health  problems  of  mutual  interest  relating  to  cardiovascular  disease 
and  its  prevention.   Specifically,  information  exchange  and 
coordination  of  smoking  cessation  arid  health  promotion  programs  should 
be  strengthened.   The  Departments  of  Defense  and  Education,  for 
example,  could  join  with  the  several  DHHS  programs  in  these  areas  in 
seeking  to  accomplish  this. 

Employees  of  the  Federal  Government  should  be  urged  to  explore 
health  care  plans  that  offer  preventive  health  services. 

More  Minority  Professionals  for  Health  Care  and   Research 

Development  of  innovative  mechanisms  to  attract  minorities  into 
the  health  care  field  and  into  health  research  needs  to  be  undertaken 
with  direct  and  continuing  input  from  leaders  in  the  minority  health 
professions . 


120 


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Journal  of  Community  Health,  8,  149-159. 

64.  Robertson,  T.  L. ,  Kaot,  H. ,  Gordon,  T. ,  Kagan,  A.,  Rhoads ,  G.  C., 

Land,  C.  E.,  Worth,  R.  M.,  &  Belsky,  J.  et  al .   (1977). 
Epidemiologic  studies  of  coronary  heart  disease  and  stroke  in 
Japanese  men  living  in  Japan,  Hawaii,  and  California:   Coronary 
heart  disease  risk  factors  in  Japan  and  Hawaii.   American 
Journal  of  Cardiology,  39,  244-249. 

65.  Kumanyika,  S.  K. ,  &  Savage,  D.  D.   (1985).   Ischemic  heart 

disease  risk  factors  in  Asian  Americans.   Unpublished 
manuscript.  Task  Force  on  Black  and  Minority  Health,  DHHS. 

66.  Sievers,  M.  L. ,  &  Fisher,  J.  R.   (1981).   Diseases  of  North 

American  Indians.   In  H.  R.  Rothschild  (Ed.),  Biocultural 
Aspects  of  Disease  (pp.  191-252).   New  York,  NY: 
Academic  Press. 

67.  Sievers,  M.  L.   (1968).   Serum  cholesterol  levels  in  southwestern 

American  Indians.   Journal  of  Chronic  Diseases,  21,  107-115. 


127 


SUBCOMMITTEE  ON  CHEMICAL  DEPENDENCY 

EXECUTIVE  SUMMARY 

Introduction 

This  report  reviews  the  role  that  chemical  dependency  plays  in 
contributing  to  the  health  disparity  between  Blacks,  Hispanics, 
Asian/Pacific  Islanders,  and  Native  Americans  and  the  nonminority 
population.   Using  excess  mortality  rates  in  minority  populations  due 
to  cirrhosis,  cancer,  and  unintentional  injuries  as  a  basis,  the 
Subcommittee  chose  to  include  alcohol  abuse,  illicit  drug  abuse,  and 
cigarette  smoking  as  elements  of  chemical  dependency.   The 
Subcommittee  did  not  include  the  abuse  or  misuse  of  licit  drugs. 
Although  these  substances  may  contribute  to  the  health  disparity,  few 
data  are  available  on  which  to  base  an  analysis. 

The  19  79  Surgeon  General's  report.  Healthy  People,  indicates  that 
alcohol  misuse  is  a  factor  in  more  than  10  percent  of  all  deaths  and 
may  be  higher  among  minorities  (1).   Tobacco  use  is  a  factor  in  more 
than  16  percent  of  all  deaths;  nearly  90  percent  of  all  lung  cancers 
are  caused  by  cigarette  smoking  (2).   No  similar  statistics  are 
available  for  illicit  drug  abuse. 

Because  data  on  the  prevalence  of  chemical  dependency  for  the 
minority  population  are  limited,  it  is  difficult  to  know  the  extent  of 
the  problem  among  minorities  and  the  resultant  impact  on  health 
status.   Excess  deaths  among  minorities  due  to  cirrhosis,  heart 
disease,  unintentional  injuries,  homicide,  and  cancers  of  the  mouth, 
larynx,  tongue,  esophagus,  and  lung  provide  insight  into  the  problems 
of  chemical  dependency.   Figure  10  illustrates  the  average  annual 
death  rates  by  race  for  chronic  liver  disease  and  cirrhosis,  one  of 
the  indicators  of  the  problem  of  alcohol  abuse. 

Alcohol 

Alcoholism  and  alcohol-related  problems  are  complex  and  involve 
a  wide  range  of  medical,  social,  and  legal  problems  that  impact  on 
different  populations  at  risk  in  different  ways.   All  persons  of  a 
particular  group  are  not  at  equal  risk  for  alcohol-related  adverse 
health  outcomes.   However,  an  inadequate  body  of  research  exists  on 
the  impact  of  alcohol  and  alcohol-related  problems  on  minority  health 
status.   The  majority  of  national  studies,  to  date,  were  designed  to 
elicit  baseline  data  on  the  general  population.   As  a  result,  minority 
samples  from  these  surveys  generally  are  too  small  to  draw  definitive 
statements  and  conclusions  about  alcohol  use  and  the  nature  and 
extent  of  alcohol-related  problems  among  minorities. 


129 


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Blacks 

Few  studies  exist  on  the  subject  of  alcohol  and  Blacks;  however, 
there  is  evidence  that  alcohol  abuse  has  a  major  impact  on  the  health 
of  Blacks.   Using  cirrhosis  deaths  as  an  indicator  of  high  alcohol 
use,  cirrhosis  mortality  rates  have  declined  consistently  among  all 
race-sex  groups  in  the  United  States  since  1973,  but  they  are  still 
disproportionately  high  among  Black  Americans  (3).   Overall,  the 
cirrhosis  mortality  rate  for  Blacks  is  nearly  twice  that  of 
nonminorities  (4).   In  addition,  Blacks  suffer  disproportionately  from 
the  health  consequenes  of  alcoholism,  including  esophageal  cancer. 

A  national  survey  conducted  in  the  1960s  indicated  that  Black  and 
White  men  differed  little  in  their  drinking  patterns,  but  that  Black 
women  had  a  higher  proportion  of  abstainers  and  of  heavier  drinkers 
than  Whites  (51  percent  versus  39  percent  and  11  percent  versus  7 
percent,  respectively)  (5).   The  quantity  and  frequency  of  alcohol 
consumption  for  Black  and  White  males  are  comparable  when  social  class 
is  controlled  (6) .   A  1979  national  survey  of  American  drinking 
practices  found  that  both  Black  males  and  females  were  more  likely  to 
classify  themselves  as  abstainers  than  Whites  (30  percent  versus  25 
percent  for  males  and  49  percent  versus  39  percent  for  females, 
respectively)  (7).   Overall,  Black  drinking  patterns  are  similar  to 
those  reported  in  the  general  population,  with  rates  varying  greatly 
along  geographic,  sex,  and  religious  dimensions. 

Blacks  appear  to  be  at  disproportionately  high  risk  for  certain 
alcohol-related  health  problems.   National  Cancer  Institute  data 
indicate  that  between  1979-1981,  the  incidence  rate  of  esophageal 
cancer  for  Black  males,  aged  35-44  years,  was  ten  times  that  of  Whites. 
Alcohol  consumption  is  believed  to  be  a  primary  etiologic  agent  in  the 
development  of  this  cancer.   Fetal  alcohol  syndrome  (FAS)  is  a 
health  consequence  associated  with  heavy  alcohol  use  in  pregnant  women 
(8).   Current  data  on  FAS  are  inconclusive  for  Black  women,  and  further 
investigation  is  required  to  define  the  relationship  between  alcohol, 
the  prevalence  of  FAS,  and  related  effects. 

Data  from  national  surveys  show  that  Black  youths,  ages  14-17, 
drink  less  than  White  youths,  have  consistently  higher  abstention 
rates,  and  have  consistently  lower  heavy  drinking  rates  and  similarly 
lower  alcohol-related  social  consequences  than  their  White 
counterparts  (9) .   Black  males  begin  to  report  high  rates  of  heavy 
drinking  and  social  problems  due  to  drinking  after  the  age  of  30, 
compared  with  White  males  where  heavy  and  problem  drinking  is 
concentrated  in  the  age  group  of  18  to  25  years. 

Hispanics 

Studies  of  Hispanic  drinking  practices  and  consequences  are  less 
available  and  not  as  informative  as  those  for  Blacks.   Mortality 
statistics  for  the  United  States  do  not  identify  Hispanics  separately, 


131 


and,  until  1976,  most  other  common  measures  of  alcohol-related  problems 
such  as  arrest  and  hospital  discharge  rates  did  not  provide  a 
Hispanic  identifier.   Although  some  information  is  available  from 
regional  surveys,  these  data  are  limited  to  specific  subpopulations 
such  as  Mexican  Americans.   Nonetheless,  there  is  some  indication  that 
Hispanics ,  particularly  young  males,  suffer  disproportionate  health 
consequences  as  a  result  of  their  use  of  alcohol. 

Deaths  from  cirrhosis  of  the  liver  are  a  general  indicator  of 
high  alcohol  use  within  a  given  population.   Several  studies  suggest 
that  death  rates  from  cirrhosis  among  Mexican  Americans  and  Puerto 
Ricans  may  be  higher  than  among  the  general  population.   While  there 
is  some  indication  that  Hispanics  are  overrepresented  in  the  mortality 
statistics  for  alcohol-related  causes,  these  data  stem  mainly  from 
studies  in  a  few  cities  or  counties  in  the  Southwest.   Little  is  known 
about  the  health  consequences  of  alcohol  use  among  Hispanics  in  the 
rest  of  the  United  States. 

The  1979  National  Institute  on  Alcohol  Abuse  and  Alcoholism 
National  Survey  indicates  that  based  on  self-reported  data,  Hispanic 
American  males  ages  18  and  older  have  higher  levels  of  heavy  drinking 
and  higher  rates  of  alcohol-related  problems  than  do  nonminorities 
(10).   Hispanic  females,  however,  reported  being  either  abstainers  or 
light  drinkers.   The  most  recent  study  on  drinking  patterns  suggests 
that  young  Hispanic  males,  ages  18  to  29  years,  tend  to  drink  more 
heavily  than  either  Black  or  White  youths  and  young  adults  (34 
percent,  17  percent,  and  29  percent,  respectively)  (11). 

Native  Americans 

The  Indian  Health  Service  reports  that  five  of  the  top  ten  causes 
of  death  among  Indians  are  directly  related  to  alcohol:   accidents  (21 
percent),  cirrhosis  of  the  liver  (6  percent),  alcoholism  (3.2 
percent),  suicide  (2.9  percent),  and  homicide  (2  percent).   National 
mortality  statistics  indicate  that  these  five  causes  account  for  35 
percent  of  all  deaths  among  Native  Americans  (12).   A  recent  report 
based  on  age-adjusted  mortality  rates  found  that  the  mortality  rate 
from  alcohol-related  causes  of  death  was  more  than  three  times  higher 
among  Native  Americans  than  that  of  other  groups.   Among  Alaska 
Natives,  alcoholism  and  alcohol-related  problems  are  a  major  health 
problem.   Alaska  Natives,  who  comprise  17  percent  of  Alaska's 
population,  account  for  60  percent  of  the  alcoholism  deaths  in  that 
State  (13). 

Unintentional  injuries  account  for  an  estimated  21  percent  of  all 

deaths  in  the  Native  American  population  and  are  the  leading  cause  of 

mortality.   The  Indian  Health  Service  estimates  that  75  percent  of  all 
accidental  deaths  among  Indians  are  alcohol-related  (12). 

The  fourth-ranked  cause  of  death  among  Native  Americans, 
cirrhosis  of  the  liver,  accounts  for  nearly  6  percent  of  total  deaths, 
compared  with  1.7  percent  of  the  total  deaths  for  the  Nation. 


132 


According  to  one  study,  cirrhosis  mortality  rates  for  Native 
Americans  are  higher  than  rates  for  Black  or  White  adults,  and  the 
highest  rates  for  Native  Americans  occur  at  younger  ages.   Examination 
of  the  sex-specific  data  reveals  that  Native  American  women  have  much 
higher  cirrhosis  mortality  rates  than  either  Black  or  White  women  at 
all  age  levels  (12). 

The  diagnosis  of  alcoholism  accounts  for  an  estimated  3.2  percent 
of  all  Native  American  deaths,  which  is  approximately  four  times  the 
rate  for  the  Nation.   Researchers  suggest  that  this  diagnosis  might  be 
ranked  even  higher  if  all  deaths  from  alcoholism  were  accurately 
reported. 

Suicide  accounts  for  2.9  percent  of  all  deaths  within  the  Native 
American  population,  or  twice  the  national  percentage.   It  is 
estimated  that  80  percent  of  all  deaths  by  suicide  within  the  Native 
American  community  are  alcohol-related  (12). 

The  tenth-ranked  cause  of  death  in  Native  American  communities  is 
homicide,  which  accounts  for  an  estimated  two  percent  of  total  deaths. 
The  Indian  Health  Service  reports  that  90  percent  of  homicides  com- 
mitted within  Native  American  communities  occur  while  either  the  per- 
petrator, the  victim,  or  both  are  under  the  influence  of  alcohol  (12). 

Another  medical  consequence  of  alcohol  abuse  for  which  some 
Native  Americans  appear  to  be  at  higher  risk  is  fetal  alcohol 
syndrome/ fetal  alcohol  effects  (FAS/FAE),  although  the  risks  appear 
variable  depending  upon  the  tribal  group.   An  epidemiological  study  of 
FAS  among  Native  Americans  of  the  Southwest  concluded  that  the 
incidence  and  patterns  of  recurrence  of  FAS  among  the  three  groups 
studied  (Plains  Indians,  Navajo,  and  Pueblo)  showed  consistent  dif- 
ferences, ranging  from  a  high  of  10.3  per  1,000  live  births  for  Plains 
Indians,  to  1.3  per  1,000  live  births  in  the  Navajo  population  (14). 

Alcohol  use  varies  tremendously  from  one  tribe  to  the  next--some 
tribes  have  proportionately  fewer  drinking  adults  than  the  U.S. 
population  as  a  whole  (30  percent  compared  to  67  percent)  whereas 
other  tribes  have  more  drinkers  (69  to  80  percent) --with  the 
prevalence  of  alcohol-related  problems  also  being  highly  variable 
(15).   The  ability  to  define  subpopulations  at  risk  is  important  in 
terms  of  preventive  measures.   Clearly,  the  health  consequences  of 
alcohol  use  and  abuse  for  Native  Americans  are  a  major  public  health 
concern  that  must  be  addressed. 

Asian/Pacific  Islanders 

The  impression  that  Asian/Pacific  Islanders  do  not  consume  as  much 
alcohol  as  the  general  population  is  generally  supported  by  research 
studies.   However,  because  of  the  wide  variations  in  drinking  among 
the  different  Asian  nationalities,  it  is  difficult  to  arrive  at 


133 


generalizations  without  specifying  country  of  origin  and  understanding 
some  of  the  historical-cultural  factors  that  contribute  to  the 
differences  among  Asian  subpopulations  with  regard  to  the  use  of 
alcohol . 

There  is  evidence  of  wide  variation  among  Asian/Pacific  Islander 
groups  in  terms  of  problem  behavior  related  to  alcohol  consumption, 
although  very  little  research  exists  in  this  area  (16).   Native 
Hawaiians,  however,  appear  to  be  at  increased  risk  for  excess 
mortality  from  alcohol-related  motor  vehicle  accidents  (17). 

Research  on  the  so-called  "flushing  reaction"  shows  that 
approximately  50  percent  of  persons  of  Asian  background  metabolize 
alcohol  much  more  quickly  than  do  Caucasians,  causing  a  "flushing 
reflex"  and  a  high  degree  of  discomfort,  which  may  provide  some 
protection  against  heavy  drinking  and  related  problems.   However,  the 
relationship  between  this  sensitivity  and  the  use  of  alcohol  needs 
further  exploration. 

Drug  Abuse 

National  surveys  of  drug  and  alcohol  abuse  have  been  designed  to 
focus  on  the  general  household  population.   Consequently,  there  are  no 
national  data  on  race-  or  ethnic-specific  rates  for  drug  abuse  or  the 
health  consequences  of  drug  abuse.   Estimates  of  the  prevalence  must 
be  viewed  conservatively,  since  certain  potentially  high-risk 
subgroups  such  as  persons  with  no  fixed  residence  or  institutionalized 
populations  (e.g.,  college  students  living  in  dormitories)  are  not 
included  in  the  sample.   Data  on  admissions  to  treatment  centers, 
emergency  room  visits,  and  medical  examiner  cases  among  minorities 
provide  some  data  on  the  consequences  among  minority  populations. 

Another  problem  in  obtaining  data  on  minorities  is  that  Blacks, 
Hispanics ,  Native  Americans,  and  Asian/Pacific  Islanders  are  sampled 
proportionately  to  their  numbers  in  the  general  population.   The 
actual  sample  size  for  minorities  is  substantially  smaller  than  that 
for  Whites  (1,093  Blacks  sampled  in  the  1982  National  Household  Survey 
on  Drug  Abuse  (NHSDA)  and  4,520  Whites).   Blacks  and  Hispanics  are 
being  oversampled  in  the  1985  NHSDA  in  an  effort  to  provide  more 
reliable  estimates  of  drug  abuse  prevalence  in  minority  populations. 

Despite  these  data  limitations,  the  studies  that  have  been  done 
suggest  that  drug  abuse-related  morbidity  and  mortality  in  Blacks, 
Hispanics,  and  Native  Americans  are  greater  than  for  the  White 
population.   Data  on  the  Asian  population  do  not  indicate  similar 
excess  mortality. 

Data  from  the  1982  NHSDA  indicate  that  the  prevalence  of  reported 
drug  use  within  the  household  population  is  generally  higher  in  urban 
areas  than  in  suburban  or  rural  areas  (18).   Thus,  to  the  extent  that 


134 


minorities  are  more  likely  to  reside  in  inner-city  areas,  they  may  be 
at  greater  risk  of  drug  abuse  and,  ultimately,  the  negative  social  and 
health  consequences  associated  with  drug  abuse. 

The  overall  prevalence  of  drug  abuse  in  the  general  household 
population,  ages  12  and  older,  is  about  the  same  for  minorities  as  it 
is  for  Whites  (18).   Minorities  were  more  likely  than  Whites  to  report 
marijuana  as  their  only  form  of  illicit  drug  use.   Among  both 
minorities  and  Whites,  the  highest  levels  of  current  drug  use  were 
reported  by  young  adult  males,  ages  18  to  25  years.   Among  young  adult 
White  men,  21  percent  reported  current  use  of  marijuana  only  (19). 
Thirty-six  percent  of  young  adult  minority  men  reported  current  use  of 
marijuana  only. 

Another  important  aspect  of  marijuana  use  among  minorities  is 
that  unlike  the  pattern  for  young  adult  Whites,  a  decreasing  trend  in 
use  has  not  been  observed  among  minority  young  adults,  ages  18  to  25 
years.   The  decreasing  trend  of  marijuana  use  among  White  youths,  ages 
12  to  17  years,  however,  does  appear  to  be  paralleled  by  a  decreasing 
trend  among  minority  youths  in  that  same  age  group  (19). 

The  health  consequences  of  drug  abuse  may  be  greater  for 
minorities  than  for  nonminorities  as  a  result  of  the  route  used  to 
administer  the  drugs.   To  the  extent  that  minorities  are  more  involved 
in  the  intravenous  use  of  drugs,  they  are  at  increased  risk  of 
potentially  fatal  infections  from  hepatitis  B  virus,  bacterial 
endocarditis,  and  acquired  immune-deficiency  syndrome  (AIDS)  (20-22). 

A  few  follow-up  studies  of  narcotic  addicts  hospitalized  and 
treated  for  their  drug  problems  suggested  that  they  experienced 
greater-than-expected  rates  of  accidents,  suicides,  homicides,  and 
deaths  due  to  overdose  (23) .   Data  specific  to  minorities  are  not  yet 
available  to  determine  if  traffic  accidents  are  associated  with 
illicit  drug  use  (24).   Additional  studies  of  the  health  consequences 
of  drug  abuse  that  report  data  with  racial  and  ethnicity  identifiers 
are  discussed  in  the  minority-specific  sections  of  this  report. 

Blacks 

Data  from  the  1980  census  indicate  that  Blacks  constitute  11.5 
percent  of  our  population;  however,  they  constitute  22.5  percent  of 
the  population  of  the  inner  cities  (25).   As  such,  they  may  be  at 
greater  risk  of  drug  abuse  and  its  consequences.   Evidence  of  higher 
rates  of  drug  use  in  populations  having  no  fixed  residence  is  provided 
by  a  1983  study  of  drug  use  among  tenants  of  single-room  occupancy 
hotels  (SRO)  in  New  York  City.   Results  suggest  that  Blacks  have 
higher  rates  of  drug  use  than  Whites  for  marijuana,  cocaine,  heroin, 
and  illicit  methadone.   Further  analysis  of  a  sample  of  Blacks  matched 
for  age  and  sex  from  the  household  population  and  the  SRO 
population  indicated  that  SRO  tenants  were  three  times  as  likely  to 
have  used  drugs  recently  as  were  the  New  York  City  household 
residents  (26) . 


135 


Data  obtained  from  the  1982  National  Drug  and  Alcoholism 
Treatment  Utilization  Survey  (NDATUS) ,  a  national  survey  of  public  and 
private  treatment  units,  suggest  that  Blacks  are  three  times  more 
likely  to  be  in  treatment  for  a  drug  abuse-related  problem  than  are 
Whites  (27). 

Data  from  the  Drug  Abuse  Warning  Network  (DAWN) --gathered  from 
treatment  programs,  emergency  rooms,  and  medical  examiner  cases-- 
indicate  that  minorities  are  more  likely  than  nonminorities  to  be 
involved  with  more  dangerous  drugs  and  with  more  dangerous 
combinations  of  drugs.   (Generalizations  to  the  total  population 
cannot  be  made  from  the  DAWN  data,  which  are  based  on  27  metropolitan 
areas  and  a  panel  of  emergency  rooms  outside  these  metropolitan 
areas.)   For  example,  31  percent  of  Black  treatment  clients  reported  a 
primary  problem  with  heroin,  cocaine,  or  PCP,  a  figure  three  times 
that  reported  by  White  clients.   They  were  also  more  likely  to  report 
use  of  other  substances,  with  inhalants  being  the  drug  most  commonly 
included  (19).   Heroin  use  is  difficult  to  measure  in  the  household 
survey  because  it  is  a  relatively  rare  event;  it  is  more  likely  to 
involve  the  nonsampled  population,  and  it  is  more  likely  to  be 
underreported . 

Recent  medical  examiner  data  reported  to  DAWN  show  increases  in 
positive  toxicology  for  cocaine  with  or  without  other  drugs  for  all 
races  over  the  past  three  years.   Between  1982  and  1984, 
cocaine-related  deaths  among  Blacks  tripled  (51  to  177),  while  they 
doubled  among  Whites  (149  to  312)  (28).   Heroin  trends  have  been 
relatively  stable  over  the  same  time  period.   The  percentage  of 
PCP-related  deaths  alone  or  in  combination  with  other  drugs 
increased  in  Blacks  from  50  percent  in  1983  to  58  percent  in 
1984  (personal  communication.  National  Institute  on  Drug  Abuse,  1985). 

DAWN  data  for  1984,  taken  from  emergency  room  episodes  only, 
showed  that,  of  96,047  cases,  Blacks  were  somewhat  more  likely  than 
were  Whites  to  have  used  more  dangerous  routes  of  cocaine 
administration--by  injection  (used  by  49  percent  of  Blacks  versus  40 
percent  of  Whites)  and  by  smoking  or  freebasing  (9  percent  of  Blacks 
versus  3  percent  of  Whites) .   Because  these  data  are  not  based  on 
statistical  sampling  procedures,  generalizations  to  the  total 
population  cannot  be  made  (19) . 

Some  data  are  available  to  suggest  a  relationship  between  drug 
abuse  and  homicide.   A  study  conducted  by  the  New  York  City  Police 
Department  in  1981  and  1982  found  that  53.1  percent  and  46.4  percent, 
respectively,  of  drug-related  homicides  involved  Black  victims  (29). 

Hispanics 

Data  from  the  1980  census  indicate  that  Hispanics  constitute  6.4 
percent  of  our  population;  however,  they  constitute  10.8  percent  of 
the  population  of  the  inner  cities  (25).   As  such,  they  may  be  at  a 


136 


somewhat  greater  risk  of  drug  abuse  and  its  consequences.   Results 
from  the  1983  SRO  study  of  drug  abuse  in  New  York  City  suggest  that 
Hispanics  have  higher  rates  of  drug  use  than  non-Hispanic  Whites  for 
marijuana,  cocaine,  heroin,  and  illicit  methadone  (26). 

Multiple  drug  use  is  a  problem  for  all  minorities.   Data  from 
hospital  emergency  room  cases  and  from  drug  abuse  treatment  programs 
indicate  that  Hispanics  were  more  likely  than  Whites  to  report  a 
primary  problem  with  heroin,  cocaine,  or  PCP.   In  addition,  inhalants 
were  the  most  commonly  reported  category  of  other  drugs  used.   A 
dramatic  increase  in  reports  of  positive  toxicology  for  cocaine  was 
found  among  the  Hispanic  population.   Between  1982  and  1984, 
cocaine-related  deaths  among  Hispanics  tripled  (16  to  49),  while  they 
doubled  among  Whites--from  149  to  312  (19). 

Recently,  it  has  been  suggested  that  prevalence  of  inhalant  use 
by  Hispanic  youths  is  high.   Although  this  cannot  be  supported  by 
household  and  high-school  population  surveys,  a  1979  study  of 
Mexican  American  children  and  adolescents  in  Los  Angeles  barrios  found 
prevalence  of  inhalants  14  times  that  of  the  general  population  (30) . 

The  1982  NDATUS  suggested  that  Hispanics  are  2.7  times  more 
likely  to  be  in  treatment  for  a  drug  abuse-related  problem  than  are 
Whites  (27). 

The  1984  DAWN  data  indicate  that  of  those  treated  for 
drug-related  emergency  room  episodes,  42  percent  of  Hispanics  as 
compared  with  40  percent  of  Whites  administer  cocaine  by  injection;  6 
percent  of  Hispanics  as  compared  with  3  percent  of  Whites  administer 
cocaine  by  smoking  or  freebasing.   Both  are  more  dangerous  routes  of 
administration  than  the  intranasal  route  and  lead  to  more  frequent  use 
of  the  drug  (19).   Recently,  intravenous  use  of  a  "designer"  drug, 
meperidine-analog-synthesis  (MPTP) ,  has  been  associated  with  early 
onset  of  chronic  Parkinsons  disease  symptoms  in  drug  addicts  (31) . 
While  cases  are  still  being  identified,  a  large  proportion  of  the 
initial  cases  were  Hispanic  (personal  communication,  Paul  Jarbe) . 

A  1981-82  New  York  City  Police  Department  study  of  drug-related 
homicides  found  that  34.2  percent  involved  Hispanic  victims.   In  1982, 
the  percentage  of  Hispanic  victims  increased  to  41.8  (29).   Reports 
based  on  the  New  York  City  medical  examiner  cases  from  1967  to  1970 
indicate  an  overrepresentation  of  Hispanics  among  narcotic  addiction 
deaths.   An  investigation  of  927  deaths  among  New  York  City  narcotic 
addicts  in  1971  found  that  16  percent  were  Puerto  Rican. 

Native  Americans 

Data  obtained  from  the  1982  NDATUS  suggest  that  Native 
Americans  are  twice  as  likely  to  be  in  treatment  for  a  drug 
abuse-related  problem  than  are  Whites  (27). 


137 


Treatment  data  were  collected  nationally  in  1983  on  a  voluntary- 
basis  through  the  Client  Oriented  Data  Acquisition  Process  (CODAP) , 
(based  on  23  states,  Washington,  D.C.,  and  territories;  California 
represented  46  percent  of  treatment  admissions).   The  proportion  of 
1983  CODAP  client  admissions,  excluding  alcohol,  was  0.6  percent  for 
American  Indians/Alaska  Natives.   Although  the  representation  of 
Native  Americans  in  the  CODAP  service  area  is  unknown,  this  rate  of 
admissions  is  one  and  a  half  times  the  representation  of  Native 
Americans  in  the  U.S.  population.   CODAP  also  indicated  that  American 
Indian  clients  were  more  likely  than  White  clients  to  report  a  primary 
problem  with  heroin,  marijuana,  or  PCP.   Native  Americans  also  were 
more  likely  to  report  the  use  of  "other"  drugs  than  White  clients. 
The  most  common  type  of  the  "other"  drugs  category  reported  was 
inhalants  (19). 

Few  studies  and  surveys  of  drug  abuse  have  focused  on  minority 
subgroups  of  the  population,  however,  one  survey  of  Native  American 
youth,  (7th  through  12th  grade  in  Indian  reservation  schools)  has  been 
conducted  annually  since  1975.   Results  from  this  survey  for  1980-81, 
on  the  lifetime  prevalence  of  substance  use  for  Native  American  high 
school  seniors,  show  that  for  10  of  12  substance  categories,  Native 
Americans  have  higher  lifetime  prevalence  rates  of  substance  use 
than  high-school  seniors  nationally.   "Ever-use"  of  marijuana  (88 
percent)  and  inhalants  (34.4  percent)  by  Native  American  seniors,  in 
particular,  far  exceeds  that  for  national  high-school  seniors,  which 
is  59.5  percent  and  12.3  percent  respectively  (32).   Although  lifetime 
prevalence  rates  provide  an  indication  of  exposure,  figures  on 
frequency  of  use  for  a  given  time  period  provide  a  better  indication 
of  consequences  and/or  problem  use.   When  frequency  of  substance  use 
for  Native  American  youth  (grades  7-12)  is  compared  with  a  sample  of 
similarly  aged  non-Native  American  urban  youth,  a  striking  difference 
is  evident  for  marijuana.   In  1980-81,  13.4  percent  of  Native  American 
youth  reported  daily  use  of  marijuana  in  the  2  months  before  the 
survey  as  compared  with  2.6  percent  of  the  non-Native  American  urban 
youth  (32). 

Asian/Pacific  Islanders 

There  is  a  paucity  of  data  on  prevalence  of  drug  abuse  among 
Asian/Pacific  Islanders.   The  little  information  that  is  known 
suggests  that  the  incidence  of  drug  abuse  is  lower  than  that  of  the 
White  population;  however,  existing  data  are  insufficient  to  draw  any 
definitive  conclusions. 

The  1983  treatment  data  collected  through  CODAP  reported  that 
only  0.8  percent  of  all  the  clients  admitted  were  Asian/Pacific 
Islanders;  thus,  this  group  appears  to  be  underrepresented  in  the 
treatment  population  (19).   The  proportion  of  the  Asian/Pacific 
Islander  population  in  the  United  States  is  1.6  percent. 


138 


A  1971  New  York  City  investigation  of  927  deaths  among  narcotic 
addicts,  during  a  9-nionth  period,  found  only  2  percent  of  the  deaths 
were  Asian/Pacific  Islander,  although,  representatively,  a  much  larger 
Asian  American  population  resides  in  that  area. 

Smoking 

Cigarette  smoking  is  the  chief  preventable  cause  of  death  in  the 
United  States.   Cigarette  smoking  is  a  causal  factor  for  coronary 
heart  disease  and  arteriosclerotic  peripheral  vascular  disease;  cancer 
of  the  lung,  larynx,  oral  cavity  and  esophagus;  and  chronic  bronchitis 
and  emphezema.   It  is  also  associated  with  cancer  of  the  urinary 
tract,  bladder,  pancreas,  and  kidney,  and  with  ulcer  disease  and  low 
birthweight  (2). 

Differences  exist  between  the  smoking  behavior  of  minorities  and 
nonminorities ,  and  the  incidence  and  gravity  of  cigarette-related 
diseases  varies.   The  most  important  of  these  are  differences  in  the 
smoking  behavior  of  nonminority  and  minority  males,  especially  for 
Blacks  and  Hispanics  (33) . 

Blacks 

The  National  Health  Interview  Surveys  (NHIS),  conducted  by  the 
National  Center  for  Health  Statistics  (NCHS) ,  are  the  major  sources  of 
data  on  the  smoking  behavior  of  the  U.S.  population.   Data  from  NHIS, 
for  the  period  between  1965  and  1980,  show  a  steady  decline  in  the 
prevalence  of  smoking,  a  decline  evident  for  both  Whites  and  Blacks. 
The  prevalence  of  Black  male  smokers  declined  from  59.6  percent  in 
1965  to  44.9  percent  in  1980.   Among  White  males,  the  prevalence  of 
smokers  declined  from  51.3  percent  in  1965  to  37.1  percent  in 
1980  (34). 

Substantial  differences  exist  between  cigarette  smoking  patterns 
of  Blacks  and  Whites,  yet  the  way  in  which  these  differences  affect 
the  health  outcome  of  Blacks  versus  Whites  is  unclear.   Differences 
have  been  observed  in  total  smoke  exposure  as  measured  by  age  of 
initiation,  number  of  cigarettes  smoked  per  day,  and  tar  and  nicotine 
content  of  cigarettes  smoked. 

The  prevalence  of  cigarette  smoking  among  Black  males  has 
consistently  exceeded  that  of  White  males;  however,  only  small 
differences  in  prevalence  exist  between  White  and  Black  females. 
Significant  differences  do  exist,  however,  between  Black  and  White 
females  with  respect  to  number  of  cigarettes  smoked  per  day.   Black 
females  have  a  higher  prevalence  of  "never-smokers"  than  do  White 
females  at  every  income  level  above  $5,000.   Differences  observed 
between  Black  and  White  males  are  not  explained  by  occupational, 
educational,  or  income  differences.   However,  the  highest  prevalence 
of  White  males  who  have  never  smoked  was  in  the  lowest  income  level 
(below  $3,000)  while  the  lowest  prevalence  of  never  smokers  among 
Black  males  was  in  the  lowest  income  level. 


139 


NHIS  data  on  numbers  of  cigarettes  smoked  indicate  that  Whites 
are  heavier  smokers  than  Blacks.   Among  White  males,  35.9  percent  were 
heavy  smokers  as  compared  with  11.9  percent  among  Black  male  smokers. 
Similarly,  White  female  smokers  smoked  more  cigarettes  per  day  than 
did  Black  female  smokers.   For  White  females,  23.8  percent  smoked  more 
than  25  cigarettes  a  day  versus  7.5  percent  for  Black  females  (35). 
In  contrast,  both  Black  males  and  females  smoked  cigarettes  of  higher 
tar  content  than  did  either  White  males  or  White  females .   Although 
the  percentage  of  Blacks  who  ever  started  smoking  is  lower  than  the 
percentage  of  Whites  who  ever  started  smoking,  once  started.  Blacks 
are  less  likely  to  attempt  to  quit  or  to  quit  successfully. 

The  effect  these  differences  in  smoking  patterns  have  on 
mortality  and  morbidity  patterns  exhibited  by  Blacks  and  Whites  is 
unknown;  however,  it  is  clear  that  nearly  90  percent  of  all  lung 
cancers  are  caused  by  cigarette  smoking  and  that  smoking-related 
cancers  seem  to  be  particularly  high  among  Blacks.   Blacks  have  higher 
incidence  rates  for  the  tobacco-related  cancers  of  the  lung, 
esophagus,  pancreas,  and  stomach.   (For  more  discussion,  refer  to  the 
Summary  Report  of  the  Task  Force  Subcommittee  on  Cancer.)  Smoking 
appears  to  increase  the  risk  of  cardiovascular  disease  mortality  in 
both  Blacks  and  Whites.   It  is  not  known,  however,  how  differences  in 
smoking  patterns  between  Blacks  and  Whites  affect  differences  in 
cardiovascular  disease  for  these  groups.   (Further  information  is 
contained  in  the  Summary  Report  of  the  Task  Force  Subcommittee  on 
Cardiovascular  and  Cerebrovascular  Disease.) 

Hispanics 

Lung  and  esophageal  cancer  morbidity  and  mortality  rates,  known 
to  be  related  to  smoking,  are  lower  for  Hispanics  than  for 
non-Hispanic  Whites  and  Blacks.   An  exception  to  this  has  been 
reported  for  New  Mexico  Hispanic  females,  among  whom  the  incidence  of 
esophageal  cancer  is  20  percent  higher  than  non-Hispanic  Whites . 
Studies  suggest  a  link  between  the  development  of  esophageal  cancer 
and  smoking  and  alcohol  consumption,  with  the  latter  two  having  a 
synergistic  effect  (36). 

It  is  not  adequate  only  to  consider  smoking-related  cancer  data 
as  indicators  of  future  risk  for  any  group;  current  smoking  behavior 
patterns  must  also  be  considered.   Overall  prevalence  rates  of  smoking 
among  Hispanics  are  relatively  low  due  to  the  consistently  lower  rates 
of  smoking  observed  among  Hispanic  females;  however,  prevalence  rates 
among  Hispanic  males  are  quite  high.   Recent  surveys  of  smoking 
behavior  in  California,  Texas,  and  New  Mexico  indicate  that  Hispanic 
males  appear  to  be  smoking  as  frequently  as  their  non-Hispanic  White 
counterparts,  although  their  consumption  levels  appear  to  be  lower  (37) 
Data  from  the  1980  NHIS  indicate  that  40.9  percent  of  Hispanic 
males  and  22.9  percent  of  Hispanic  females  were  current  smokers  as 
compared  with  38.2  and  31.4  percent  of  Whites,  respectively  (33). 


140 


Examination  of  data  from  the  "Know  Your  Body"  program  showed  that 
male  and  female  Hispanic  adolescents  exceeded  both  male  and  female 
White  and  Black  adolescents  in  self-reported  current  cigarette  use. 
Findings  from  that  survey  and  others  suggest  that,  as  cigarette  use 
increases  among  Hispanics,  incidence  rates  for  tobacco-related  cancers 
may  increase  in  Hispanics,  and  that  prevention  efforts  aimed  at  this 
group  are  needed  in  the  future. 

Native  Americans 

Limited  data  are  available  from  which  to  examine  smoking  behavior 
and  its  health  consequences  in  the  Native  American  population. 
Overall,  Native  Americans  have  smoking-related,  lung  cancer  rates 
lower  than  those  of  Whites;  however,  the  relative  frequency  of  lung 
cancer  differs  among  tribes.   For  example,  among  Oklahoma  Indians, 
where  the  lung  cancer  standardized  mortality  ratio  is  higher  than  in 
other  tribes,  both  cigarette  smoking  and  lung  cancer  mortality  more 
closely  mirror  the  national  average.   In  contrast.  Native  Americans  of 
the  Southwest,  who  seldom  smoke,  have  low  rates  of  smoking-related 
lung  cancer  (2) .   Environmental  and  cultural  factors  such  as  urban, 
rural,  and  reservation  living  conditions  may  play  a  role  in  this 
discrepancy. 

Data  do  exist  for  Native  American  high-school  seniors  and  the 
prevalence  of  smoking  among  this  population.   Based  on  a  study  that 
compared  the  lifetime  prevalence  of  substance  use  between  1980-81  for 
Native  American  high-school  seniors  and  national  high-school  seniors. 
Native  American  high-school  seniors  exhibited  a  prevalence  rate  for 
cigarette  smoking  of  72.3  percent,  compared  with  71.0  percent  for  high 
school  seniors  in  the  Nation  (19).   Although  not  significantly 
different  from  the  rate  reported  nationally,  the  smoking  prevalence  of 
Native  American  youth  needs  to  be  more  closely  monitored,  as  one 
indicator  of  future  risk  for  smoking-related  cancers. 

Asian/Pacific   Islanders 

The  prevalence  of  smoking  among  Asian/Pacific  Islanders  is 
unknown  due  to  the  paucity  of  data.   Certain  subgroups  within  the 
Asian  population  do  exhibit  excess  incidence  and  mortality  for  some 
smoking-related  cancers.   For  example,  Hawaiians  have  excess  mortality 
for  cancer  of  the  lung  (refer  to  the  Subcommittee  Report  on  Cancer) . 
Also,  the  incidence  of  esophageal  cancer  is  2.5  times  higher  for 
Japanese  males  than  White  males;  1.8  times  higher  for  Chinese  males 
than  White  males;  and  1.6  times  higher  for  Chinese  females  than  for 
White  females  (2).   Major  risk  factors  for  esophageal  cancer  are 
smoking  and  alcohol  consumption,  with  the  use  of  both  having  a 
synergistic  affect.   Finally,  excess  risk  for  pancreatic  cancer  has 
been  found  among  cigarette  smokers;  pancreatic  cancer  incidence  is 
about  20  percent  higher  among  Chinese  females  than  among  Whites,  and 
an  upward  trend  in  incidence  exists  for  Chinese  of  both  sexes. 


141 


Although  the  prevalence  rates  of  smoking  for  Asian/Pacific 
Islanders  are  unknown,  it  is  clear  that  an  increased  incidence  for 
certain  smoking-related  cancers  exist  among  subgroups  of  the  Asian 
population. 


OPPORTUNITIES   FOR   PROGRESS 

Interventions  proposed  by  the  Subcommittee  follow: 

•  Promote  the  initiation  and/or  expansion  of  efforts  to  develop 
coping  skills  in  children  and  adolescents,  ages  9  to  15  years, 
to  delay  or  prevent  the  use  of  substances  such  as  tobacco, 
drugs,  and  alcohol,  with  special  emphasis  on  the  needs  of 
minorities . 

•  Foster  the  development  of  peer-group  instruction  programs  in 
school  settings  designed  to  strengthen  resistance  to  the  use  of 
substances  such  as  tobacco,  drugs,  or  alcohol,  with  special 
emphasis  on  the  needs  of  minorities. 

•  Perform  research  into  cirrhosis,  including  studying  the  basic 
biological  mechanisms  involved  in  the  development  of  cirrhosis 
of  the  liver  in  Black,  Native  American,  and  Hispanic 
populations . 

•  Develop  programs  to  prevent  alcohol-related  unintentional  death 
and  injury  among  Blacks,  Hispanics ,  Native  Americans,  and 
Native  Hawaiians .   Epidemiological  research  is  needed  to 
define  further  the  subpopulations  of  each  minority  group  that 
are  at  greatest  risk  so  that  prevention  and  education  efforts 
as  well  as  early  intervention  and  treatment  programs  can  be 
developed  and  targeted  with  greater  likelihood  for  success. 

•  Investigate  the  biological  consequences  of  alcohol  use  in 
terms  of  its  contribution  to  excess  mortality  among  minority 
groups.   The  role  of  alcohol  use  in  hypertension,  the  role  of 
alcohol  use  in  the  development  of  some  cancers  in  Blacks,  and 
the  extent  to  which  alcohol  is  a  factor  in  the  adverse 
pregnancy  outcomes  among  all  minority  groups,  especially  Black 
and  Native  American  women,  are  suggested  topics. 

•  Determine  the  nature  and  extent  of  smoking  among  Hispanics, 
Native  Americans,  and  Asian/Pacific  Islanders  so  that  the 
health  consequences  associated  with  smoking  in  these 
populations  might  be  understood  and  appropriate  prevention 
strategies  developed. 


142 


•  Study  the  prevalence,  etiology,  and  consequences  of  drug 
abuse  among  Blacks,  Hispanics ,  Native  Americans,  and  Asian/ 
Pacific  Islanders  through  case-control  cohort,  or  historical 
cohort  epidemiological  studies  utilizing  culturally  sensitive 
instruments . 

•  Develop  improved  incidence  and  prevalence  data  gathering 
techniques  to  assess  alcohol  and  drug  abuse  among  all 
minority  groups. 

•  Develop  mechanisms  in  concert  with  appropriate  state  and 

local  entities  to  support  specialized  drug  abuse  prevention  and 
treatment  programs  in  rural  and  urban  Native  American/Alaska 
Native  communities. 

•  Encourage  Blacks  to  enter  smoking  cessation  programs 
and  maintain  cigarette  abstinence. 

•  Review  DHHS  health  professionals'  training  programs  to  ensure 
the  inclusion  of  education  about  alcohol  and  drug  abuse  in 
the  curricula. 

•  Provide  assistance  to  appropriate  organizations  for  health 
care  professionals  to  ensure  that  education  on 

alcohol  and  drug  abuse  is  included  in  their  training  curricula. 
This  includes  training  in  the  diagnosis  and  prevention  of 
alcohol  and  drug  abuse  in  a  variety  of  patient  populations, 
including  ethnic  minorities;  in  referring  patients  to  appropriate 
treatment  settings;  and,  in  the  provision  of  direct  service  and 
treatment  that  is  relevant  to  the  specific  minority  patient. 

•  Encourage  private  sector  organizations  to  train  minority 
research  scientists  and  health  care  providers  in  substance 
abuse  research,  diagnosis,  and  treatment. 


143 


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3.  Grant,  B.  F.,  &  Aiken,  S.   (1984,  November).   Reported  cirrhosis 

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In  Alcohol  Health  and  Research  World  (Vol.  6,  No.  4). 
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5.  Cahalan,  D.,  Cisin,  I.,  &  Crossley,  H.   (1969).   American 

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6.  National  Institute  on  Alcohol  Abuse  and  Alcoholism.   (1980,  August). 

Facts  in  brief:  Alcohol  and  Blacks.   Rockville,  MD: 
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7.  Cahalan,  D.,  &  Room,  R.   (1974).   Problem  drinking  among 

American  men  (Monograph  No.  7).   New  Brunswick,  NJ:   Rutgers 
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8.  Herd,  D.   (1985).   A  review  of  drinking  patterns  and  alcohol 

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9.  Rachal,  J.  V.   (1982).   Alcohol  abuse  among  adolescents.   In 

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144 


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Facts  in  brief:  Alcohol  and  American  Indians.   Rockville,  MD: 
National  Clearinghouse  for  Alcohol  Information. 

13.  U.S.  Department  of  Health  and  Human  Services.   (1981).   Fourth 

special  report  to  the  U.S.  Congress  on  alcohol  and 
health  (DHHS  Publication  No.  (ADM)  81-1080). 
Washington,  DC:   U.S.  Government  Printing  Office. 

14.  May,  P.  A.,  Hymbaugh,  K.  J. ,  &  Aase,  J.  M.  (1983).   Epidemiology  of 

fetal  alcohol  syndrome  among  American  Indians  of  the  Southwest. 
Social  Biology,  30(4),  374-385. 

15.  May,  P.  A.   (1984).   Alcohol  and  drug  abuse  prevention 

programs  for  American  Indians:  Needs  and  opportunities. 
Prepared  for  the  National  Institute  on  Alcohol  Abuse  and 
Alcoholism,  Division  of  Extramural  Research. 

16.  National  Institute  on  Alcohol  Abuse  and  Alcoholism.   (1982). 

Special  Population  Issues.   (DHHS  Alcohol  and  Health 
Monograph  No.  4).   Rockville,  MD:   Author. 

17.  Alcohol  Epidemiology  Data  System.   (1984).   [Internal  report  on 

native  Hawaiians].   Unpublished  raw  data,  prepared  for  the 
Director,  National  Institute  on  Alcohol  Abuse  and  Alcoholism. 

18.  Miller,  J.  D.,  Cisin,  1.  H. ,  &  Gardner-Keaton,  H.   (1983). 

National  Survey  on  Drug  Abuse:  Main  findings  1982. 
Rockville,  MD:   National  Institute  on  Drug  Abuse. 

19.  National  Institute  on  Drug  Abuse.   (1985,  May).   Drug  abuse  among 

minorities .   Unpublished  manuscript.  Task  Force  on  Black 
and  Minority  Health,  DHHS. 

20.  Decker,  M.  D.,  Vaughn,  W.  K. ,  Brodies ,  J.  S.,  Hutcheson,  R.  H. , 

&  Schaffner,  W.   (1984).   Seroepidemiology  of  hepatitis  B  in 
Tennessee  prisoners.    Journal  of  Infectious  Diseases, 
150,  450-459. 

21.  Centers  for  Disease  Control.   (1984).   Update:   Acquired 

immunodeficiency  syndrome  (AIDS),  United  States.   Centers 
for  Disease  Control  Morbidity  and  Mortality  Weekly 
Report ,  33,  661-664. 

22.  Mills,  J.,  &  Drew,  D.   (1976).   Seerratia  Marcescens  Endocarditis: 

A  regional  illness  associated  with  intravenous  drug  abuse. 
Annals  of  Internal  Medicine,  84,  29-35. 

23.  Joe,  G.  W.,  Lehman,  W. ,  &  Simpson,  D.  D.   (1982).   Addict  death 

rates  during  a  four-year  posttreatment  follow-up.   American 
Journal  of  Public  Health,  72,  703-709. 


145 


24.  Joscelyn,  K.  B.,  Donelson,  A.  C,  &  Jones,  R.  K.   (1980). 

Drugs  and  Highway  Safety  1980.   Ann  Arbor,  MI: 
University  of  Michigan  Highway  Safety  Research  Institute. 

25.  Bureau  of  the  Census.   (1981,  October).   1980  census  of 

population.  Standard  metropolitan  statistical  areas 
and  standard  consolidated  statistical  areas:  1980 
(PC8G-S1-5).   Washington,  DC:   U.S.  Government  Printing 
Office. 

26.  Frank,  B.   (1983,  June).   Drug  use  among  tenants  of  single 

room  occupancy  (SRO)  hotels  in  New  York  City.   New  York,  NY: 
New  York  State  Division  of  Substance  Abuse  Services. 

27.  National  Institute  on  Drug  Abuse.   (1983).   Main  findings 

for  drug  abuse  treatment  units,  September  1982. 
Rockville,  MD:   Author. 

28.  Drug  Abuse  Warning  Network.   (1985,  March).   Medical  Examiner 

Drug  file.   Rockville,  MD:   Alcohol,  Drug  Abuse,  and  Mental 
Health  Administration. 

29.  New  York  City  Police  Department.   (1982).   Homicide  analysis. 

New  York,  NY:   Crime  Analysis  Unit. 

30.  Padilla,  E.  R. ,  Padilla,  A.  M. ,  &  Morales,  A.   (1979).   Inhalant, 

marijuana,  and  alcohol  abuse  among  barrio  children  and 
adolescents.  International  Journal  of  Addictions,  14, 
945-964. 

31.  Langston,  J.  W. ,  Ballard,  P.,  Tetrud,  J.  W. ,  &  Irwin,  I.   (1983). 

Chronic  parkinsonism  in  humans  due  to  a  product  of  meperidine- 
analog  synthesis.   Science,  219 ,  979-980. 

32.  Getting,  E.  R. ,  Beauvais,  F. ,  &  Edward,  R.   (1982).   Drug  use 

among  Native  American  youth:  Summary  of  findings 
(1975-1981) .   Fort  Collins,  CO:   Western  Behavioral  Studies 
Institute. 

33.  Department  of  Health  and  Human  Services.   (1985,  June). 

Subcommittee  report  on  cancer  in  minorities. 
Unpublished  manuscript.  Task  Force  on  Black  and  Minority 
Health,  DHHS . 

34.  Office  of  Smoking  and  Health.   (1984).   Differences  in 

smoking  behavior  in  minority  populations.  Unpublished 
manuscript.  Department  of  Health  and  Human  Services. 


146 


35.  Darby,  C.  A.   (1985,  May).   Smoking  prevalence  among  Black 

and  White  males  and  females.   Washington,  DC:   Office 
of  Smoking  and  Health. 

36.  Glynn,  T.  J.   (1984).   Smoking-related  cancers  and  the 

U.S.  Black  population.   Bethesda,  MD:   National  Cancer 
Institute;  Smoking,  Tobacco,  and  Cancer  Program. 

37.  Glynn,  T.  J.   (1984).   Prevention  and  cessation  of  smoking 

and  cancer  risk  among  Hispanic  Americans.   Bethesda, 
MD:   National  Cancer  Institute;  Smoking,  Tobacco,  and 
Cancer  Program. 

38.  Marcus,  A.  C,  &  Crane,  L.  A.   (1985,  February).   Smoking 

behavior  among  U.S.  Latinos:   An  emerging  challenge  for 
public  health.   American  Journal  of  Public  Health, 
75  (2),  169-172. 


147 


SUBCOMMITTEE  ON   DIABETES 

EXECUTIVE  SUMMARY 

Introduction 

Diabetes  mellitus  was  the  seventh  leading  cause  of  death  in  the 
United  States  in  1980  and  is  one  of  the  six  major  contributors  to  the 
disparity  in  health  status  between  minorities  and  nonminorities  (1).   The 
significance  of  diabetes  as  a  health  problem  is  increased  by  its 
association  as  a  risk  factor  for  other  major  diseases,  including 
coronary  heart  disease  and  peripheral  vascular  disease.   Complications 
include  kidney  failure,  diseases  of  the  eye,  and  vascular 
complications  that  may  result  in  amputations. 

There  are  two  major  types  of  diabetes,  according  to  currently 
accepted  clinical  definitions.   Insulin-dependent  diabetes  mellitus 
(IDDM) ,  formerly  classified  as  type  I  diabetes,  accounts  for  5  to  10 
percent  of  all  the  cases  of  diabetes  in  the  United  States.   IDDM  may 
occur  at  any  age  but  typically  develops  in  childhood  or  young 
adulthood.   Specific  genetic  markers  are  associated  with  IDDM.   It  is 
slightly  more  prevalent  in  the  White  population.   Noninsulin-dependent 
diabetes  mellitus  (NIDDM) ,  formerly  classified  as  type  II,  is  the  more 
common  form  of  the  disease,  accounting  for  90  to  95  percent  of  all 
cases.   Type  II  diabetes  is  most  often  found  in  middle-aged  and  older 
adults,  especially  women.   Data  from  the  National  Center  for  Health 
Statistics  (NCHS)  reveal  that  diabetes  is  more  prevalent  among 
minority  groups  than  in  the  general  population  and  that  the  excess  of 
morbidity  and  mortality  among  minorities  occurs  overwhelmingly  in 
type  II  (NIDDM).   Although  national  statistics  often  do  not  distinguish 
between  the  two  types  of  diabetes,  the  dominance  of  type  II  is 
significant  because  the  risk  factors  for  the  two  types  are  not 
identical.   This  report  focuses  on  the  risk  factors  and  treatment 
issues  related  to  the  excess  NIDDM  in  minorities. 

A  glucose  tolerance  test  is  most  commonly  used  to  identify 
diabetes  in  an  individual  patient,  but  this  assessment  technique  has 
changed  over  time.   Consequently,  lack  of  comparability  in  the 
criteria  used  to  define  diabetes  in  clinical  studies  is  problematic 
when  attempting  to  estimate  the  extent  of  diabetes  among  the  minority 
populations.   Relatively  few  reports  and  studies  of  minority 
prevalence  rates  have  used  the  widely  accepted  National  Diabetes  Data 
Group  (NDDG)  criteria  for  definition  of  the  several  types  of  diabetes. 
In  this  report,  the  term  diabetes  will  be  used  when  the  two  major 
types  have  not  been  distinguished,  and  the  term  NIDDM  will  be  used 
when  data  specifically  refer  to  that  type  as  defined  by  the  NDDG. 
Failure  to  distinguish  between  the  two  types  of  diabetes  does  not, 
however,  change  the  overall  prevalence  information,  since  the  90  to  95 
percent  of  diabetic  people  identified  in  clinical  studies,  both 
minorities  and  nonminorities,  are  noninsulin-dependent  diabetics. 


149 


Comparison  of  mortality  data  between  the  White  population  and  the 
minority  population  shows  disproportionately  higher  mortality  rates 
from  diabetes  among  Blacks,  Hispanics,  Native  Americans,  and  Asian/ 
Pacific  Islanders  compared  with  non-Hispanic  Whites. 

Blacks 

The  prevalence  of  diabetes  is  33  percent  higher  in  the  Black 
population  than  in  the  White  population  (2).   Data  from  NCHS  show  that 
the  rate  of  diabetes  is  50  percent  greater  among  Black  females  than 
the  rate  in  White  females.   In  all  populations,  NIDDM  is  related  to 
obesity.   The  prevalence  of  obesity  among  Black  females  is  striking 
when  compared  with  the  White  population  as  shown  in  Figure  11  (3).   It 
has  been  shown  that  the  majority  of  Blacks  who  are  diabetic  are 
overweight  women.   Furthermore,  according  to  several  studies, 
complications  of  diabetes  are  more  frequent  among  the  Black  population 
of  diabetics  when  compared  with  their  White  counterparts.   The 
prevalence  of  macrovascular  disease  or  large-vessel  disease  causing 
heart  disease  and  stroke,  and  microvascular  or  small  vessel  disease, 
which  leads  to  kidney  failure  and  blindness,  appear  to  be  more 
frequent  among  Blacks  with  diabetes  than  in  Whites  with  diabetes. 

The  National  Diabetes  Control  Program,  administered  by  the 
Centers  for  Disease  Control  (CDC) ,  has  provided  some  data  on  pregnancy 
outcome  for  Blacks  with  diabetes,  in  selected  geographic  areas.   One 
model  project  in  South  Carolina  revealed  that  the  birth  rate  per  1,000 
women  was  higher  for  Blacks  with  diabetes  compared  to  Whites  with 
diabetes  (2).   However,  the  pregnancy  outcome  among  this  population 
showed  that  the  perinatal  mortality  rate  among  diabetic  Blacks  was 
three  times  that  of  diabetic  Whites  and  8.5  times  that  of  nondiabetic 
Whites (4).   From  this  and  other  published  reports,  it  is  clear  that 
diabetes  during  pregnancy  is  associated  with  a  greater  number  of 
infant  deaths  among  Blacks  than  Whites. 

Evidence  shows  that  mortality  attributed  to  diabetes  increases 
with  age  in  both  Whites  and  Blacks.   Until  recently,  the  rate  peaked 
at  younger  ages  in  Blacks,  an  effect  attributed  to  the  shorter 
lifespan  among  Blacks  and  to  the  conjectured  earlier  onset  of 
disease. 

Native  Americans 

Before  the  1930s,  diabetes  mellitus  was  infrequently  diagnosed 
among  Native  Americans.   However,  in  the  past  20  years,  diabetes 
mellitus  has  been  recognized  as  highly  prevalent  among  American 
Indians  and  Alaska  Natives,  with  diabetes-related  mortality  rates  2.3 
times  higher  than  in  the  general  population.   Among  the  more  than  500 
federally  recognized  tribes  of  American  Indians  and  Alaska  Natives, 
the  prevalence  rate  of  diabetes  is  highest  among  the  Pima  Indians,  who 
have  the  highest  rate  of  diabetes  in  the  world.   This  rate  is  10  to  15 
times  higher  than  the  overall  United  States  rate  for  diabetes  and  is 
predominantly  of  NIDDM.   Compounding  the  increased  prevalence  of 


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diabetes  is  the  associated  prevalence  of  obesity  among  this  tribe. 
Some  studies  have  found  that  those  of  full  American  Indian  heritage 
are  more  susceptible  to  the  disease  than  those  of  lesser  heritage. 
The  implication  is  that  genetic  factors  play  a  part  in  this  disease, 
although  changes  over  time  suggest  behavior  as  a  possible  additional 
predispositional  factor.   Some  studies  have  suggested  that  the 
increased  prevalence  of  diabetes  and  obesity  among  American  Indians 
may  be  related  to  the  ingestion  of  more  calories,  less  fiber,  and  less 
physical  activity  compared  to  their  ancestors.   The  complications  of 
diabetes  take  a  further  toll  on  the  American  Indian  population  with  a 
significant  prevalence  of  diabetic  kidney  disease  requiring  dialysis 
and  diabetic  retinopathy  resulting  in  blindness.   Also,  American 
Indians  incur  disproportionately  higher  rates  of  amputations  because 
of  vascular  complications  secondary  to  diabetes  (5) . 

Hispanics 

Among  the  14.6  million  individuals  of  Hispanic  origin  in  the 
United  States,  the  prevalence  rate  of  diabetes  among  Hispanic 
Americans  is  more  than  three  times  the  rate  of  the  non-Hispanic  White 
population  (6,7).   Although  current  prevalence  data  are  limited  to 
Mexican  Americans,  the  nationwide  Hispanic  Health  and  Nutrition 
Examination  Study  (HHANES)  will  assess  the  prevalence  of  the  disease 
in  Mexican  Americans,  Puerto  Ricans ,  and  Cuban  Americans  and  will 
evaluate  their  access  to  health  care  services  for  their  diabetes. 
Population-based  studies  in  the  southwest  United  States  show  that 
Hispanic  women  in  low-income  urban  barrios  are  four  times  more  likely 
than  Hispanic  women  living  in  the  suburbs  to  have  the  disease,  and 
Hispanic  men  are  twice  as  likely.   Although  barrio  women  show  a  higher 
diabetes  rate  than  barrio  men,  the  ratio  is  reversed  in  suburban 
Hispanics.   These  findings  are  correlated  with  higher  prevalence  of 
obesity  among  Hispanic  women  living  in  the  barrio.   Obesity,  however, 
is  probably  not  the  sole  contributor  to  the  increased  prevalence  of 
diabetes  among  Mexican  Americans .   This  finding  may  in  part  be 
clarified  by  a  study  of  the  relation  of  obesity  to  acculturation, 
which  found  that,  over  time,  acculturated  Mexican  American  women 
became  less  obese;  no  correlation  between  acculturation  and  obesity 
was  found  for  Mexican  men  (7).   Inconsistencies  and  differences  in 
prevalence  rates  for  different  clinical  studies  of  Hispanics  may  be 
complicated  by  possible  genetic  contribution  from  an  admixture  with 
Native  Americans  known  to  be  at  high  risk  for  diabetes. 

From  available  data,  it  is  clear  that  NIDDM  is  a  major  health 
burden  contributing  to  excess  morbidity  and  mortality  in  the  Mexican 
American  population.   The  data  are  still  inadequate,  however,  to  say 
with  certainty  whether  this  increased  prevalence  of  diabetes  is  shared 
by  other  Hispanic  subgroups.   More  data  will  be  forthcoming  for  Puerto 
Rican  and  Cuban  Americans  in  the  Hispanic  HANKS. 


152 


Asian/Pacific   Islanders 

Few  studies  have  analyzed  data  on  diabetes  among  Asian/Pacific 
Islanders.   One  study  with  limited  information  compared  Japanese 
Americans  living  in  Hawaii,  Los  Angeles,  San  Francisco,  and  Seattle 
with  diabetic  Japanese  living  in  Japan.   Although  not  representative 
of  the  widely  different  Asian  subpopulations ,  these  data  are  important 
to  indicate  disparities  in  one  group  of  the  Asian  minorities. 
Japanese  Americans  have  exhibited  consistently  higher  rates  of  glucose 
intolerance,  diabetes,  and  mortality  associated  with  diabetes  than 
Japanese  in  Japan.   In  most  populations,  females  suffer  from  diabetes 
more  than  men.   Among  the  Japanese  Americans,  however,  this  situation 
is  reversed:   Males  have  higher  rates  of  diabetes  than  females. 
Diet,  which  is  much  higher  in  fat  in  Japanese  Americans  than  Japanese 
in  Japan,  may  explain  some  of  the  difference  in  the  prevalence  of 
diabetes  between  these  groups .   Sociocultural  effects  with 
psychological  consequences  may  likewise  contribute  to  the  reversal  of 
the  ratio  between  the  sexes:   older  Japanese  American  men  are  likely 
to  have  suffered  displacement  from  their  roles  as  family  leaders 
during  the  reassimilation  of  Japanese  into  our  culture  since  World 
War  II  (8) .   Data  reviewed  on  these  differences  are  only  suggestive 
and  point  out  the  need  for  additional  research  on  psychological  and 
psychosocial  correlates  to  diabetes  and  its  consequences. 

Prevention  of  Diabetes  and   Its  Complications 

Almost  half  the  cases  of  diabetes  in  Americans  are  likely  to  go 
unreported,  according  to  the  estimate  of  the  American  Diabetes 
Association  (ADA).   Some  10.6  million  Americans --about  4.5  percent  of 
our  population- -may  suffer  from  the  disease.   Because  of  the  close 
association  of  diabetes  with  obesity,  it  also  has  been  estimated  that 
control  of  obesity  could  prevent  almost  300,000  cases  a  year.   Obesity 
control  among  minorities,  therefore,  might  prevent  a  part  of  the 
disproportionate  burden  of  diabetes  experienced  by  minority 
populations . 

With  significant  advances  in  the  treatment  and  the  management  of 
diabetes  during  the  past  decade,  increased  attention  has  been  paid  to 
identifying  strategies  to  reduce  the  complications  of  diabetes. 
Exemplary  programs  that  provide  continuing  outpatient  diabetes  care  to 
populations  that  are  more  than  80  percent  Black  have  operated  in 
Memphis,  Tennessee  since  1962  and  in  Atlanta,  Georgia  since  1968. 
Both  programs  use  a  team  approach  in  educating  and  treating  diabetic 
patients.   The  major  goal  of  these  programs  is  to  prevent  or  delay  the 
development  and  progression  of  complications  in  patients  diagnosed 
with  diabetes.   Reports  of  results  from  these  programs  support  the 
hypothesis  that  a  preventive  approach  to  the  consequences  of  diabetes 
is  effective  in  terms  of  therapeutic  effects  and  cost  control (9). 


153 


Since  diabetes  has  reached  epidemic  proportions  among  some 
American  Indian  tribes,  the  Indian  Health  Service  (IHS)  has 
established  Model  Diabetes  Care  programs  to  develop,  implement,  and 
evaluate  the  effectiveness  of  culturally  acceptable  diabetes 
prevention  and  management  programs  (10).   During  the  past  six  years, 
considerable  progress  has  been  made  at  specific  IHS  sites  in 
delivering  high-quality  and  culturally  acceptable  diabetes  care. 
Although  these  sites  serve  only  about  10  percent  of  the  IHS  service 
population,  additional  projects  have  been  established  recently  to 
improve  diabetes  care  and  disseminate  treatment  strategies  to  other 
communities . 


OPPORTUNITIES   FOR   PROGRESS 

The  following  areas  were  identified  by  the  Subcommittee  as  most 
significant  in  narrowing  the  disparity  in  the  morbidity  and  mortality 
due  to  diabetes  and  its  complications  between  the  minority  and 
nonminority  populations. 

•  Availability  and  distribution  of  educational  and 
informational  materials  for  diabetic  patients  and  those  at  risk 
of  diabetes  is  vitally  important.   The  scope  of  the  National 
Diabetes  Information  Clearinghouse  should  be  expanded  to 
address  the  individualized  needs  of  minority  groups  for 
diabetes-related  information.   When  materials  are  developed, 
they  should  take  into  account  the  socioeconomic  and  educational 
levels  of  their  target  populations  and,  when  appropriate,  their 
language  needs . 

•  Under  the  auspices  of  the  National  Diabetes  Advisory  Board, 
DHHS  should  support  the  development  and  inclusion  of  culturally 
specific  materials  in  the  education  and  certification  process 
of  diabetes  educators . 

•  As  part  of  the  educational  process  of  both  patients  and  health 
care  provider  trainees,  the  synergistic  effects  of  smoking, 
hypertension,  hyperlipidemia,  and  obesity  should  be  stressed  as 
having  adverse  effects  on  the  optimal  management  of  diabetes. 

•  DHHS-  and  State-funded  CDC  Diabetes  Control  Programs, 
which  have  fostered  participation  of  State  and  Federal 
efforts  in  diabetes  control,  have  demonstrated  positive  impact. 
States  should  be  encouraged  to  continue  these  programs. 

•  Existing  federally  funded  programs  such  as  the  Women,  Infants, 
and  Children  (WIC)  programs  and  nutrition  programs  for  the 
elderly  should  be  used  as  possible  opportunities 

to  screen  high-risk  minority  individuals  for  diabetes. 


154 


•  It  is  believed  that  earlier  treatment  of  asymptomatic 
diabetes  can  prevent  diabetic  complications  inasmuch  as  it  is 
the  complications  rather  than  the  diabetes  per  se  that  are 
responsible  for  much  of  the  diabetes-related  morbidity  and 
mortality.   Because  NIDDM  is  more  likely  to  occur  in  those  over 
age  50,  blood  glucose  screening  or  measurement  of  the 
glycosylated  hemoglobin  (hemoglobin  AlC)  in  minority 
individuals  may  be  appropriate.  ^ 

•  The  DHHS  should  encourage  State  and  local  health  departments  to 
address  the  needs  of  those  who  have  diabetes  in  areas  where  high 
concentrations  of  minority  populations  are  located.   DHHS, 
through  CDC  and  the  National  Diabetes  Information  Clearinghouse, 
can  provide  information  and  technical  assistance  to  facilitate 
State  and  local  diabetes  control  activities. 

•  Private  organizations  concerned  with  diabetes  such  as  the 
ADA  and  the  American  Association  of  Diabetes  Educators  should 
be  encouraged  to  focus  some  of  their  efforts  and  resources  on 
issues  specific  to  minority  populations. 

•  In  federally  sponsored  programs,  DHHS  should  emphasize  aspects  of 
diabetic  care  related  to  prevention  of  diabetic  complications 
that  are  the  sequelae  to  poor  diabetic  control. 

•  Encouragement  should  be  given  to  developing  curricula 

for  health  care  providers  that  are  minority  and  culturally 
sensitive  and  to  expanding  the  role  of  certain  health 
professionals  such  as  dietitians  and  nurse  practitioners 
in  the  care  of  people  with  diabetes  . 

•  Additional  research  on  the  prevalence  of  diabetes  and  its 
complications  among  the  various  minorities  is  needed. 
Well-designed  epidemiologic  studies  are  needed  to  characterize 
the  distribution  of  diabetes  among  minorities  and  monitor 
trends  in  both  prevalence  of  diabetes  and  related 
complications.   Studies  should  elucidate  the  effects  of 
variables  such  as  physiologic  differences,  influences  of 
various  diets,  acculturation,  and  genetic  admixture  on  the 
pattern  of  disease. 

•  Environmental  factors  should  be  examined  as  possible 
contributors  to  the  increased  prevalence  of  diabetes  during  the 
past  four  decades  among  Native  Americans,  Blacks,  Asian/Pacific 
Islanders,  and  Hispanics . 

•  The  DHHS  should  encourage  the  development  of  national  data  on  the 
prevalence  of  diabetes  and  its  complications  among  the  minority 
groups  by  oversampling  the  minority  populations  in  national 
surveys . 


155 


REFERENCES 

1.  Drury,  T. ,  Harris,  M. ,  &  Lipsett,  L.   (1981).   Health:  United 

States,  1981.  Prevalence  and  management  of  diabetes. 
Washington,  DC:   U.S.  Department  of  Health  and  Human  Services. 

2.  Rosemann,  J.  F.   (in  press).   Diabetes  in  Black  Americans.   In  M. 

Harris  (Ed.),  Diabetes  Data  Book. 

3.  Bonham,  G.  S.,  &  Brock,  D.  W.   (1985).   The  relationship  of  diabetes 

with  race,  sex,  and  obesity.   American  Journal  of  Clinical 
Nutrition,  41,  776-783. 

4.  Wheeler,  F.  C,  Collmar,  C.  W.,  &  Deeb,  L.  C.   (1982).   Diabetes 

and  pregnancy  in  South  Carolina.   Diabetes  Care,  5,  561-665. 

5.  Sievers,  M.  L. ,  &  Fisher,  J.  R.   (1981).   Diseases  of  North 

American  Indians.   In  H.  Rothschild  (Ed.),  Biocultural  Aspects 
of  Disease.   (p.  191-240).   New  York,  NY:   Academic  Press. 

6.  Bureau  of  the  Census.   (1981).   Age,  sex,  race,  and  Spanish 

origin  of  the  population  (Supplementary  report  PC-80-51-1). 
Washington,  DC:   U.S.  Department  of  Commerce. 

7.  Stern,  M.   (1984).   Factors  relating  to  increased  prevalence 

of  diabetes  in  Hispanic  Americans .   Unpublished  manuscript. 
Task  Force  on  Black  and  Minority  Health,  DHHS. 

8.  Fujimoto,  W.  Y.   (1984).   Diabetes  in  Asian  Americans. 

Unpublished  manuscript.  Task  Force  on  Black  and  Minority 
Health,  DHHS. 

9.  National  Diabetes  Advisory  Board.   (1983).   Diabetes  mellitus,  the 

continuing  challenge.  (DHHS  Publication  No.  (NIH)  83-2624). 
(p.  496-3583). 

10.  Davidson,  J.   (1985).   Diabetes .   Unpublished  manuscript.  Task 

Force  on  Black  and  Minority  Health,  DHHS. 


156 


SUBCOMMITTEE  ON    HOMICIDE,    SUICIDE, 
AND   UNINTENTIONAL   INJURIES 

EXECUTIVE   SUMMARY 

Introduction 

Injuries,  intentional  and  unintentional,  are  among  the  leading 
causes  of  death  in  the  United  States.   This  Subcommittee  investigated 
the  major  disparities  in  mortality  between  the  majority  population  and 
Blacks,  Hispanics,  Native  Americans,  and  Asian/Pacific  Islanders  in 
the  areas  of  homicide,  suicide,  and  unintentional  injuries.   Of  these, 
homicide  and  unintentional  injuries  account  for  35  percent  of  the  excess 
deaths  in  Blacks  under  age  45  years.   They  remain  important  contributors 
for  Hispanics  and  Native  Americans  as  well. 

Since  the  reordering  of  national  health  priorities  that  resulted 
in  the  Surgeon  General's  1979  report.  Healthy  People,  homicide 
increasingly  has  been  recognized  as  a  preventable  public  health 
problem  for  which  the  health  sector  needs  to  devote  greater  attention 
and  energy.   Traditionally,  problems  of  violence  and  homicide  have 
been  left  to  the  criminal  justice  system.   Prevention  of  homicide  is  a 
new  endeavor  for  public  health,  and  it  presents  an  opportunity  for  the 
public  health  field  to  deal  with  a  previously  ignored  health  problem. 

In  1983,  homicide  accounted  for  more  than  19,000  deaths  in  the 
United  States,  an  overall  rate  of  8.2  deaths  per  100,000  population,  a 
rate  far  higher  than  that  of  any  other  industrialized  Nation  (1). 

Homicide  is  the  11th  leading  cause  of  death  in  the  United  States. 
For  Americans  of  ages  1  through  65,  homicide  accounts  for  more  than 
726,000  potential  years  of  life  lost  annually,  an  index  for  which 
homicide  ranks  fourth  among  all  causes  of  death.   (Potential  years  of 
life  lost  were  computed  to  age  65.   Data  were  computed  from  NCHS 
public  use  data  tapes  by  the  Violence  Epidemiology  Branch,  Centers  for 
Disease  Control.)  After  heart  disease,  homicide  accounts  for  more 
excess  mortality  among  Black  Americans  than  any  other  cause  of  death. 

Analysis  of  national  and  local  homicide  data  indicates  that  Black 
males  and  females  and  Hispanic  males  have  rates  of  death  far  in  excess 
of  the  rates  of  their  peers  in  the  general  population  (see  Figures  12 
and  13) .   Native  Americans  have  rates  of  death  from  unintentional 
injuries  far  greater  than  the  general  population.   Suicide  and 
homicide  also  occur  at  higher  rates  among  the  Native  American 
population.   Chinese  women  over  age  45  have  suicide  rates 
significantly  in  excess  of  those  for  White  women  of  comparable  age. 


157 


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Blacks 


•  In  1983,  Blacks  accounted  for  43  percent  of  homicide  victims, 
although  Blacks  represent  only  11.5  percent  of  the  population  (2). 

•  Black  males  have  a  1  in  21  lifetime  chance  of  becoming  a  homicide 
victim.   The  chance  for  White  males  is  1  in  131  (3). 

•  Black  females  have  a  1  in  104  lifetime  chance  of  becoming  a 
homicide  victim.   The  chance  for  White  females  is  1  in  369  (3). 

•  Higher  Black  homicide  rates  are  found  in  all  regions  of  the 
United  States  but  are  particularly  high  in  the  largest  cities 
of  the  Nation  (data  compiled  by  the  Task  Force  on  Black  and 
Minority  Health) . 

•  Black  males  have  the  highest  rates  of  homicide:   69.2  per 
100,000  for  Black  males  compared  with  10.3  per  100,000  among 
White  males,  in  1981  (1). 

•  Black  females  have  the  second  highest  rate  of  homicide:  12.9  per 
100,000  compared  with  3.1  among  White  females,  in  1981  (1). 

•  Homicide  is  the  leading  cause  of  death  for  Black  males  of  ages 
15  to  44  (1). 

•  The  homicide  rate  for  Black  males,  ages  15-24,  in  1981,  was  78.2 
deaths  per  100,000  population  compared  with  14.4  per  100,000 
for  White  males  15  to  24  years  of  age,  a  difference  of  more 
than  five-fold  (1). 

•  The  homicide  rate  for  Black  males,  ages  25  to  34  years,  was 
136.9  per  100,000  in  1981  compared  with  17.6  for  White  males  of 
the  same  age  group,  7.8  times  as  great  (1). 


Hispanics 


National  data  are  not  available  for  homicide  deaths  among  Hispanic 
populations,  but  data  from  the  five-State  southwestern  region, 
where  more  than  60  percent  of  Hispanics  reside,  show  that  during 
the  period  1976  to  1980,  the  homicide  rate  was  21.6  per  100,000, 
more  than  2.5  times  the  rate  of  the  non-Hispanic  White  population 
(7.7  per  100,000)  in  the  same  geographical  area  (4). 


Native  Americans 


The  homicide  rate  among  American  Indians  in  1980  was  18.1,  70 
percent  higher  than  the  rate  for  the  general  population  (5) . 


160 


•  American  Indians  have  the  highest  rate  of  death  from  unintentional 
injuries  or  "accidents,"  both  overall  and  at  age-specific  inter- 
vals.  In  1980,  the  death  rate  from  accidents  among  American 
Indians  was  107.3  per  100,000,  significantly  greater  than  the 
rate  of  42.3  per  100,000  for  the  U.S.,  all  races.   Motor  vehicle 
injuries  account  for  the  majority  of  accidental  deaths.   Among 
American  Indians,  the  death  rate  from  motor  vehicle  injuries 

was  61.3  per  100,000  American  Indians  compared  to  22.9  for  the 
United  States  aggregate  population  (5). 

•  The  death  rate  from  suicides  among  American  Indians  was  14.1  per 
100,000  in  1980,  approximately  20  percent  greater  than  the 
general  population  (5).   Within  some  tribes,  the  rate  is  much 
higher.   American  Indian  suicide  victims  are  generally  younger 
than  those  in  the  general  population  with  suicide  rates  peaking 
at  ages  15  to  39,  compared  with  the  general  population  in  which 
suicides  most  often  occur  after  age  40  (7). 

Asian/Pacific  Islanders 

•  The  risk  for  suicide  in  Chinese  females  rises  considerably  after 
age  45  and  increases  with  advancing  age  (6) . 

Selected  Dimensions  of  Homicide 

Homicide  is  seldom  an  isolated  event.   Much  homicide  is  preceded 
by  nonfatal  conflicts  and  violence  that  come  to  the  attention  of  police 
or  are  the  occasion  for  visits  to  hospital  emergency  departments. 

•  Most  homicides  in  the  United  States  involve  relatives  and 
acquaintances.   Of  all  homicides  in  1983,  19  percent  were 
committed  by  members  of  the  victims'  families,  38  percent  by 
acquaintances,  15  percent  by  strangers;  offenders  were  unident- 
ified in  28  percent. 

•  Most  homicides  are  committed  against  persons  of  the  same  race 
as  the  offender.   In  1983,  94  percent  of  Black  victims  were 
slain  by  Black  assailants,  88  percent  of  White  victims  were 
slain  by  White  assailants  (8). 

•  Among  Black  males  of  ages  15  to  24: 

--more  than  65  percent  of  homicide  deaths  in  1979  were  not  re- 
lated to  criminal  events. 

--54  percent  of  homicide  victims  were  killed  by  persons  known 
to  them,  usually  acquaintances  (8). 

•  Approximately  60  percent  of  all  homicides  are  committed  with 
firearms --handguns ,  rifles,  or  shotguns  (7). 


161 


Factors  Associated  with  Homicide 

Considered  as  a  public  health  problem,  the  high  homicide  rate  can 
be  related  to  psychological  factors  related  to  mental  processes  and 
behavior;  external  environment  including  physical,  historical-cultural, 
social,  educational,  and  economic  environments;  lifestyle,  or  individual 
and  group  ways  of  life,  and  physiological  factors  related  to  age  and 
gender . 

•  Psychological  factors.   Homicide  differs  from  other  health 
problems  in  that  it  is  the  outcome  of  mental  processes  that 
result  in  conscious  efforts  to  inflict  physical  harm  upon  another 
human  being.   There  appears  to  be  broad  agreement  that  persons 
who  commit  homicide  and  other  violent  crimes  fall  into  one  of 

a  number  of  groups.   These  include: 

--Normal,  adequately  socialized  people  exposed  to  extremely 
provocative  or  frustrating  situations  or  circumstances.   In 
some  instances,  their  violence  tendencies  are  exacerbated  by 
inhibition- lowering  drugs. 

--Persons  committed  to  a  violent  lifestyle  with  supporting 
attitudes  and  values.   This  includes  both  normal  individuals 
who  consider  that  violence  is  appropriate  in  certain  circum- 
stances and  other  individuals  who  fail  to  develop  adequate 
inhibitions  against  violent  behavior  because  of  disturbed 
developmental  patterns.   Although  personal  characteristics  are 
related  to  participation  in  violence,  actual  violent  behavior 
results  from  interactions  of  individuals  with  their  environments, 
Among  the  external  factors  that  facilitate  or  impede  violent 
behavior  are  cultural  attitudes  towards  violence,  socioeconomic 
conditions,  and  availability  of  weapons. 

•  Environment.   Although  occupying  one  of  the  most  healthful 
physical  environments  in  the  world,  the  United  States  has  long 
had  higher  levels  of  internal  violence  than  other 
industrialized  nations.   Violence  is  also  accepted  in  American 
culture  to  a  degree  exceeding  that  of  many  other  nations. 
Television  programs,  movies,  and  printed  media  often  present 
violence  as  entertainment  to  the  American  public. 

Within  the  United  States,  as  in  other  western  countries,  rates 
of  homicide  are  highest  in  large  cities.   Numerous  studies 
conducted  over  a  period  of  many  years  note  that  violent  crime, 
its  offenders,  and  its  victims  are  most  often  found  in  urban 
areas  characterized  by  low  income,  physical  deterioration, 
welfare  dependency,  disrupted  families,  lack  of  social 
supports,  low  levels  of  education  and  vocational  skills,  high 
unemployment,  high  proportion  of  single  males,  overcrowded  and 
substandard  housing,  low  rates  of  home  ownership  or  single 
family  dwellings,  mixed  land  use,  and  high  population  density  (9). 


162 


Blacks  live  in  a  society  that  has  a  long  tradition  of 
discrimination  against  minorities.   Hispanics ,  Asians,  and 
Native  Americans  have  also  been  victims  of  discrimination. 

•  Lifestyle.   Several  types  of  behaviors  are  associated  with 
increased  risk  for  homicides.   The  National  Institute  on  Alcohol 
Abuse  and  Alcoholism  has  estimated  that  about  one-half  of  all 
homicides  in  the  United  States  are  related  to  use  of 

alcohol  (10).   An  estimated  10  percent  of  homicides  nationwide 
are  associated  with  use  of  illegal  drugs  (estimated  by  Research 
Triangle  Institute,  North  Carolina).   In  some  of  the 
Nation's  largest  cities,  the  number  of  drug-related  homicides 
is  more  than  20  percent  (11). 

•  Physiological  factors.   Being  male  and  being  young  are  the  most 
prominent  risk  factors  for  involvement  in  homicide  as  a  victim 
or  as  a  perpetrator. 


OPPORTUNITIES   FOR   PROGRESS 

Many,  if  not  most,  homicides  are  preceded  by  patterns  of  nonfatal 
violence  that  can  provide  targets  for  efforts  at  prevention  (12). 
Research  indicates  that  homicide  often  is  the  end  product  of 
youthful  training  in  the  use  of  violence  that  began  in  the  home  and 
through  interactions  with  peers  in  school  and  communities  (13). 
Children  who  engage  in  persistent  antisocial  and  violent  behavior 
from  an  early  age  are  at  significant  risk  for  becoming  deficient  in  a 
variety  of  social  skills,  including  education,  communication,  and 
work  habits  that  are  essential  to  a  well-adjusted  adult  life  (14). 

Development  of  Preventive   Intervention   Strategies 

Enough  is  known  about  homicide  risks  to  suggest  some  useful 
starting  points  for  applying  public  health  concepts  of  primary, 
secondary,  and  tertiary  prevention.   As  interventions  in  these  areas 
are  developed  and  tested  over  time,  some  demonstrably  effective 
prevention  strategies  may  emerge. 

Primary  Prevention 

Primary  prevention  in  the  public  health  sense  involves  averting 
the  initial  occurrence  of  a  disease,  defect,  or  injury.   In  the  case 
of  homicide,  primary  prevention  efforts  need  to  be  directed  at  those 
social,  cultural,  technological,  and  legal  aspects  of  the  environment 
in  the  United  States  that  facilitate  perpetuation  of  the  Nation's 
extraordinarily  high  homicide  rates.   The  following  examples 
illustrate  the  types  of  preventive  strategies  that  need  to  be 
developed.   Implementation  of  these  strategies  will  require  that 
health  professionals  join  with  others  in  an  effort  to  eradicate 
factors  that  impair  health  by  facilitating  homicide. 


163 


•  Effective  health  strategies  to  prevent  homicide  must  begin  by 
enlisting  greater  public  and  professional  interest  and  concern. 
The  Public  Health  Service  should  take  the  lead  in  developing  a 
new  health  promotion  campaign  specifically  focused  on  homicide. 
The  campaign  should  increase  public  and  professional  awareness 
that  homicide  is  a  serious  national  problem  and  that  it  is 
preventable.   By  comparing  the  American  homicide  rate  with 
that  of  other  nations,  the  campaign  can  also  convey  the  message 
that  the  high  rate  of  American  homicide  can  no  longer 

be  tolerated. 

•  Physicians  and  other  health  care  providers  need  to  develop 
greater  understanding  of  homicide  as  a  public  health  problem 
for  which  the  health  sector  should  accept  greater  responsibil- 
ity.  Information  on  homicide  and  other  violence  should  be 
incorporated  into  the  curricula  of  medical  schools,  nursing 
schools,  schools  of  social  work,  and  continuing  professional 
education. 

•  Community  self-help.   High  rates  of  homicide  and  other  violence 
are  problems  for  which  Black,  Hispanic,  and  Native  American 
communities  need  to  accept  greater  ownership.   By  accepting 
responsibility  for  homicides  that  occur  within  their  own 
communities,  minority  citizens  empower  themselves  to  press  more 
actively  for  adequate  and  comprehensive  efforts  at  prevention. 
Community  approaches  might  include: 

--developing  a  continuing  media  campaign  to  educate  the  community 
and  the  general  public  that  violence  and  high  homicide  rates 
are  unacceptable.   Messages  should  be  culturally  relevant  and 
feature  appropriate  role  models  who  are  suitable  for  the  target 
population. 

—establishing  a  consortium  or  community  council  of  civic, 
religious,  political,  youth,  and  other  community  leaders  who 
are  committed  to  the  proposition  that  violence  and  homicide  in 
the  community  are  unacceptable  and  preventable.   This  group 
would  meet  regularly  to  exchange  ideas  and  information  and, 
with  help  from  other  experts  if  needed,  would  develop 
constructive  approaches  to  prevention  of  violence  and  homicide. 

--developing  an  information  bank  on  violence  and  homicides  that 
occur  in  the  community. 

--mobilizing  community  resources  to  maximize  the  potential  for 
violence  reduction  and  homicide  prevention. 

--developing  a  community  policy  toward  firearms. 


164 


--developing  model  programs  for  community-based  homicide 
prevention.   Promising  approaches  are  provided  by  such 
projects  as  the  House  of  Umoja  in  Philadelphia  (15),  which  has 
reduced  gang-related  homicides  among  young  Black  men; 
Neighborhood  Crime  Prevention  projects,  and  the  "Big  Brother" 
program,  which  could  provide  Black  role  models  for  high-risk 
children  from  single-parent  families. 

--reducing  violence  on  television.   Several  consumer  and 
professional  groups  have  begun  advocating  reduction  of 
television  violence.   The  National  Parent  Teachers  Association 
and  other  organizations  have  issued  program  selection 
guidelines  to  enable  parents  to  choose  programs  that  demonstrate 
appropriate  prosocial  behavior. 

Secondary  Prevention 

Secondary  prevention  in  the  public  health  sense  involves  halting 
or  slowing  the  progression  of  a  disease  or  other  health  problems.   In 
the  case  of  homicide,  secondary  prevention  efforts  should  be  directed 
to  individuals  manifesting  early  signs  of  behavioral  and  social 
problems  that  are  logically  and  empirically  related  to  increased  risks 
for  subsequent  homicide.   Family  violence,  childhood  aggression, 
school  violence,  adolescent  violence,  alcohol  abuse,  and  drug  abuse  are 
important  focal  points  for  efforts  at  secondary  prevention  of 
homicide.   In  the  case  of  Black  and  Hispanic  homicide,  such  preventive 
efforts  are  particularly  needed  in  low-income,  inner-city  communities 
characterized  by  high  rates  of  violence,  family  disorganization, 
unemployment,  and  school  drop  out. 

•  Family  violence.   More  programs  targeted  to  minority  populations 
should  be  implemented  to  assist  parents  in  parenting  skills  and 
in  providing  effective  discipline  that  avoids  excessive 
punishment . 

•  School-based  education  programs.   Health  education  curricula 
extending  from  elementary  through  high  school  should  include 
teaching  children  how  to  manage  hostility  and  aggression  by 
nonviolent  means  and  channeling  children's  energies  into 
education,  work,  community  projects,  and  recreation.   The  Boston 
Youth  Program  is  an  example  of  an  innovative  school-based  program 
for  homicide  prevention  (16). 

•  Mental  health  programs.   Because  aggressive  and  antisocial 
behaviors  in  children  are  often  associated  with  later  delinquency 
and  violence,  improved  mental  health  interventions  are  needed. 

•  Chemical  dependency.   Programs  to  reduce  chemical  dependency  need 
to  be  incorporated  into  strategies  aimed  at  prevention  of  homicide, 
suicide,  and  unintentional  injuries  in  minority  populations. 


165 


Tertiary  Prevention 

Tertiary  prevention  is  concerned  with  situations  in  which  a 
health  problem  is  already  well  established,  but  efforts  can  still  be 
made  to  prevent  further  progress  toward  increased  disability  and 
death.   In  relation  to  homicide,  the  problems  of  greatest  concern  are 
types  of  serious  violence  between  intimates  and  acquaintances  that  are 
associated  with  elevated  risk  for  homicide.   Preventive  efforts 
include: 

•  Hospital  emergency  departments  can  help  to  prevent  homicides 
through  improved  medical  record  keeping  on  assaults.   Homicides 
frequently  are  preceded  by  nonfatal  assaults  that  bring  victims 
into  hospital  emergency  rooms.   Records  should  include  complete 
information  on  the  circumstances  of  an  assault  and  a  method 
for  identifying  repeat  victims  of  assaults.   Blood  alcohol 
levels  should  be  measured  and  recorded  as  should  evidence,  if 
any,  of  drug  use. 

•  Improved  medical  protocols  need  to  be  developed  for  identifying 
female  victims  of  domestic  violence.   Many  of  these  persons  are 
not  identified  as  battering  victims  because  they  do  not 
volunteer  this  information  and  are  not  questioned  about 
possible  battering.   A  model  emergency  room  protocol  for 
identifying  adult  victims  of  domestic  violence  has  been 
developed  for  hospitals  in  the  State  of  New  York  and  can  be 
adapted  for  use  elsewhere  (17). 

•  Preventive  interventions  for  victims  of  domestic  violence  should 
be  introduced  and  tested  in  health  care  settings.   A  leader  in 
this  field  has  been  the  Harborview  Medical  Center  in  Seattle, 
which  has  developed  a  comprehensive  intervention  model  that 
addresses  the  needs  of  victims  of  spousal  violence,  child 
sexual  abuse,  rape,  elder  abuse,  and  assaults  by  strangers  (18). 

•  High  rates  of  minority  youth  homicide  in  the  Nation's  largest 
cities  are  associated  from  time  to  time  with  violence  that 
develops  among  rival  youth  gangs.   The  House  of  Umoja  in 
Philadelphia  provides  an  example  of  a  successful,  minority-directed 
program  aimed  at  prevention  and  reduction  of  gang  homicide.   An 
important  outcome  of  this  effort  was  the  formation  of  a  community 
agency,  Crisis  Intervention  Network,  that  has  worked  to  prevent 

a  resurgence  of  gang  violence  through  communication  with  concerned 
parties  and  organizational  efforts  to  combat  the  environmental 
and  social  conditions  that  foster  gang  violence  (15). 

Interventions  Targeted  Toward  Native  Americans 

•  The  Indian  Health  Service  (IHS)  is  focusing  greater  efforts  at 
reducing  death  and  disability  from  unintentional  injuries,  suicide, 
and  homicide  by  improving: 


166 


--prevention  activities  in  the  form  of  health  education,  risk 
identification,  and  working  with  other  agencies  responsible  for 
law  enforcement  programs . 

--assistance  to  injury  victims  through  improved  IHS  clinical 
services,  emergency  medical  services,  including  assisting 
communities  to  improve  ambulance  services. 

--rehabilitation  through  clinical  services  and  alcohol  programs, 
mental  health,  and  health  education. 

--providing  medical  personnel  with  training  in  emergency  care 
skills . 

•  Efforts  to  prevent  injuries  from  motor  vehicle  accidents  should 
include  encouraging  use  of  seat  belts  and  child  restraints  in 
cars  and  trucks,  use  of  helmets  for  motorcyclists,  and  restraints 
for  passengers  riding  in  the  backs  of  pickup  trucks. 

•  Because  American  Indian  tribes  differ  considerably  in  language, 
culture,  and  traditions,  consultation  with  tribal  leaders  is 
vital  when  planning  or  implementing  health  interventions  targeted 
toward  American  Indians. 

Efforts  at  preventing  or  reducing  unnecessary  deaths  from 
homicide,  suicide,  and  unintentional  injuries  in  all  minority 
populations  require  a  cooperative  approach  from  diverse  disciplines 
outside  the  traditional  public  health  sector. 


167 


REFERENCES 


1.  National  Center  for  Health  Statistics.   (1984,  December). 

Health,  United  States  1984.  (DHHS  Publication  No.  (PHS) 
85-1232).   Washington,  DC:   U.S.  Government  Printing  Office. 

2.  Federal  Bureau  of  Investigation.   (1984).   Uniform  crime  reports 

of  the  United  States,  1983.   Washington,  DC:   U.S. 
Department  of  Justice. 

3.  U.S.  Department  of  Justice.   (1985,  May).   The  risk  of 

violent  crime.   Washington,  DC:   Author. 

4.  Smith,  J.  C,  Mercy,  J.  A.,  &  Rosenberg,  M.  L.   (1984). 

Comparison  of  homicides  among  Anglos  and  Hispanics 

in  five  southwestern  states.   Atlanta,  GA:   Centers  for 

Disease  Control. 

5.  Indian  Health  Service.   (1984,  June).   Indian  Health  Service 

chart  book  series  (No.  421-166:4393).   Washington,  DC: 
U.S.  Government  Printing  Office. 

6.  Liu,  W.,  &  Yu,  E.   (1985).   Ethnicity  and  mental  health.   In 

J.  Moore,  &  L.  Maldonaldo  (Eds.),  Urban  Ethnics .   Beverly 
Hills,  CA:   Sage  Publications. 

7.  Baker,  S.  P.,  O'Neill,  B.,  &  Karpf,  R.  S.  (1984).   The  injury 

fact  book.   Lexington,  KY:   Lexington  Books,  D.C.  Heath  and 
Company. 

8.  Rosenberg,  M.  L.,  Gelles,  R.  J.,  Holinger,  P.  C,  Zahn,  M.  A., 

Conn,  J.  A.,  Fajman,  N.  N.  ,  &.   Karlson,  T.  A.   (1984). 
Violence,  homicide,  assault,  and  suicide.  Closing  the  gap 
health  policy  project.   Unpublished  manuscript. 

9 .  President's  Commission  on  Law  Enforcement  and  Administration  of 

Justice:  The  Challenge  of  Crime  in  a  Free  Society.   (1967). 
Washington,  DC:   U.S.  Government  Printing  Office. 

10.  John,  H.  W.  (1978).   Alcoholism  and  criminal  homicide:   A 

review.   Alcohol  Health  and  Research  World,  2,  8-13. 

11.  New  York  City  Police  Department.   (1982).   Homicide  analysis. 

New  York,  NY:   Crime  Analysis  Unit. 

12.  Hawkins,  D.  F.   (1984,  December).   Longitudinal -situational 

approaches  to  understanding  Black-on-Black  homicide. 
Unpublished  manuscript,  Task  Force  on  Black  and  Minority 
Health,  DHHS. 


168 


13.  Petersilia,  J.   (1980).   Criminal  career  research.   A  review  of 

recent  evidence.   In  N.  Morris,  &  M.  Tonry  (Eds.),  Crime  and 
Justice  (Vol.  2).   Chicago,  IL:  University  of  Chicago  Press. 

14.  Loeber,  R.   (1982).   The  stability  of  antisocial  and  delinquent 

child  behavior:   A  review.   Child  Development,  53,  1431-1446. 

15.  Falakah,  F.   (1984).   Call  and  catalytic  response:   The  House 

of  Umoja.   In  R.  Mathias,  P.  DeMuro,  &  R.  Allinson  (Eds.), 
Violent  juvenile  offenders.  An  Anthology  (pp.  231-237). 
San  Francisco,  CA:   San  Francisco  National  Council  on  Crime 
and  Delinquency. 

16.  Prothrow-Stith,  D.   (1985,  January).   Interdisciplinary 

interventions  applicable  to  prevention  of  interpersonal 
violence  and  homicide  in  Black  youth.   Unpublished 
manuscript.  Task  Force  on  Black  and  Minority  Health,  DHHS . 

17.  State  of  New  York  Department  of  Health.   (1984,  August  19). 

Hospital  emergency  department  protocol:  Identifying 

and  treating  adult  victims  of  domestic  violence 

(Health  Facilities  Series  H-48) .   New  York,  NY:   Author. 

18.  Klingbeil,  K.   (1985,  January).   Comprehensive  model  to  detect, 

assess,  and  treat  assaultive  violence  in  hospital  settings. 
Unpublished  manuscript.  Task  Force  on  Black  and  Minority  Health, 
DHHS. 


169 


SUBCOMMITTEE  ON    INFANT  MORTALITY  AND   LOW  BIRTHWEIGHT 

EXECUTIVE   SUMMARY 

Introduction 

The  death  of  an  infant  is  a  personal  tragedy  and  an  event  that 
causes  us  to  look  at  the  functioning  of  medical  and  social  systems. 
Infant  mortality,  the  rate  at  which  babies  die  before  their  first 
birthday,  has  been  viewed  historically  as  a  sensitive  indicator  of  the 
well-being  of  these  systems.   Under  age  60,  the  rates  of  death  from 
infant  mortality  are  higher  than  for  any  other  cause  of  death.   In 
1983,  there  were  39,400  infant  deaths,  a  provisional  rate  of  10.9  per 
1,000  births  (1).   While  this  represents  a  striking  decline  during  the 
20th  century  (from  about  100  deaths  per  1,000  live  births  in  1900)  the 
United  States  does  not  compare  favorably  with  other  industrialized 
nations.   Infant  mortality  rates  are  lower  in  the  Scandanavian 
countries,  Japan,  most  of  Western  Europe,  Canada,  and  Australia  (2). 
Although  Blacks  have  shared  in  the  decline  in  infant  mortality,  a 
significant  disparity  remains  with  Black  rates  being  essentially  twice 
those  of  Whites,  20.0  versus  10.5  in  1983,  depicted  in  Figure  14. 

Infant  mortality  rates  have  two  main  components:   neonatal 
mortality  rate  or  deaths  of  infants  within  the  first  28  days  of  life, 
and  postneonatal  mortality  or  deaths  from  28  days  to  one  year.   At  the 
turn  of  the  century,  postneonatal  deaths  accounted  for  most  infant 
deaths,  but  presently,  neonatal  deaths  are  predominant  (Figure  15). 
Neonatal  deaths  are  thought  to  reflect  preexisting  health  conditions 
of  the  mother  and  the  medical  care  she  and  her  baby  receive  during 
pregnancy,  at  the  time  of  delivery  and  shortly  thereafter.   There  have 
been  major  improvements  in  the  neonatal  death  rate  in  the  past  two 
decades.   Postneonatal  mortality  is  more  reflective  of  living 
conditions,  quality  of  care  for  children  and  medical  care  for 
treatable  conditions  such  as  infections.   Of  course,  these  two  sources 
of  risk  for  babies  are  not  separate  since  the  factors  that  influence  a 
woman  to  obtain  early  prenatal  care  may  be  the  same  things  that 
influence  the  quality  of  parenting  and  availability  and  use  of 
services  after  the  birth  (3) . 

The  sources  of  data  for  infant  mortality  are  death  certificates 
filed  by  States,  which  are  then  reported  to  the  National  Center  for 
Health  Statistics.   States  vary  in  their  reporting  of  other 
characteristics  of  mothers  and  infants,  which  limits  analysis  of 
infant  mortality  by  ethnicity.   Other  data  sets  such  as  birth 
certificates  and  surveys  provide  more  data  on  ethnicity  and  include 
information  on  birthweight,  which  is  a  major  risk  factor  for  infant 
mortality.   Insight  into  the  variability  of  poor  pregnancy  outcome  can 
be  obtained  by  looking  at  low  birthweight  (LBW) ,  specifically,  the 
proportion  of  births  that  are  below  2,500  grams,  about  5-1/2  pounds. 


171 


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The  distinction  between  normal  and  low  birthweight  is  a  powerful  one 
in  regard  to  infant  mortality,  but  LBW  actually  includes  two 
subgroups:   preterm  deliveries  and  small  for  gestational  age  babies, 
which  may  or  may  not  be  preterm.   In  the  research  projects  and  data 
that  are  described  here,  it  is  not  always  possible  to  distinguish 
these  two  subgroups,  although  they  are  discussed  in  some  detail  in  the 
full  report. 

Although  less  than  seven  percent  of  babies  are  born  with  low 
birthweight,  they  contribute  two-thirds  of  the  deaths  in  the  first 
month  of  life  and  approximately  60  percent  of  all  infant  deaths  (4) . 
Among  White  babies,  5.6  percent  are  LBW  as  opposed  to  12.4  percent  for 
Black  babies.   Puerto  Ricans  occupy  an  intermediate  position  (9.1 
percent).   Other  Hispanic  groups  show  better  outcomes,  approximately 
5.7  percent  for  Mexicans  and  5.8  percent  for  Cubans.   Data  for 
Hispanics  are  based  on  reports  from  22  States  which  encompass  an 
estimated  90  percent  of  Hispanic  births.   Asians  generally  show  good 
perinatal  outcomes.   The  best  outcomes  are  among  Chinese  (5.3 
percent),  while  6.9  percent  of  Filipino  births  are  below  2,500  grams. 
Data  for  American  Indians  show  favorable  birth  outcomes  and  low 
birthweight  rate  of  6.2  percent  (Figure  16)  (5).   A  number  of  factors 
have  been  identified  as  relating  to  the  risk  of  low  birthweight  and 
infant  mortality.   The  broad  range  and  complexity  of  these  problems 
should  lead  to  caution  in  presuming  quick  or  simple  solutions  to  the 
problem  of  infant  mortality  in  the  United  States  or  the  disparity 
between  groups.   This  report  addresses  what  we  know  about  etiologic 
factors,  recommendations  for  immediate  action,  and  areas  where 
reasearch  is  needed. 

Etiologic  Factors 

The  many  risk  factors  associated  with  poor  perinatal  outcome 
among  minorities  that  appear  to  be  related  to  low  socioeconomic  status 
include:   (1)  low  income  and  inadequate  insurance  coverage  that  often 
reduce  access  to  appropriate  medical  care,  (2)  preexisting  disease 
conditions,  (3)  poor  nutrition,  (4)  inadequate  housing  and  crowded 
living  conditions,  (5)  limited  maternal  education,  (6)  stressful  work 
environments,  (7)  disrupted  families  and  lack  of  social  supports,  and 
(8)  problems  of  transportation  and  child  care  that  impede  use  of 
services.   All  are  more  prevalent  among  poor  and  minority  women. 
Furthermore,  childbearing  patterns  are  related  both  to  pregnancy 
outcome  and  ethnicity.   Populations  with  worse  pregnancy  outcomes  tend 
to  include  more  teenage  mothers,  more  unmarried  mothers  and  more 
unintended  births  (Table  15).   This  report  addresses  how  the  factors 
leading  to  pregnancy  and  the  care  received  during  pregnancy  relate  to 
the  well-being  of  the  baby.   When  many  of  the  social  risk  factors 
(education,  marital  status,  trimester  of  first  care,  parity,  age)  are 
controlled,  Black  women  still  have  twice  the  risk  of  bearing  LBW 
babies  as  do  comparable  Whites.   Nevertheless,  the  group  of  Black 
women  controlled  for  social  risk  factors  has  half  the  LBW  incidence  of 
the  Black  population  as  a  whole.   This  finding  cautions  us  that  this 


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Table  15 


Childbearing  Patterns  Among  Racial  and  Ethnic  Groups,  1982 


American  Indian, 

White 

Black 

Hispanic* 

Asian 

Alaska  Native 

Age  of  Mother 

Under  15 

4,153 

5,395 

1,288 

88 

126 

15-19 

357,948 

140,534 

60,369 

6,278 

8,749 

20-24 

958,509 

207,640 

115,275 

23,872 

15,364 

25-29 

961,053 

143,748 

90,393 

36,303 

10,236 

30-34 

503,847 

69,781 

47,999 

26,394 

4,886 

35-39 

136,664 

21,341 

18,056 

8,146 

1,627 

40-44 

19,027 

3,966 

3,809 

1,351 

287 

45-49 

853 

236 

201 

131 

14 

Percent  of  Births  to  Mothers  Under  Age  20 

12.3  24.6 


18.3 


6.2 


21.5 


Percent  of  Births  to  Mothers  Over  Age  35 

5.3  4.3 


6.5 


9.4 


4.7 


Marital  Status:  Out-of-Wedlock  Births 

Number  355,180  335,927  86,488  8,642  14,998 

Percent  12.1  56.7  25.6  8.4  36.3 


Parity 

Percent  First  Births 

43.3 

39.2 

37.0 

41.8 

36.9 

Percent  High  Parity  (4-I-) 

8.6 

14.2 

16.4 

10.7 

17.0 

SOURCE:  National  Center  for  Health  Statistics. 

*Refers  to  births  to  residents  of  23  States  reporting  Hispanic  origins  of  the  mother  on  birth  certificates.  These  States  accounted 
for  an  estimated  95  percent  of  all  births  of  Hispanic  origin  in  the  United  States  in  1982. 


176 


is  a  difficult,  complex  issue  that  offers  no  simple  solutions. 
Although  much  is  known  about  the  risks  for  LBW  and  infant  mortality, 
much  remains  to  be  learned. 

Based  on  the  review  of  literature  and  NCHS  data,  four  major  areas 
can  be  highlighted: 

•  The  importance  of  family  planning/pregnancy  prevention 
among  teenagers ,  given  the  disproportionate  number  of  teen 
parents  who  are  minorities. 

•  The  importance  of  assuring  early  and  continuous  prenatal 

care  and  appropriate  levels  of  maternity,  newborn,  and  infant  care 
to  minority  women. 

•  The  importance  of  aggressive  outreach,  case  management,  and 
expanded  patient  education  services  for  minority  women. 

•  The  importance  of  adequately  financing  the  providers  and 
hospitals  that  care  for  minority  women,  who  are  often  uninsured 
or  rely  on  Medicaid. 

Blacks 

The  neonatal  mortality  rate  (NMR)  for  Blacks  in  1981  was  13.4  per 
1,000  live  births,  almost  twice  the  rate  for  Whites  (7.1).   The 
postneonatal  mortality  rate  (PNMR)  for  Blacks  was  6.6,  twice  the 
3.4  rate  for  Whites  (6).   In  1983,  11,060  Black  babies  died  before  one 
year  of  age  (1) . 

There  are  three  components  of  excess  risk  for  infant  mortality 
for  Blacks:   increased  risk  of  bearing  a  low  birthweight  baby; 
increased  risk  of  neonatal  death  among  normal  weight  babies;  and 
increased  risk  of  postneonatal  death,  regardless  of  birthweight, 
relative  to  Whites.   These  risks  are  related  to  (but  not  fully 
explained  by)  childbearing  patterns.   Black  women  are  much  more  likely 
to  have  a  teenage  birth,  an  out-of-wedlock  birth,  or  a  high  parity 
birth,  all  of  which  are  more  likely  to  be  unintended  and  associated 
with  adverse  perinatal  outcome. 

A  focal  point  for  lowering  infant  mortality  is  to  improve 
services  designed  to  help  women,  especially  teenagers,  avoid  unwanted 
pregnancies.   Pregnant  Black  women  are  less  likely  to  receive  prenatal 
care  early  in  pregnancy.   In  1982,  61  percent  of  Black  mothers 
received  care  in  the  first  trimester  compared  with  79  percent  of  White 
mothers.   Black  mothers  were  twice  as  likely  as  White  mothers  (10 
percent  versus  5  percent)  to  receive  either  no  care  or  care  beginning 
in  the  third  trimester  of  pregnancy  (5).   It  is  also  possible  that 
there  is  a  biologic  role  influencing  birthweight  that  gives  a 
different  meaning  to  low  birthweight  for  Blacks  than  for  Whites.   This 
issue  deserves  research  attention.   It  is  clear,  unfortunately,  that 
normal  weight  Black  babies  have  far  higher  rates  of  neonatal  mortality 


177 


than  White  babies.   This  may  reflect  the  prenatal  care  received,  other 
health  behaviors  of  the  mothers,  quality  of  care  in  hospitals 
providing  routine  obstetrical  care,  or  other  factors.   To  the  extent 
that  deaths  occur  after  the  baby  has  left  the  hospital,  excess  deaths 
may  reflect  living  conditions  or  health  knowledge  and  health  behavior 
on  the  part  of  the  mother  and  family. 

Postneonatal  mortality  rates  are  higher  for  Blacks  for  all  major 
causes  of  death  except  congenital  anomalies.   Sudden  infant  death 
syndrome  (SIDS)  is  the  leading  cause  of  postneonatal  death,  and 
research  is  continuing  on  its  causes  and  prevention.   Accidents  are 
another  major  cause  of  death  and  may  be  related  to  dimensions  of 
living  conditions,  knowledge  of  health  behaviors,  or  quality  of  care 
provided  to  children  (7).   Among  all  groups,  the  mother's  education  is 
strongly  associated  with  infant  mortality,  presumably  because  it  taps 
these  dimensions,  as  well  as  reflecting  access  to  well  and  sick  baby 
health  care  services.   There  are  a  number  of  specific  risks  regarding 
adverse  pregnancy  outcome  such  as  the  role  of  stress  or  infection  that 
are  suspected  of  influencing  the  disparity  between  Black  and  White 
rates.   Specific  health  conditions  related  to  perinatal  outcome  among 
Blacks  are  discussed  in  the  report.   In  many  cases,  research  currently 
under  way  should  add  to  the  presumptive  evidence  for  the  effect  of 
these  factors  or  their  relationship  with  race.   The  relationship  of 
economic  conditions  to  health,  especially  infant  mortality,  is  another 
area  that  deserves  further  research.   The  Subcommittee  urges  that 
further  research  address  these  factors. 

Hispanics 

As  the  second  largest  minority  group,  Hispanics  present  a  complex 
picture  in  terms  of  low  birthweight  and  infant  mortality.   There  is 
considerable  variation  within  the  Hispanic  population,  and  while 
postneonatal  mortality  rates  are  elevated,  the  birthweight 
distributions  are  generally  favorable.   Subgroups  must  be  discussed 
separately,  however. 

Mexican  Americans 

As  the  largest  component  of  the  Hispanic  population  in  the  United 
States,  and  given  their  geographic  concentration,  there  are  more  data 
on  Mexican  Americans  than  for  other  groups.   Babies  of  Mexican 
American  mothers  have  a  relatively  good  birthweight  distribution, 
which  is  somewhat  surprising  given  their  social  and  economic 
characteristics.   Demographically,  Mexican  American  women  have  fairly 
high  rates  of  teen  childbearing  and  more  high-parity  births.   Their 
rates  of  out-of-wedlock  childbearing  are  lower  than  those  for  Black 
women  (but  higher  than  those  for  Whites),  and  there  is  a  greater 
tendency  to  be  in  a  two-parent  household  than  among  Black  mothers. 

Only  58  percent  of  Mexican  American  mothers  begin  prenatal  care 
in  the  first  trimester,  less  than  for  Blacks  or  non-Hispanic  Whites  (5) 
The  neonatal  mortality  rate  appears  good  in  some  analyses,  but 


178 


other  studies  suggest  that  rates  are  artificially  low  due  to 
underreporting  (8).   Recent  studies  suggest  that,  compared  with 
non-Hispanic  Whites,  Mexican  Americans  have  higher  neonatal  mortality 
at  any  particular  birthweight  (9). 

This  debate  draws  attention  to  the  data  and  research  needed  to 
address  the  interrelationships  among  intrinsic  birthweight 
distribution,  health  behaviors  and  prenatal  care,  and  the  access  to 
and  use  of  health  care  services.   For  Mexican  Americans,  the  question 
of  how  individual  health  endowments  and  behaviors  affect  perinatal 
outcome  are  complicated  further  by  the  role  of  migration.   The 
selectivity  of  migration  may  mean  that  Mexican  women  who  migrate  to 
the  United  States  represent  a  selected,  or  healthier,  subgroup. 
Because  many  Mexican  American  women  are  of  low  socioeconomic  status, 
issues  regarding  access  to  subsidized  care  are  extremely  important  to 
them  and  to  the  outcome  of  their  pregnancies . 

Puerto  Ricans 

The  birthweight  and  hence  infant  mortality  rates  for  United 
States -born  Puerto  Ricans  are  less  favorable  than  those  for  Mexican 
Americans.   The  low  birthweight  rate  is  9.1  percent  overall  and  9.6 
percent  for  United  States -born  Puerto  Ricans.   This  is  the  highest  for 
any  Hispanic  group.   The  proportion  of  low  birthweight  is  between  the 
rates  for  Whites  and  for  Blacks.   This  is  not  too  surprising  because 
their  childbearing  rates  are  in  many  ways  more  like  patterns  seen  in 
the  Black  population  than  those  seen  among  other  Hispanics.   For 
example,  among  Puerto  Ricans,  48  percent  of  births  were  out  of 
wedlock,  but  among  Mexican  Americans,  it  was  only  14  percent.   The 
economic  circumstances  of  many  Puerto  Rican  women  are  such  that 
considerations  regarding  socioeconomic  status,  access  to  health  care, 
and  health  education  and  behaviors  that  apply  to  Blacks,  apply  to 
Puerto  Ricans  as  well.   Fuller  understanding  of  the  differences  among 
the  several  Hispanic  populations  requires  better  data  systems  that 
collect  information  on  ethnicity  and  requires  creative  ways  of  dealing 
with  data  for  small  subpopulations . 

Cubans  and  Other  Hispanics 

Data  on  birthweight  show  a  favorable  distribution  for  Cubans. 
The  low  birthweight  rate  for  Cubans  is  5.8  percent;  it  is  somewhat 
higher  among  United  States -born  Cuban  mothers.   This  is  not 
surprising,  given  their  apparently  better  socioeconomic  status  than 
that  of  Mexican  American  or  Puerto  Rican  women.   For  example,  Cuban 
women  have  a  relatively  low  proportion  of  births  occurring 
out-of-wedlock  (14  percent)  and  high  rates  of  use  of  prenatal  care  (80 
percent  beginning  in  the  first  trimester) .   It  is  not  presently 
possible  to  construct  mortality  rates  for  Cuban  births;  moreover,  much 
of  the  research  does  not  provide  sufficient  information  on  ethnicity 
or  a  large  enough  number  of  cases  to  draw  conclusions  about  Cuban  or 
other  Hispanic  outcomes . 


179 


Native  Americans 

National  data  for  American  Indians  and  Alaska  Natives  indicate 
that  birthweight  distribution  and  neonatal  mortality  for  Native 
Americans  are  quite  good  and  have  shown  improvement  over  time. 
Unfortunately,  postneonatal  mortality  is  quite  high.   The  reduction  in 
postneonatal  mortality  should  be  a  high  priority.   Special 
considerations  for  American  Indian  and  Alaska  Natives  are  the  high 
rates  of  death  from  unintentional  injuries  and  the  possible  influence 
of  diabetes  or  alcohol  use  of  the  mother  on  perinatal  outcome  or 
postneonatal  deaths  (10).   As  with  all  populations,  health  education, 
living  conditions  and  access  to  health  care  are  especially  important. 
Use  of  well  baby  care  and  the  quality  of  sick  baby  care  must  be 
considered. 

Neonatal  mortality  rates  and  the  birthweight  distribution  are 
favorable  and  have  improved  along  with  improvements  in  prenatal  care 
for  American  Indians  and  Alaska  Natives.   These  good  outcomes  are 
observed  despite  the  relatively  poor  patterns  of  prenatal  care  among 
American  Indians  and  Alaska  Natives  with  far  more  women  receiving  late 
prenatal  care  or  no  prenatal  care  at  all  than  among  Whites. 
Birthweight  has  the  predictable  relationship  with  prenatal  care--i.e., 
the  earlier  the  care,  the  better  the  birthweight--but  the  level  of 
care  is  depressed  and  birthweight  is  not.   Clearly  there  is  room  for 
improvement  in  the  receipt  of  prenatal  care,  but  a  number  of  questions 
are  raised. 

Data  problems,  evident  for  other  subgroups,  are  even  greater  for 
Native  Americans.   Diversity  within  the  Native  American  population  and 
likely  changes  over  time  in  the  proportion  of  American  Indians  who  so 
declare  themselves  in  official  documents  create  special  problems.   The 
Indian  Health  Service  data  systems  are  an  excellent  beginning  for 
understanding  infant  mortality,  but  additional  data  are  highly 
desirable. 

Asian/Pacific  Islanders 

The  Asian/Pacific  Islander  population  within  the  United  States  is 
quite  diverse,  and  available  data  are  often  not  adequate.   In  general, 
perinatal  outcomes  are  good  among  Asian/Pacific  Islander  women  with 
relatively  low  rates  of  low  birthweight  (6.5  percent).   Chinese  had 
the  lowest  rate  (5.3  percent)  and  Filipinos  the  highest  rate  (6.9 
percent)  of  low  birthweight.   Asian/Pacific  Islander  mothers  are  less 
likely  than  White  mothers  to  be  teenagers  (6  percent  versus  12  percent 
among  Whites)  or  unmarried  (8.4  percent  vs.  12.1  percent  for  Whites). 
Maternal  education  and  socioeconomic  status  are  relatively  high  among 
many  Asians,  and  prenatal  care  patterns  are  good,  with  75  percent 
beginning  care  in  the  first  trimester.   Southeast  Asian  refugees 


180 


present  a  somewhat  different  picture,  with  considerable  variability 
and  numbers  too  small  to  permit  national  estimates  of  rates.   Some 
groups,  for  example  the  Hmong,  have  cultural  patterns  of  very  early 
childbearing  that  may  place  them  at  greater  perinatal  risk. 


OPPORTUNITIES   FOR   PROGRESS 

The  following  are  highlights  of  the  Subcommittee's  deliberations 
regarding  needs  in  the  area  of  infant  mortality: 

•  Personal  reproductive  responsibility  should  be  enhanced  through  a 
variety  of  channels,  including  enlarged  content  of  health 
education  for  providers  and  lay  audiences,  improved  family 
planning  services,  research  on  prevention  of  unplanned 
pregnancies,  and  the  development  of  improved  approaches  to 
fertility  regulation.   Further  research  is  needed  on  behaviors 
associated  with  unplanned  pregnancies,  including  perceived  risks 
and  benefits  of  methods  of  fertility  regulation.   This  is 
especially  true  for  teenage  women  who  constitute  an  important 
segment  of  the  minority  childbearing  population. 

•  Since  many  risks  exist  before  pregnancy  or  are  actualized  early 
in  pregnancy,  steps  should  be  taken  to  improve  our  ability  to 
increase  minority  women's  knowledge  of  risks  during  pregnancy  and 
of  the  value  of  early  and  ongoing  prenatal  care.   Research  should 
elaborate  the  mechanisms  by  which  the  planning  of  pregnancies 
influences  prenatal  care  and  pregnancy  outcome.   Behavioral 
approaches  to  accurate  dating  of  pregnancies  should  be  explored. 

•  Use  of  prenatal  care  is  influenced  by  the  availability  and 
accessibility  of  services.   Many  minority  women,  especially 
teenagers,  receive  their  care  through  Federal  or  State-subsidized 
services  or  must  pay  for  their  own  care.   It  is  important  to 
lower  barriers  created  by  coverage  patterns  for  high-risk  women 
low  physican  participation  in  Medicaid;  problems  with  processing 
claims/eligibility  quickly;  caring  for  women  who  move  during 
pregnancy;  and  others. 

•  Provision  of  technical  assistance  to  State  Title  V  agencies  and 
other  providers  of  care  for  mothers  and  infants  interested  in 
trying  innovative  approaches  to  funding  care  programs.   Continue 
to  monitor  changes  in  expanded  eligibility  resulting  from  the 
Child  Health  Assistance  Program  (CHAP)  in  terms  of 
characteristics  of  new  eligibles,  use  of  care  and  outcomes. 

•  High-risk  women  often  need  a  larger  array  of  services  than 
others,  and  minority  women  are  often  high  risk.   The  Subcommittee 
recommends  ways  to  address  these  needs  through  expanded  nutrition 
supplements,  health  education  services,  provider  and  patient 
education  regarding  risk  assessment,  and  recognition  of  preterm 
labor  and  removal  of  arbitrary  limits  to  services. 


181 


•  Special  attention  should  be  given  to  aspects  of  prenatal  care 
designed  to  identify  women  at  risk  of  preterm  labor.   Presently 
there  are  innovative  programs  designed  to  identify  and  treat 
women  at  risk  of  preterm  labor.   These  programs  should  be 
evaluated  and  considered  for  replication.   Similarly, 
regionalization  of  care  for  women  at  high  risk  has  been  valuable 
and  should  be  maintained. 

•  Although  it  is  clear  that  early  prenatal  care  is  valuable,  it  is 
also  clear  that  more  should  be  known  about  how  the  specific 
components  of  care  influence  women's  likelihood  of  coming  for 
care  and  the  effect  of  that  care.   Research  is  needed  on  the 
other  health-related  behaviors  women  may  engage  in  during 
pregnancy  that  are  related  to  pregnancy  outcome  but  not 
necessarily  a  part  of  typical  prenatal  care.   Special  attention 
should  be  given  to  improving  techniques  to  help  pregnant  women 
stop  smoking. 

•  A  number  of  conditions  can  be  screened  during  pregnancy  and 
knowledge  of  identified  risks  can  then  influence  treatment  or 
type  of  care.   For  example.  Black  women  are  at  increased  risk  of 
bearing  twins,  and  multiple  pregnancies  are  high  risk  for  early 
labor  and  adverse  outcome;  recent  immigrants,  especially  Asians 
and  those  from  parts  of  the  developing  world,  are  at  risk  of 
hepatitis  B  which  affects  the  neonate  and  creates  a  carrier  pool. 
Screening  for  such  conditions  is  important  to  secure  optimal 
care. 

•  A  number  of  areas  require  improved  research  and  attention  by 
health  providers,  such  as  the  role  of  stress,  type  of  employment, 
transportation  problems,  and  nutrition  on  pregnancy,  the  use  of 
prenatal  care  and  pregnancy  outcome.   Comprehensive  health 
education  for  providers  and  information  campaigns  for  the  public 
could  address  avoidable  health  risks  during  pregnancy. 

•  A  model  state  brochure  should  be  developed  for  low-income 
pregnant  women  describing  simply  how  and  where  to  obtain  Medicaid 
eligibility,  the  need  for  early  care,  avoidable  risks  to  the 
fetus  (e.g.,  smoking),  and  a  list  of  providers  accepting  Medicaid. 
Assure  that  the  message  is  delivered  to  high-risk  groups  in 
culturally  appropriate  forms. 

•  The  Federal  Government  should  continue  to  review  and  sponsor 
mechanisms  to  aid  in  local  and  state  investigations  of  infant 
deaths  in  areas  of  high  or  changing  infant  mortality  rates. 

•  The  Department  should  coordinate  with  the  American  College  of 
Obstetricians  and  Gynecologists  and  other  professional  organiz- 
ations to  review  the  influence  of  malpractice  insurance  on  Medicaid 
participation  and  to  seek  an  appropriate  vehicle  for  assessing 

the  role  of  uncompensated  care  in  influencing  pregnancy  outcome. 


182 


Assess  evaluations  and  consider  replication  of  innovative  models 
of  active  follow-up  programs  to  support  families  of  infants  at 
high  risk  of  postneonatal  disease.   Support  groups  in  other 
disease  areas  have  had  documented  successes.   Their  value  in 
regard  to  assisting  parents  of  high-risk  infants  should  be 
evaluated. 

Many  postneonatal  deaths  are  due  to  injury.   The  recent 
improvements  in  seat  belt  protection  for  children  and  childproof 
containers  should  serve  as  a  model  for  preventing  other  sources 
of  accidental  death  for  infants.   The  1990  Objectives  for  the 
Nation  which  have  focused  attention  to  the  role  of  seat  belts  in 
child  safety,  and  other  areas  (such  as  death  from  burns)  could  be 
considered  at  the  mid-decade  review. 

To  understand  better  the  interplay  of  social,  biological  and 
environmental  factors  associated  with  low  birthweight  and  the 
relationship  of  low  birthweight  to  infant  mortality  among 
minority  groups,  research  should  address  birthweight-specif ic 
mortality  rates  for  minority  groups,  investigate  the  role  of 
nutrition  or  generational  effects  as  an  influence  on  the 
relatively  high  low  birthweight  rates  for  apparently  low-risk 
Black  women,  and  attempt  to  verify  and  explain  the  apparently 
favorable  birthweight  distributions  found  among  Mexican  American 
and  Native  American  women. 

Research  on  the  perinatal  period  has  paid  far  less  attention  to 
the  factors  associated  with  postneonatal  mortality.   It  is 
recommended  that  research  be  increased  and  directed  at  the 
preventable  causes  of  postneonatal  mortality,  including  the 
interrelationship  of  individual  and  familial  behaviors,  health 
care  delivery  factors,  use  of  well  and  sick-baby  care; 
immunizations  for  babies,  and  sources  of  accidental  death  such  as 
risks  associated  with  substandard  housing. 

Research  is  needed  on  the  link  between  economic  conditions  and 
infant  mortality  to  specify  better  the  interplay  between  the 
individual,  financing  differences,  and  structural  factors. 
Expanded  research  on  economic  aspects  of  infant  mortality  in 
conjunction  with  sociocultural  factors  may  help  explain  the 
relatively  good  outcomes  experienced  by  Asian/Pacific  Islanders 
and  Native  Americans. 

Most  of  the  large  programs,  like  Maternal  and  Infant  Care  (MIC), 
Improve  Pregnancy  Outcome  (IPO),  and  the  Special  Supplemental 
Food  Program  for  Women,  Infants,  and  Children  (WIC)  have  only 
partially  been  evaluated.   More  complete  evaluations  of  these 
programs  should  be  undertaken.   Evaluation  techniques  have  not 
kept  pace  with  the  programs;  specific  recommendations  for 
strengthening  evaluations  are  made  in  the  Subcommittee  report. 


183 


Evidence  is  accumulating  to  document  the  value  of  nutrition 
programs  (such  as  WIC).   Continued  research  and  implementation 
should  be  considered. 

•  States  should  be  encouraged  to  modify  their  birth  and  death 
certificates  to  include  better  identification  of  ethnic  groups, 
especially  Hispanics  (already  available  on  the  certificates  from 
22  states).   Furthermore,  the  addition  of  certain  new  items  of 
information  on  the  birth  certificate  (such  as  smoking, 
prepregnancy  weight  and  height,  and  insurance  coverage,  and  so 
forth)  could  be  extremely  beneficial  in  monitoring  and  studying 
the  factors  that  influence  pregnancy  outcome. 

•  The  National  Infant  Mortality  Surveillance  project  done  by  CDC  in 
collaboration  with  NICHD,  HRSA,  NCHS  and  the  State  vital 
registrars  is  developing  a  national  data  base  of  linked  birth  and 
death  records  for  1980  that  will  provide  valuable  data  for 
analyzing  infant  mortality.   The  extension  of  this  project  to  a 
linked  birth  and  death  record  for  all  births  and  infant  deaths  is 
planned  by  NCHS.   It  is  strongly  recommended  that  this  project 
begin  with  the  1982  birth  cohort  and  be  continued. 

•  Much  of  the  evaluative  research  on  infant  mortality  interventions 
was  undertaken  before  some  major  changes  in  the  U.  S. 
demographics,  poverty  populations,  financing  shifts  and  changes 

in  treatment  systems .   It  is  recommended  that  more  contemporary 
data  collection  and  prospective  studies  be  undertaken.   Data 
should  be  disaggregated  by  race  and  ethnicity,  providing  detail 
within  major  ethnic  groups  such  as  Hispanics,  and  adequate  cases 
for  comparison  of  adolescent  with  nonadolescent  mothers. 

•  Data  on  insurance  coverage  of  women  and  infants  should  be 
improved,  especially  in  regard  to  those  eligible  and  receiving 
Medicaid.   These  data  could  aid  in  our  understanding  of  the  role 
of  financing  and  service  delivery  issues  regarding  infant 
mortality. 

•  Several  national  data  bases  (e.g.,  the  National  Natality  Survey, 
the  National  Survey  of  Family  Growth,  and  the  National 
Longitudinal  Survey- -Youth  Cohort)  include  rich  data  regarding 
pregnancy  outcome.   Improvements  are  recommended  to  enhance  their 
value  in  regard  to  increasing  knowledge  of  infant  mortality/low 
birthweight  for  minorities  and  for  research  on  teenage 
childbearing. 

•  Research  on  some  ethnic  groups  (e.g. ,  Indochinese  refugees)  will 
be  better  served  by  data  collection  and  research  efforts  directly 
addressing  their  health  concerns,  rather  than  oversampling  in 
multipurpose  surveys.   In  other  cases,  valuable  data  sets  exist 
regarding  specific  minority  groups  and  could  receive  further 
analysis,  e.g.,  the  Puerto  Rican  Fertility  Survey  or  Indian 
Health  Service  data. 


184 


The  opportunities  summarized  above  point  to  issues  in  education, 
information,  research,  and  services  where  advances  could  be  made. 
Infant  mortality  is  a  complex  problem  with  many  medical  and 
nonmedical  aspects.   There  are  no  simple  solutions,  but  there  are 
many  things  that  we  know  about  fertility,  pregnancy  and  infant  care 
that  can  help  address  the  problem  of  infant  mortality,  a  problem  that 
takes  a  disproportionate  toll  on  minorities. 


185 


REFERENCES 


1.  National  Center  for  Health  Statistics.   (1984,  September  21). 

Annual  summary  of  births ,  deaths ,  marriages ,  and 
divorces:  United  States,  1983.   Monthly  Vital 
Statistics  Report  32(13).   Hyattsville,  MD:   Author. 

2.  National  Center  for  Health  Statistics.   (1984,  December). 

Health,  United  States,  1984  (DHHS  Publication  No.  (PHS) 
85-1232).   Hyattsville,  MD:   Author. 

3.  Wallace,  H.  M. ,  Goldstein,  H. ,  &  Erickson,  A.   (1982).   Comparison 

of  infant  mortality  in  the  United  States  and  Sweden.   Clinical 
Pediatrics,  2j.,  156-162. 

4.  McCormick,  M.  C.   (1985).   The  contribution  of  low  birth  weight  to 

infant  mortality  and  childhood  morbidity.   New  England 
Journal  of  Medicine,  312,  82-90. 

5.  National  Center  for  Health  Statistics.   (1984,  September  28). 

Advance  report  of  final  natality  statistics:   United  States, 
1982.   Monthly  Vital  Statistics  Report,  33(6),  Supplement. 

6.  National  Center  for  Health  Statistics.   (1984,  December  20). 

Advance  report  of  final  mortality  statistics:   United  States 
1982.   Monthly  Vital  Statistics  Report,  22(8),  Supplement. 

7.  National  Center  for  Health  Statistics.   (1984).   Vital  Statistics 

of  the  United  States,  1979,  Volume  lI--Mortality , 

Part  A  (DHHS  Publication  No.  (PHS)  84-1101).   Hyattsville, 

MD :   Author . 

8.  Markides,  K.  S.,  &  Hazuda,  H.  P.   (1980).   Ethnicity  and  infant 

mortality  in  Texas  counties.   Social  Biology,  27,  261-271. 

9.  Williams,  R.  L. ,  Binkin,  N.  J. ,  &  Clingman,  E.   (in  press). 

Pregnancy  outcomes  among  Hispanic  women  in  California. 
American  Journal  of  Public  Health. 

10.  Indian  Health  Service.   (1984,  June).   Indian  Health  Service 

chart  book  series  (No.  421-166:4393).   Washington,  DC: 
U.S.  Government  Printing  Office. 


186 


HEALTH   SERVICES  AND   RESOURCES   FOR  MINORITIES 


Introduction 

The  health  status  differences  observed  among  U.S.  population 
groups  are  in  part  related  to  the  health  care  resources  and  services 
available  to  individuals.   Some  of  the  factors  that  cut  across 
disease-related  areas  and  affect  health  status  patterns  are:  health 
services'  utilization;  health  care  financing;  availability  of  health 
care  facilities  and  personnel;  health  knowledge  and  behavior;  and  the 
influence  of  health  education  on  health  knowledge  and  behavior.   The 
Task  Force  examined  these  factors  and  analyzed,  where  possible,  their 
impact  upon  the  health  of  minorities. 

Access,    Utilization,   and   Financing 

National  surveys  measuring  current  health  care  utilization 
indicate  that  minority  populations  receive  health  care  services  at 
levels  similar  to  those  of  nonminorities ;  differences,  however,  in  the 
patterns  of  utilization  remain.   The  large  differences  in  gross 
indicators  of  health  care  access  and  utilization,  such  as  number  of 
visits  to  a  physician,  that  existed  between  nonminority  and  minority 
populations  have  diminished  since  the  creation  of  Medicaid  and 
Medicare.   Both  of  these  important  health-financing  programs  have 
enabled  large  segments  of  disadvantaged  and  older  minorities  to  gain 
access  to  needed  health  care.   However,  the  poor  health  status 
observed  in  many  minority  groups  and  differences  remaining  between 
minorities  and  nonminorities  in  types  of  care  and  financing,  suggest 
that  minorities  still  have  poorer  access  to  and  use  of  comprehensive 
and  high-quality  health  care. 

Detailed  national-level  data  describing  the  health  service 
patterns  of  U.S.  minority  populations  are  not  available.   The  minority 
groups  for  whom  the  most  health  information  is  available  are  Blacks 
and,  to  a  lesser  extent,  Hispanics .   Data  describing  Hispanic 
subgroups  are  limited  and  generally  obtainable  only  through  combining 
several  years  of  national  survey  data  or  through  small  studies. 
Comprehensive  data  on  the  health  service  patterns  for  many  Native 
Americans  are  not  available.   Although  the  Indian  Health  Service  (IHS) 
data  describe  the  extent  and  nature  of  the  services  provided, 
it  serves  only  those  residing  on  or  near  reservations,  approximately 
60  percent  of  the  American  Indian  and  Alaska  Native  population  (") .   The 


Calculations  are  based  on  the  following  formula: 

1980  Census  =  1.5  million  American  Indians  and  Alaska  Natives 
IHS  service  population  =  888,000  (i.e.,  59  percent  of  total) 
Two-thirds  live  off  the  reservation. 


187 


Asian/Pacific  Islander  population  includes  many  subgroups  that  differ 
in  cultural  characteristics,  health  needs,  and  health  care  patterns. 
Because  few  sources  identify  subgroups  and  because  Asian/Pacific 
Islanders  account  for  less  than  2  percent  of  the  U.S.  population, 
very  little  information  about  health  services  to  this  minority 
and  its  subgroups  exists.   Most  data  on  Asian/Pacific  Islanders 
reflect  dominant  subgroups  such  as  the  Chinese,  Japanese,  and 
Filipinos.   The  following  discussion,  therefore,  concentrates  on 
information  relating  to  Blacks  and,  when  available,  other  minorities. 

Use  of  Health   Professionals 

From  1978  to  1980,  the  National  Health  Interview  Survey,  reported 
4.7  as  the  average  annual  number  of  physician  visits  per  person  in 
this  country.   The  number  of  visits  was  similar  for  Black,  Hispanic, 
and  White  populations,  although  Mexican  Americans,  at  3.7  had  a 
noticeably  fewer  visits.   When  these  data  are  examined  by  age, 
however,  more  pronounced  differences  in  utilization  patterns  emerge. 
The  average  annual  number  of  physician  visits  for  minority  children  is 
fewer  than  for  White  children.   On  the  average.  White  children  under 
age  17  visit  a  physician  4.5  times  each  year  compared  to  3.5  for 
Hispanic  children  and  3.2  for  Black  children  (1).   Vaccination  rates 
among  children,  an  important  indicator  of  the  use  of  preventive  health 
measures,  also  show  differences.   Sixty-seven  percent  of  White 
children,  one  to  four  years  old,  were  vaccinated  against  measles  in 
1983  compared  with  only  57  percent  of  minority  children  (2). 

A  clear  pattern  of  lower  use  of  preventive  health  services  is 
seen  among  minority  adult  populations.   Nearly  eight  out  of  ten  White 
women  seek  prenatal  care  during  the  first  trimester  of  pregnancy 
though  only  six  out  of  every  ten  Black  women  seek  this  care.   Except 
for  Cuban  women,  rates  of  prenatal  care  in  the  first  trimester  among 
Hispanics  women  from  the  22  States  that  report  Hispanic  origin  are 
lower  than  those  of  Black  women;  rates  for  Native  American  women  are 
among  the  lowest  of  any  racial  or  ethnic  group  in  the  United  States. 
Asian/Pacific  Island  women,  as  a  group,  have  levels  of  first  trimester 
prenatal  care  similar  to  those  of  White  women  (2);  however,  rates  vary 
significantly  between  the  different  subgroups.   Unfortunately, 
detailed  national  information  about  screening  and  diagnostic  services 
received  by  different  population  groups  is  not  available.   Limited 
studies  indicate  that  nonminorities  receive  more  cancer-screening 
tests,  breast  examinations,  prostate  palpations,  and  proctoscopies 
than  do  minorities  (3) . 

Dental  services  are  used  less  frequently  by  minority  populations 
than  by  nonminorities.   From  1978  to  1980,  56  percent  of  Whites 
reported  visiting  a  dentist  in  the  previous  year  compared  with  37 
percent  of  Blacks.   Hispanics  also  visited  dentists  less  frequently 
than  Whites.   Among  Hispanic  subgroups,  Mexican  Americans,  at  35 
percent,  had  the  lowest  percentage  of  dental  visits  in  the  previous 
year  (1).   Forty-eight  percent  of  Asian/Pacific  Islanders  and  40 
percent  of  Native  Americans  (4)  reported  visiting  a  dentist  during  the 


188 


previous  year.   The  lower  use  of  dental  services  by  minority 
populations  begins  in  childhood;  68  percent  of  White  children,  ages  4 
to  16  years,  were  reported  to  have  seen  a  dentist  in  the  previous 
year.   The  rate  was  44  percent  for  Black  children,  ages  6  to  14  years, 
and  39  percent  for  Mexican  American  children  (1). 

Sources  of  Care 

Having  a  usual  source  of  medical  care  has  been  found  to  be  a  good 
predictor  of  use  of  health  services  and  suggests  a  greater  continuity 
of  care,  associated  with  improved  health  outcomes.   A  1977  study  of 
national  medical  care  behavior  reported  that  13  percent  of  Whites  have 
no  usual  source  of  medical  care;  20  percent  of  Blacks  and  19  percent 
of  Hispanics  reported  this  (5). 

Continuity  of  health  care  is  related  to  the  location  of  medical 
service.   There  is  greater  continuity  of  care  when  patients  are  able 
to  revisit  the  same  provider.   Seventy  percent  of  the  White  population 
reported  using  a  physician's  office  as  their  usual  source  of  care 
compared  with  54  percent  of  Hispanics  and  46  percent  of  Blacks.   Twice 
as  many  Blacks  and  Hispanics  as  Whites  reported  hospitals  and  health 
clinics  as  their  usual  source  of  medical  care  (5).   The  widespread  use 
of  hospitals  and  public  health  clinics  for  medical  care  by  Blacks  also 
was  documented  in  the  1980  NHIS.   In  that  year,  25  percent  of  all 
visits  to  physicians  made  by  Blacks  occurred  in  hospital  clinics  or 
emergency  rooms  compared  with  11  percent  by  Whites  (6). 

The  same  survey  also  revealed  differences  in  the  patterns  of 
hospital  utilization  by  minority  groups.   From  1978  to  1980,  Blacks 
reported  hospital  stays  that  averaged  two  days  longer  than  those  of 
Whites  (11  days  versus  9  days).   The  average  hospital  duration  for 
Hispanics  was  slightly  shorter  than  that  for  Whites  (1). 

Ability  to  Pay  for  Services 

A  prerequisite  for  access  to  medical  care  is  the  ability  to  pay 
for  services,  which  in  turn  largely  depends  on  income  and  health 
insurance.   The  median  income  for  all  Black  and  Hispanic  families  is 
substantially  lower  than  for  White  families  resulting  in  less 
disposable  income  available  for  the  direct  and  indirect  purchase  of 
health  care.   Family  income  for  Asian/Pacific  Islanders,  however,  is 
not  low,  due  in  part  to  living  patterns  in  which  several  wage-earning 
adults  live  in  the  same  household,  although  their  individual  wages  may 
be  low.   Viewing  the  Asian/Pacific  Islander  household  income  only  on  a 
national  average  level  masks  subpopulation  differences  and  the  wide 
diversity  of  income  levels. 

Health  Insurance 

Payment  for  health  services  is  generally  made  through  some  form 
of  health  insurance.   Although  a  survey  conducted  in  1982  by  the 
Robert  Wood  Johnson  Foundation  found  that  only  about  nine  percent  of 


189 


the  American  population  had  no  health  insurance  coverage  of  any  kind. 
Black  and  Hispanic  groups  had  noninsurance  rates  that  were  two  to 
three  times  higher  than  Whites  (7) .   Recent  systematic  information 
about  the  insurance  status  of  Asian/Pacific  Islanders  and  American 
Indians  and  Alaska  Natives  living  outside  IHS  service  areas  is  not 
available.   The  predominant  source  of  funding  for  health  care  for 
those  under  65  years  old  in  the  United  States  is  employment -based 
third-party  health  insurance.   However,  because  most  minorities 
experience  higher  unemployment  rates,  fewer  minorities  can  obtain  this 
kind  of  health  insurance  (8). 

Medicaid  has  become  an  important  source  of  health  insurance  for 
many  minorities.   The  1982  Robert  Wood  Johnson  survey  found  that  20 
percent  of  Blacks  and  13  percent  of  Hispanics  use  Medicaid  as  their 
only  source  of  health  insurance  (7). 

Although  Medicaid  has  enabled  many  minority  families  to  have 
access  to  medical  care,  reimbursement  schedules  limit  the  range  of 
available  health  services,  and  frequent  changes  in  program  eligibility 
tend  to  disrupt  the  continuity  of  health  care. 

In  addition  to  Medicaid,  funding  for  medical  services  for 
refugees  is  available  through  Title  XIX  State  medical  programs.   This 
program  particularly  affects  several  of  the  Asian/Pacific  Islander 
populations.   During  their  first  18  months  in  this  country,  most 
Southeast  Asian  refugees  are  covered  by  Medicaid  or  receive  medical 
help  through  Refugee  Medical  Assistance. 

Having  some  form  of  health  insurance  is  related  to  using  health 
services  and  to  whether  people  report  having  a  usual  source  of  medical 
care  (9).   Twenty-five  percent  of  the  medically  uninsured  report 
having  no  usual  source  of  care  compared  to  only  13  percent  of  those 
covered  by  private  insurance,  11  percent  of  those  covered  by  Medicare, 
and  15  percent  of  those  enrolled  in  Medicaid  (5) . 

The  continuity  of  health  insurance,  generally  defined  as  the 
proportion  of  the  year  a  person  is  covered  by  health  insurance,  is 
related  to  employment  status  and  to  changes  in  Medicaid  eligibility, 
and  has  an  impact  upon  health  care  utilization.   Greater  proportions 
of  minority  groups  are  without  insurance  for  some  portion  of  the  year 
than  are  the  nonminority  population.   Those  with  less  continuity  of 
health  insurance  use  health  services  less  frequently  than  those  who 
are  insured  all  year  round  (9). 

Though  all  Americans  65  years  of  age  or  older  are  covered  by 
Medicare,  it  does  not  provide  full  reimbursement  for  all  health  care 
needs.   The  White  population  supplements  Medicare  with  private 
insurance  twice  as  often  as  does  the  Black  population  (69  percent 
versus  31  percent)  (10).   Although  data  are  sparse,  an  analysis  of 
Medicare  utilization  information  in  1978  revealed  that  more  Whites 
than  non-Whites  were  reimbursed  for  physician  and  other  medical 
services  (597  per  1,000  of  enrolled  Whites  versus  521  per  1,000 


190 


enrolled  non-Whites).   Reimbursement  amounts  per  person  served  that 
year  also  appear  to  be  more  for  Whites  ($373)  than  for  non-Whites 
($348)  (11). 

Knowledge  of  the  health  care  utilization  and  access  patterns  of 
minority  populations  is  fragmented,  because  little  or  no  information 
is  available  for  minority  population  subgroups.   More  data  on  these 
populations  is  needed  for  a  fuller  understanding  of  the  health  care 
services  they  are  actually  receiving  and  need. 

Health  Professionals 

One  of  the  key  elements  of  quality  health  care  is  the 
availability  of  well-trained  health  care  providers.   The  degree  to 
which  the  availability  of  these  professionals  differs  between  minority 
and  nonminority  groups  may  play  a  crucial  role  in  reducing  disparities 
in  overall  health  status.   The  Task  Force  compiled  and  analyzed  data 
on  the  distribution  of  health  personnel  in  counties  where  at  least  20 
percent  of  the  population  consists  of  a  single  minority  (12).   Although 
analyses  indicate  that  some  counties  with  a  high  density  of  Blacks, 
Hispanics,  and  Asian/Pacific  Islanders  had  numbers  of  health  care 
professionals  at  least  equal  to  the  number  located  in  areas  with  a 
lower  proportion  of  minorities,  this  "index  of  availability"  of  care 
may  be  misleading.   County-wide  distribution  of  physicians  and  other 
health  care  professionals  does  not  reveal  practice  patterns, 
accessibility,  or  actual  availability  of  those  professionals  to 
individual  minority  communities.   Furthermore,  since  many  of  the 
counties  analyzed  are  urban,  this  information  may  simply  reflect  the 
tendency  for  health  care  professionals  to  cluster  in  cities. 
County-level  analyses  of  physician  distribution,  for  example,  do  not 
indicate  the  number  of  professionals  who  accept  Medicaid/Medicare 
payments  or  whose  practices  might  be  located  in  minority  areas.   Many 
areas  with  larger  numbers  of  professionals  also  tend  to  be  those  with 
medical  schools  or  other  institutions  whose  teaching  staff  are 
not  available  as  practitioners.   Thus,  the  truly  available  resources 
for  minority  health  care  may  be  considerably  less  than  implied  by 
statistics . 

Existing  studies  suggest  that  health  professionals  who  are  from 
the  same  cultural  background  as  their  patients  may  be  able  to 
communicate  better  with  their  patients  and  thereby  have  a  positive 
influence  on  many  of  the  factors  that  affect  health  outcome. 
However,  with  some  notable  exceptions  among  selected  subgroups  of 
Hispanics  and  Asian/Pacific  Islanders,  minorities  are  substantially 
underrepresented  among  students  and  practitioners  of  virtually  all 
major  health  and  allied  health  professional  disciplines  (13). 
Most  minorities  receive  health  care  from  providers  who  do  not  share 
their  own  ethnic/cultural  background. 


191 


Minorities  are  also  underrepresented  in  research  and  teaching 
positions  in  health  sciences.   An  insufficient  number  of  role  models 
and  teachers  who  are  sensitive  to  the  training  needs  of  minorities  has 
a  negative  effect  upon  the  training  of  future  minority  health 
professionals . 

Although  data  are  limited  on  the  number,  distribution,  and  practice 
patterns  of  specific  minority  health  professionals,  current  information 
suggests  the  following: 

•  The  proportion  of  Blacks  among  health  professionals  is 
relatively  low  and  not  likely  to  change  appreciably  in  the  near 
future.   In  virtually  none  of  the  States  surveyed  for  this  report 
do  the  number  of  Black  graduates  of  medical,  dental,  or  pharmacy 
schools  even  approach  the  proportions  of  Blacks  in  the 
population.   If  the  number  of  Black  graduates  continues  to 

rise,  as  it  has  during  the  past  two  decades,  it  is  still 
unlikely  that  the  proportion  of  Black  professionals  will 
significantly  increase  in  the  near  future. 

•  Studying  the  distribution  of  health  professionals  within  the 
Hispanic  population  is  particularly  difficult  because  of  the 
various  subpopulations  in  this  group.   Nonetheless,  Mexican 
Americans  and  Puerto  Rican   living  in  the  U.S.  appear  to  be 
significantly  underrepresented  in  the  health  professions. 
Generally,  Hispanic  health  care  providers  are  unevenly  distributed 
among  Hispanic  communities. 

•  Asian/Pacific  Islanders,  as  a  group,  appear  to  be  dispropor- 
tionately overrepresented  among  health  professionals  in  training 
and  in  private  practice.   However,  data  for  identifying  the 
distribution  of  health  professionals  within  Asian/Pacific 
Islander  subgroups  are  not  readily  available  nor  are  data 
identifying  that  proportion  of  Asian/Pacific  Islander  health 
care  providers  which  cares  for  Asian/Pacific  Islander  patients. 

•  Many  American  Indians  and  Alaska  Natives  receive  health  care 
through  the  Indian  Health  Service,  a  health  delivery 
system  created  for  the  purpose  of  meeting  their  health  needs. 
The  IHS  is  attempting  to  make  greater  use  of  indigenous  health 
workers  and  to  tailor  services  more  closely  to  individual 
tribal  needs.   However,  for  American  Indians  and  Alaska  Natives 
not  living  on  or  near  reservations--nearly  two-thirds  of  the  total 
population- -the  scarcity  of  American  Indian  and  Alaska  Native 
health  providers  becomes  problematic  when  cultural  differences 
affect  access  to  care. 


192 


Health  Education  and  Information 

The  higher  rates  of  the  incidence  and  prevalence  of  certain 
health  conditions  for  minority  populations  is  a  compelling  reason  to 
identify  ways  in  which  the  health  status  of  minorities  can  be  improved 
through  health  education  interventions.   Data  have  clearly  illustrated 
that  each  of  the  six  priority  areas  that  contribute  significantly  to  the 
disparity  in  health  status  has  components  or  controllable  risk  factors 
that  are  amenable  to  health  education  efforts.   Such  factors  include 
the  use  of  tobacco,  the  maintenance  of  healthful  dietary  practices, 
and  the  management  of  stress  (14). 

Behavioral,  social,  cultural,  and  ethnic  variables  that  exist 
within  minority  populations  may  affect  the  delivery  of  health 
information  to  a  significant  degree  and  should  be  considered  when 
designing  a  health  education  intervention.   Although  some  similarities 
do  exist  within  a  minority  group  or  between  minority  groups, 
differences  in  such  aspects  as  educational  level,  socioeconomic 
status,  and  religion  should  be  examined  for  their  potential  impact  on 
the  design  and  implementation  of  a  health  education  program.   A  common 
characteristic  found  in  each  of  the  four  minority  groups  addressed  by 
the  Task  Force  is  the  important  role  played  by  the  family  in 
disseminating  health  information  and  in  providing  support  to  assist 
the  individual  in  complying  with  a  prescribed  health  action  (15).   It 
remains  difficult,  however,  to  identify  those  specific  behavioral 
and/or  cultural  variables  that  affect  health  behavior  within  each 
minority  population  because  of  the  limited  amount  of  research 
concerning  minority  health  beliefs,  attitudes,  and  practices. 
Clearly,  additional  data  are  needed  in  this  area  to  tailor  health 
education  programs  more  carefully  to  the  needs  of  minorities. 

Health  education  interventions  for  the  four  minority  groups 
identified  should  be  directed  at  improving  the  awareness  of 
individuals  and  communities  about  controllable  risk  factors  associated 
with  the  causes  of  excess  death  and  disability  (16).   Such  measures 
can  occur  in  a  number  of  settings--schools ,  worksites,  medical  care 
facilities,  and  communities.   Health  education  activities  should 
foster  the  development  of  lifestyles  that  maintain  and  enhance  the 
state  of  health  and  well-being  as  well  as  increase  public  and 
professional  awareness  of  risk  factors  that  affect  minority  health 
status . 

Variables  that  affect  the  development  and  implementation  of  a 
health  education  intervention  include  the  nature  of  the  target 
population,  the  types  of  interventions  available,  and  the  kinds  of 
outcomes  to  be  expected--health  or  otherwise  (17).   Above  all,  the 
educator  must  understand  the  critical  problems,  the  likely  delivery 
mechanisms,  and  the  strategies  for  implementation. 


193 


Specific  priority  health  behaviors,  among  the  most  important  in 
minority  populations  and  most  likely  to  be  affected  by  health 
education  interventions  include:   smoking,  diet  and  nutrition,  social 
support  behaviors,  exercise,  alcohol  and  drug  misuse,  maternal  and 
child  health  issues,  safety  issues,  stress  management,  sexually 
transmitted  diseases,  and  teenage  pregnancy. 

Because  so  many  factors  can  enhance  or  impede  the  effectiveness 
of  a  health  education  strategy,  it  is  important  to  consider  the 
factors  that  contribute  to  making  a  hef.lth  message  and  its 
dissemination  special  for  a  given  population.   Such  factors  might 
include  the  influence  of  community  leaders  and  groups,  the  community's 
attributes,  an  individual's  perception  of  barriers  to  care  and  to 
engaging  in  a  specific  health  action,  the  environment,  demographic 
parameters,  the  nature  of  the  innovation,  and  the  channels  available 
for  communication. 

Differences  in  health  status  underscore  the  importance  of 
providing  health  education  to  minority  populations;  however,  consensus 
has  not  been  reached  on  how  best  to  develop  health  education  programs 
and  strategies,  how  to  effect  change,  and  how  to  disseminate  these 
strategies.   Therefore,  efforts  need  to  be  expanded  or  initiated  to 
elucidate  those  factors  that  contribute  to  the  design,  implementation, 
and  diffusion  of  successful  health  education  interventions  in  all 
minority  populations  and  subgroups  in  the  United  States. 

Conclusion 

Differing  patterns  of  health  services'  utilization,  health 
insurance  coverage,  access  to  health  providers,  and  the  availability 
of  appropriate  health  education  materials  and  programs  contribute  to 
the  disparity  in  health  status  between  minority  and  nonminority 
groups.   Further  study  and  identification  of  specific  ways  to  improve 
minority  access  to  each  of  these  health  resources  is  essential  to 
improving  the  health  status  of  minority  groups  in  the  United  States . 


194 


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care  for  the  American  people.   (Special  report,  V.  Weisfeld, 
Ed.)  Princeton,  NJ:   The  Robert  Wood  Johnson  Foundation. 

8.  Trevino,  F. ,  &  Moss,  A.   (1983).   Health  insurance  coverage  and 

physician  visits  among  Hispanic  and  non-Hispanic  people.   In 
Health,  United  States,  1983.   (DHHS  Publication  No.  (PHS) 
84-1232).   Washington,  DC:   U.S.  Government  Printing  Office. 

9.  Wilinsky,  G.  R. ,  &  Walden,  D.  C.   (1981,  November).   Minorities, 

poverty,  and  the  uninsured.  Paper  presented  at  the  109th 
annual  meeting  of  the  American  Public  Health  Association, 
Los  Angeles,  CA. 

10.  Cafferata,  G.  L.   (1984).   National  health  care  expenditures' 

study.  Data  Preview  18:  Private  health  insurance 
coverage  of  the  Medicare  population  (DHHS  Publication 
No.  (PHS)  84-3362).   Washington,  DC:   National  Center  for 
Health  Services  Research. 


195 


11.  Muse,  D.,  &  Sawyer  D.   (1982,  April).   The  Medicare  and 

Medicaid  data  book,  1981.   Department  of  Health  and 
Human  Services,  Health  Care  Financing  Administration,  Office 
of  Research  and  Demonstrations.   Washington,  DC:   U.S. 
Government  Printing  Office. 

12.  Report  of  the  Working  Group  on  Health  Professionals.   (1985). 

Unpublished  manuscript.  Task  Force  on  Black  and  Minority  Health,  DHHS. 

13.  Bureau  of  Health  Professions.   (1984).   Minorities  and  women 

in  the  health  field,  1984  (DHHS  Publication  No  (HSRA) 

HRS-DV  84-5).   Washington,  DC:   U.S.  Department  of  Health  and 

Human  Services. 

14.  U.S.  Department  of  Health  and  Human  Services.   (1979).   Healthy 

people:  The  Surgeon  General's  report  on  health  promotion 

and  disease  prevention  (DHEW  (PHS)  Publication  No.  79-55071). 

Washington,  DC:   U.S.  Government  Printing  Office. 

15.  National  Heart,  Lung,  and  Blood  Institute.   (1984).   Development 

of  diffusion  strategies  among  culturally  diverse  populations 
(NIH  Publication  No.  84-2697).   Washington,  DC:   U.S.  Department 
of  Health  and  Human  Services. 

16.  Office  of  Disease  Prevention  and  Health  Promotion.   (1981). 

Strategies  for  promoting  health  for  specific  populations 
(DHHS  Publication  No.  (PHS)  81-50169).   Washington,  DC: 
U.S.  Department  of  Health  and  Human  Services. 

17.  Kolbe,  L. ,  &.   Iverson,  D.   (1984).   Comprehensive  school  health 

education  programs.   In  J.  D.  Matarazzo,  S.  M.  Weiss,  J.  A.  Herd, 
N.  E.  Miller,  &  S.  M.  Weiss  (Eds.),  Behavioral  health:  A  handbook 
of  health  enhancement  disease  prevention.   New  York,  NY: 
John  Wiley  and  Sons. 


196 


Inventory  of  DHHS 
Program  Efforts 

Survey  of  Nonfederal 
Organizations 


INVENTORY  OF  DHHS  PROGRAM  EFFORTS  IN  MINORITY  HEALTH 

An  inventory  of  Department  of  Health  and  Human  Services'  program 
efforts  in  minority  health  was  compiled  to  provide  the  Secretary  and 
the  Task  Force  with  a  comprehensive  description  of  all  programs, 
current  or  planned,  that  relate  specifically  to  minority  populations. 
This  information  was  used  by  the  Task  Force  in  the  recommendation 
development  process  to  ensure  that  the  suggested  activities  would 
provide  new  directions  to  existing  departmental  initiatives.   The 
inventory  also  will  be  useful  to  organizations  and  individuals 
actively  involved  with  minority  health  issues. 

The  inventory  obtained  information  from  the  following  agencies: 

Alcohol,  Drug  Abuse,  and  Mental  Health  Administration 

Centers  for  Disease  Control^ 

Food  and  Drug  Administration 

Health  Care  Financing  Administration  ^         . 

Health  Resources  and  Services  Administration  . 

National  Institutes  of  Health, 

Office  of  the  Assistant  Secretary  for  Health 

Office  for  Civil  Rights 

Office  of  the  Secretary  v 

Office  of  Human  Development  Services 

Social  Security  Administration. 

The  program  descriptions  were  based  on  those  data  maintained  in 
each  agency's  data  management  system;  they  varied  greatly  in  the 
amount  of  detail  provided.   Although  the  inventory  originally  was 
intended  to  identify  programs  that  focused  on  minority  populations 
specifically,  it  was  found  that  many  programs  benefitted  all 
populations,  including  minorities.   In  some  instances,  it  was  possible 
to  identify  the  extent  of  activities  targeted  to  minorities;  for 
others  it  was  difficult  to  separate  minority-specific  components  from 
the  overall  program.   It  is  important  to  note  that  this  compilation  of 
DHHS  programs  and  projects  represents  the  first  such  grouping  of 
departmental  activities  in  the  area  of  minority  health. 

Ouestionnaire  Development 

A  four-page  questionnaire  was  developed  requesting 
program- level  officers  to  indicate  whether  their  programs  addressed  the 
following  areas:   cancer;  cardiovascular  and  cerebrovascular  disease; 
diabetes;  arthritis  and  other  musculoskeletal  disorders;  nutrition; 
disease  and  disorders  of  the  eye;  infectious  diseases;  digestive 
disorders;  genetic  disorders;  infant  mortality  and  maternal  health; 
homicide,  suicide  and  unintentional  injuries;  chemical  dependency  and 
related  diseases;  mental  health  and  illness;  occupational  health; 
respiratory  diseases;  dental  health;  kidney  disorders;  or  some  other 
disorder . 


197 


Another  series  of  questions  requested  descriptions  of  programs 
and  how  each  program  addressed  minority  health  issues.   The  major 
classes  of  activity  were:   health  service  delivery,  research  and  data 
collection,  health  professions'  development,  and  health 
educat ion/ inf ormat ion  diss eminat ion . 

Overall,  the  questionnaire  attempted  to  gauge  the  extent  of 
existing  programs  that  addressed  the  minority  health  concerns. 

Data  Collection 

Inventory  questionnaires  were  distributed  to  the  major  components 
of  DHHS :   the  Assistant  Secretary  for  Health,  the  Assistant  Secretary 
for  Human  Development  Services,  the  Administrator  for  the  Health  Care 
Financing  Administration,  and  the  Commissioner  of  the  Social  Security 
Administration  who,  in  turn,  distributed  them  to  their  respective 
operating  divisions.   Instructions  were  provided  that  explained  the 
purpose  of  the  survey  and  the  required  information.   Meetings  were 
held  with  each  agency  contact  to  explain  the  nature  of  the  Task  Force 
and  answer  questions.   More  than  195  questionnaires  were  submitted  by 
the  agencies.   Each  questionnaire  was  reviewed  for  clarity  and 
completeness  by  Task  Force  staff. 

Data  Analysis  and  Reporting 

The  program  descriptions  reflect  the  broad  diversity  of  the 
programs  administered  by  DHHS.   Although  some  submissions  focus  on 
broad  research  issues  that,  by  their  very  nature,  included  minority 
health  issues,  others  focused  on  model  demonstration  programs  that 
target  specific  minority  groups.   To  preserve  the  richness  of  the 
descriptions,  no  attempt  was  made  to  combine  the  material  into  broader 
classifications . 

Index  of  DHHS  Programs 

The  index  that  follows  lists  either  agencies  or  institutional 
components  that  have  ongoing  or  planned  minority-related  initiatives. 
Complete  descriptions  of  every  program  appear  in  another  volume  of 
this  report.   The  office  address  and  telephone  number  of  each  program 
are  included  in  the  later  volume  so  that  future  users  may  readily 
obtain  additional  information. 


198 


ALCOHOL,  DRUG  ABUSE,  AND  MENTAL  HEALTH  ADMINISTRATION 
(ADAMHA) 

National  Institute  of  Alcohol  Abuse  and  Alcoholism: 
Division  of  Biometry  and  Epidemiology 
Black  and  Hispanic  Alcohol  Problems:   A  National  Study 

National  Institute  on  Drug  Abuse: 
National  Drug  Abuse  Media  Campaign 
Ethnic  Community  Initiative 
NIDA  Starter  Award 

Minority  Access  to  Research  Centers 

Prevention  of  Drug  Abuse  Among  Minority  Populations 
Treatment  of  Drug  Abuse  Among  Minority  Populations 
Ethnic  Minority  Family  Mobilization  Project 
Estimating  Mental  Health  Need 

National  Institute  of  Mental  Health: 
Prevention  Program 

Center  for  Studies  of  Mental  Health  of  the  Aging 
Center  for  Studies  of  Minority  Group  Mental  Health 
Center  for  Studies  of  Antisocial  and  Violent  Behavior 
Center  for  Prevention  Research 

Center  for  Mental  Health  Studies  of  Emergencies 
Center  for  Epidemiologic  Studies 
Mental  Health  Clinical  Research  Centers 
Research  Scientist  Development 
NIMH  Minority  Biomedical  Research  Support 
Clinical  Research  Branch 
Small  Grant  Program 
Psychosocial  Treatments  Research 

Child  and  Adolescent  Service  System  Program  (CAASP) 
Community  Support  Program 
National  Research  Service  Award 
Mental  Health  Clinical  Training 
National  Reporting  Program 

CENTERS  FOR  DISEASE  CONTROL  (CDC) 

Investigations  and  Technical  Assistance 

Injury  Prevention 

Occupational  Safety  and  Health  -  Training  Grants 

Occupational  Safety  and  Health  -  Research  Grants 

Childhood  Immunization  Grants 

Health  Programs  for  Refugees 

Venereal  Disease  Control  Grants 

Venereal  Disease  Research,  Demonstration,  and  Public  Information 

and  Education  Grants 
Project  Grants  and  Cooperative  Agreements  for  Tuberculosis  Control 

Programs 
Cooperative  Agreements  for  State-Based  Diabetes  Control  Programs 


199 


FOOD  AND   DRUG  ADMINISTRATION    (FDA) 

Food  Safety 

Nutrition 

Task  Force  to  Increase  Interaction  with  Minority  Health  Professional 

Schools 
Office  of  Consumer  Affairs  Communications 
Consumer  Affairs  Education  Program  (Field  Offices) 

HEALTH   CARE   FINANCING  ADMINISTRATION    (HCFA) 

Medicare 

End-Stage  Renal  Disease  Program 

Medicaid 

Research   and  Demonstration 

HEALTH    RESOURCES  AND   SERVICES  ADMINISTRATION    (HRSA) 

Indian  Health  Service 

Community  Health  Center  Program 

Black  Lung  Clinics 

Migrant  Health  Program 

National  Health  Service  Corps 

Home  Health  Services  Program 

National  Health  Service  Corps  Scholarship  Program 

Hansen's  Disease  Program 

Health  Careers  Opportunity  Program 

Advanced  Financial  Distress 

Nursing  Special  Project  Grants 

Professional  Nurse  Traineeship  Grant  Program 

Area  Health  Education  Centers 

Health  Professionals  Analytical  Studies  and  Reports 

Nurses  Midwifery  Office 

Contract  Health  Service 

NATIONAL  INSTITUTES  OF  HEALTH  (NIH) 

Division  of  Research  Resources: 
Animal  Resources  Program 
Biomedical  Research  Support  Program 
General  Clinical  Research  Centers  Program 
Biomedical  Research  Technology  Program 
Minority  Access  to  Research  Careers  Program  (MARC) 
Minority  Biomedical  Research  Support  Program  (MBRS) 

National  Cancer  Institute: 

Epidemiology  Research  Program 

Chemical  and  Physical  Carcinogenesis  Research  Program 

Biological  Carcinogenesis  Research  Program 

Nutrition  Research  Program 

Tumor  Biology  Research  Program 


200 


Immunology  Research  Program 
Diagnostic  Research  Program 
Preclinical  Treatment  Research  Program 
Clinical  Treatment  Research  Program 
Rehabilitation  Research  Program 
Comprehensive  Minority  Biomedical  Program 
Resource  Development  Activities 
Cancer  Control  Program 

National  Eye  Institute: 

Retinal  and  Choroidal  Diseases  Branch 
Strabismus,  Amblyopia,  and  Visual  Processing 
Intramural  Research  Program 
Anterior  Segment  Diseases  Branch 

National  Heart,  Lung,  and  Blood  Institute: 
Heart  and  Vascular  Diseases  Program 
Lung  Diseases  Program 
Blood  Diseases  and  Resources  Program 
Companion  Issues 

National  Institute  on  Aging: 
Behavioral  Sciences  Research 
Systolic  Hypertension  in  the  Elderly 
Public  Information  Office 

Epidemiology,  Demography,  and  Biometry  Program 
Gerontology  Research  Program 

National  Institute  of  Allergy  and  Infectious  Diseases: 
Microbiology  and  Infectious  Diseases  Program 
Immunology,  Allergic  and  Immunologic  Diseases  Program 

National  Institute  of  Arthritis,  Diabetes,  and  Digestive  and  Kidney  Diseases 
Arthritis,  Musculoskeletal,  and  Skin  Diseases 
Diabetes 

Digestive  Diseases  and  Nutrition 
Kidney,  Urologic,  and  Hematologic  Diseases 
Pima  Indian  Studies 

National  Institute  of  Child  Health  and  Human  Development: 
Center  for  Research  for  Mothers  and  Children 
Healthy  Mothers,  Healthy  Babies  Program 
Center  for  Population  Research 
Intramural  Program 

National  Institute  of  Dental  Research: 
Office  of  the  Director 
Extramural  Programs 


201 


National  Institute  of  General  Medical  Sciences: 
Pharmacological  Sciences  Program 

National  Institute  on  Neurological  and  Communicative  Disorders  and  Stroke: 
Travel  Fellowships  for  Minority  Neuroscientists 

Survey  of  Major  Neurological  Disorders  in  Copiah  County,  Mississippi 
Chronic  CNS  Disease  Studies:   Slow,  Latent,  and  Temperate  Virus  Infection 
Summer  Research  Fellowship  Program 

OFFICE  OF  THE  ASSISTANT  SECRETARY  FOR  HEALTH  (OASH) 

National  Center  for  Health  Statistics: 
National  Hospital  Discharge  Survey 
National  Health  and  Nutrition  Examination  Survey 
NHANES  I  Epidemiologic  Follow-up  Survey 
Hispanic  Health  and  Nutrition  Examination  Survey 
National  Medical  Care  Utilization  and  Expenditure  Survey 
National  Ambulatory  Medical  Care  Survey 
National  Nursing  Home  Survey 
National  Master  Facility  Inventory 
Vital  Statistics  Follow-back  Survey  Program 
National  Vital  Statistics  Program 
National  Survey  of  Family  Growth 
National  Health  Interview  Survey 

Office  of  Public  Affairs: 

Healthy  Mothers,  Healthy  Babies  Coalition 

Information  and  Education  on  Acquired  Immune  Deficiency  Syndrome 

Office  of  Disease  Prevention  and  Health  Promotion: 
National  Health  Promotion  Program 
National  Health  Information  Clearinghouse 
1990  Objectives  for  the  Nation  Initiative 
U.S.  Task  Force  on  Preventive  Services 

Office  of  Refugee  Health: 
Refugee  Preventive  Health 
Cuban/Haitian  Entrant  Program 
Health  Program  for  Refugees 

Office  of  Population  Affairs: 
Adolescent  Family  Life 
Office  of  Family  Planning 


202 


OFFICE  OF  THE  ASSISTANT  SECRETARY  FOR  HUMAN 
DEVELOPMENT  SERVICES  (HDS) 

Administration  for  Native  Americans 

Administration  for  Developmental  Disabilities 

Administration  for  Children,  Youth,  and  Families  (Head  Start) 

Coordinated  Discretionary  Funds  Program 

Administration  on  Aging 

Title  111  of  the  Older  Americans  Act  (Part  B  -  Nutrition  Services) 
Title  VI,  Older  Americans  Act,  Grants  to  Indian  Tribes  for  Supportive 
and  Nutrition  Services 

OFFICE  OF  THE  ASSISTANT  SECRETARY   FOR   PLANNING 
AND   EVALUATION    (ASPE) 

OFFICE   FOR   CIVIL  RIGHTS,    OFFICE  OF  THE   SECRETARY   (OCR) 

SOCIAL  SECURITY  ADMINISTRATION    (SSA) 

Health-Related  Programs 


203 


SURVEY  OF   NON-FEDERAL  ORGANIZATIONS 
Introduction 

The  Task  Force  conducted  a  nationwide  survey  of  approximately  300 
individuals  and  organizations  that  represent  health-specific 
professional,  scientific,  and  service  groups.   The  survey  was  intended 
to  elicit  information  on  ways  the  Department  might  improve  the  health 
status  of  minority  Americans . 

The  survey  asked  four  questions: 

(1)  From  the  perspective  of  your  organization  and  the  people  you 
represent,  what  are  the  three  most  critical  health  disparities 
between  minority  and  nonminority  Americans? 

(2)  For  the  disparities  you  identified,  what  appear  to  be  the  most 
significant  contributing  factors? 

(3)  Highlighting  specific  examples  known  to  your  organization, 
what  kinds  of  health  programs  in  the  minority  community  have 
been  most  successful?   What  has  been  the  key  element  of  that 
success? 

(4)  Within  the  confines  of  the  current  Department  of  Health  and 
Human  Services'  (DHHS)  programs  and  policies,  how  might  DHHS 
better  address  the  disparity  in  the  health  status  of  minority 
populations? 

The  following  represents  a  summary  of  the  125  survey  responses 
received  by  April,  1985. 

Summary  of  Responses 

The  plight  of  many  minority  people  in  need  of  health  care  is 
captured  in  this  excerpted  comment: 

"Preventive  care  is  often  a  luxury  that  time  rarely  affords 
minority  people.   One  is  inclined  to  ignore  a  cough,  a  lump  in  the 
breast,  or  even  an  advancing  pregnancy  when  the  demands  of  daily 
existence  are  overtaxing.   These  ceaseless  demands  for  employment, 
housing,  food,  clothing,  legal  help,  public  assistance,  etc.,  are 
sufficient  to  ensure  that  many  illnesses  or  conditions  reach  a 
critical  point  before  health  care  is  sought." 

Socioeconomic  issues  influencing  health  status  were  frequently 
cited  as  contributors  to  the  disparity.   These  included:   the 
prevalence  of  poverty  among  minority  groups,  low  income,  unemployment, 
lack  of  health  insurance,  and  inability  to  pay  deductibles  or 


205 


copayment  costs  of  insurance.   Another  aspect  mentioned  frequently  by 
respondents  was  the  reduction  in  Government  funding  for  health  care 
services  and  programs  for  minorities. 

Many  respondents  believe  that  the  major  health  disparities  could  be 
reduced  through  improved  access  to  health  care  services  and  programs. 
These  need  to  be  designed  and  operated  to  be  culturally  sensitive  to 
the  specific  minority  population  being  served.   The  types  of  services 
most  often  advocated  by  respondents  were  health  education  and 
disease  prevention  programs. 

Suggestions  for  improving  health  care  services  and  programs  for 
minorities  were: 

•  Continued  support  for  existing  successful  health  programs. 

•  Minority-specific  research  and  data  collection. 

•  Prevention  and  health  education  programs  that  incorporate 
bicultural/bilingual  services. 

•  Minority  participation  in  policy  development. 

•  Education  and  training  programs. 

•  Improved  access  to  health  care  through  modification  of  third- 

party  payer  systems . 

Specific  Issues 

From  the  perspective  of  your  organization  and  the  people  you 
represent,  what  are  the  three  most  critical  health 
disparities  between  minority  and  nonminority  Americans? 

For  the  disparities  you  identified,  what  appear  to  be  the 
most  significant  contributing  factors? 

The  responses  to  the  first  two  questions  are  reported  together 
because  of  the  linked  nature  of  the  majority  of  responses  received. 
The  most  critical  disparities  identified  by  the  respondents  were  in 
the  areas  of: 

•  Access  to  health  care. 

•  Chronic  diseases. 

•  Pregnancy  and  birth  disorders . 

•  Availability  of  data. 


206 


Access  to  Health  Care 

Problems  concerning  minority  access  to  health  care  cut  across  all 
responses.   Some  respondents  cited  access  to  health  services  as  a 
primary  disparity,  while  others  identified  access  as  a  secondary  issue 
or  a  contributing  facto:p  to  the  primary  disparities.   For  example, 
chronic  disease  conditions  were  often  mentioned  as  a  disparity; 
however,  access  to  proper  health  care  was  listed  as  a  strong 
contributor  to  the  prevalence  of  this  disparity. 


were: 


Two  major  areas  of  concern  in  health  care  access  for  minorities 

•  The  lack  of  certain  types  and  numbers  of  services  and  programs. 

•  Barriers  to  existing  services. 

In  addition,  the  need  for  generally  improved  access,  quality,  and 
utilization  of  services  such  as  primary  care,  screening,  detection, 
treatment,  follow-up,  and  public  (health)  education  programs  were 
frequently  cited.   Current  health  services'  research  and  promotion  were 
pinpointed  as  inappropriate  or  inadequate  for  identifying, 
communicating  with,  convening,  and  involving  minorities  through 
community-based  groups,  such  as:   schools,  churches.  Health 
Maintenance  Organizations  (HMOs),  worksites,  and  voluntary  health 
groups.   In  addition,  the  paucity  of  screening  and  health  education 
programs  was  identified  as  a  leading  cause  of  delayed  diagnosis  and 
the  poor  prognosis  for  medical  problems. 

Specific  problems  of  access  to  health  care  included: 

•  Lack  of  health  care  for  mothers  and  children. 

•  Lack  of  access  to  services  for  early  detection  of  diseases  such 
as  cancer,  hypertension,  and  diabetes  and  other  specialty  health 
care. 

•  Inability  of  non-English  speaking  people  to  use  freely  the  health 
care  system  because  of  language  and  cultural  barriers. 

•  Less  access  to,  and  inappropriate  use  of,  health  services. 

•  Poor  quality  of  health  care. 

•  Underutilization  of  existing  health  resources  because  of  a  lack 
of  knowledge  and  motivation. 

•  Lack  of  physicians  in  rural  areas. 


207 


•  Problems  with  health  care  facilities,  including  af fordability, 
location,  hours  of  operation,  and  transportation  to  and  from 
the  facilities. 

The  major  theme  of  these  responses  pointed  to  a  need  for  more 
health  education  programs  tailored  to  the  minority  group  being  served, 
on  the  following  issues:  prenatal  and  infant  care,  proper  nutrition 
and  weight  reduction,  management  of  chronic  illnesses,  family  planning 
and  sex  education,  and  alcohol  and  drug  abuse  counseling.  Respondents 
often  stressed  the  need  for  programs  that  emphasize  preventing  disease 
and  promoting  good  health  and  good  health  practices. 

Chronic  Diseases 

Hypertension  (high  blood  pressure),  cardiovascular  disease, 
cerebrovascular  disease,  cancer,  and  diabetes  were  most  often  cited  as 
specific  diseases  that  contribute  to  the  health  disparity.   Most 
respondents  believed  that,  if  adequate  screening  programs  were  available  and 
utilized,  more  chronic  diseases  experienced  by  minorities  could 
be  detected  early.   Respondents  also  believed  that  effective  patient 
education  and  follow-up  programs  would  help  to  reduce  illness  and  death. 

Pregnancy  and  Birth  Disorders 

Pregnancy-related  concerns  such  as  infant  mortality,  low 
birthweight  infants,  and  prenatal,  perinatal,  and  postnatal  care  were 
cited  by  many  respondents  as  major  issues. 

Access  to  proper  health  care  was  again  cited.   In  the  view  of 
most  respondents,  early  and  adequate  prenatal  care  and  counseling  is 
unavailable  or  underutilized  among  minority  populations.   Also,  access 
to  high  technology  techniques  was  seen  as  inadequate,  creating  a 
higher  incidence  of  complications  of  pregnancy  and  birth. 

Many  factors  that  contribute  to  pregnancy  and  birth  disorders  were 
believed  to  be  manageable  with  proper  access  to  appropriate,  adequate, 
and  early  care.   Such  care  includes  regular  prenatal  checkups, 
nutrition  counseling,  management  of  any  chronic  health  problems,  and 
postnatal  care  for  infants  and  mothers.   Access  to  family  planning 
services  was  often  mentioned  as  potentially  helpful  in  reducing  low 
birthweight  and  infant  mortality. 

Availability  of  Data 

Inadequacy  of  data  on  minorities  was  cited  as  a  major  barrier  to 
developing  effective  health  care  strategies  and  programs.   The  lack  of 
data  for  Hispanics  and  Asian/Pacific  Islanders  was  cited  most  often. 


208 


other  Disparities 

Respondents  noted  a  number  of  other  areas  of  disparity: 

•  Homicide,  suicide,  and  unintentional  injuries;  alcohol  and  drug 
abuse;  and  problems  related  to  stress. 

•  Inadequate  education. 

•  Poor  nutrition. 

•  Underrepresentation  of  minorities  in  the  health  professions. 

•  Problems  related  to  environment,  such  as  housing  and  unsanitary 
living  conditions. 

•  Discrimination,  deterioration  of  the  family  structure,  lack  of 
support  services  and  recreational  facilities,  and  low  self-esteem. 

The  quality  of  education  that  many  minorities  receive  and  their 
lower  educational  attainment  have  a  substantial  impact  on  their 
socioeconomic  status,  in  the  opinion  of  respondents.   Educational 
deficits  were  believed  to  be  caused  by  such  factors  as  insufficient 
parental  guidance,  lack  of  encouragement  to  achieve,  and  lack  of 
emphasis  on  education  in  general.   Low  educational  attainment  is  seen 
as  both  a  result  and  a  cause  of  low  socioeconomic  status . 

Poor  nutrition  was  cited  by  respondents  as  affecting  nearly  every 
aspect  of  health,  particularly  in  diseases  such  as  diabetes  and 
hypertension  and  in  relation  to  pregnancy  and  birth. 

Too  few  minorities  in  health  care  professions  was  mentioned  as 
contributing  to  the  cultural  insensitivity  that  is  said  to  exist  in 
many  health  care  facilities.   Factors  cited  for  underrepresentation 
include  a  lack  of  educational  opportunity  and  financial  and  political 
resources  for  training  of  minorities  in  health  care  professions. 

Environmental  concerns  expressed  by  respondents  included  inadequate 
housing,  unsanitary  and  unsafe  working  and  living  conditions,  exposure  to 
hazardous  chemicals  and  materials  in  the  worksite  and  in  homes,  and  the 
danger  of  lead  poisoning  in  children. 

Elements  of  Successful  Programs 

Highlighting  specific  examples  known  to  your  organization, 
what  kinds  of  health  programs  in  the  minority  community  have 
been  most  successful?  What  has  been  the  key  element  of  that 
success? 

Certain  common  elements  seemed  to  contribute  to  the  success  of  many 
health  programs  described  by  the  respondents.   These  key  elements  include: 


209 


•  Community  involvement  and  outreach. 

•  Program  focus  on  comprehensive  services,  including  disease 
prevention  and  health  promotion. 

•  Program  ability  to  improve  minority  access  to  health  services. 

•  Cultural  sensitivity  to  the  group  being  served. 

Examples  of  health  programs  that  have  been  successful  in  minority 
communities  included:   community  outreach;  hypertension  control; 
maternal  and  child  health  care;  family  planning;  health  education, 
promotion,  and  prevention;  bicultural  and  bilingual  health  care;  and 
Medicare  and  Medicaid.   In  general,  improved  access  to  medical  care 
was  cited  as  a  key  element  of  a  program's  success;  however,  success 
was  by  no  means  limited  to  this  element  alone. 

All  groups  representing  Blacks,  Hispanics,  Native  Americans,  and 
Asian/Pacific  Islanders  addressed  community-based  health  programs. 
They  cited  comprehensive  health  services,  such  as  dental  care,  social 
services,  public  health  education,  outreach,  and  prevention  programs, 
as  essential  components  to  community  health  programs.   The  key  element 
of  success  for  these  programs  was  that  they  were  accessible  and 
affordable.   Other  elements  of  success  for  community  health  programs 
included  cultural  sensitivity,  networking  with  other  agencies  in  the 
community,  and  control  of  health  programs  by  community  boards. 

Hypertension  Detection  and  Follow-up  Programs  and  maternal  and 
child  health  care  programs  were  regarded  as  successfully  demonstrating 
these  qualities. 

All  groups  emphasized  health  education,  promotion,  and  prevention 
programs  as  successes  in  minority  communities,  based  on  experience 
with  planning  and  delivery  of  services. 

All  groups  cited  Medicare  and  Medicaid  as  successful  programs. 
Respondents  attributed  success  to  improved  accessibility  and 
availability  of  quality  health  care  to  the  socioeconomically  deprived. 
Financial  assistance  and  Government  funding  were  also  perceived  as 
increasing  opportunities  for  minority  employment  in  the  health  care 
field;  otherwise,  such  employment  may  not  have  been  possible. 

Suggestions  for  Action 

Within  the  confines  of  the  current  Department  of  Health  and 
Human  Services  programs  and  policies,  how  might  DHHS  better 
address  the  disparity  in  health  status  of  minority 
populations? 


210 


Respondents  proposed  a  variety  of  specific  ways  that  DHHS  might 
better  address  disparities  in  health  status  of  minority  populations, 
including  the  following: 

•  Continue  to  support  or  fund  existing  health  programs  that  have 
been  successful. 

•  Improve  data  collection  and  interpretation  of  data  regarding 
specific  minority  groups. 

•  Direct  resources  to  prevention  activities  for  high-risk  minority 
populations . 

•  Increase  funding  for  health  education  programs  and  research  on 
health  disparities. 

•  Incorporate  bicultural/bilingual  services  into  health  programs. 

•  Network  with  private  medical  and  social  communities. 

•  Develop  public  education  programs  and  other  programs  encompassed 
by  the  1990  Objectives  for  the  Nation. 

•  Increase  minority  participation  in  policy  development,  education, 
and  training  programs,  thereby  increasing  equal  opportunity  for 
minorities . 

•  Increase  accessibility  to  quality  health  care. 

•  Encourage  third-party  payers  to  include  coverage  for  health 
promotion/disease  prevention. 

All  groups  recommended  that  DHHS  target  programs  to  populations 
and  geographic  areas  with  the  highest  rates  of  mortality  and 
morbidity.   They  placed  particular  emphasis  on  the  need  to  provide 
adequate  funding  for  health  education,  prevention,  and  research  for 
poor  and  minority  populations  and  to  support  minority  health  programs 
within  the  community. 

In  addition,  minority  groups  indicated  that  DHHS  might  address 
the  health  disparities  of  minority  populations  more  effectively  by 
making  appropriate  use  of  viable  and  successful  community  programs  and 
institutions,  including  families,  churches,  schools,  small  businesses, 
and  others . 

All  minorities  who  responded  to  the  survey  endorsed  minority 
participation  in  policy  development. 


211 


APPENDIX 


DEPARTMENT  OF  HEALTH  AND  HUMAN  SERVICES 
SECRETARY'S  TASK  FORCE  ON  BLACK  AND  MINORITY  HEALTH 

MEMBERS 


Thomas  E.  Malone,  Ph.D.,  Chairperson 

Deputy  Director 

National  Institutes  of  Health 

Wendy  Baldwin,  Ph.D. 

Chief,  Demographic  and  Behavioral  Sciences  Branch 

National  Institute  of  Child  Health  and  Human  Development 

Betty  Lou  Dotson,  J.D. 

Director 

Office  for  Civil  Rights 

Office  of  the  Secretary 

Manning  Feinleib,  M.D.,  Dr.P.H. 

Director 

National  Center  for  Health  Statistics 

William  T.  Friedewald,  M.D. 

Director,  Division  of  Epidemiology  and  Clinical  Applications 

National  Heart,  Lung,  and  Blood  Institute 

Robert  Graham,  M.D. 

Assistant  Surgeon  General 

Administrator 

Health  Resources  and  Services  Administration 

M.  Gene  Handelsman 

Deputy  Assistant  Secretary 

Office  of  Human  Development  Services 

Jane  E.  Henney,  M.D. 

Deputy  Director 

National  Cancer  Institute 

Donald  R.  Hopkins,  M.D. 

Deputy  Director 

Centers  for  Disease  Control 

Stephanie  Lee-Miller 

Assistant  Secretary  for  Public  Affairs 

Office  of  the  Secretary 


215 


Jaime  Manzano  (Served  until  August,  1984) 
Formerly,  Deputy  Assistant  Secretary 
Office  of  Human  Development  Services 

J.  Michael  McGinnis,  M.D. 

Assistant  Surgeon  General 

Deputy  Assistant  Secretary  for  Health 

Director,  Office  of  Disease  Prevention  and  Health  Promotion 

Office  of  the  Assistant  Secretary  for  Health 

Mark  Novitch,  M.D.  (Served  until  February,  1985) 
Formerly,  Deputy  Commissioner 
Food  and  Drug  Administration 

Clarice  D.  Reid,  M.D. 

National  Coordinator,  Sickle  Cell  Disease  Program 

Chief,  Sickle  Cell  Disease  Branch 

National  Heart,  Lung,  and  Blood  Institute 

Everett  R.  Rhoades ,  M.D. 

Director,  Indian  Health  Service 

Health  Resources  and  Services  Administration 

William  A.  Robinson,  M.D. ,  M.P.H. 

Deputy  Director,  Bureau  of  Health  Professions 

Health  Resources  and  Services  Administration 

James  L.  Scott  (Served  until  June,  1985) 
Formerly,  Acting  Deputy  Administrator 
Health  Care  Financing  Administration 

Robert  L.  Trachtenberg 

Deputy  Administrator 

Alcohol,  Drug  Abuse,  and  Mental  Health  Administration 

T.  Franklin  Williams,  M.D. 

Director 

National  Institute  on  Aging 


216 


ALTERNATES 


Shirley  P.  Bagley,  M.S. 

Assistant  Director  for  Special  Programs 

National  Institute  on  Aging 

Claudia  Baquet,  M.D.,  M.P.H. 
Program  Director,  Minority  Field  Program 
Division  of  Cancer  Prevention  and  Control 
National  Cancer  Institute 

Howard  M.  Bennett 

Associate  Deputy  Director,  Office  of  Management  and  Policy 

Office  for  Civil  Rights 

Office  of  the  Secretary 

Cheryl  Damberg,  M.P.H. 

Research  Fellow 

Office  of  Disease  Prevention  and  Health  Promotion 

Office  of  the  Assistant  Secretary  for  Health 

Mary  Ann  Danello,  Ph.D. 

Special  Assistant  to  the  Commissioner  for  Science 

Food  and  Drug  Administration 

Jacob  J.  Feldman,  Ph.D. 

Associate  Director  for  Analysis  and 

Epidemiology 
National  Center  for  Health  Statistics 

Marilyn  Gaston,  M.D. 

Deputy  Chief 

Sickle  Cell  Disease  Branch 

National  Heart,  Lung,  and  Blood  Institute 

George  Hardy,  M.D. 

Assistant  Director/Washington 

Centers  for  Disease  Control 

John  H.  Kelso 

Acting  Administrator 

Health  Resources  and  Services  Administration 

James  A.  Kissko 

Special  Assistant 

Office  of  Human  Development  Services 


217 


Robert  C.  Kreuzburg,  M.D. 

Acting  Associate  Director,  Office  of  Program  Operations 

Indian  Health  Service 

Health  Resources  and  Services  Administration 

Barbara  J.  Lake 

Special  Assistant  to  the  Director 

Office  for  Civil  Rights 

Office  of  the  Secretary 

Patricia  L.  Mackey,  J.D. 
Executive  Assistant  to  the  Director 
Office  for  Civil  Rights 
Office  of  the  Secretary 

Delores  Parron,  Ph.D. 

Associate  Director  for  Special  Populations 

Alcohol,  Drug  Abuse,  and  Mental  Health  Administration 

Gerald  H.  Payne,  M.D. 

Chief,  Prevention  and  Demonstration 

Research  Branch 
Division  of  Epidemiology  and  Clinical  Applications 
National  Heart,  Lung,  and  Blood  Institute 

Caroline  I .  Renter 
Office  of  Public  Affairs 
Office  of  the  Secretary 

Clay  Simpson,  Jr. ,  Ph.D. 

Director,  Division  of  Disadvantaged  Assistance 

Bureau  of  Health  Professions 

Health  Resources  and  Services  Administration 

Ronald  J.  Wylie 

Special  Assistant  to  the  Administrator 

Health  Care  Financing  Administration 


218 


SUBCOMMITTEES  OF  THE  SECRETARY'S  TASK   FORCE 
ON    BLACK  AND  MINORITY  HEALTH 

COORDINATING  COMMITTEE 

Thomas  E.  Malone,  Ph.D.,  Chairperson 

Deputy  Director 

National  Institutes  of  Health 

Eileen  M.  Collins 
Office  of  the  Secretary 

Jane  Delgado,  Ph.D. 

Special  Assistant  on  Minority  Affairs 

Office  of  the  Secretary 

Robert  Graham,  M.D. 

Assistant  Surgeon  General,  Administrator 

Health  Resources  and  Services  Administration 

Donald  R.  Hopkins,  M.D. 

Deputy  Director 

Centers  for  Disease  Control 

Stephanie  Lee-Miller 

Assistant  Secretary  for  Public  Affairs 

Office  of  the  Secretary 

Clarice  D.  Reid,  M.D. 

National  Coordinator,  Sickle  Cell  Disease  Program 

Chief,  Sickle  Cell  Disease  Branch,  National  Heart,  Lung,  and  Blood  Institute 

Caroline  I.  Reuter 
Office  of  Public  Affairs 
Office  of  the  Secretary 

James  Scott 

Formerly,  Acting  Deputy  Administrator 

Health  Care  Financing  Administration 

Patti  Birge  Tyson 

Executive  Assistant  to  the  Secretary 

Office  of  the  Secretary 

Ronald  J.  Wylie 

Special  Assistant  to  the  Administrator 

Health  Care  Financing  Administration 

Staff  Liaison: 

Katrina  W.  Johnson,  Ph.D. 

Study  Director,  Secretary's  Task  Force  on  Black  and  Minority  Health 


219 


SUBCOMMITTEE  ON  CANCER 


Jane  Henney,  M.D. ,  Chairperson 

Deputy  Director 

National  Cancer  Institute 

Claudia  Baquet,  M.D.,  M.P.H. 
Program  Director,  Minority  Field  Program 
Division  of  Cancer  Prevention  and  Control 
National  Cancer  Institute 

Cheryl  Damberg,  M.P.H. 

Research  Fellow 

Office  of  Disease  Prevention  and  Health  Promotion 

Office  of  the  Assistant  Secretary  for  Health 

Peter  Greenwald,  M.D. 

Director,  Division  of  Cancer  Prevention  and  Control 

National  Cancer  Institute 

J.  Michael  McGinnis ,  M.D. 

Assistant  Surgeon  General 

Deputy  Assistant  Secretary  for  Health 

Director,  Office  of  Disease  Prevention  and  Health  Promotion 

Office  of  the  Assistant  Secretary  for  Health 

Earl  Pollack,  Sc.D. 
Formerly,  Chief,  Biometry  Branch 
Division  of  Cancer  Prevention  and  Control 
National  Cancer  Institute 

William  Robinson,  M.D.,  M.P.H. 

Deputy  Director,  Bureau  of  Health  Professions 

Health  Resources  and  Services  Administration 

T.  Franklin  Williams,  M.D. 

Director 

National  Institute  on  Aging 

Staff  Liaison: 
Lemuel  Clark,  M.D. 


220 


SUBCOMMITTEE  ON  CARDIOVASCULAR  AND  CEREBROVASCULAR  DISEASES 


William  T.  Friedewald,  M.D. ,  Chairperson 

Director,  Division  of  Epidemiology  and  Clinical  Applications 

National  Heart,  Lung,  and  Blood  Institute 

Shirley  P.  Bagley,  M.S. 

Assistant  Director  for  Special  Programs 

National  Institute  on  Aging 

Howard  M.  Bennett 

Associate  Deputy  Director,  Office  of  Management  and  Policy 

Office  for  Civil  Rights 

Allan  L.  Forbes,  M.D. 

Director,  Office  of  Nutrition  and  Food  Sciences 

Food  and  Drug  Administration 

Lynn  A.  Lars  en,  Ph.D. 

Associate  Director  for  Program  Development 

Division  of  Nutrition,  Center  for  Food  Safety  and  Applied  Nutrition 

Food  and  Drug  Administration 

Mark  Novitch,  M.D. 

Formerly,  Deputy  Commissioner 

Food  and  Drug  Administration 

Paul  A.  Nutting,  M.D. 

Director,  Office  of  Primary  Care  Studies 

Health  Resources  and  Services  Administration 

Gerald  H.  Payne,  M.D. 

Chief,  Prevention  and  Demonstration  Research  Branch 

National  Heart,  Lung,  and  Blood  Institute 

Daniel  D.  Savage,  M.D. ,  Ph.D. 

Medical  Officer 

National  Center  for  Health  Statistics 

Ronald  J.  Wylie 

Special  Assistant  to  the  Administrator 

Health  Care  Financing  Administration 

T.  Franklin  Williams,  M.D. 

Director 

National  Institute  on  Aging 

Staff  Liaison: 
Donald  Buckner,  Ed.D. 
Valerie  Williams,  M.P.A. 


221 


SUBCOMMITTEE  ON  CHEMICAL  DEPENDENCY 


Mark  Novitch,  M.D.,  Chairperson 
Formerly,  Deputy  Commissioner 
Food  and  Drug  Administration 

Mary  Ann  Danello,  Ph.D.,  Acting  Chairperson 
Special  Assistant  to  the  Commissioner  for  Science 
Food  and  Drug  Administration 

Stuart  L.  Nightingale,  M.D. 
Associate  Commissioner 
Office  of  Health  Affairs 
Food  and  Drug  Administration 

Robert  G.  Niven,  M.D. 

Director,  National  Institute  on  Alcohol  and  Alcohol  Abuse 

Alcohol,  Drug  Abuse,  and  Mental  Health  Administration 

William  Pollin,  M.D. 

Director,  National  Institute  on  Drug  Abuse 

Alcohol,  Drug  Abuse,  and  Mental  Health  Administration 

Everett  Rhoades ,  M.D. 

Director,  Indian  Health  Service 

Health  Resources  and  Services  Administration 

Robert  Trachtenberg 

Deputy  Administrator 

Alcohol,  Drug  Abuse,  and  Mental  Health  Administration 

Ronald  J.  Wylie 

Special  Assistant  to  the  Administator 

Health  Care  Financing  Administration 

Staff  Liaison: 

Frank  Hamilton,  M.D. ,  M.P.H. 


222 


SUBCOMMITTEE  ON  DATA  DEVELOPMENT 


Robert  Graham,  M.D.,  Chairperson 

Assistant  Surgeon  General 

Administrator 

Health  Resources  and  Services  Administration 

Jane  Delgado,  Ph.D. 

Special  Assistant  on  Minority  Affairs 

Office  of  the  Secretary 

Manning  Feinleib,  M.D.,  Dr.P.H. 

Director 

National  Center  for  Health  Statistics 

Donald  Hopkins,  M.D. 

Deputy  Director 

Centers  for  Disease  Control 

Stephanie  Lee-Miller 

Assistant  Secretary  for  Public  Health 

Office  of  the  Secretary 

J.  Michael  McGinnis ,  M.D. 

Assistant  Surgeon  General 

Deputy  Assistant  Secretary  for  Health 

Director,  Office  of  Disease  Prevention  and  Health  Promotion 

Office  of  the  Secretary 

William  Robinson,  M.D. ,  M.P.H. 

Deputy  Director 

Bureau  of  Health  Professions 

Health  Resources  and  Services  Administration 

Staff  Liaison: 
Clifford  Patrick,  Ph.D. 


223 


SUBCOMMITTEE  ON   DIABETES 


T.  Franklin  Williams,  M.D.,  Chairperson 

Director 

National  Institute  on  Aging 

Shirley  P.  Bagley,  M.S. 

Assistant  Director  for  Special  Programs 

National  Institute  on  Aging 

Maureen  Harris,  Ph.D.,  M.P.H. 

Director,  National  Diabetes  Data  Group  Program 
National  Institute  of  Arthritis,  Diabetes,  and 
Digestive  and  Kidney  Diseases 

Robert  Kreuzburg,  M.D. 

Acting  Associate  Director,  Office  of  Program  Operations 

Indian  Health  Service 

Health  Resources  and  Services  Administration 

Lois  Lipsett,  Ph.D. 
Chief,  Special  Programs  Branch 
National  Institute  of  Arthritis,  Diabetes, 
Digestive  and  Kidney  Diseases 

Everett  Rhoades ,  M.D. 

Director,  Indian  Health  Service 

Health  Resources  and  Services  Administration 

Alex  Sabatini 

Senior  Operations  Research  Analyst 

Office  of  Human  Development  Services 

Robert  Silverman,  M.D.,  Ph.D. 
Chief,  Diabetes  Programs  Branch 
National  Institute  of  Arthritis,  Diabetes,  and 
Digestive  and  Kidney  Diseases 

Staff  Liaison: 

Frank  Hamilton,  M.D.,  M.P.H. 


224 


SUBCOMMITTEE  ON   HOMICIDE,    SUICIDE,   AND   UNINTENTIONAL   INJURIES 


Robert  Trachtenberg,  Chairperson 

Deputy  Administrator 

Alcohol,  Drug  Abuse,  and  Mental  Health  Administration 

Thomas  L.  Lai ley 

Deputy  Chief,  Center  for  Studies  of  Antisocial 

and  Violent  Behavior 
National  Institute  of  Mental  Health 

Stephanie  Lee-Miller 

Assistant  Secretary  for  Public  Affairs 

Office  of  the  Secretary 

Delores  Parron,  Ph.D. 

Associate  Director  for  Special  Populations 

Alcohol,  Drug  Abuse,  and  Mental  Health  Administration 

Clarice  D.  Reid,  M.D. 

National  Coordinator,  Sickle  Cell  Disease  Program 

Chief,  Sickle  Cell  Disease  Branch 

National  Heart,  Lung,  and  Blood  Institute 

Mark  L.  Rosenberg,  M.D.,  M.P.P. 
Chief,  Violence  Epidemiology  Branch 
Centers  for  Disease  Control 

Staff  Liaison: 

Marta  Sotomayor,  Ph.D. 

Lionel  Fernandez,  Ph.D. 


225 


SUBCOMMITTEE  ON    INFANT  MORTALITY  AND   LOW  BIRTHWEIGHT 


Wendy  Baldwin,  Ph.D.,  Chairperson 

Chief,  Demographic  and  Behavioral  Sciences  Branch 

National  Institute  of  Child  Health  and  Human  Development 

Marilyn  Gaston,  M.D. 

Deputy  Chief,  Sickle  Cell  Disease  Branch 

National  Heart,  Lung,  and  Blood  Institute 

Carol  Hogue,  Ph.D.,  M.P.H. 

Chief,  Pregnancy,  and  Epidemiology  Branch 

Centers  for  Disease  Control 

Vince  Hutchins,  M.D. 

Director,  Division  of  Maternal  and  Child  Health 

Health  Resources  and  Services  Administration 

Joel  Kleinman,  Ph.D. 

Director,  Division  of  Analysis 

National  Center  for  Health  Statistics 

Staff  Liaison: 
Herbert  Nickens,  M.D. 


226 


STAFF:      SECRETARY'S  TASK   FORCE  ON    BLACK  AND  MINORITY  HEALTH 


Katrina  W.    Johnson,    Ph.D.,    Study  Director 
Secretary   s   Task  Force  on  Black   and  Minority  Health 
National   Heart,    Lung,    and  Blood   Institute 

Donald  R.    Buckner,    Ed.D. 
National   Library  of  Medicine 

Gail  Jacoby 

National  Institute  of  Arthritis,  Diabetes,  and  Digestive 
and  Kidney  Diseases 

Clifford  H.  Patrick,  Ph.D. 
Social  Security  Administration 

Marta  Sotomayor,  Ph.D. 

National  Institute  of  Mental  Health 

Support  Staff 

Ruth  Guerrero 

Health  Resources  and  Services  Administration 

Sandra  N.  Howard 

National  Institutes  of  Health 

Ann  B .  Jones 

National  Heart,  Lung,  and  Blood  Institute 

Tracey  Palm 

National  Institute  on  Aging 


Pro  Tempore  Staff 

Allan  Cayous 

Indian  Health  Service  -  Portland  Area 

J.  David  Chananie,  Ph.D. 

U.S.  Merit  Systems  Protection  Board 

Lemuel  B.  Clark,  M.D. 

National  Institute  of  Mental  Health 

Theodore  0.  Cron 

Office  of  the  Assistant  Secretary  for  Health 


227 


Lionel  Fernandez,  Ph.D. 

Bureau  of  Health  Professions 

Health  Resources  and  Services  Administration 

Frank  A.  Hamilton,  M.D.,  M.P.H. 
Commissioned  Personnel  Operations  Division 
Office  of  the  Assistant  Secretary  for  Health 

Jessie  Hackes 

Office  of  the  Assistant  Secretary  for  Personnel  Administration 

Office  of  the  Secretary 

Robert  F.  Heil 

Health  Resources  and  Services  Administration 

Sonia  Milligan 

National  Library  of  Medicine 

Herbert  Nickens ,  M.D. 

Center  for  Studies  of  the  Mental  Health  of  the  Aging 

National  Institute  of  Mental  Health 

Amy  B.  Slonim,  R.D.,  Ph.D. 

Office  of  the  Assistant  Secretary  for  Planning  and  Evaluation 

Cleve  W.  Taylor 

Division  of  Management  Policy 

National  Institutes  of  Health 

Fu  Sing  Temple 

National  Institute  of  General  Medical  Services 

Valerie  N.  Williams,  M.P.A. 

Office  of  Health  Planning  and  Evaluation 

Office  of  the  Assistant  Secretary  for  Health 

Louise  H.  Yates 

Health  Resources  and  Services  Administration 

Pro  Tempore  Support  Staff 

Joselyn  Monroe 

Division  of  Administrative  Services 

National  Institutes  of  Health 

Zoraida  Villadiego 

National  Institutes  of  Health 


228 


PAPERS  COMMISSIONED   BY  THE  TASK   FORCE  ON    BLACK  AND  MINORITY 
HEALTH 


Relationship  of  Social  Class  to  Coronary  Disease  Risk  Factors  in 
Blacks:   Implications  of  Social  Mobility  for  Risk  Factor  Change 

Lucile  L.  Adams,  Ph.D.,  Epidemiologist,  University  of  Pittsburgh, 
Pittsburgh,  Pennsylvania 

Lewis  H.  Kuller,  M.D. ,  Professor  and  Chairman,  Department  of 
Epidemiology,  Graduate  School  of  Public  Health,  University  of 
Pittsburgh,  Pittsburgh,  Pennsylvania 

Ronald  E.  LaPorte,  Ph.D.,  Associate  Professor  of  Epidemiology, 
Department  of  Epidemiology,  Graduate  School  of  Public  Health, 
University  of  Pittsburgh,  Pittsburgh,  Pittsburgh,  Pennsylvania 

Laurence  0.  Watkins ,  M.D. ,  M.P.H.,  Assistant  Professor  of  Medicine, 
Section  of  Cardiology,  Department  of  Medicine,  Medical  College  of 
Georgia,  Augusta,  Georgia. 


Tapping  the  Black  Communities'  Endemic  Alcohol/Drug  Abuse  Prevention 
Resources 

Mary  Benjamin,  Ph.D. ,  Director,  Interdisciplinary  Alcohol/Drug 
Studies  Center,  Jackson  State  University,  Jackson,  Mississippi 

Betty  W.  Fletcher,  M.S.W.,  Associate  Director,  Research  Training, 
Interdisciplinary  Alcohol/Drug  Studies  Center,  Jackson  State 
University,  Jackson,  Mississippi 


Excess  and  Deficit  Mortality  Due  to  Selected  Causes  of  Death  and 
Their  Contribution  to  Differences  in  Life  Expectancy  of  Spanish- 
Surnamed  and  other  White  Males--1970  and  1980 

Benjamin  S.  Bradshaw,  Ph.D.,  Associate  Professor  of  Demography, 
University  of  Texas  Health  Science  Center  at  Houston,  School  of 
Public  Health,  Houston,  Texas 

W.  Parker  Frisbie,  University  of  Texas  at  Austin,  Population 
Research  Center,  Austin,  Texas 

Clayton  W.  Eifler,  University  of  Texas  at  Austin,  Population 
Research  Center,  Austin,  Texas 


229 


Patterns  and   Problems  of  Drinking  Among   U.S.    Hispanics 

Raul   Caetano,    Ph.D.,    Scientist,    Alcohol   Research  Group, 

Medical   Research   Institute  of   San  Francisco,    Berkeley,    California 


The  Effective  Approach   and  Managment  of  Diabetes   in   Black  and  other 
Minority  Groups 

John  Davidson,    M.D.,    Ph.D.,    Director,    Diabetic   Clinic,    Grady 
Memorial   Hospital,    Atlanta,    Georgia 


Increased   Prevalence  of  Diabetes  Among  Japanese  Americans  and  the 
Role  of  Environmental   Factors   in    Its  Genesis 

Wilfred  Fujimoto,    M.D. ,    Professor,    School   of  Medicine,    Metabolism, 
Endocrinology,    and  Nutrition,    Universiity  of  Washington,    Seattle, 
Washington 

Socioeconomic  Position  and  Minority  Health:      A  Summary  of  the  Evidence 

Mary  Haan,    M.P.H.,    Research   Scientist,    Berkeley,    California 

George  Kaplan,    Ph.D.,    Director   of  Human   Population  Laboratory, 
California  Department   of  Health   Services,    Berkeley,    California 

Family  Violence  and  Homicide  in  the  Black  Community--Are  They  Linked? 

Robert    L.    Hampton,    Ph.D.,    Associate   Professor   of    Sociology, 
Connecticut    College,    New   London,    Connecticut 

Longitudinal-Situational  Approaches  to  Understanding   Black-on-Black 
Homicide 

Darnell   Hawkins,    Ph.D.,    J.D.,    Associate   Professor   of   Sociology, 
University  of  North  Carolina,    Chapel   Hill,    North  Carolina 


Associations  of  Health   Problems  with   Ethnic  Groups  as   Reflected   in 
Ambulatory  Care  Visits 

M.    Alfred  Haynes ,    M.D. ,    President/Dean,    Charles   R.    Drew 
Postgraduate  Medical    School,    Los   Angeles,    California 


230 


Differences   in   Socioeconomic  Status  and  Acculturation  Among  Mexican 
Americans  and   Risk  of  Cardiovascular  Disease 

Helen  P.  Hazuda,  Ph.D.,  Assistant  Professor,  University  of  Texas 
Health  Science  Center,  San  Antonio,  Texas 


Prevalence  and   Incidence  of  Ischemic  Heart  Disease  in   United  States' 
Black  and  White  Populations 

Melford  James  Henderson,  M.A. ,  M.P.H.,  Association  of  Black 
Cardiologists,  Cardiovascular  Research  Fellow,  Bethesda,  Maryland 


Research   Needs:      Prevention  and   Intervention   Strategies 

Leo  Hendricks,  Ph.D.,  Associate  Professor  and  Director  of  Research, 
Institute  of  Urban  Affairs  and  Research,  Howard  University, 
Washington,  D.C. 


Expression  of  Diabetes  Mellitus   in   Black  Americans:      Genetic, 
Epidemiological,    and  Therapeutic  Aspects 

W.  Lester  Henry,  Jr.,  M.D.,  Professor  of  Medicine,  Howard 
University,  Washington  D.C. 

Juanita  A.  ArcI'L^r,  M.D.  ,  Associate  Professor  of  Medicine,  Howard 
University,  Was'  ■ip.-,ton,  D.C. 


A   Review  of  Drinking  Patterns  and  Alcohol   Problems  Among  U.S.    Blacks 

Denise  Herd,  M.A. ,  Scientist,  Alcohol  Research  Group,  Epidemiology 
and  Behavioral  Medicine,  Medical  Research  Institute  of  San 
Francisco,  Berkeley,  California 

Comprehensive  Model  to  Detect,   Assess,   and  Treat  Effects  of  Assaultive 
Violence  in   Hospital   Populations 

Karil  Klingbeil,  M.S.W.,  Director,  Social  Work  Department, 
Assistant  Professor  of  Social  Work,  University  of  Washington, 
Harborview  Medical  Center,  Seattle,  Washington 


Stroke  Report 

Lewis  H.  Kuller,  M.D.,  Professor  and  Chairman,  Department  of 
Epidemiology,  Graduate  School  of  Public  Health,  University  of 
Pittsburgh,  Pennsylvania 


231 


• 


Nutritional  Status  and  Dietary  Patterns  of  Racial  Minorities  in  the 
United  States 

Shiriki  K.    Kumanyika,    Ph.D.,    M.P.H.,    Assistant   Professor,    Department 
of  Epidemiology,    Johns   Hopkins   University,    School   of  Hygiene   and 
Public  Health,    Baltimore,    Maryland 

Deborah  L.    Helitzer,    Doctoral   Candidate,    Department   of 
International   Health,    Johns   Hopkins   University,    Baltimore,    Maryland 


Ischemic  Heart  Disease   Risk   Factors   in   Black  Americans 

Ischemic  Heart  Disease  Risk   Factors   in   Hispanic  Americans 

Ischemic  Heart  Disease  Risk   Factors   in  American    Indians  and  Alaska 
Natives 

Ischemic  Heart  Disease   Risk   Factors   in  Asian/Pacific   Islanders 

Shiriki   K.    Kumanyika,    Ph.D.,    M.P.H.,    Assistant   Professor,    Department 
of  Epidemiology,    Johns   Hopkins   University,    School   of  Hygiene   and 
Public  Health,    Baltimore,    Maryland 

Changes   in  the  Criminal   Homicide  Rate  of  American    Indians  for  the 
City  of  Los  Angeles:      1970-79 

The  Relative  Risks  of  Types  of  Homicide  Among  Anglo,    Hispanic,    Black, 
and  Asian   Victims   in   Los  Angeles:      1970-79 

Fred  Loya,    Ph.D.,    University  of  California,    Los   Angeles,    The 
Neuropsychiatric   Institute,    Los   Angeles,    California 

The  Black   Female  Criminal   Homicide  Offender  in  the  United  States 

Cora  Mann,    Ph.D.,    Associate   Professor,    School   of   Criminology, 
Florida   State  Univeristy,    Tallahassee,    Florida 


Analyses  Commissioned  by  The  Task   Force  on   Black  and  Minority  Health: 
Excess  Deaths   1979-81,    Excess  Deaths   1969-71,      Health    Interview  Survey, 
Excess  Deaths   in   Hispanic   Populations,    1979-81,    Person-Years  of 
Life  Lost,    Life  Expectancy  by  Cause  of  Death 

Kenneth   G.    Manton,    Ph.D.,    Research  Professor   of  Demographic 
Studies,    Duke  University,    Durham,    North  Carolina 


232 


Violence,   an  Epidemic;   A   Possible  Approach:     Neighborhood-Based, 
Interdisciplinary,   Comprehensive  Health  Care 

Robert  McGovern,    M.D.,    Professor  of  Pediatrics,    Director,    Division 
of  Ambulatory  Pediatrics,    Southwestern  Medical   School,    The 
University  of  Texas   Health   Science  Center   at  Dallas,    Dallas,    Texas 


Evaluation  of  Interventions  to  Reduce  Racial   Disparities   in   Infant 
Mortality 

Health    Insurance  Coverage  of  Perinatal  Care  for  Minority  Women 

Review  of  Interventions  to  Reduce  Racial   Disparities  in   Infant 
Mortality 

Case  Studies  of  Selected   Interventions:    Limitations  and   Recommendations 
for   Improving   Infant  Mortality   Intervention  Data  for  Minorities 

Margaret   McManus ,    M.P.H.,    Director,    McManus   Health  Policy,    Inc. 
Washington,    D.C. 


Coronary  Heart  Disease  in   Black   Populations:      Current  Research, 
Treatment,   and  Prevention   Needs 

Hector  F.    Myers,    Ph.D.,    Associate  Professor  of   Psychology, 
University  of   Los   Angeles,    Scholar-In-Residence,    Charles  Drew 
Postgraduate  Medical    School,    Los   Angeles,    California 


Interdisciplinary  Interventions  Applicable  to  Prevention  of  Interpersonal 
Violence  and  Homicide  in   Black  Youth 

Deborah  Prothrow-Stith,    M.D. ,    Assistant   Professor   of  Medicine,    Boston 
Univeristy,    Boston  City  Hospital,    Boston,    Massachusetts 

The  Escalating   Incidence  of  Homicide  in  the  Nation's  Black 
Communities--Can  We   Intervene? 

Harold  Rose,    Ph.D.,    Department   of  Urban  Affairs,    University  of 
Wisconsin,    Milwaukee,   Wisconsin 


233 


Analysis  of  Research   Data  on  Trends  and  Differentials   in   Infant 
Mortality  and   Low  Birthweight  for  Black,   White,    Hispanic,   Asian,   and 
American    Indian   Populations 

Barbara   Samuels,    M.D. ,    Research  Fellow,    Department   of  Maternal   and 
Child  Health,    University  of  North  Carolina,    Chapel   Hill,    North 
Carolina 


Survival  of  High-Risk  Minority   Infants  in   Los  Angeles  County 

Robert   Schlegel,    M.D. ,    M.P.H.,    Professor   and  Chair,    Department 
of  Pediatrics,    King-Drew  Medical   Center,    Palos   Verdes    Peninsula, 
California 


Racial   Variations  in  Self-Assessed  Health   and  Socioeconomic  Status 
in  the  1976  Survey  of  Income  and  Education   (SIE) 

William  Serow,    Ph.D.,    Professor   of  Economics,    Florida   State 
University,    Tallahassee,    Florida 

David   Sly,    Ph.D.,    Professor  of   Sociology,    Florida   State  University, 
Tallahassee,    Florida 


Minority  Dental   Health  Manpower  and  Trends 

Jeanne   Sinkford,    D.D.S.,    Ph.D.,    Dean  and  Professor,    College  of 
Dentistry,    Howard  University,    Washington,    D.C. 


Factors   Relating  to  the   Increased   Prevalence  of  Diabetes   in   Hispanic 
Americans 

Michael    Stern,    M.D. ,    Professor  of  Medicine,    University  of  Texas 
Health   Science   Center,    San  Antonio,    Texas 


Interviewing  Persons  Hospitalized  with    interpersonal   Violence-Related 
Injuries:      A   Pilot  Study 

Burnet   Sumner,    Ph.D. ,    Assistant   Clinical   Professor,    Department   of 
Surgery,    University  of  California   at   San  Francisco,    San  Francisco, 
California 


234 


Health   Care  Service  Delivery  in  Asian  American  Communities 

Reiko  True,  Ph.D.,  Deputy  Director,  City  and  Council  of  San 
Francisco  Community  Mental  Health  Services,  San  Francisco, 
California 


Gang  Homicide  in   Los  Angeles 

Luis  A.  Vargas,  Ph.D.,  Clinical  Psychologist,  Children's  Psychiatric 
Hospital,  University  of  New  Mexico,  Albuquerque,  New  Mexico 


Bibliography  of  Prematurity,    Low  Birthweight,   and   Infant  Mortality 

Analyses  of  Scientific  Articles  of  Prematurity,    Low  Birthweight, 
and    Infant  Mortality 

Adrianna  Wesley,  Consultant,  Centers  for  Disease  Control,  Atlanta, 
Georgia 


Behavioral  Weight  Control  for  Obese  Patients  with  Type   II   Diabetes 

Rena  Wing,  Ph.D.,  Associate  Professor  of  Psychiatry,  Western 
Psychiatry  Clinical  Institute,  Pittsburgh,  Pennsylvania 


Asian-White  Mortality  Differences:      Are  there  Excess  Deaths? 

Elena  S.  H.  Yu,  Ph.D.,  Associate  Professor  of  Sociology 

in  Psychiatry,  Pacific/Asian  American  Mental  Health  Research 

Center,  University  of  Illinois  at  Chicago,  Chicago,  Illinois 

Ching-Fu  Chang,  M.S.,  Graduate  Research  Assistant,  Department  of 
Sociology,  Pacific/Asian  American  Mental  Health  Research  Center, 
University  of  Illinois  at  Chicago,  Chicago,  Illinois 

William  T.  Liu,  Ph.D.,  Professor  of  Sociology  and  Director,  Pacific/ 
Asian  American  Mental  Health  Research  Center,  University  of  Illinois 
at  Chicago,  Chicago,  Illinois 

Stephen  H.  Kan,  Ph.D.,  Research  Associate,  Pacific/Asian  American 
Mental  Health  Research  Center,  University  of  Illinois  at  Chicago, 
Chicago,  Illinois 


235 


Physical  and  Mental  Health  Status  Indicators  for  Asian/Pacific  Americans 

Elena  S.  H.  Yu,  Ph.D.,  Associate  Professor  of  Sociology  in 
Psychiatry,  Pacific/Asian  American  Mental  Health  Research 
Center,  University  of  Illinois  at  Chicago,  Chicago,  Illinois 

William  T.  Liu,  Ph.D.,  Professor  of  Sociology  and  Director,  Pacific/ 
Asian  American  Mental  Health  Research  Center,  University  of  Illinois 
at  Chicago,  Chicago,  Illinois 

Paul  Kurzeja,  M.A. ,  Graduate  Research  Assistant,  Pacific/Asian  American 
Mental  Health  Research  Center,  University  of  Illinois  at  Chicago, 
Chicago,  Illinois 


236 


ACKNOWLEDGMENTS 


Numerous  individuals  assisted  the  Task  Force  on  Black  and 
Minority  Health  and  greatly  enriched  its  efforts.   They  delivered 
presentations,  contributed  information,  assisted  the  Subcommittees, 
and  provided  data  bearing  on  the  complex  social  and  scientific  issues 
that  were  being  explored  by  the  Task  Force.   They  were  generous  with 
their  time  and  thoughtful  in  sharing  their  perspectives  on  the  diverse 
problems  that  were  under  consideration.   The  Task  Force  wishes  to 
express  its  grateful  thanks  to  the  following  persons: 


Edgar  Adams 

Sylvia  T.  Aguirre 

Loran  Archer 

Remy  Aronoff 

Michael  Backenheimer ,  Ph.D. 

Marianne  Balin 

Linda  E.  Bass 

Sam  Bell,  M.D. 

Marge  Betts 

Ann  Blank en 

William  Blot,  Ph.D. 

Ben  Bradshaw,  Ph.D. 

Donna  Breslyn 

James  Buechler,  M.D. 

James  Carlos 

Ronald  H.  Carlson 

Vivian  Chang,  M.D. 

Vivian  Chen 

James  Chin,  M.D. 

Edward  Chow,  M.D. 

Effie  Chow,  Ph.D.,  R.N. ,  C.A. 

C.S.  Chung,  Ph.D. 

Roger  B.  Cole 

Beverly  Coleman-Miller,  M.D. 

Clark  Collins 

John  Cooper  II,  Ph.D. 

Blake  C.  Crawford 

Gregory  Curt,  M.D. 

Charles  Darby 

William  A.  Darity,  Ph.D. 

Fred  Deer 

Tinamarie  Dixon 

Vernon  Dixon,  M.D. 

Pamela  Dobson 

Leonard  A.  Drabek 

Thomas  Drury,  Ph.D. 

Susan  Eddins 


Frances  C.  Edmonds,  Ph.D. 

Winston  Edwards 

Frank  E.  Ellis,  M.D. 

Marcia  R.  Feinleib 

Lorraine  Ferguson 

Ed  Fernandez 

Phyllis  Flatery 

John  Florez 

William  Foege,  M.D. 

Jane  Lin-Fu,  M.D. 

Vivian  Garrison,  Ph.D. 

George  Gay 

Aida  Giachello 

Richard  F.  Gillum,  M.D. 

Joseph  Gfroerer 

Dorothy  Gohdes ,  M.D. 

Patricia  M.  Golden 

Marta  Gonzalez 

Frederick  K.  Goodwin,  M.D. 

Aaron  Handler 

M.  Alfred  Haynes ,  M.D. 

Suzanne  Haynes,  Ph.D. 

Brenda  Hewitt 

Robert  Hoover,  M.D. 

Bettie  Hudson 

Deborah  A.  Hunter 

Suzanne  Hurd,  Ph.D. 

Aeolian  Jackson,  D.S.W. 

Jerome  Jaffee,  M.D. 

Earl  Johnson 

Elaine  M.  Johnson 

Wilbert  Jordan,  M.D. 

JoAnn  Kauffman,  M.P.H. 

Samuel  W.  Kessel,  M.D. 

Brian  Kimes,  Ph.D. 

Patricia  Knapp 

Marilyn  Kunzweiler,  M.P.H. 


237 


Timothy  Larkin 

William  Lassek,  M.D. 

Harry  Lee,  M.D. 

Joseph  Levitt 

Helen  Lin 

Francine  Little 

William  T.  Liu,  Ph.D. 

Janice  Louie 

Diana  Makuc,  Ph.D. 

Ann  C.  Maney,  Ph.D. 

Dorothy  H.  Mann 

James  Marks,  M.D. 

Russell  Mason 

Nampeo  McKenney 

Michael  McMullan 

Arnold  Mills 

J.  Henry  Montes 

Edward  J.  Montminy,  M.D. 

John  H.  Moore,  Ph.D. 

Hal ley  Morgan,  M.D. 

Marcella  Murphy 

Robert  Murphy 

Melvin  Myers 

Audrea  Nora,  M.D. 

John  Nut  ley 

Vincent  Oliverio,  Ph.D. 

Virginia  Ono 

Joan  Weibel-Orlando,  Ph.D. 

Charlene  Ortiz,  M.D. 

Kathy  Owens 

Yuko  Palesch 

Albert  Pawlowski,  Ph.D. 

Nancy  Pearce 

David  Pearl,  Ph.D. 

Robert  C.  Peterson 

Mitchell  B.  Pierre,  Jr. 

Elisabeth  Pitt,  M.A. 

Kate  Prager,  Ph.D. 

Amelie  G.  Ramirez 

George  A.  Reich,  M.D. 

Diane  Resnikov 

Y.B.  Rhee,  M.D. 

Knut  Ringen,  Dr.P.H. 


Norma  R.  Rivera 

Roger  Rochat,  M.D. 

Harry  Rosenberg,  Ph.D. 

Ruben  G .  Rumbaut 

David  Satcher,  M.D. 

Lynne  Schneider 

Clarissa  Scott,  Ph.D. 

Don  Shopland 

A.  Logan  Slagle 

Betsy  Slay 

Richard  J.  Smith  III 

Matthew  Snipp,  Ph.D. 

Ernell  Spratley 

Howard  V.  Stambler 

Deborah  B.  Prothrow-Stith,  M.D. 

Louis  Sullivan,  M.D. 

Leonora  Surosky 

Carol  Sussman 

Leonard  Syme,  Ph.D. 

Caroline  Taplin 

Stephen  P.  Teret ,  J.D. 

James  Thompson,  M.D.,  M.P.H. 

Mary  Thorngreen 

Diana  Torres 

Fernando  Trevino,  Ph.D. 

Robert  Trotter,  Ph.D. 

Henrietta  Villaescusa 

Sylvia  Villarreal,  M.D. 

Mary  Virts 

Tom  Voskuhl 

Monica  Walters 

Ed  Watkins 

Laurence  0.  Watkins,  M.D.,  M.P.H. 

Hazel  Weidman,  Ph.D. 

Sheridan  Weinstein,  M.D. 

Nola  Whitfield 

Stacey  L.  Williams 

Jerome  Wilson 

Ronald  W.  Wilson 

Kathryn  Wimsatt 

Diane  Wysowski,  Ph.D. 

John  Young,  Ph.D. 


238 


KEY  TO  ABBREVIATIONS 


ADAMHA  Alcohol,  Drug  Abuse  and  Mental  Health  Administration 

CDC  Centers  for  Disease  Control 

COSSMHO  National  Coalition  of  Hispanic  Mental  Health  and  Human 

Services  Organizations 

DHHS  Department  of  Health  and  Human  Services 

FDA  Food  and  Drug  Administration 

HANES  Health  and  Nutrition  Examination  Survey 

HCFA  Health  Care  Financing  Administration 

HRSA  Health  Resources  and  Services  Administration 

IHS  Indian  Health  Service 

LULAC  League  of  United  Latin  American  Citizens 

NAACP  National  Association  for  the  Advancement  of  Colored  People 

NCHS  National  Center  for  Health  Statistics 

NCHSR  National  Center  for  Health  Services  Research 

NIH  National  Institutes  of  Health 

NIAAA  National  Institute  on  Alcohol  Abuse  and  Alcoholism 

NIDA  National  Institute  on  Drug  Abuse 

NIMH  National  Institute  of  Mental  Health 

CASH  Office  of  the  Assistant  Secretary  for  Health 

ODPHP  Office  of  Disease  Prevention  and  Health  Promotion 

OHDS  Office  of  Human  Development  Services 

0MB  Executive  Office  of  the  President/Office  of  Management 

and  Budget 

OS  Office  of  the  Secretary 

PHS  Public  Health  Service 

SSA  Social  Security  Administration 


239 


li  U-S.  GOVERNMENT  PRINTINQ  OFFICE: 


1989  -  211-280  -  814/05306 


DEPARTMENT  OF 
HEALTH  AND  HUMAN  SERVICES 

WASHINGTON,  D.C.   20201 


OFFICIAL  BUSINESS 
PENALTY  FOR  PRIVATE  USE,  $300 


POSTAGE  AND  FEES  PAID 

U.S.  DEPARTMENT  OF  H.H.S. 

391